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New Jersey man with epilepsy uses hand-painted seashells to help find a cure

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New Jersey man with epilepsy uses hand-painted seashells to help find a cure

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Greater epilepsy awareness could be as simple as a walk on the beach, thanks to one New Jersey man.

Kyle Adamkiewicz, 33, has lived with epilepsy since being diagnosed at age 6. He is now combining his love of art with the power of nature to help bring his seizure disorder into the spotlight.

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In Oct. 2022, Adamkiewicz began collecting seashells from the New Jersey shore, then painting and decorating them with heartfelt messages in search of a cure. He places his works of art along the seaside boardwalks in the hopes that they will inspire strangers to spread the word — and the shells.

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“It started with just painting a few shells, and I figured no one would find them,” Adamkiewicz said in an interview with Fox News Digital. 

“And then I saw people posting them online, and writing so many good and positive comments about the shells and about finding a cure for epilepsy. That motivated me to keep making more and more and more.”

Kyle Adamkiewicz, shown above, now 33, has lived with epilepsy since he was diagnosed at age 6. He is combining his love of art with the power of nature to help raise awareness of his disease. (Adamkiewicz family)

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“And now they have been around the entire world.”

Adamkiewicz doesn’t drive, so his parents — Chuck and Laurie Adamkiewicz — drive him to place his shells.

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“We have shells with us in the car all the time, and he places them in different locations, different towns,” his mother told Fox News Digital.

Adamkiewicz estimates that he’s painted some 1,100 shells so far.

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Many include messages about finding a cure for epilepsy, but he has also created themed designs for various occasions, like Shark Week and Halloween.

Kyle Adamkiewicz

Adamkiewicz has painted over 1,000 shells so far. “Our entire living room consists of nothing but shells and paint,” joked Adamkiewicz’s mother. (Adamkiewicz family)

“Our entire living room consists of nothing but shells and paint,” joked Adamkiewicz’s mother.

In addition to a hand-painted design, each shell contains Adamkiewicz’s initials, the year he decorated it and a QR code.

When people find the shells and scan the QR code, it takes them to a website. From there, they can access Adamkiewicz’s Facebook group, his Instagram account and a GoFundMe page set up to help raise funds for people to get “seizure alert” dogs.

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It also links to the Epilepsy Foundation website, where people can learn what to do if they witness someone having a seizure.

“Most people don’t really know how to handle someone if they’re having a seizure,” Adamkiewicz told Fox News Digital. “They just turn their back and walk the opposite way.”

Epilepsy shell

In addition to a hand-painted design, each shell contains Adamkiewiczs’s initials, the year he decorated it and a QR code. (Adamkiewicz family)

“One out of 26 people in the world have epilepsy, but it’s basically a hidden disease that nobody really wants to know about.”

The Adamkiewicz family has a map of the world hanging on the wall — with pushpins to mark where the shells have been found, they told Fox News Digital.

In addition to locations across the U.S., shells have also been scanned in Mexico City, Greece, Italy, Panama, Canada, Nova Scotia, France, South Korea and Germany, Adamkiewicz said.

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“One out of 26 people in the world have epilepsy, but it’s basically a hidden disease.”

“People will find the shells and take them to those places,” Adamkiewicz said. “And sometimes people will ask me for shells to take to wherever they are traveling.”

He’s also partnered with the hospital to get kids with epilepsy involved in his project, bringing shells in for them so they can paint their own designs.

Touching lives

Beyond helping to find a cure, Adamkiewicz has a goal of reducing bullying of people with epilepsy.

Kyle and Laurie Adamkiewicz

Adamkiewicz is pictured with his mother, Laurie Adamkiewicz. In April, he underwent a procedure to implant a responsive neurostimulation (RNS) device in his brain, which will gather data about his seizure activity. (Adamkiewicz family)

“When I was growing up, if my parents or brother weren’t there, I was always made fun of in school and in the neighborhood,” Adamkiewicz said. “Especially right after I had a seizure — the kids would just stare at me and make fun of me.”

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He went on, “I want people to know it’s OK to be friends with someone with epilepsy.”

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At one point, during second and third grade, he estimates that he was having 100 seizures per day.

“It’s been a very hard and lonely life for Kyle, and very painful to see as a mother and father,” Laurie Adamkiewicz added.

