Entertainment
She got seizures at 10 months old. So her dad wrote a musical about epilepsy and empathy
In March 1998, Ben Decter drove from Los Angeles to Tijuana to get medicine for his 17-month-old daughter, Addie. She had “catastrophic childhood epilepsy,” the neurologist had told him, and a drug not yet available in the U.S. was their best bet to treat her nonstop seizures.
That terrifying moment is currently revisited five times per week as part of a new musical — one that’s deeply personal and more than 20 years in the making. Titled “It’s All Your Fault, Tyler Price!,” the family-friendly performance is entertaining, empathetic and educational about epilepsy, a condition that remains stigmatized despite its ubiquity. And its world-premiere production, running through Dec. 15 at the Hudson Backstage Theatre in Hollywood, is largely funded by a pharmaceutical company.
It’s an unconventional financing model for a piece of musical theater. But for a unique stage show with a singular origin story, it might just be the right prescription.
“The entertainment world has been changing, and that includes all of the ways that musicals, TV and movies typically get funding,” said the show’s director, Kristin Hanggi. “It’s really just the idea of partnering with people who are in alignment with the same mission as you are and want to serve the same community you do. And when you’re united on that level, it feels undeniable.”
Faith Graham, center, and the cast of “It’s All Your Fault, Tyler Price!”
(Jim Cox)
‘I couldn’t talk about it’
At first, Decter — an Emmy-winning composer who’s scored TV shows such as “Lucifer,” “Lethal Weapon” and “CSI: Cyber” — wouldn’t discuss his daughter’s seizures. Not even with his college sweetheart wife, Jackie Sloan, or his younger child, Leo Decter.
“I had a lot of anger, sadness and isolation, but I’d just internalize and go to the gym or go out running,” said Decter. “I couldn’t talk about it, but I found myself starting to write songs on the piano, and that felt really good.”
Decter played his compositions for Sloan, who’d then sing them with him. “It was his window to express how he felt, like he could say things in songs that he wouldn’t be okay saying out loud,” she recalled.
“Even though it was painful, I felt encouraged and hopeful for us that he was finding a way to stay present and figure out how he was feeling. [These diagnoses] are so hard on families, and most couples don’t make it through.”
In 2007, a neighbor overheard Decter singing these songs and introduced him to Hanggi, who had just debuted the stage shows “Bare: A Pop Opera” and “Rock of Ages.” She immediately took to the material, and continued to develop it with Decter.
“One of the things that struck me about the lyrics was that some of them were from the children’s point of view and expressing emotions I hadn’t heard before,” said Hanggi. “The topic was so heavy, but there was also so much humor and laughter and lightness. I was like, there’s something here, we just have to figure out how to dramatize this.”
Ben Recter and Kristin Hanggi created the new musical “It’s All Your Fault, Tyler Price!”
(Robert Gauthier/Los Angeles Times)
Mission accomplished. “It’s All Your Fault, Tyler Price!” introduces four characters who are thinly veiled versions of the Decters: an emotionally avoidant composer dad, a burned out corporate lawyer mom, a sweet older sister with epilepsy, and a charismatic younger brother tasked with taking care of her.
The inciting incident onstage — a school bully makes fun of the young girl’s condition, and her brother vengefully punches him in the face — is inspired by an actual anecdote. “A friend of mine was at our house and made an insensitive joke about epilepsy, and pretended to have a seizure,” Leo explained. “I was really offended by it, so I kicked him out.” (No fists were swung in real life, though.)
The show musicalizes some seizure statistics, like the fact that 1 in 26 people will get epilepsy in their lifetime, and that seizures can vary in appearance, with manifestations as muted as a sudden head drop. One musical number even outlines seizure first aid tips, and leads the audience in repeating back the safety steps via a call-and-response gospel song.
“This [show] really bloomed into advocating for this destigmatization of what epilepsy is,” said Addie, who inspired the show. “I hope that anyone who sees this, whether they do still have seizures, are seizure-free or know somebody who has seizures, feels seen and knows that they’re not alone.”
Charlie Stover, Jenna Pastuszek, CJ Eldred and Faith Graham play a version of the Decter family in “It’s All Your Fault, Tyler Price!”
