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Father’s Parkinson’s disease inspires a New Jersey family to donate their brains for research

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Father’s Parkinson’s disease inspires a New Jersey family to donate their brains for research


MIDLAND, New Jersey (WABC) — Staying active is one of the many ways Don Demers Sr., 73, deals with his battle with Parkinson’s disease.

“It’s all to delay the disease,” he tells Eyewitness News. “Exercise is a really good form of fighting it.”

Keeping busy is something the New Jersey native is no stranger to, having spent his career as a portfolio manager.

After analyzing and identifying key info as part of his job role for many years, Demers Sr. knows more than a thing or two about the value of research.

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He also, according to his son, Don Demers Jr., knows how much research is needed when it comes to Parkinson’s.

“He knew that the brain matter is the most important property for researchers,” said Demers Jr. “So to sign up to give his port-mortem was an easy decision.”

Signing up is exactly what the Demers family did with Tish Hevel’s Brain Donor Project, a nonprofit registry that partners with the NeuroBioBank, a brain tissue repository that distributes thousands of samples per year for scientific study.

The goal for the company is to simplify the process of brain donation, making it free and easy for families to donate a brain upon death.

Aware that becoming a brain donor isn’t as easy as becoming an organ donor, Hevel launched the Brain Donor Project in 2016.

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“The first thing everyone says is, ‘I already checked the box on my driver’s license and I’m going to be a brain donor,’ and it’s like no, you’re not,” said Hevel.

The topic of brain donation is one that Hevel knows all too well.

In March 2015, Hevel’s father, Gene Armentrout, passed away in March 2015 from Lewy body dementia and wanted his brain donated for research.

“We’re not getting answers fast enough,” said Hevel. “At this point, one in five of us suffers from some sort of neurological disease or disorder.”

The need for more research is one of the reasons why all the adults in the Demers family have decided to register for the Brain Donor Project.

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“The more brains that people sign up for donation, the more matter goes to researchers,” said Don Jr.

“It has a spiral effect of increasing research not just for Parkinson’s, but all these different neurological diseases.”

Demers Sr. and his family now take comfort in knowing that his final act with be a selfless one, all in the name of science, as will theirs.

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New Jersey

Hazardous Weather Outlook Issued For Bergen County, Track Storm Beryl

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Hazardous Weather Outlook Issued For Bergen County, Track Storm Beryl


NORTH JERSEY, NJ — A Hazardous Weather Outlook has been issued for Bergen County, with heavy rain expected late Saturday, and as much as an inch in the wee hours.

See the forecast and alerts here.

Meanwhile, for those traveling, Hurricane Beryl has formed in the Caribbean, and is expected to move toward Central America. Forecasters have predicted a heavier than normal hurricane season this year. Track hurricanes here.

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Forecasting weather is an imperfect science, so it’s best to be prepared, then to check the most up-to-date numbers:

See the updated NWS forecasts, watches, and warnings for North Jersey:

What about the rivers? This NWS map of the United States will show the potential for flooding.



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N.J. pulls funding for Jersey City French museum project, calling it 'no longer viable' • New Jersey Monitor

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N.J. pulls funding for Jersey City French museum project, calling it 'no longer viable' • New Jersey Monitor


State officials have yanked funding for a planned French art museum in the heart of Jersey City after determining the project is no longer viable, according to letters obtained by the New Jersey Monitor. 

The state Economic Development Authority sent a letter Saturday to the president of The Centre Pompidou museum in Paris telling him the North American location Pompidou wants to open in Jersey City’s Journal Square section will not receive the tens of millions in aid New Jersey has promised. Lawmakers have reallocated state funds previously set aside for the Jersey City Pompidou outpost, a state official wrote in a separate letter to the head of the Jersey City agency overseeing the project.

“Due to the ongoing impact of COVID and multiple global conflicts on the supply chain, rising costs, an irreconcilable operating gap, and the corresponding financial burdens it will create for New Jersey’s taxpayers, the Legislature has rescinded financial support, leaving us to determine that this project is unfortunately no longer feasible,” Economic Development Authority chief Tim Sullivan wrote in a Saturday letter to Laurent Le Bon, the Pompidou’s president. 

In the other letter, sent Saturday from Michael Greco, deputy executive director of the Department of State, to Jersey City Redevelopment Agency chief Diana Jeffrey, Greco asked the agency to return $6 million the state department has given for the project but has not been spent yet. The $24 million lawmakers had allocated in the 2024 budget and the $18 million the was part of the 2022 budget has been returned to the state’s general fund, the letter says.

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“Based on the Legislature’s actions, there is no longer any State support available for this project,” Greco wrote.

The state’s decision to reassign funds meant for the museum, called the Centre Pompidou x Jersey City, is not a surprise. The city’s mayor, Steve Fulop, went public in April with claims that New Jersey officials were taking funding away from the Pompidou to retaliate against him for retracting his endorsement of first lady Tammy Murphy’s now-scuttled bid for the U.S. Senate.

Fulop is seeking the Democratic nomination for governor next year. 

Jersey City and Pompidou officials did not immediately respond to requests for comment. 

The Economic Development Authority has acknowledged it had doubts about the financial viability of the Jersey City Pompidou project, citing a $19 million hole in the museum’s operating budget. Jersey City had been hoping for a $2 million annual subsidy for the museum, but that will not happen, Greco’s letter says.

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Jersey City has until Aug. 1 to return the $6 million provided by the Department of State, the letter adds.

The Centre Pompidou x Jersey City plan has long been criticized by Republicans, who opposed using state funds for it. As Sullivan and Fulop traded barbs over the funding last month, Republican lawmakers wrote a letter to the state urging the funding to go toward a “more responsible purpose.”

The museum was originally slated to open in early 2024, but that was pushed to as late as 2027. When city officials announced plans for the museum in 2021, they said it would reinvigorate Journal Square and transform it into an arts, entertainment, and tourism hub.

In the letter to Pompidou’s president, Sullivan commends its staff for their collaborative work and says he hopes to continue strengthening the “economic and cultural bond” between France and New Jersey. He added he is disappointed by the outcome. 

“While the door on this particular project has now been closed, we are eager to explore possibilities of opening new doors, with our partners in France, in the years to come,” he said. 

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About 1 in 3 people live near an N.J. warehouse and its pollution. What will it take to stop?

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About 1 in 3 people live near an N.J. warehouse and its pollution. What will it take to stop?


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