Maine
Grant program offers Maine caregivers a lifeline
Kristy Basso sets a timer for 25 minutes any time she does a chore outside her West Paris home. As the primary caregiver for her 77-year-old mother, who has dementia, Basso is worried about leaving her mom alone for too long.
Earlier this year, when two of her five children, who are both in the military, were going to be stationed in the same place at the same time, Basso wanted to take a rare vacation. But she had to “jump through hoops” to find a caregiver who could watch her mom, Kathleen Parsons. That was only her second overnight trip since 2020.
With assistance from a pilot grant program called Respite for ME, Basso can now pay a caregiver to spend three hours with her mom every other week.
Although participants in Respite for ME say the program provides a welcome breather, it’s set to end on Sept. 30, and it will be up to the legislature to decide whether to permanently fund it.
“I’m kind of dreading that because I won’t be able to have someone come in anymore and I’ll just be more tired,” Basso said.
Respite for ME was funded through Gov. Janet Mills’ Maine Jobs & Recovery Plan, using $5.1 million in American Rescue Plan funds, and began enrolling caregivers in October 2022. The two-year program offers grants up to $5,171 to those providing care to a loved one at home.
In addition to paying for temporary caregivers, the funds can be used for counseling, training, financial guidance and assistive technology.
At least 23 nursing homes in Maine have closed over the past decade, and concerns about the quality of care at assisted-living facilities have grown.
As the state’s population — the oldest in the nation — continues to age, the responsibility to care for older adults could increasingly fall on family caregivers.
The Alzheimer’s Association estimates that 51,000 caregivers in the state provided 87 million hours of unpaid care last year, valued at $1.9 billion.
Drew Wyman, executive director of the Maine chapter of the Alzheimer’s Association, said caring for loved ones with dementia comes with an extra emotional toll.
“You don’t know what you’re going to get when you’re dealing with someone with cognitive decline,” he said. “And the bulk of this caregiving in Maine falls on family members.”
Taking care of yourself
Dr. Susan Wehry, who directs AgingME, a geriatrics workforce enhancement program at the University of New England, said data has shown that respite care is “vital.” She applauded Maine for giving participants a lot of latitude in how the respite dollars can be spent, noting that limiting grants to medical needs isn’t as effective.
“One of the self-defeating beliefs is ‘nobody can take as good of care of my husband as I can,’ ” Wehry said. “While that may or may not be true, it is also true that if you don’t take care of yourself, you won’t be able to take care of him for long, either.”
A state-funded respite program for low-income Mainers who care for someone with Alzheimer’s or dementia has been in effect for decades.
Respite for ME was intended to expand the program to include people caring for individuals over 60; those caring for people of any age with dementia; and those caring for adults with disabilities.
Relatives over age 55 who provide care to someone else’s children are also eligible. There is no income criteria, but the caregiver must not be getting paid for the care and must have suffered economic hardship because of the COVID-19 pandemic.
The grants are administered by the state’s five nonprofit areas on aging, including SeniorsPlus in western Maine.
Betsy Sawyer-Manter, president and CEO of SeniorsPlus, said she hopes to see the program continue, noting that those providing in-home care deserve support.
“This is a huge undertaking and with the continual growth of the older Mainer population as well as grandparents providing kinship care, it is vital for these unsung heroes,” she said.
So far, 1,072 participants have received a total of more than $2.3 million, according to the Department of Health and Human Services. An initial report published after the first year of the program found that three-quarters of the recipients at the time identified as women and 63 percent made less than $35,000 a year.
The labor of caregiving
After her mom was diagnosed with Alzheimer’s disease in 2017, Basso eventually gave up her job as a private-duty nurse to care for her full-time.
Her family doesn’t qualify for any of the state’s income-based waivers, so Basso provides the care without compensation. She said she’s fortunate to have income from her husband’s job: “If I was a single mom, I wouldn’t be able to do this at all.”
A recent survey of Maine caregivers found that more than half reported that caregiving was somewhat or very much a financial strain, and nearly 60 percent took time off work, went in late or left early to provide care.
A progress report on the Respite for ME program’s first year found that the funds improved the mental health of participating family caregivers. Half of them reported lower burden scores. High stress scores decreased 7 percent; high depression scores decreased 9 percent; high financial strain decreased 13 percent; and negative impacts on job performance decreased 16 percent.
In addition to some respite care, Basso has used the grant money to buy her mom a bidet, a handrail for the stairs and a bench for the shower.
Basso, who was a nurse for 20 years and worked in dementia wards of nursing homes, said her mom would qualify for a nursing home, but neither of them wanted that. Her mom also worked as a nurse and had made it clear she didn’t want to end up in a nursing home.
“While working in a nursing home, you’re always doing the best that you can. However, you end up having more patients than you can care for as well as you want to,” Basso said. “As a nurse, you have 30 people on your floor that you’re responsible for, and I know that my mother just wouldn’t thrive in an environment like that.”