(Jim Cox)
“Tyler Price!” also portrays how a child’s diagnosis can affect everyone in a family unit: the parents argue about their daughter’s request for a bat mitzvah amid their struggles to pay her medical bills, and her brother craves the same parental attention his sister always seems to receive. Most movingly, it affirms that open communication and safe self-expression are a vital part of everyone’s treatment.
“It’s so powerful in the show when the dad just tells his son that, yes, he does get afraid,” said Hanggi. “We as parents think we’re not supposed to share our fears with our kids, but actually, it’s more helpful to talk about hard things and be intimate about your feelings as a family, instead of covering things up or trying to pretend they’re not there. That challenge is universal, whether or not you have firsthand experience with epilepsy.”
After over a decade of workshops produced by Dodgers Theatricals, Pasadena Playhouse, IAMA Theatre Company and Lythgoe Family Productions, Decter and Hanggi self-produced a reading of “Tyler Price!” last year at the Garry Marshall Theatre in Burbank.
“A piece will tell you when it’s ready to be on stage because that’s when people start giving you money,” said Hanggi of that reading’s very warm reception. “People start writing checks and saying, ‘What can we do to help?’ All this support erupted, and we could feel that energy of, it’s time.”
Addie Decter and her brother, Leo, at the Children’s Ranch. The two siblings inspired the musical “It’s All Your Fault, Tyler Price!”
(Robert Gauthier/Los Angeles Times)
News of the stage show reached UCB, a Belgium-based pharmaceutical company that produces various medications that treat epilepsy. UCB had recently contributed funding to “Under the Lights,” Miles Levin’s award-winning short film that’s since been developed into a feature with Lake Bell, Randall Park and Nick Offerman.
“We’re always looking for new ways to help address and support the community of those living with and caring for folks with a debilitating and complex form of epilepsy, and there’s often no greater medium than storytelling,” said Brad Chapman, head of U.S. epilepsy and rare syndromes at UCB, which provided the majority of the capital for the debut “Tyler Price!” production.
“For us, it’s a natural opportunity to reach more people potentially than ever before, in what might be described through these platforms as one of the greatest awareness campaigns for epilepsy.”
CJ Eldred and Charlie Stover play father and son in “It’s All Your Fault, Tyler Price!”
(Jim Cox)
‘Everything is still all right’
The entire run of “It’s All Your Fault, Tyler Price!” is visually designed to be “seizure safe,” since intense light sequences and patterns can sometimes trigger reactions. Already, the production has welcomed attendees of all ages for their first-ever live show experience. (A fully relaxed performance is scheduled for the Dec. 14 matinee.)
Ben Decter watched this week’s preview performances from various seats throughout the theater and chatted with families afterward; he is admittedly “a lot better” at expressing himself and communicating his feelings to others. His son Leo, now 25, plays guitar in the show’s band.
“Watching a kid play a younger version of you is an absolute trip, but I love getting to help my dad in this meaningful way on this project,” said Leo. Performing his dad’s songs five times a week, “I now have so much more empathy for my parents because I felt how hard it must have been for them.”
Meanwhile, Jackie Sloan pivoted from corporate reorganization and bankruptcy law to founding and running the Children’s Ranch, an Atwater Village organization that offers therapeutic animal caretaking programs for youth of all abilities and circumstances. She was inspired to do so upon seeing how well their daughter, Addie, who was diagnosed at 4 with Lennox–Gastaut syndrome, responded to caring for animals as a child.
Now 28 years old, Addie is an instructor at the ranch, helping to lead lessons for approximately 100 families a month on caring for rabbits, chickens, horses and guinea pigs. “She is a force, and I learn from her every day,” said Jackie of working alongside her daughter, who hasn’t had a seizure in years. “Addie has this way of seeing things through the eyes of the student and helping us understand how we can better help them.
Sloan described the Children’s Ranch not as a place trying to change anyone, but more so where kids and teens can get to know themselves better and show up more confidently as who they are. So in a way, the ranch is actually a lot like the musical itself.
“The show isn’t saying that everything is gonna turn out perfectly,” she said. “It’s really saying, even if things are hard, everything is still alright, and we’re going to make a great life together.”
Clockwise, from top left: Ben Decter, Jackie Sloan, Leo Decter, Kristin Hanggi and Addie Decter.
(Robert Gauthier/Los Angeles Times)
‘It’s All Your Fault, Tyler Price!’
Where: Hudson Backstage Theatre, 6539 Santa Monica Blvd., Hollywood
When: 7:30 p.m. Thursday and Friday, 2:30 and 7:30 p.m. Saturday, 2:30 p.m. Sunday; ends Dec. 15.
