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New Jersey man with epilepsy uses hand-painted seashells to help find a cure

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New Jersey man with epilepsy uses hand-painted seashells to help find a cure

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Greater epilepsy awareness could be as simple as a walk on the beach, thanks to one New Jersey man.

Kyle Adamkiewicz, 33, has lived with epilepsy since being diagnosed at age 6. He is now combining his love of art with the power of nature to help bring his seizure disorder into the spotlight.

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In Oct. 2022, Adamkiewicz began collecting seashells from the New Jersey shore, then painting and decorating them with heartfelt messages in search of a cure. He places his works of art along the seaside boardwalks in the hopes that they will inspire strangers to spread the word — and the shells.

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“It started with just painting a few shells, and I figured no one would find them,” Adamkiewicz said in an interview with Fox News Digital. 

“And then I saw people posting them online, and writing so many good and positive comments about the shells and about finding a cure for epilepsy. That motivated me to keep making more and more and more.”

Kyle Adamkiewicz, shown above, now 33, has lived with epilepsy since he was diagnosed at age 6. He is combining his love of art with the power of nature to help raise awareness of his disease. (Adamkiewicz family)

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“And now they have been around the entire world.”

Adamkiewicz doesn’t drive, so his parents — Chuck and Laurie Adamkiewicz — drive him to place his shells.

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“We have shells with us in the car all the time, and he places them in different locations, different towns,” his mother told Fox News Digital.

Adamkiewicz estimates that he’s painted some 1,100 shells so far.

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Many include messages about finding a cure for epilepsy, but he has also created themed designs for various occasions, like Shark Week and Halloween.

Adamkiewicz has painted over 1,000 shells so far. “Our entire living room consists of nothing but shells and paint,” joked Adamkiewicz’s mother. (Adamkiewicz family)

“Our entire living room consists of nothing but shells and paint,” joked Adamkiewicz’s mother.

In addition to a hand-painted design, each shell contains Adamkiewicz’s initials, the year he decorated it and a QR code.

When people find the shells and scan the QR code, it takes them to a website. From there, they can access Adamkiewicz’s Facebook group, his Instagram account and a GoFundMe page set up to help raise funds for people to get “seizure alert” dogs.

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It also links to the Epilepsy Foundation website, where people can learn what to do if they witness someone having a seizure.

“Most people don’t really know how to handle someone if they’re having a seizure,” Adamkiewicz told Fox News Digital. “They just turn their back and walk the opposite way.”

In addition to a hand-painted design, each shell contains Adamkiewiczs’s initials, the year he decorated it and a QR code. (Adamkiewicz family)

“One out of 26 people in the world have epilepsy, but it’s basically a hidden disease that nobody really wants to know about.”

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The Adamkiewicz family has a map of the world hanging on the wall — with pushpins to mark where the shells have been found, they told Fox News Digital.

In addition to locations across the U.S., shells have also been scanned in Mexico City, Greece, Italy, Panama, Canada, Nova Scotia, France, South Korea and Germany, Adamkiewicz said.

“One out of 26 people in the world have epilepsy, but it’s basically a hidden disease.”

“People will find the shells and take them to those places,” Adamkiewicz said. “And sometimes people will ask me for shells to take to wherever they are traveling.”

He’s also partnered with the hospital to get kids with epilepsy involved in his project, bringing shells in for them so they can paint their own designs.

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Touching lives

Beyond helping to find a cure, Adamkiewicz has a goal of reducing bullying of people with epilepsy.

Adamkiewicz is pictured with his mother, Laurie Adamkiewicz. In April, he underwent a procedure to implant a responsive neurostimulation (RNS) device in his brain, which will gather data about his seizure activity. (Adamkiewicz family)

“When I was growing up, if my parents or brother weren’t there, I was always made fun of in school and in the neighborhood,” Adamkiewicz said. “Especially right after I had a seizure — the kids would just stare at me and make fun of me.”

He went on, “I want people to know it’s OK to be friends with someone with epilepsy.”

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At one point, during second and third grade, he estimates that he was having 100 seizures per day.

