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Government Science Data May Soon Be Hidden. They’re Racing to Copy It.

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Government Science Data May Soon Be Hidden. They’re Racing to Copy It.

Amid the torrent of executive orders signed by President Trump were directives that affect the language on government web pages and the public’s access to government data touching on climate change, the environment, energy and public health.

In the past two months, hundreds of terabytes of digital resources analyzing data have been taken off government websites, and more are feared to be at risk of deletion. While in many cases the underlying data still exists, the tools that make it possible for the public and researchers to use that data have been removed.

But now, hundreds of volunteers are working to collect and download as much government data as possible and to recreate the digital tools that allow the public to access that information.

So far, volunteers working on a project called Public Environmental Data Partners have retrieved more than 100 data sets that were removed from government sites, and they have a growing list of 300 more they hope to preserve.

It echoes efforts that began in 2017, during Mr. Trump’s first term, when volunteers downloaded as much climate, environmental, energy and public health data as possible because they feared its fate under a president who has called climate change a hoax.

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Little federal information disappeared then. But this time is different. And so, too, is the response.

“We should not be in this position where the Trump administration can literally take down every government website if it wants to,” said Gretchen Gehrke, an environmental scientist who helped found the Environmental Data and Governance Initiative in 2017 to conserve federal data. “We’re not prepared for having resilient public information in the digital age and we need to be.”

While a lot of data generated by agencies, like climate measurements collected by the National Oceanic and Atmospheric Administration, is required by Congress, the digital tools that allow the public to view that data are not.

“This is a campaign to remove public access,” said Jessie Mahr, the director of technology at the Environmental Policy Innovation Center, a member group of the data partnership. “And at the end of the day, American taxpayers paid for these tools.”

The Public Environmental Data Partners coalition has received frequent requests for two data tools: the Climate and Economic Justice Screening Tool, or CEJST, and the Environmental Justice Screening Tool, or EJScreen.

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The first was developed under a Biden administration initiative to make sure that 40 percent of federal climate and infrastructure investments to go to disadvantaged communities. It was taken offline in January. EJScreen, developed under the Obama administration and once available through the E.P.A, was removed in early February.

“The very first thing across the executive branch was to remove references to equity and environmental justice and to remove equity tools from all agencies,” Dr. Gehrke said. “It really impairs the public’s ability to demonstrate structural racism and its disproportionate impacts on communities of color.”

Just a dozen years ago, the E.P.A. defined environmental justice as “the fair treatment and meaningful involvement of all people regardless of race, color, national origin, or income.” The E.P.A.’s new administrator, Lee Zeldin, recently equated environmental justice to “forced discrimination.”

Nonprofit organizations used both screening tools to apply for federal grants related to environmental justice and climate change. But the E.P.A. closed all of its environmental justice offices last week, ending three decades of work to mitigate the effects on poor and minority communities often disproportionately burdened by industrial pollution. It also canceled hundreds of grants already promised to nonprofit groups trying to improve conditions in those communities.

“You can’t possibly solve a problem until you can articulate it, so it was an important source of data for articulating the problem,” said Harriet Festing, executive director of the nonprofit group Anthropocene Alliance.

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Christina Gosnell, co-founder and president of Catalyst Cooperative, a member of the environmental data cooperative, said her main concern was not that the data won’t be archived before it disappears, but that it won’t be updated.

Preserving the current data sets is the first step, but they could become irrelevant if data collection stops, she said.

More than 100 tribal nations, cities, and nonprofits used CEJST to show where and why their communities needed trees, which can reduce urban heat, and then applied for funds from the Arbor Day Foundation, a nonprofit organization that received a $75 million grant from the Inflation Reduction Action. The Arbor Day Foundation was on track to plant over a quarter of a million new trees before its grant was terminated in February.

How hard it is to reproduce complex tools depends on how the data was created and maintained. CEJST was “open source,” meaning the raw data and information that backed it up were already publicly accessible for coders and researchers. It was put back together by three people within 24 hours, according to Ms. Mahr.

But EJScreen was not an open source tool, and recreating it was more complicated.

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“We put a lot of pressure on the last weeks of the Biden administration to make EJScreen open source, so they released as much code and documentation as they could,” Dr. Gehrke said.