Tickets: $25 and up
Info: tylerpricemusical.com
Running time: 2 hours, 5 minutes (one intermission)
Movie Reviews
‘Only Beautiful Things to Look At’ Review: A Handsome but Muffled Portrait of State-Sanctioned Cruelty
The fashions and furnishings of Czechoslovakia in the 1980s — the height of the state’s racist program of suppressing the Roma population through coerced sterilization — are painstakingly evoked in Slovakian filmmaker Ivan Ostrochovský’s “Only Beautiful Things to Look At.” But the film’s attractive yet oddly bloodless presentation gives the impression of a period drama set much farther back, as though we’re peering at the prettily mounted arrowheads and artifacts of a long-gone atrocity through museum glass. Alongside the decision to centralize the perspective of a white female doctor, this old-school, soft-focus approach robs an undeniably well-intentioned movie of a vital edge of urgency and discomfort, allowing viewers to consign the cruelties it outlines to some imaginary distant past, when in truth, the sterilization policy continued well into the 21st century in both the Czech and Slovak Republics.
The film begins with a montage of young Roma women, each shot as though for a studio portrait, impassively absorbing an offscreen voice lecturing them about family planning. “Sterilization,” the voice concludes disingenuously, “allows Gypsy women to improve their family’s quality of life.” The intention behind the portraiture is noble: to put faces to a crime more often recounted in impersonal statistics, when it is acknowledged at all. But although framed and lit with dignity by cinematographer Juraj Chlpík, none of these Roma women speak. The first words of argument or protest we hear are from Ingrid (Anna Geislerová), the film’s white protagonist, and she is not talking about reproductive rights at all. Instead, she is facing an all-male panel of her peers as she interviews for the role of head doctor at the hospital where she works. Ingrid knows the position will very likely go to one of her male colleagues, but that doesn’t stop her being angry and disappointed when it actually does.
Outside her work at the hospital, which in large part comprises assessing and performing the sterilizations in a procedure that leaves patients with a small scar beneath the navel nicknamed “the bow,” Ingrid has what can only be described as a beautiful life. With her music teacher husband Maros (Vlad Ivanov), she lives in a gorgeous house in the countryside, where her bedroom, glass-paned on two sides overlooking a lush forest, looks almost like a fairytale princess’ lair. In the warm-lit evenings she and Maros read and drink wine and listen to classical music; on her days off she goes for walks in the forest or, when it’s hot, visits the nearby river and looks on benignly as Roma children bob along playfully on tire tubes.
It is only through her burgeoning friendship with Agata (a radiant Simona Boledovičová), a sweet-natured orderly who is reticent about her Romani idenitity, that Ingrid eventually starts to become uncomfortable with the work she does helping the hospital meet its government-recommended quotas for sterilizations. Ostrochovský’s film, co-written with Marek Leščák, is not anything quite as crude as a white savior narrative, but it is certainly one that assumes the best conduit for a wide audience to understand the cruelty visited on Czechoslovakian Roma families, is the moral awakening of a white woman.
This faulty focus is particularly frustrating because Agata’s own story, and the manner in which she comes to reconcile herself with her Roma background, is by far the more intriguing narrative strand. As an orphan, Agata was separated from her sister Jula (an excellent Eva Mores), with each then going on to lead very different lives. Jula married within the Roma community, has had two children and is pregnant with an unwanted third. Agata, who at first barely acknowledges their connection, has been more independent, living with a roommate and working at the hospital, and recently getting serious with a boyfriend. “He’s white?” queries Jula in surprise when she hears that he’s a soldier. “Good for you.”
The tides of unspoken resentment and disapproval that flow between the sisters are fascinating, with Agata able to move between Jula’s world, in a cramped flat in a crumbling building where kids play in dirty stairwells, and Ingrid’s enviably refined domestic environment. Eventually, just like Chlpík’s limpid camera, Agata comes to see the beauty in both, when in the film’s most moving moment, the sisters tacitly reconcile while Jula’s kids splash about in the tub at bathtime. There would have been the opportunity here to probe the long-term consequences for the Roma women bearing “the bow,” many of whom had been conned into a procedure that was misrepresented to them, in a language they did not speak, or in documentation they could not read.
