Milwaukee, WI
'We want them to know what they went through' Milwaukee school honors local family after tragic loss
MILWAUKEE — A local school dedicated its baseball field in honor of two children who died after being diagnosed with a rare disease.
On Saturday, TMJ4 News was there as the University School of Milwaukee (USM) renamed its baseball field Bridger and Essex Grebe Field.
Both passed away, in 2010 and 2015 respectively, after being diagnosed with Infantile Neuroaxonal Dystrophy (INAD). INAD is a rare, inherited neurological disorder that causes progressive loss of vision, muscular control, and mental skills.
“When our sons were first diagnosed, we didn’t know what it was,” said Kelly Grebe.
Ryan Jenkins
For the past 14 years, Michael and Kelly Grebe, the parents of Bridger and Essex, have been raising money to fund the search for a cure by hosting an annual charity softball tournament. To date, the family has raised nearly $800,000 to help fund the search for a cure for INAD, which affects roughly just 150 kids worldwide.
“The more people that we can make aware of this rare disease, the more hope we have of finding someone who wants to step up and fund a cure,” said Kelly Grebe.
While no cure has been identified yet, researchers are working towards starting gene therapy trials. That progress has inspired many who have joined the Gebe’s on the quest for a cure.
Ryan Jenkins
“They’ve been doing a softball event for several years and we wanted them to come home here to USM,” said Steve Hancock, USM’s Head of Schools. He spoke Saturday at the unveiling of Bridger and Essex Grebe Field. “It’s not just Grebe Field because we want people to remember Bridger and Essex. We want them to know what they went through, the disease that they fought and our hope for a cure and so by having their name on the field for everyone to see, we’re hoping that for generations in the future, we’ll be able to tell this story for them.”
It’s an extra special moment for the Grebes. Their family has attended the institution for generations and Michael and their two sons, Griffin and Tripp, have been part of the USM baseball team.
“University School and the baseball program mean an awful lot to me, to our sons, to our family and to have Bridger and Essex recognized this way means an awful lot to me and I hope it can mean something to the kids who can look up and there and see their names up there for years to come,” said Michael Grebe.
A home run for a family fighting for a cure.
To learn more about the Bridger & Essex Grebe Fund and the race to fund and find a cure for INAD, click here.
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Milwaukee, WI
How Milwaukee Riverkeeper Broke a World Record
BY ALEXANDRA G STAHL AND AMRITA THAKKAR
Every year, Milwaukee Riverkeeper organizes one of the biggest volunteer-led cleanups in the city – a gargantuan effort that has Milwaukeeans out in droves to clean up the Milwaukee, Menomonee and Kinnickinnic rivers after the first of the spring rains. The science-based advocacy organization works for clean, swimmable, fishable and drinkable water in the Milwaukee River Basin year-round, but April is their biggest push, as they set up what is likely the largest volunteer-led event in the state.
For their 31st annual cleanup on April 25, however, the Riverkeepers had a goal that dwarfed every previous year – they wanted to break the world record for the world’s biggest river cleanup. With 124 clean-up sites this year (versus last year’s 100), they were confident that they had a good chance at the title.
It’s time to pick your Milwaukee favorites for the year!
“The people’s power is something pretty spectacular,” says Jennifer Bolger Breceda, executive director of Milwaukee Riverkeeper. “Our spring cleanup is really kind of a kickoff of spring to a lot of people. We have a lot of nuisance pollution in Milwaukee because of our winters, and the snow covers up a lot of the trash for a significant period of time. When it melts it becomes pretty noticeable, so it’s a perfect time to get out there and do the cleanup.”
Tru Earth, the presenting sponsor of the cleanup, originally approached Riverkeeper with the idea of breaking a world record, aiming to see if the title already existed or if they could create one. The organizations reached out to Guinness World Records, and it turned out there was already an existing world record for “Most Participants in a River Clean-up (multiple locations).” The record had previously been set at a cleanup of the Taff River in the United Kingdom, with 1,327 participants.
But applying to break the record was the easy part – once Guinness was on board, the real work began. The record had to be judged against the previous record, and it had to be done exactly the same way.
“We had to train more volunteers to support our other volunteers, to watch, witness and adjudicate them,” explains Bolger Breceda. “We also had an adjudicator from Guinness present on the day of the event.”
The extra layer caused some logistical challenges. While previous events were more casual, with volunteers showing up in their own time, Riverkeeper requested that volunteers show up early this year so everyone could start at 9 a.m. Every site captain was added to a text message chain, so that all sites started work at the same time.
The event drew over 4,923 volunteers and ended up with approximately 111,452 pounds of trash collected. While Guinness only counted 2,082 people due to their own adjudication standards, it still easily surpassed the previous record.
While Riverkeeper called for pre-registrations well in advance so they could organize for supplies, Bolger Breceda says that they didn’t put in any extra effort into recruiting the record-breaking number. “With the flooding and the rains a couple weeks before the clean-up, as well as the storm last August, people really wanted to clean up the river,” she explains. “There was a lot of trash, debris and litter, and the demand to clean, so to speak, was high.”
As always, the clean-up resulted in a number of strange finds – three toilets, two mattresses, five fire extinguishers, 39 tires, 11 construction barrels, six construction signs, six shopping carts, a golf bag with clubs and even a wheelchair.
The record was announced at Rock the Green at the Harley-Davidson Museum later that day. “It was a lot of work, but it was worth it to put Milwaukee on the map,” says Bolger Breceda.
Milwaukee, WI
Milwaukee’s Festival of Flowers returns for second year with new additions
MILWAUKEE — Milwaukee’s Festival of Flowers is returning to Riverwalk Commons at the Milwaukee Public Market this Saturday, running from 11 a.m. to 3 p.m.
The free event features a flower market with vendors selling fresh flowers, art, and handmade goods, along with live music on the Riverwalk Common stage.
Milwaukee Public Market
A new floral art installation from Botanical Collective will also be on display, serving as a photo opportunity for attendees. The installation builds on a similar display from last year’s event.
WATCH: Milwaukee’s Festival of Flowers returns for a second year with new additions
Milwaukee’s Festival of Flowers returns for second year with new additions
“So things that you might have seen last year are absolutely coming back. We have free live music on the Riverwalk Common stage. We have a flower market with vendors selling fresh flowers, art, handmade goods, all of that really fun stuff. Then we also have Botanical Collective last year made this beautiful floral art installation that also acted as a photo op. This year it’s going to look a little different, so we’re really excited to see what they put together,” said Paige Hammond with the Milwaukee Public Market.
Milwaukee Public Market
Also new this year, the festival will kick off with a free yoga class at 11 a.m. Attendees are asked to bring their own mat.
This story was reported on-air by a journalist and has been converted to this platform with the assistance of AI. Our editorial team verifies all reporting on all platforms for fairness and accuracy.
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Hey there! At TMJ4 News, we’re all about listening to our audience and tackling the stuff that really matters to you. Got a story idea, tip, or just want to chat about this piece? Hit us up using the form below. For more ways to get in touch, head over to tmj4.com/tips.
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Milwaukee, WI
VIDEO: Celebrating Milwaukee, LIVE at Anodyne (Feat. Dan Shafer, Kristin Brey, Angela Lang and special guests) – Civic Media
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