The goal, she said, is that the shells will help to make life a little easier for those with epilepsy — and their families.

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Epilepsy shells

Adamkiewicz said his seashell project has been a therapeutic endeavor for him. “If it’s been a really bad day, that’s mostly what I’ll be doing,” he said. (Adamkiewicz family)

Adamkiewicz’s mother recalled a man who posted about a personal experience on the Facebook group.

“His son had passed away, and the man goes to the ocean every morning to say good morning to his son,” she said. “And there was the epilepsy shell, and he said he started crying. He said it was just like a gift to him.”

She added, “You never know whose lives you’re touching.”

Taking control

Since age 12, Adamkiewicz has been a patient at NYU Langone’s Comprehensive Epilepsy Center, one of the largest programs in the nation, where he’s had a series of brain surgeries.

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In April, he underwent a procedure to implant a responsive neurostimulation (RNS) device in his brain, which will gather data about his seizure activity.

Neurosurgeon Peter Rozman, M.D., performed the surgery alongside his mentor, Werner K. Doyle, M.D., Adamkiewicz’s longtime doctor.

laurie-kyle-adamkiewicz

Adamkiewicz and his mom, Laurie Adamkiewiz, are pictured with some of his painted shells. (Adamkiewicz family)

“This system has the capacity to actually record brain activity in the form of electrical waves that detect when the seizures start, so it can deliver an impulse to the brain at that time, with the goal of aborting the seizure,” Rozman said in an interview with Fox News Digital.

The data collected by the device is sent to the neurologist, who uses that information to program the device to better capture and treat the seizures, he said.

“Over time, people see more and more improvement in their seizures,” Rozman said.

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Rozman praised Adamkiewicz’s seashell project, emphasizing the importance of increasing awareness of the condition.

“And it gives him an outlet, too,” the doctor said. “Having other people to talk about your condition with and being part of a community can be very helpful.”

Epilepsy shell

Each shell contains a QR code that a person can scan to access information, resources and fundraisers for epilepsy. (Adamkiewicz family)

In a way, Rozman said, Adamkiewicz is turning his epilepsy into a good thing.

“It’s beneficial on both sides — for raising awareness and also allowing Kyle to have more control and to drive the story,” he said. 

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“It can be such a devastating thing to have to deal with on a daily basis, and having some sort of license and control over that is really important.”

Adamkiewicz agreed that his project has been a therapeutic endeavor for him.

“We want to teach people how to be kind, and how to help.”

“If it’s been a really bad day, that’s mostly what I’ll be doing,” he said.

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“Like earlier today, I was painting some shells and had my ear buds in, just listening to some music. I’m just so focused on painting the shells that I zone everybody else out.”

Epilepsy shell

Adamkiewicz’s shells have been found in many cities and countries around the world, including in Paris, France. (Adamkiewicz family)

Adamkiewicz and his mother are also working on a children’s book to teach kids more about epilepsy and what to do if someone is having a seizure.

“When someone has a seizure, it can be frightening to other children,” said Laurie Adamkiewicz mother.

For more Health articles, visit www.foxnews/health 

“So the goal is to get some information out there, to take the stigma away from the person who has epilepsy … We want to teach people how to be kind, and how to help.”

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Men with spinal cord injuries become fathers thanks to rare fertility treatment at Miami clinic

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Men with spinal cord injuries become fathers thanks to rare fertility treatment at Miami clinic

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A spinal cord injury can be life-altering – and the potential for infertility is often a devastating blow as well.

Among men who experience spinal cord injuries (SCIs) in the U.S., nearly eight in 10 have fertility and reproduction issues due to erectile dysfunction or poor sperm quality.

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But one clinic in Miami, Florida, is on a mission to help men with SCIs start a family.

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The Miami Project to Cure Paralysis, part of the University of Miami Miller School of Medicine, has aided in the birth of 200 babies since the 1990s.

Fox News Digital spoke with Dr. Emad Ibrahim, director of the Male Fertility Research Program, about how “amazing” this achievement has been.

A patient with a spinal cord injury enters the lab with Dr. Emad Ibrahim at his clinic in Miami, Florida. (The University of Miami)

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The doctor said “nothing beats the feeling” of finding out one of his patients is expecting a child.