Instead, the film insistently returns us to Ingrid. As she’s kept awake by the first stirrings of her conscience, as she lazes in rumpled white bedsheets watching a beetle trundle across her pillow, as she’s depicted in macro close-ups that emphasize the blondeness of her hair, the fairness of her skin, the blueness of her eyes. Indeed, right up to a finale which resolves the remaining conflict with a rather glib miracle, the film’s loveliness practically becomes a liability, placing the real plight of the Roma several removes of perspective and aesthetic manipulation away, until you begin to wonder why we’re being given only beautiful things to look at, when there are so many ugly things that better warrant the attention.
Entertainment
‘Foreign Tongues’ is the funniest Rolling Stones album in decades
Here’s a terrible-seeming idea: The Rolling Stones should get started on their next album.
Like, now.
After taking nearly two decades to release 2023’s “Hackney Diamonds” — the band’s first set of original material since “A Bigger Bang” in 2005 — the Stones are back this week with a follow-up, “Foreign Tongues,” that took them less than 36 months to get out.
And it’s the better record in every way.
In the old days, of course, two and a half years was all they needed to make “Beggars Banquet,” “Let It Bleed” and “Sticky Fingers.” So let’s not get too carried away by the fact Mick Jagger, Keith Richards and Ronnie Wood are working as fast as they are in their late 70s and early 80s.
Yet to listen to the brisk and sportive “Foreign Tongues” is to hear a band clearly going on instinct rather than overthinking the music à la any number of veteran acts in legacy-maintenance mode. I don’t know if the result is the Stones’ best since 1978’s “Some Girls,” but it’s definitely the funniest, which is actually the more impressive achievement.
“Wake up in the morning and you wanna make me puke,” Jagger sneers in the punky “Hit Me in the Head” — exactly the kind of lyric you’d hope to hear from a band whose only possible reason for still being in the game is to have a gas-gas-gas.
Like “Hackney Diamonds” — and, for that matter, like Paul McCartney’s “The Boys of Dungeon Lane” (to name one recent overthinking-veteran LP) — “Foreign Tongues” was produced by 35-year-old Andrew Watt, who’s made a career of helping boomer icons put a little shine on their late-in-life efforts. And he’s helped the Stones convene an appealingly motley crew of collaborators here, including McCartney (who plays bass on “Covered in You”), the Cure’s Robert Smith (who contributes guitar to “Divine Intervention”), Steve Winwood (who plays piano and organ throughout the album) and Bruno Mars (who’s credited with, uh, cowbell in “Never Wanna Lose You”).
You also get a welcome appearance from the late Charlie Watts in a hard-thwacking performance recorded before his death in 2021. (Steve Jordan otherwise keeps time.)
But none of the stunt casting feels like the point of the album, which instead simply doles out a dozen tunes in the Stones’ various idioms — the bluesy stomp, the country-ish lope, the sleazy disco jam — plus a couple of covers in just over an hour. It’s frisky and lighthearted, even when Jagger is lamenting what he sees as the sorry state of his beloved America in “Ringing Hollow” and when Richards is croaking about love having put him on his knees in “Some of Us.”
And when they go goblin mode, they really lean in: “Mr. Charm” is a demented soul-rock rave-up about how boring money is — OK, Mick — in which Jagger drops a diss of the “mad mogul Mr. Musk” into a verse laying out the delights of staying home and doing anagrams.
In “Divine Intervention,” Jagger offers a colorful travelogue of trips through New York and Los Angeles — “I kept moving on to Silver Lake / To play guitar with a brand new friend of mine” — while Richards and Wood get their guitars slip-sliding all over the place. “Jealous Lover” is gorgeously trashy: a horny little strut that sounds like “Dirty Mind”-era Prince doing “Waiting on a Friend.” (Legitimately loony Mick vocal here.)
For God knows what reason, the Stones offer up a faithful rendition of Amy Winehouse’s “You Know I’m No Good” with Jagger on harmonica. And the album ends with a very ragged take on Chuck Berry’s “Beautiful Delilah,” obviously meant to remind you of how the two lifers at the core of the Stones came together more than half a century ago.
The memory is ancient; the thrill, somehow, is alive.