“It’s been a very hard and lonely life for Kyle, and very painful to see as a mother and father,” Laurie Adamkiewicz added.

The goal, she said, is that the shells will help to make life a little easier for those with epilepsy — and their families.

Adamkiewicz said his seashell project has been a therapeutic endeavor for him. “If it’s been a really bad day, that’s mostly what I’ll be doing,” he said. (Adamkiewicz family)

Adamkiewicz’s mother recalled a man who posted about a personal experience on the Facebook group.

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“His son had passed away, and the man goes to the ocean every morning to say good morning to his son,” she said. “And there was the epilepsy shell, and he said he started crying. He said it was just like a gift to him.”

She added, “You never know whose lives you’re touching.”

Taking control

Since age 12, Adamkiewicz has been a patient at NYU Langone’s Comprehensive Epilepsy Center, one of the largest programs in the nation, where he’s had a series of brain surgeries.

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In April, he underwent a procedure to implant a responsive neurostimulation (RNS) device in his brain, which will gather data about his seizure activity.

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Neurosurgeon Peter Rozman, M.D., performed the surgery alongside his mentor, Werner K. Doyle, M.D., Adamkiewicz’s longtime doctor.

Adamkiewicz and his mom, Laurie Adamkiewiz, are pictured with some of his painted shells. (Adamkiewicz family)

“This system has the capacity to actually record brain activity in the form of electrical waves that detect when the seizures start, so it can deliver an impulse to the brain at that time, with the goal of aborting the seizure,” Rozman said in an interview with Fox News Digital.

The data collected by the device is sent to the neurologist, who uses that information to program the device to better capture and treat the seizures, he said.

“Over time, people see more and more improvement in their seizures,” Rozman said.

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Rozman praised Adamkiewicz’s seashell project, emphasizing the importance of increasing awareness of the condition.

“And it gives him an outlet, too,” the doctor said. “Having other people to talk about your condition with and being part of a community can be very helpful.”

Each shell contains a QR code that a person can scan to access information, resources and fundraisers for epilepsy. (Adamkiewicz family)

In a way, Rozman said, Adamkiewicz is turning his epilepsy into a good thing.

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“It’s beneficial on both sides — for raising awareness and also allowing Kyle to have more control and to drive the story,” he said. 

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“It can be such a devastating thing to have to deal with on a daily basis, and having some sort of license and control over that is really important.”

Adamkiewicz agreed that his project has been a therapeutic endeavor for him.

“We want to teach people how to be kind, and how to help.”

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“If it’s been a really bad day, that’s mostly what I’ll be doing,” he said.

“Like earlier today, I was painting some shells and had my ear buds in, just listening to some music. I’m just so focused on painting the shells that I zone everybody else out.”

Adamkiewicz’s shells have been found in many cities and countries around the world, including in Paris, France. (Adamkiewicz family)

Adamkiewicz and his mother are also working on a children’s book to teach kids more about epilepsy and what to do if someone is having a seizure.

“When someone has a seizure, it can be frightening to other children,” said Laurie Adamkiewicz mother.

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“So the goal is to get some information out there, to take the stigma away from the person who has epilepsy … We want to teach people how to be kind, and how to help.”

Health

Flu hospitalizations hit all-time weekly high in densely populated state, officials warn

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Flu hospitalizations hit all-time weekly high in densely populated state, officials warn

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The New York State Department of Health has announced the highest number of flu hospitalizations recorded in a single week.

The state confirmed the uptick in hospital visits in a press release on Jan. 2, as flu cases continue to rise in the region and nationwide.

New York State, including New York City, has consistently tracked the highest numbers of recorded respiratory illness cases in the country for the last few weeks, according to CDC data. Several other states have climbed to the “very high” category for respiratory activity as well, as of the week ending Dec. 27.

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The most recent data from the New York health department showed a total of 4,546 hospitalizations from Dec. 26, 2025, to Jan. 2, 2026 – a week-over-week increase of nearly 1,000. The prior week, the department announced the highest number of flu cases ever recorded in a single seven-day period.

The New York State Department of Health reported a total of 4,546 hospitalizations from Dec. 26, 2025, to Jan. 2, 2026. (iStock)

In a statement, New York’s Acting Commissioner of Health Dr. James McDonald noted the severity of this flu season compared to previous years.