She said she’s fortunate to have the skills and knowledge to care for her mom, but said there are times she loses patience and has to walk away for a moment. It’s like caring for a child, Basso said, but in reverse.
“I do it because I love her. She’s always loved me and it’s the best that I can do for her,” Basso said. “But it doesn’t mean that it’s easy.”
As nursing homes close, Basso expects more families will care for loved ones at home, which she worries could lead to more elder abuse and neglect. People who don’t have a background in caregiving may get frustrated more easily and lash out, she said.
Basso said there should be more resources so people understand how to deal with certain behaviors.
A survey by the Alzheimer’s Association found that two-thirds of dementia caregivers reported difficulty finding resources and support, Wyman said.
The organization offers a free 24-7 hotline (800-272-3900) staffed by clinicians and specialists that provides support and information for family caregivers, as well as free training sessions and virtual support groups.
Wehry said there’s been a recent shift in caregiver training to focus more on dementia-related behaviors and how to understand them. Her training program at UNE emphasizes the notion of “respite with, not respite from,” which means creating opportunities for caregivers to take a break with their loved one, such as eating at a “dementia-friendly restaurant.”
If society were more accepting of people with dementia, she believes, that would lessen the demand on family caregivers and reduce the need for respite services.
“There will be those times where you need a break. That’s OK,” Wehry said. “But a healthier society would be where you need fewer of those breaks because you’d be able to have a good life with the people that you’re supporting.”
Maine
Planned Parenthood says requests for birth control spiked in Maine after Trump election
Planned Parenthood of Northern New England says requests for long-acting reversible contraceptives have nearly doubled at its clinics since the Nov. 5 election that resulted in Republicans gaining control of U.S. Congress and the White House.
In the week after the election, Planned Parenthood of Northern New England received 215 appointment requests for long-acting contraceptives, including birth control implants and intrauterine devices, at its clinics in Maine, New Hampshire and Vermont, almost twice as much as its normal weekly bookings of 111. In Maine, bookings went from an average of 26 weekly appointments to 48 in the week after the election.
While President-elect Donald Trump has said he would not support a national abortion plan, reproductive rights advocates have doubted that he would refuse to sign such a bill.
Advocates have also raised concerns that the Trump administration will restrict access to reproductive health services and could try to use a 19th century law – the Comstock Act – to forbid shipping mifepristone, the abortion pill, across state lines – a claim Trump denied during the campaign.
Abortion rights advocates also warned that a Trump administration could also make it more difficult to access contraceptives.
Almost all Republican politicians are anti-abortion, and starting in January Republicans will control all levers of the federal government, with the presidency, both houses of Congress and the U.S. Supreme Court’s conservative majority.
Nicole Clegg, CEO of Planned Parenthood of Northern New England, said in a statement that “our patients are worried.”
“They are concerned that they may not be able to access the care they need or make the best choices for their health,” Clegg said. “Election outcomes shouldn’t have this type of impact on people’s lives. People shouldn’t wake up one morning and find that getting the method of birth control they want or need is now out of their hands. These are personal decisions and shouldn’t be subject to political whims.”
The Supreme Court in 2022 reversed Roe v. Wade, leaving decisions about whether abortion is legal up to the states. While Maine passed laws increasing access to abortion, 21 states either banned abortion outright or placed strict restrictions on abortion care.
The first Trump administration, which ran from 2017-2020, instituted a gag order on what abortion clinics could say about abortion care to their patients, resulting in a cut in federal funding to Planned Parenthood.
In addition to the interest in long-acting contraceptives, the number of vasectomy consultations, 26 in the first two weeks of November, had already surpassed Planned Parenthood of Northern New England’s monthly average of 23.
Also, Planned Parenthood has experienced an increase in patients reaching out about the potential for reduced access to gender-affirming care during the Trump administration, although there was no data released about an increase in these concerns.
This story will be updated.
Maine
Key takeaways from Maine’s new climate action plan
The Maine Climate Council is scheduled to release the state’s new climate action plan on Thursday, delivering an ambitious blueprint for how policymakers can accelerate the state’s transition to a clean energy economy and prepare for the impacts of climate change.
The plan, approved by the council at its October meeting, builds on the state’s original 2020 plan, Maine Won’t Wait. But the updated version focuses more than its predecessor on adaptations to the changing climate, building and industrial energy efficiency, and ensuring that all Mainers benefit from the climate actions outlined in the plan.
The plan doesn’t include many specific cost estimates, but notes that the cost of doing nothing would be much higher. It cites the $90 million in public infrastructure damage caused by last winter’s back-to-back storms, the kind of extreme weather events projected to become more frequent and ferocious due to climate change.