It took at least seven people more than three weeks to make a version of EJScreen that was close to its original functionality, and Ms. Mahr said they’re still tinkering with it. It’s akin to recreating a recipe with an ingredient list but no assembly instructions. Software engineers have to try and remember how the “dish” tasted last time, and then use trial and error to reassemble it from memory.

Now, the coalition is working to conserve even more complicated data sets, like climate data from NOAA, which hosts many petabytes — think a thousand terabytes, or more than a million gigabytes — of weather observations and climate models in its archives.

“People may not understand just how much data that is,” Dr. Gehrke said in an email. It could cost hundreds of thousands of dollars per month just in storage fees, she said, without including the cost of any sort of access. She said they were talking to NOAA personnel to prioritize the most vulnerable and highest impact data to preserve as soon as possible.

So far, the data they’ve collected is largely stored in the cloud and backed up using servers around the globe; they’ve worked out pro bono agreements to avoid having to pay to back it up.

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Some data have, so far, been left alone, like statistics from the Energy Information Administration, among other agencies. Zane Selvans, a fellow co-founder of Catalyst Cooperative said the group had worked for the past eight years to aggregate U.S. energy system data and research in the form of open source tools. The goal is to increase access to federal data that is technically available but not necessarily easy to use.

“So far we’ve been lucky,” Mr. Selvans said. “Folks working on environmental justice haven’t been as lucky.”

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How Zone Zero, designed to protect California homes from wildfire, became plagued with controversy and delays

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How Zone Zero, designed to protect California homes from wildfire, became plagued with controversy and delays

Late last month, California fire officials made a courtesy call to Los Angeles.

The state’s proposed Zone Zero regulations that would force homeowners to create an ember-resistant zone around their houses — initially planned to take effect nearly three years ago — had caused an uproar in the region. It was time for damage control.

Officials from both Cal Fire and the state’s Board of Forestry and Fire Protection visited Brentwood, the epicenter of the outrage, and Altadena, where homeowners are trying to figure out how best to rebuild, but did little to assuage the concerns of the Zone Zero proposals’ most vocal critics.

The two groups took turns pointing out homes that seemed to support their claims. The copious, contradictory anecdotal evidence provided no consensus for a path forward. For example, in the Eaton burn area, officials showed residents a home they claimed was spared thanks to its removal of vegetation near the home, but residents noted a home across the street with plenty of plants that also survived.

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It was an example of what’s become an interminable debate about what should be required of homeowners in L.A.’s fire-prone areas to limit the destruction of future conflagrations.

Initial attempts by the board to create Zone Zero regulations, as required by a 2020 law, quietly fizzled out after fire officials and experts struggled to agree on how to navigate a lack of authoritative evidence for what strategies actually help protect a home — and what was reasonable to ask of residents.

The Jan. 1, 2023, deadline to create the regulations came and went with little fanfare. A month after the January fires, however, Gov. Gavin Newsom signed an executive order resurrecting the efforts and ordering the board to finish the regulations by the end of the year. As the board attempted to restart and speed-run the previous efforts through a series of public meetings, many Californians grew alarmed. They felt the draft Zone Zero requirements — which would be the strictest statewide defensible space rules on the books — were a step too far.

“The science tells us it doesn’t make sense, but they’re ignoring it because they have to come up with something,” said Thelma Waxman, president of the Brentwood Homeowners Assn.,who is working to certify neighborhoods in her area as fire safe. “If I’m going to go to my members and say, ‘OK, you need to spend $5,000 doing one thing to protect your home,’ it’s not going to be to remove hydrated vegetation.”

Instead, she wishes the state would focus on home-hardening, which has much more compelling research to support its effectiveness.

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Tony Andersen, the board’s executive officer, stressed that his team wants to keep requirements evidence-based and reasonable for homeowners. “We’re listening; we’re learning,” he said.

Zone Zero is one of the many fire safety regulations tied to the fire hazard severity maps created by Cal Fire, which, while imperfect, attempt to identify the areas in California likely to see intense wildfire.

Since 2008, all new homes in California in areas that those maps determined have very high fire hazard are required to have multi-paned or fire-resistant windows that are less likely to shatter in extreme heat, mesh coverings on all vents so flying embers can’t sneak inside and ignition-resistant roofing and siding.