“Almost 1,000 more people were admitted to a hospital during this most recent seven-day period compared to the prior week,” he confirmed. “There is still time to get a flu shot, and remember, flu can be treated with antiviral medication if started within 48 hours of symptom onset [as] your doctor deems appropriate.”

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Health officials are pushing for Americans to consider getting the flu vaccine, as experts consider it to be a top line of defense for preventing viral exposure and spread.

Flu symptoms can include fever, chills, headache, fatigue, cough, sore throat and runny nose. (iStock)

In a previous interview with Fox News Digital, Dr. Neil Maniar, professor of public health practice at Boston’s Northeastern University, emphasized that it’s not too late to get the flu vaccine, as peak season typically occurs in January.

“The vaccine still provides protection against serious illness resulting from the subclade K variant that seems to be going around,” he said.

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Even healthy individuals can become seriously ill from the flu, Maniar noted, “so a vaccine is beneficial for almost everyone.”

“Individuals typically start to develop some degree of protection within a few days and gain the full benefit within about two weeks, so now is the time for anyone who hasn’t gotten the vaccine yet.”

“The vaccine still provides protection against serious illness resulting from the subclade K variant that seems to be going around,” one doctor said. (iStock)

Flu symptoms can include fever, chills, headache, fatigue, cough, sore throat and runny nose.

A mutation of influenza A H3N2, called subclade K, has been detected as the culprit in rising global cases, causing more intense symptoms and higher risk of spread.

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“It’s becoming evident that this is a pretty severe variant of the flu,” Maniar said. “Certainly, in other parts of the world where this variant has been prevalent, it’s caused some severe illness, and we’re seeing an aggressive flu season already.”

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New York State recommends taking preventive actions to avoid flu infection. These include washing hands often; avoiding touching the eyes, nose and mouth; avoiding close contact with sick people; cleaning and disinfecting objects and surfaces; and staying home when feeling sick.

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Not all cancers should be treated right away, medical experts say — here’s why

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Not all cancers should be treated right away, medical experts say — here’s why

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When someone gets a cancer diagnosis, the initial reaction is usually to undergo treatment as quickly as possible — but for some types of disease, doctors may recommend a more conservative approach.

For certain cancers, immediate or aggressive treatment can cause more harm than good, according to multiple medical experts.

For example, treating slow-growing tumors with surgery, radiation or chemotherapy could create significant side effects without a survival benefit.

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“The fact that so many cancers will never kill you is not a justification for not knowing, because there is still plenty of room for ‘watchful waiting,’ as well as interventions that may improve quality of life even if they don’t extend life,” Dr. Marc Siegel, Fox News senior medical analyst, told Fox News Digital.

This is especially true as targeted cancer treatments emerge, which are more personalized and less likely to cause severe side effects, according to the doctor.

For precancerous, very early-stage breast conditions, careful monitoring may be more prudent than immediate surgery, research shows. (iStock)

“The fact that cancers are occurring earlier is a justification for heightened screenings, not the opposite,” Siegel added. “Information is power — what you do with that information is based on clinical judgment and the art of medicine.”

Below are some types of cancer that may not warrant treatment, according to research and doctors’ guidance.

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No. 1: Prostate cancer (low-risk)

While some types of prostate cancer should be treated right away, others are better addressed by “watchful waiting,” according to Sanoj Punnen, M.D., a urologic oncologist with Sylvester Comprehensive Cancer Center, part of the University of Miami Health System. 

“With respect to prostate cancer, for most low-risk cancers (Gleason 6 or grade group 1), we recommend initial observation and surveillance rather than immediate treatment,” he told Fox News Digital.

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The Gleason score is a grading system that ranks prostate cancer cells in terms of how abnormal they are, with 6 being the lowest grade and 10 being the highest grade (barely resembling normal cells).

“For high-grade tumors like Gleason 8, 9 or 10, we believe they progress quickly, so we recommend treatment to prevent the risk of metastasis,” said Punnen, who is also vice chair of research and a professor with the Desai Sethi Urology Institute at UHealth. “For low-risk tumors, we think they pose little risk, so we recommend just observation.”