Movie Reviews
Movie review: ‘Gail Daughtry and the Celebrity Sex Pass’ not quite ‘Wet Hot’ fun
Comedy is a matter of taste and preference — it’s a deeply personal thing. Which makes it hard for a critic to give a blanket assessment of a specific kind of comedy, especially if it didn’t work for them, but clearly worked for others (the laughter or lack thereof is the indication). “It’s not funny,” the critic says, “well I had fun,” someone else can reply, and then we’re at an impasse.
Which is the dilemma one finds oneself in with “Gail Daughtry and the Celebrity Sex Pass,” a very strange and shaggy Hollywood satire of sorts from David Wain and The State crew, still riding the goodwill of “Wet Hot American Summer” after all these years. If only this were as funny.
“Gail Daughtry” lives in the same world as that iconic summer camp spoof, as well as Wain’s 2014 rom-com parody, “They Came Together,” in that he’s playing with genre convention and expectation, taking well-known norms to the goofiest extremes. But those films hewed more closely to their respective genres, while “Gail Daughtry” is totally scattered, combining crime and spy movie tropes with a fish-out-of-water comedy and a Hollywood send-up. It has far too many ideas for its own good, and yet no ideas that are good enough to sustain this bizarre curio of a comedy.
What’s ironic is that one of the problems driving this wacky plot forward is the characters have to come up with a movie idea to pitch to star Jon Hamm (playing himself of course), leading them to do some pretty inane and shockingly violent things. It’s almost as if Wain and co-writer and co-star Ken Marino had no idea for a movie, then baked their search for an idea into their script, and then turned it into a madcap adventure about a woman on a quest to have sex with Jon Hamm. What an ouroboros!
OK, about the sex quest. Gail Daughtry (Zoey Deutch) is a chipper hairdresser from Kansas born without the part of the brain that recognizes sarcasm or irony. She’s a cheerful, Pollyanna-ish naïf whose literal-mindedness is almost as extreme as Amelia Bedelia. Her childhood sweetheart and fiancé Tom (Michael Cassidy) is the same. She tells him about the concept of the “celebrity sex pass” as a joke, and he promptly boinks Jennifer Aniston at local book reading.
(Nitpicky aside: why didn’t they use the common nomenclature “hall pass”? Is it copyrighted? “Celebrity sex pass” is clunky and sounds like an off-brand version of the well-known slang.)
That infidelity crisis is how Gail ends up in Los Angeles determined to bang Hamm, collecting a motley crew of similarly clueless helpers along the way. There’s her best friend Otto (Miles Guttierez-Riley), her salon bestie; Caleb (Ben Wang), an overly ambitious intern at Creative Artists Agency; Vince (Marino), a screenwriter turned paparazzo with a heart of gold; and John Slattery, as John Slattery, down on his luck. An accidental briefcase swap has a pair of thugs on their tail, in a forgettable and underdeveloped B-plot.
With a parade of celebrity cameos and collaborators in bit parts, “Gail Daughtry” at times feels like an excuse for Wain and co. to make something at home with all of their friends. Fair enough, it’s great to see all these people employed, but what about what we’re watching? Behold, the Los Angeles of the middle-aged working comedian: the CAA lobby, the Chateau Marmont, Griffith Park, etc. And the plot is as half-baked as the pitch they present to Hamm.
What’s actually interesting about this comedy is the distinct streak of despair and even resentment that reveals itself at the climax, a feeling of helplessness and uselessness. Everyone’s been striving to make it in this crazy town: the intern, the actor, the paparazzo. But not even Jon Hamm can help them get a movie made; even he feels inherently powerless. There’s an unexplored anxiety vibrating there that feels the most thematically fruitful, about what it means, some 25 years after bursting onto the scene with a generation-defining comedy, about maintaining the work, the drive, a sense of purpose, after years of strikes, and in the face of a constricting industry. Do they still have it? Is the dream still alive?
Maybe that’s why Wain and Marino need to invent a dreamer stand-in with Gail, a guileless eternal optimist who knows nothing of the craven Los Angeles and accepts everything at face value (though she is filled with a scary bit of rage too). She might behave like she has a head injury, but she’s going to achieve her goal, dammit. “Gail Daughtry and the Celebrity Sex Pass” might not be as funny as “Wet Hot American Summer” (for this critic), but reframed, it serves as a fascinating status update on life in La La Land for this troupe.
‘Gail Daughtry and the Celebrity Sex Pass’
2 stars (out of 4)
MPA rating: R (for sexual content, violence/bloody images and language)
Running time: 1:33
How to watch: In theaters July 10
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