MEN’S ENERGY AND VITALITY PLUMMETS FOR 6 REASONS

“Every time we get an email with an ultrasound picture that shows the baby … it’s a mission accomplished,” he said. “It’s the most gratifying sensation you’ll ever have.”

Ibrahim, an associate professor of urology and neurological surgery at UMiami, said the clinical research program is “very unique” in its quest to help men father their own children through techniques rarely found elsewhere.

eric rosemary, dr. emad ibrahim and darris straughter in a split image

New dads Eric Rosemary, left, and Darris Straughter, right, both underwent procedures with the Miami Project under the direction of Dr. Ibrahim, center. (Eric Rosemary; The University of Miami)

While men with erectile dysfunction can be given medication to address this issue, men with ejaculatory dysfunction face a bigger challenge that the Miami clinic addresses through two unique procedures.

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The two techniques include penile vibratory stimulation and electroejaculation, both FDA-approved and selected based on the nature of the spinal cord injury.

ERECTILE DYSFUNCTION MEDS LIKE VIAGRA LINKED TO REDUCED ALZHEIMER’S RISK, STUDY SUGGESTS

The electroejaculation machine activates and contracts the glands responsible for producing sperm. (The machine is also available in Sweden, its only other location besides Miami.)

This method is guaranteed to be successful “almost 100% of the time,” according to Ibrahim.

‘Amazing’ fatherhood

Men from all over the U.S., and even outside the country, have come to seek this treatment including Darris Straughter, 44, a Miami native.

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Straughter was a victim of gun violence in 2018, he told Fox News Digital in an interview.

While sitting at a traffic light, he was shot eight times. The injuries left him paralyzed from the chest down.

darris straughter and daughter

Darris Straughter plays with his daughter, who will turn 2 on Aug. 5, 2024. Straughter was paralyzed by gunfire in 2018. (The University of Miami)

“I don’t feel anything,” he said. “It’s a crazy situation. You just have to roll with the punches and keep moving and try to stay positive.”

Despite the incident, Straughter — who already had one child of his own — was determined to provide children for his wife.

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FDA APPROVES FIRST AT-HOME STERILE INSEMINATION KIT TO HELP WITH INFERTILITY

“I kept saying, ‘She deserves a kid,’” he said. “She was by my side the whole time. So, I was like, ‘I’m going to try any way possible to make it happen.’”

Straughter received treatment from Ibrahim, which ultimately led to his wife’s successful pregnancy. His daughter is now almost 2 years old and is “healthy and strong,” he said.

“[Fatherhood] is amazing. It’s so joyful,” he said. “I just love everything about it.”

the straughter family at disney

“I pray God continues to guide us on a great path,” Straughter, pictured with his wife and daughter, told Fox News Digital. (The University of Miami)

Fellow Florida resident Eric Rosemary, 46, also found success at the Miami facility after a Memorial Day accident 15 years ago left him paralyzed.

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“I was on a boat … in West Palm Beach, and I fell off the boat and shattered my C4, C5, C6 vertebrae and became a quadriplegic,” he said. 

Rosemary, who has been married for eight years, told Fox News Digital that he turned to the Miami Project when the timing was right to have kids.

eric rosemary and his family

Eric Rosemary of Florida, pictured with his family, said the Miami Project is “leading the way” in helping people with spinal cord injuries adapt. (Eric Rosemary)

Rosemary was previously involved in clinical trials with the project.

He and his wife have since had two sons, born in 2020 and 2023, after three attempts at the first pregnancy and two attempts with the second.

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“When you first get injured, there are so many other things you have to worry about,” Rosemary said.

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“In my 30s, I was able to cope with having a spinal cord injury, rebuilding my business, re-building my life, then getting married and having my boys,” he continued. “I was fortunate enough that I had the time to do that.” 

As patients who have suffered from an SCI mainly focus on mobility and medical care at first, sexual function is usually “brushed off,” Ibrahim noted.

straughter family at disney

Darris Straughter, pictured in the background with his daughter, is now a stay-at-home dad. His wife is shown in the foreground.  (The University of Miami)

“They rarely talk about fertility,” he said. “And unfortunately, we still have some rehab centers in remote areas in the country that will tell these patients, ‘Forget it. You’re not going to have any children.’”