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“The fact that cancers are occurring earlier is a justification for heightened screenings, not the opposite.”

“But in the end, we can’t be sure, so our approach to observation includes serial monitoring of cancer status with PSA, MRI and occasional biopsy to ensure the tumor isn’t progressing.”

No. 2: Ductal carcinoma in situ (DCIS) 

Also known as stage 0 breast cancer, DCIS is a non-invasive disease marked by abnormal cells in the lining of the breast milk ducts. The “in situ” is Latin for “in the original place,” which indicates that the cancer has not spread outside the milk ducts.

For this precancerous, very early-stage breast condition, careful monitoring may be more prudent than immediate surgery, research shows.

While some types of prostate cancer should be treated right away, others are better addressed by “watchful waiting,” according to a urologic oncologist. (iStock)

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A 2024 study by the Dana-Farber Cancer Institute found that active monitoring for DCIS resulted in similar quality of life, mental health and symptom progression over a two-year period compared to a standard surgical approach.

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“These results suggest that in the short term, active monitoring is a reasonable approach to management of low-risk DCIS,” the lead researcher said in a press release. “If longer-term follow-up supports the safety of active management from a cancer outcome standpoint, this approach could be considered as an option for women with this condition.”

“But it is also critical that we understand how women feel when they are living with this ‘watch and wait’ approach and how it impacts their overall quality of life.”

Other research has suggested that women with low-risk DCIS did not have a higher rate of invasive cancer after two years of active monitoring, although each patient should discuss their individual risk level with an oncologist.

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No. 3: Indolent (slow-growing) lymphomas

Non-Hodgkin lymphoma (NHL) is a type of cancer that starts in the lymphatic system, which includes the lymph nodes, spleen, thymus, bone marrow and other tissues. 

Indolent lymphomas are those that “grow and spread slowly,” according to the American Cancer Society.

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The National Comprehensive Cancer Network (NCCN) recommends watchful waiting for asymptomatic, slow-growing follicular lymphoma, as a means of avoiding the toxicity of chemotherapy and immunotherapy until it’s absolutely necessary.

The Lymphoma Research Foundation confirms that doctors recommend “active surveillance” for some patients with slow-growing lymphoma.

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Indolent lymphomas are those that “grow and spread slowly,” according to the American Cancer Society. (iStock)

“This approach may be started after the initial diagnosis or after relapse, depending on the situation,” the foundation states on its website. “Active treatment is started if the patient begins to develop lymphoma-related symptoms or if there are signs that the disease is progressing.”

Treatment should be started right away for aggressive (fast-growing) lymphomas.

No. 4: Chronic lymphocytic leukemia

One of the most common adult leukemias, chronic lymphocytic leukemia (CLL) originates in white blood cells (lymphocytes) in the bone marrow and then spreads to the bloodstream, according to the American Cancer Society.

CLL tends to grow slowly, with many patients experiencing no symptoms for years. Eventually, the cancer calls can spread to the lymph nodes, liver and spleen.

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Some studies have shown that early treatment for CLL does not improve survival rates compared to observation, and that the benefits may not outweigh the risks.

In a 2023 study presented at the European Hematology Association 2023 Congress in Frankfurt, Germany, researchers found that early treatment did not prolong overall survival compared to a placebo in patients with early, asymptomatic CLL.

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“I believe it’s fair to conclude that ‘watch-and-wait’ should remain the standard of care in the era of targeted drugs,” said researcher Petra Langerbeins, M.D., when presenting the findings.

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No. 5: Low-grade endometrial cancer

For most patients with endometrial cancer, surgery is the first treatment, which entails removing the uterus, fallopian tubes and ovaries, according to the American Cancer Society.

However, in certain patients with low-grade cancer, such as older people, those with “frailty” and people with major health issues, doctors may recommend deferring surgery, which can pose a high risk.

The American Thyroid Association’s guidelines officially recommend active surveillance for very low-risk microcarcinomas. (iStock)

In cases where the patient has medical comorbidities or wants to preserve fertility, hormone treatment may be used instead of surgery, per the ACS.