The state’s defensible space regulations break down the areas surrounding a home into multiple zones. Zone Two is within 100 feet of the home; in that space, homeowners must remove dead vegetation, keep grass under 4 inches and ensure that there is at least 10 feet between trees. Zone One is within 30 feet of a structure; here, residents cannot store firewood. Zone Zero, within 5 feet, is supposed to be “ember-resistant” — essentially meaning that there cannot be anything that might ignite should embers land within it.

The problem is, it’s unclear how to best create an “ember-resistant” zone. For starters, there’s just not a lot of scientific evidence demonstrating which techniques effectively limit ignitions. That’s especially true for the most controversial Zone Zero proposal: removing healthy plants.

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“We have very few publications looking at home losses and vegetation patterns in Zone Zero,” said Max Moritz, a wildfire-dynamics researcher with UC Santa Barbara and the UC Cooperative Extension program.

Further complicating the problem, the board also needs to consider what is reasonable to ask of homeowners. Critics of the current proposal point out that while wooden fences and outbuildings are banned, wooden decks and doors are still fine — not because they cannot burn, but because asking residents to replace them is too big of a financial burden and they are, arguably, out of the purview of “defensible space.” And while many in the L.A. area argue they should be allowed to keep plants if they’re well-watered, the board cannot single-handedly dictate water usage for ornamental vegetation across the state.

To deal with the head-spinning complexity, the state started with a small working group in 2021 that included Cal Fire staff, local fire departments and scientists. The working group slowly grew to include more local leaders and came close to finalizing the rules with the board as it neared the Legislature’s Jan. 1, 2023, deadline. But as the parties got stuck on the final details, the deadline came and went. Zone Zero slowly fell off the meeting schedules and agendas and for two years, essentially nothing was done.

Then, L.A. burned.

In February 2025, Newsom signed an executive order pushing the board to finish the regulations by Dec. 31. As the board began hosting public hearings on the regulations, shock and frustration had set in among Californians.

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To add insult to injury, Newsom’s executive order also pushed Cal Fire to release new hazard maps that the Legislature had also mandated. When the agency did that in the spring, many Californians were distraught to learn that the maps added over 300,000 acres — mostly in developed areas — into the classifications where Zone Zero will apply.

At a (now somewhat infamous) Zone Zero meeting at the Pasadena Convention Center in September — the only one to take place in Southern California — public comments stretched on for over five hours. They included several speakers more accustomed to receiving public comments than making them: The mayor of Agoura Hills, representatives for L.A. City Council members and the chair of L.A.’s Community Forest Advisory Committee.

Alongside marathon public meetings, the board received more than 4,000 letters on the regulations.

In a September report to L.A.’s City Council, the Los Angeles Fire Department and the city’s forestry committee chastised the board for failing to consult the city during the process and only holding its Pasadena meeting “after persistent pressure from local advocates … six months into the rulemaking process.” It also pointed to a 2025 study that found many home-hardening techniques play a much more significant role in protecting homes than defensible space.

Most of the Zone Zero proposals have generally received agreement or at least acceptance among the public: No wooden mulch, no wooden fence that attaches to the house, no dead vegetation and only outbuildings made of noncombustible materials. But two issues quickly took center stage in the discourse: trees and plants.

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Residents have become increasingly concerned with the prospect of cutting down their trees after the working group began discussing how to handle them. However, the current proposals would not require residents to remove trees.

“It’s pretty much settled,” Andersen said. Well-maintained trees will be allowed in Zone Zero; however, what a well-maintained tree looks like “still needs to be discussed.”

What to do about vegetation like shrubs, plants and grasses within the first 5 feet of homes has proved more vexing.

Some fire officials and experts argue residents should remove all vegetation in the zone, citing examples of homes burning after plants ignited. Others say the board should continue to allow well-watered vegetation in Zone Zero, pointing to counterexamples where plants seemed to block embers from reaching a home or the water stored within them seemed to reduce the intensity of a burn.

“A hydrated plant is absorbing radiant heat up until the point of ignition, and then it’s part of the progression of the fire,” said Moritz. The question is, throughout a wildly complex range of fire scenarios, when exactly is that point reached?

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In October, the advisory committee crafting the regulations took a step back from its proposal to require the removal of all living vegetation in Zone Zero and signaled it would consider allowing well-maintained plants.

As the committee remains stuck in the weeds, it’s looking more and more likely that the board will miss its deadline (for the second time).