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He added, “If [providers] knew that our program exists, and they could actually refer the patients to us, that would be of great help.”

Ongoing research

As the Miami Project’s procedures have shown excellent results, more research on a potential fertility treatment is underway, Ibrahim revealed.

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The program was awarded a $3.24 million, 40-year grant in July 2023 from the U.S. Department of Defense to conduct a clinical trial to study a drug called Probenecid, which was previously used to treat gout.

Dr. Emad Ibrahim headshot

Dr. Ibrahim specializes in reproductive and sexual dysfunction in men with spinal cord injuries. He said “nothing beats the feeling” of finding out one of his patients is expecting a child. (The University of Miami)

Through years of research, Ibrahim and his team found that this drug targets the internal issues that some SCI patients experience, he said.

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In the pilot study, which included 18 patients with spinal cord injuries, Ibrahim reported that all participants saw improved sperm quality.

“The medication is safe, and we have the publication to support that it works,” he said.

The larger clinical trial is currently ongoing as the Miami Project is in search of new volunteers.

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Diabetes patients using Ozempic, other treatments instead of insulin have lower cancer risk, study finds

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Diabetes patients using Ozempic, other treatments instead of insulin have lower cancer risk, study finds
  • Type 2 diabetes patients on GLP-1 treatments, such as Ozempic, have a lower risk of 10 obesity-related cancers compared to those on insulin and other drugs, according to a new study.
  • GLP-1 treatments for type 2 diabetes have been on the market for nearly 20 years, improving blood sugar control and inducing weight loss.
  • Ozempic, approved in 2017, was one of the first in its class.

Patients with type 2 diabetes taking GLP-1 treatments, which include Ozempic, have a lower chance of developing 10 types of obesity-related cancers than those taking insulin and other diabetes drugs, according to a study published on Friday.

GLP-1 treatments for type 2 diabetes have been on the market for nearly 20 years. The newer generation – such as Novo Nordisk’s Ozempic and Eli Lilly’s Mounjaro – are far more effective at controlling blood sugar levels and inducing weight loss. Ozempic was the first of the newer generation in the class to be approved, in 2017.

In the study published on Friday in medical journal JAMA Network Open, researchers examined the medical records of 1.6 million patients with type 2 diabetes who had no prior history of 13 types of obesity-related cancers including gallbladder cancer and kidney cancer.

OZEMPIC AND WEGOVY COULD DOUBLE AS KIDNEY DISEASE TREATMENT, STUDY SUGGESTS

The study did not specify which GLP-1 medicines the patients took, but the records were for patients on these medicines or insulin or the diabetes drug metformin between March 2005 and November 2018. Ozempic was only approved by the U.S. Food and Drug Administration in December 2017.

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Ozempic medication boxes are pictured in a pharmacy. Patients with type 2 diabetes taking GLP-1 treatments, which include Ozempic, have a lower chance of developing 10 types of obesity-related cancers than those taking insulin and other diabetes drugs, according to a study published on Friday. (SEBASTIEN BOZON/AFP via Getty Images)

The study found that the patients treated with a GLP-1 therapy instead of insulin “had a significant risk reduction” in 10 of those cancers.

The findings are “preliminary evidence of the potential benefit” of GLP-1 drugs for cancer prevention in high-risk population, the researchers concluded. They also said that studies of the newer generation of these medicines for their cancer preventative effects are warranted.

The authors of the study did not report having received funds from drugmakers who market these medicines.

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The versions of these medicines that are approved to treat obesity, and have been shown to help patients lose as much as 20% of their weight on average, have exploded in popularity, leading to record profits for Novo and Lilly.

Lilly’s Mounjaro and weight-loss therapy Zepbound, as well as Novo’s rival medicines Ozempic and Wegovy are already being studied to see whether they can improve health in many other ways, ranging from alcohol addiction to sleep apnea.

In March, the U.S. Food and Drug Administration approved Wegovy for lowering the risk of stroke and heart attack in overweight or obese adults who do not have diabetes.

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In Colorado, plague case confirmed in human, health officials say: ‘Must be treated promptly’

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In Colorado, plague case confirmed in human, health officials say: ‘Must be treated promptly’

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A human case of the plague has been confirmed in Pueblo County, Colorado, according to health officials.