“It’s usually also considered for cancer that is lower-grade, low-volume and slow-growing,” the above source stated.

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No. 6: Some early kidney cancers

In cases of kidney cancer with small tumors (≤3 cm) or benign lesions, doctors may recommend monitoring them instead of undergoing surgery for removal.

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The American Urological Association confirms that active surveillance is an option for some small renal masses (localized tumors).

“I believe it’s fair to conclude that ‘watch-and-wait’ should remain the standard of care in the era of targeted drugs.”

Deferred treatment is particularly recommended for older patients or those with “significant comorbidities,” research shows.

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“Shared decision-making about active surveillance should consider risks of intervention/competing mortality versus potential oncologic benefits of intervention,” the UAU states in its guidance.

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Data from the Delayed Intervention and Surveillance for Small Renal Masses (DISSRM) Registry showed that patients with active surveillance had a 99% or greater cancer-specific survival rate — virtually the same as patients who received immediate treatment.

No. 7: Small papillary thyroid cancers

Papillary thyroid cancer (PTC), the most common type of thyroid cancer, may not warrant treatment for small tumors measuring 1 centimeter (10 mm) or less, which are called microcarcinomas.

A young multiracial female is undergoing a diagnostic medical imaging procedure in a state-of-the-art hospital setting with CT simulator. The image illustrates the use of cutting-edge technology for healthcare and treatment in a modern medical environment. The portrayal highlights precision, care, and the sophistication of contemporary medical practices. (iStock)

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Research found that when using active surveillance for 10 to 20 years, less than 10% experienced significant growth, only 5% developed lymph node spread and there were no thyroid-cancer deaths.

The American Thyroid Association’s guidelines officially recommend active surveillance for very low-risk microcarcinomas.

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While many patients with low-risk tumors can safely delay treatment, this does not apply to all cancers or all patients. 

As cancer behavior and personal health factors vary widely, patients should consult their doctor to determine the most appropriate course of care based on their individual risk level.

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Brain Health Challenge: Test Your Knowledge of Healthy Habits

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Brain Health Challenge: Test Your Knowledge of Healthy Habits

Welcome to the Brain Health Challenge! I’m Dana Smith, a reporter at The New York Times, and I’ll be your guide.

To live a healthy life, it’s crucial to have a healthy brain. In the short term, it keeps you sharp and firing on all cylinders. In the long term, it can reduce your risk of cognitive decline, dementia and stroke.

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Practicing basic healthy behaviors, like eating nutritious food and getting regular exercise, is the best way to enhance your brain power and protect the longevity of your neurons. These types of lifestyle habits can benefit the brain at any age. And while they won’t guarantee that you’ll never develop dementia or another brain disease, several clinical trials have shown that they can improve cognition or slow decline.

Every day this week, you’ll do an activity that’s good for your brain, and we’ll dig into the science behind why it works. Some of these activities can provide a small immediate cognitive benefit, but the bigger reward comes from engaging in them consistently over time. So along with the neuroscience lessons, we’ll include a few tips to help you turn these actions into lasting habits.

To keep you accountable, we’re encouraging you to complete this challenge with a friend. If you don’t have a challenge buddy, no problem: We’re also turning the comments section into one big support group.

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There are so many fascinating ways your daily behaviors affect your brain. Take sleep, for example.

Lots of studies have shown that getting a good night’s rest (seven to eight hours) is associated with better memory and other cognitive abilities. That’s because sleep, especially REM sleep, is when your brain transfers short-term memories — things you learned or experienced during the day — into long-term storage.

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Sleep is also when your brain does its daily housekeeping. While you rest, the brain’s glymphatic system kicks into high gear, clearing out abnormal proteins and other molecular garbage, including the protein amyloid, which is a major contributor to Alzheimer’s disease. A buildup of amyloid is one reason experts think that people who routinely get less sleep have a higher risk of dementia.

What other behaviors play a big role in brain health? For today’s activity, we’re going to test your knowledge with a quiz. Share your score with your accountability partner and in the comments below — I’ll be in there too, cheering you on.

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