The report identifies potential sources of funding to implement its recommendations, including the state budget, federal grants from the Inflation Reduction Act, private investment in clean energy projects, green bonds to finance climate-related projects and even implementation of a carbon pricing mechanism.
The plan now heads to Gov. Janet Mills, who appointed the first Maine Climate Council and will be on hand Thursday for the report’s release, and the Legislature, which is likely to consider some of these proposals in the upcoming legislative session.
Here are the major takeaways of Maine Won’t Wait 2.0.
• Maine’s ambitious emission reduction goals are reaffirmed.
The updated plan lays out how the state can help prevent the Earth from overheating by sticking to its original greenhouse gas goals: cut carbon emissions by 45% from 1990 levels by 2030 and by 80% by 2050, and achieve carbon neutrality by 2045.
• The plan prioritizes the rapid expansion of renewable energy sources, such as solar, wind, and hydropower, with an aim to reduce the state’s reliance on burning fossil fuels that create heat-trapping greenhouse gases.
It also maintains the state’s previous goal to generate 80% electricity from renewable sources by 2030. Maine is at 55% now.
• Maine will continue to promote the widespread adoption of electric vehicles, including cars, trucks and buses, to reduce transportation-related emissions. But the shift to electrified transportation would occur at a slower pace than laid out in the first climate action plan.
The state’s new goal calls for 150,000 light-duty EVs and 3,000 heavy-duty EVs on the roads by 2030. The 2020 plan called for 219,000 light-duty and 5,000 heavy-duty EVs, but the state has fallen short of those goals. Maine currently has 17,492 electric vehicles.
To reduce “range anxiety” – the concern that there is not enough charging capacity to support longe trips – the plan calls for creating 700 publicly funded fast-charging EV ports by 2028. Maine now has 273.
• The new plan emphasizes efficiency measures in buildings and industries to cut energy consumption. It encourages clean heating and cooling methods, such as a heat pump system, and adoption of new building codes and efficiency standards.
New goals include reducing commercial building energy demand by 10% by 2030, improving industrial process efficiency by 1% a year by 2030 and weatherizing 35,000 homes by 2030. Maine has weatherized 11,472 to date.
• While calling for measures to slow climate change, the plan also emphasizes the need to prepare for the inevitable impacts, including sea-level rise, extreme weather events, and coastal erosion, and the need to protect critical infrastructure, natural resources and communities.
It includes strategies to protect Maine’s coastal communities and the working waterfront from sea-level rise and storm surges, such as elevating infrastructure, restoring coastal ecosystems, the use of incentives and fast-track permits, and new flood control measures.
• The plan promotes carbon sequestration as part of the solution by recognizing the key role of Maine forests, wetlands and eel grass beds in trapping carbon and keeping the greenhouse gas out of the atmosphere. It promotes the purchase, protection and restoration of such carbon sinks.
• Equity and social justice will be factored into the state’s responses to climate change. The plan emphasizes the importance of ensuring that the benefits of climate action are shared across all communities in Maine and addresses the disproportionate impact of climate change on marginalized communities.
The plan includes a number of goals to achieve by 2030, including 40,000 heat pumps installed in low-income households, 10,000 low- to middle-income homes weatherized and the creation of 1,500 energy-efficient affordable housing units. It also calls for EV rebates, rooftop solar installations or community solar projects and resilience grants to be directed to less affluent households and communities.
• The plan identifies opportunities to create green jobs to spark economic growth through investments in clean energy, energy efficiency and climate resilience.
It sets a new goal to create 30,000 clean energy jobs by 2030. Maine has 15,557 now.
• More forests, wetlands and working farms would be protected from development to offset the state’s carbon emissions, provide wildlife habitat and clean water, and help the tourism and natural resource industries. Maine has struggled to fund land acquisition at the rate sought by the council.
The plan maintains the 2020 goal to conserve 30% of Maine lands by 2030. A little more than 22.2% of lands in Maine are protected now. Maine now conserves about 50,000 acres a year, but would need to protect 250,000 more acres a year if it hopes to hit that goal.
Maine
Report says children's mental health, education and labor force growth will impact Maine's economy
In it’s annual report released Wednesday, the Maine Economic Growth Council identified children’s mental health, education and labor force growth as several challenge areas facing Maine’s economy. The council said high housing and energy costs are also concerns.
The annual Measures of Growth report identifies where the Maine economy is improving and where there is still more work to do compared to other states across the country.
Yellow Light Breen, President of the Maine Development Foundation, a public-private organization focused on improving Maine’s economy, said the drop in elementary and middle school students test scores are most concerning to him.
“If we really want to have well educated 20-year-olds, 30-year-olds and 40-year-olds in the Maine of the future, we have to do right by them in preschool and in early elementary,” Breen said.
According to the report, the state is doing well in the areas of internet connectivity, improved roadways and limited increases in greenhouse gas emissions and forestland removal.
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