The Pueblo Department of Public Health and Environment (PDPHE) is working with the Colorado Department of Public Health and Environment to investigate, according to a press release.

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No specific information was provided about the person who contracted the plague.

BUBONIC PLAGUE IN THE US: DO YOU NEED TO WORRY ABOUT CATCHING THE RODENT-BORNE DISEASE?

“We advise all individuals to protect themselves and their pets from plague,” Alicia Solis, program manager of the Office of Communicable Disease and Emergency Preparedness at PDPHE, stated in the release.

What is the plague?

The bubonic plague is caused by Yersinia pestis, a bacterium that was likely first introduced in North America around 1900 from rats on ships coming from South Asia, according to Timothy Brewer, M.D., professor of medicine and epidemiology at UCLA.

The bubonic plague is caused by Yersinia pestis, a bacterium that was likely first introduced in North America around 1900 from rats on ships coming from South Asia.  (Smith Collection/Gado/Getty Images)

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“Since its introduction 120 years ago, it has become endemic in ground squirrels and rodents in the rural Southwestern U.S.,” he told Fox News Digital.

Although the disease can affect people of all ages, half the cases involve patients between the ages of 12 and 45, as stated on the Centers for Disease Control and Prevention (CDC) website.

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Globally, between 1,000 and 2,000 cases of plague are reported to the World Health Organization each year — although only an average of seven annual cases are in the U.S.

If left untreated, the plague has a fatality rate of 30% to 60%. 

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With antibiotics, that drops to below 5%.

Squirrel with hand

“Since its introduction 120 years ago, [bubonic plague] has become endemic in ground squirrels and rodents in the rural Southwestern U.S.,” an expert told Fox News Digital. (iStock)

Symptoms and spread

Symptoms of the plague typically include severe headache, fever and chills, muscle aches, nausea, vomiting and swollen lymph nodes, the health department listed.

The plague can spread by droplets from one person infected with Y. pestis to another, according to Erica Susky, a certified infection control practitioner based in Canada

“The more common risk of exposure in the U.S. is from pets, rodents and fleas,” she told Fox News Digital. 

Man at doctor

Symptoms of the plague typically include severe headache, fever and chills, muscle aches, nausea, vomiting and swollen lymph nodes. (iStock)

“Pets can sometimes be infected when encountering an infected flea or rodent and may pass it along to their pet owners from a bite or if the pet is ill.”

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Another possible source is from hunting, she said — “skinning animals is also a risk, as the bacterium can spread via infected body fluids.”

“Treat pets promptly if they have a flea infestation and seek veterinary treatment if a pet becomes ill.”

Breathing in dust contaminated by dried rodent urine or feces with the bacteria can also spread the infection, according to Brewer.

Preventing the plague

The best means of prevention is to avoid rodents and fleas whenever possible, including dead rodents, Susky said.

“One way to do this is to ensure the home is rodent-proof by eliminating places where rodents may enter and hide,” she told Fox News Digital. 

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Whenever possible, pets should be kept indoors, Susky recommended. 

If pets are outdoors, they should be leashed. 

Treat pets promptly if they have a flea infestation and seek veterinary treatment if a pet becomes ill,” Susky advised.

Person applies bug spray outside.

“If spending time outdoors where one may be bitten by fleas and other insects, repellent should be applied to minimize potential bites, which are a portal of entry for the bacterium if one is bitten by an infected flea,” an infectious diseases expert advised. (iStock)

Hunters should wear gloves and wash their hands after skinning animals, and should change and wash their clothes afterward, she added.

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The PDPHE also recommends keeping pet food in rodent-proof containers and not allowing pets to sleep in bed.

“If spending time outdoors where one may be bitten by fleas and other insects, repellent should be applied to minimize potential bites, which are a portal of entry for the bacterium if one is bitten by an infected flea,” Susky said.

Plague test

Anyone who develops symptoms of plague should see a health care provider immediately, officials advised. (iStock)

Anyone who develops symptoms of plague should see a health care provider immediately, Solis advised in the PDPHE alert.

“Plague can be treated successfully with antibiotics, but an infected person must be treated promptly to avoid serious complications or death.”

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Fox News Digital reached out to the Pueblo Department of Public Health and Environment and the Colorado Department of Public Health and Environment for comment.

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