“It’s more important that we get this right rather than have a hard timeline,” Andersen said.

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Wave of RSV, particularly dangerous for babies, sweeping across U.S.; doctors urge vaccination

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Wave of RSV, particularly dangerous for babies, sweeping across U.S.; doctors urge vaccination

A wave of the highly contagious respiratory syncytial virus is sweeping across the United States — sending greater numbers of babies and toddlers to the hospital, recent data show.

The onset of RSV comes as the country heads into the wider fall-and-winter respiratory virus season, also typically marked by increased circulation of ailments such as COVID-19 and the flu. But RSV, the leading cause of infant hospitalization nationwide, presents particular risk for the youngest babies, a major reason health experts recommend pregnant women either get vaccinated near their delivery date or immunize their newborns.

“This is the perfect time to get your vaccine for RSV if you have never gotten one,” the Los Angeles County Department of Public Health said in a statement to The Times.

RSV can spread through coughs or sneezes but also by touching a contaminated surface, such as a door handle, and then touching your face before washing your hands, health officials warn.

For the week ending Oct. 11, about 1.2% of emergency room visits nationwide among infants younger than 1 were due to RSV — up from 0.4% a month earlier, according to data posted by PopHIVE, a project led by the Yale School of Public Health.

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“An RSV wave is starting to take hold,” epidemiologists Katelyn Jetelina and Hannah Totte wrote in the blog Your Local Epidemiologist.

RSV can be dangerous for infants, older adults and people with certain medical conditions, according to the U.S. Centers for Disease Control and Prevention. RSV can cause pneumonia, as well as a severe inflammation of the lungs’ small airways, known as bronchiolitis, the California Department of Public Health said.

“The issue with kids is that their airways are so small that when it causes inflammation in the airways, it’s just very hard to breathe,” said Dr. Peter Chin-Hong, a UC San Francisco infectious diseases expert. “So they come in with wheezing … and that’s why they get into trouble.”

Nationally, RSV kills up to 300 children under age 5 annually, and can send up to 80,000 to the hospital. Among seniors age 65 and older, the virus can cause up to 10,000 deaths in a typical year and as many as 160,000 hospitalizations, according to the CDC.

“I think it’s been kind of invisible, mainly because until recently … people wouldn’t test — we couldn’t test for RSV until the age of molecular diagnostics,” Chin-Hong said. “So it has been kind of an invisible epidemic.”

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RSV is “kind of a bronze medalist of respiratory viruses, with COVID and influenza No. 1 and No. 2, duking it out, and RSV is No. 3 for older adults,” he added. In general, RSV is the first to emerge during the fall-and-winter virus season, followed by flu then COVID, Chin-Hong said.

Before immunizations became available, about 2% to 3% of young infants were hospitalized for RSV annually, according to the CDC. Most children who are hospitalized for acute respiratory disease caused by RSV were previously healthy, according to a study published by the journal Pediatrics.

They may require oxygen or intravenous fluid or even be put on a ventilator to help them breathe, according to the CDC.

Unlike the flu and COVID-19, there are no antiviral drugs to treat RSV once infection sets in.

For now, the combined activity of respiratory illness from RSV, flu and COVID-19 is considered “very low” in California, state health officials said.

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But “we are starting to see the beginnings of respiratory virus season,” the L.A. County Department of Public Health said.

Health officials in Santa Clara County, Northern California’s most populous, are already reporting “medium” levels of RSV in the wastewater of San José, Palo Alto and Sunnyvale.

Now is exactly the time to get vaccinated if you haven’t already — “especially before respiratory virus activity potentially increases later,” said Dr. Regina Chinsio-Kwong, the Orange County health officer.

RSV immunizations are recommended for pregnant women between 32 and 36 weeks of gestational age — about one to two months before their estimated delivery date — as well as for everyone age 75 and up and those age 50 to 74 with underlying medical conditions such as diabetes, cancer, kidney disease, weakened immune systems, asthma or heart disease. Vaccines are also recommended for individuals who live in a nursing home or long-term-care facility.

If a pregnant woman wasn’t vaccinated against RSV, officials recommend her infant get immunized.

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RSV vaccinations are fairly new, being introduced in 2023. There are now three brands — Pfizer’s Abrysvo and GSK’s Arexvy were licensed in May 2023, and Moderna’s mResvia in June 2024. All three can be used for older adults, but only the Pfizer vaccine is available for pregnant women.

Infants were also able to get immunized starting that year through monoclonal antibodies, which aren’t technically vaccines but function similarly in this case.

Older adults who already received an RSV vaccination generally don’t need to get another one.

The arrival of those vaccines followed a particularly brutal 2022-23 respiratory virus season when California was slammed by a hospital-straining “tripledemic” of RSV, flu and COVID.

Unlike the RSV shots, flu and COVID vaccinations are generally recommended ahead of every fall-and-winter virus respiratory season. Older adults, those age 65 and up, can get the COVID vaccination every six months, according to the California Department of Public Health.

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People can get the RSV, flu and COVID vaccinations all during the same visit to a healthcare provider, Chinsio-Kwong said.

“Receiving all eligible vaccines at once is considered best practice, as it helps avoid missed opportunities due to scheduling challenges,” she said.

Studies have shown the RSV immunizations are effective.

During last year’s respiratory virus season, there were significant reductions in the RSV hospitalization rate for babies, data show. Data also show RSV vaccines were effective in preventing symptomatic illness in older adults.

Chin-Hong said he suggests “everyone should get it” if they are 75 or older, and for those between age 50 and 74 with heart or lung disease or are very immune compromised, “I think the juice is worth the squeeze.”

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Annual routine flu vaccines are recommended for everyone who is at least 6 months old.

As for COVID, a vaccine can be given to anyone who wants one. The California Department of Public Health specifically recommends the shots for everyone age 65 and up, babies age 6 months to 23 months, children and teenagers who have never been vaccinated, and people with certain health risk factors and those in close contact with them.

The California Department of Public Health also recommends pregnant women get the COVID vaccination.

After concerns earlier this season about how difficult it might be to get COVID vaccinations, pharmacists and California health officials now say securing the shots is relatively easy.

The controversy arose in the late summer amid confusing guidance coming from agencies overseen by Health and Human Services Secretary Robert F. Kennedy Jr., who has disparaged vaccinations.

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There was a period during which the Food and Drug Administration had belatedly approved COVID-19 vaccines only for those age 65 and up and younger people with underlying health conditions. An unprecedented delay in the CDC issuing its own recommendations had the effect of snarling vaccinations for many.

In some states, that meant people were being turned away from getting the COVID vaccine at their local pharmacy, including seniors, even as a late summer surge was raging. And at one point, the powerful CDC Advisory Committee on Immunization Practices nearly recommended the COVID vaccine be available by prescription only.

On Oct. 6, acting CDC Director Jim O’Neill officially lifted the agency’s recommendation that adults under age 65 get the updated COVID-19 vaccine, saying instead that doing so should be based on “individual-based decision-making” in consultation with health professionals.

Now, “patients can go into the pharmacy” and can have conversations on whether to get the COVID-19 vaccine with a professional, Allison Hill, a director of professional affairs for the American Pharmacists Assn., said during a recent webinar.

California also recently clarified state law to make sure that pharmacists can independently administer the COVID vaccine, according to Dr. Erica Pan, director of the state Department of Public Health.

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Health insurance premiums for 1.7 million Californians on Obamacare will soar as federal subsidies end

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Health insurance premiums for 1.7 million Californians on Obamacare will soar as federal subsidies end

Californians renewing their public health plans or who plan to sign up for the first time will be in for sticker shock when open enrollment begins on Saturday. Monthly premiums for federally subsidized plans available on the Covered California exchange — often referred to as Obamacare — will soar by 97% on average for 2026.

The skyrocketing premiums come as a result of a conflict at the center of the current federal government shutdown, which began on Oct. 1: a budgetary impasse between the Republican majority and Democrats over whether to preserve enhanced, Biden-era tax credits that expanded healthcare eligibility to millions more Americans and kept monthly insurance costs affordable for existing policyholders. About 1.7 million of the 1.9 million Californians currently on a Covered California plan benefit from the tax credits.

Open enrollment for the coming year runs from Nov. 1 until Jan. 31. It’s traditionally the period when members compare options and make changes to existing plans and when new members opt in.

Only this time, the government shutdown has stirred uncertainty about the fate of the subsidies, first introduced during the COVID-19 pandemic and which have been keeping policy costs low, but will expire at the end of the year if lawmakers in Washington don’t act to extend them.

Californians window shopping on the exchange’s consumer homepage will have to make some tough decisions, said Covered California Executive Director Jessica Altman. The loss of the tax credits to subsidize premiums only adds to what can already be a complicated, time-consuming and frustrating process.

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Even if the subsidies remained intact, premiums for plans offered by Covered California were set to rise by roughly 10% for 2026, due to spikes in drug prices and other medical services, Altman said.

Without the subsidies, Covered California said its members who receive financial assistance will see their monthly premiums jump by an additional $125 a month, on average, for 2026.

The organization projects that the cost increases will lead many Californians to simply go without coverage.

“Californians are going to be facing a double whammy: premiums going up and tax credits going away,” Altman said. “We estimate that as many as 400,000 of our current enrollees will disenroll and effectively be priced out of the health insurance that they have today. That is a devastating outcome.”

Indeed, the premium spike threatens to lock out the very Americans that the 2010 Affordable Care Act — President Obama’s signature domestic policy win — was intended to help, said Altman. That includes people who earn too much to qualify for Medicaid but who either make too little to afford a private plan or don’t work for an employer that pays a portion of the premiums.

That’s a broad swath of Californians — including many bartenders and hairdressers, small business owners and their employees, farmers and farm workers, freelancers, ride-share drivers, and those working multiple part-time gigs to make ends meet. The policy change will also affect Californians who use the healthcare system more frequently because they have ongoing conditions that are costly to treat.

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By raising the tax-credit eligibility threshold to include Americans earning more than 400% of the federal poverty level, the Biden-era subsidies at the heart of the budget stalemate have brought an estimated 160,000 additional middle-income Californians into the system, Covered California said. The enhanced subsidies save members about $2.5 billion a year overall in out-of-pocket premium expenses, according to the exchange.

California lawmakers have tried to provide some relief from rising Covered California premiums by recently allocating an additional $190 million in state-level tax credits in next year’s budget for individuals who earn up to 150% of the federal poverty level. That would keep monthly premiums consistent with 2025 levels for a person making up to $23,475 a year, or a family of four bringing in $48,225 a year, and provide partial relief for individuals and households making slightly more.

Altman said the state tax credits will help. But it may not be enough. Forecasts from the Urban Institute, a nonprofit research group and think tank, also show a significant drop-off of roughly 400,000 enrolled members in Covered California.

The national outlook is even worse. The Congressional Budget Office warned Congress nearly a year ago that if the enhanced premium subsidies were allowed to expire, the ranks of the uninsured would swell by 2.2 million nationwide in 2026 alone — and by an average of 3.8 million Americans each year from 2026 to 2034.

Organizations that provide affordable Obamacare plans are preparing for Californians to get squeezed out of the system if the expanded subsidies disappear.

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L.A. Care, the county’s largest publicly operated health plan, offers Covered California policies for 230,000 mostly lower-income people. About 90% of the Covered California consumers they work with receive subsidies to offset their out-of-pocket healthcare insurance costs, said Martha Santana-Chin, L.A. Care’s CEO. “Unless something drastic happens … a lot of those people are going to fall off of their coverage,” Santana-Chin said.

That outcome would ripple far and wide, she said — thanks to two factors: human behavior and basic economics.

If more and more people choose to go uninsured, more and more people will resort to visiting hospital emergency rooms for non-emergency care, disrupting and overwhelming the healthcare system.

Healthcare providers will be forced to address the cost of treating rising numbers of uninsured people by raising the prices they bill to insurers for patients who have private plans. That means Californians who are not Covered California members and don’t receive other federal healthcare aid will eventually see their premiums spike too, as private insurers pass any added costs down to their customers.

But right now, with the subsidies set to end soon and recent changes to Medicaid eligibility requirements threatening to knock some of the lowest-income Californians off of that system, both Altman and Santana-Chin said their main concern is for those who don’t have alternatives.

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In particular, they are concerned about people of color, who are disproportionately represented among low-income Californians, according to the Public Policy Institute of California. Any hike in out-of-pocket insurance costs next year could blow the budget of a family barely getting by.

“$100, $150, $200 — that’s meaningful to people living on fixed incomes,” Altman said. “Where is that money coming from when you’re living paycheck to paycheck?”

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