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Dementia warning: Don't ever say these 16 things to loved ones with the disease, experts advise

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Dementia warning: Don't ever say these 16 things to loved ones with the disease, experts advise

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Dementia may be a disease of the mind, but its effects can be highly emotional.

Those suffering from cognitive decline can experience frequent changes in emotions and have less control over their feelings, according to the Alzheimer’s Society — which can make communication difficult.

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“Most people do not have regular interactions with those living with dementia, so it can be hard to know the do’s and don’ts of what to say and how to behave,” Dana Eble, outreach manager for the Alzheimer’s Caregivers Network in Detroit, Michigan, told Fox News Digital.

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“Unfortunately, even the most well-meaning of interactions can lead to stress or confusion for someone experiencing cognitive decline.”

When communicating with a dementia patient, experts say it’s important to choose your language carefully and avoid certain phrases or questions, including the items on the list that follows.

Those suffering from cognitive decline can experience frequent changes in emotions and have less control over their feelings. (iStock)

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1. ‘Don’t you remember?’

This topped the list as the worst question to ask someone with dementia, according to experts.

“This question can be frustrating or embarrassing for someone with dementia, as memory loss is a central symptom of their condition,” Timothy Frie, a nutritional neuroscientist in Atlanta, Georgia, who studies how traumatic stress causes neuroinflammation, told Fox News Digital.

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“It can make them feel inadequate or upset about their cognitive decline.”

Forcing the person to acknowledge that they don’t remember a memory or conversation can make them feel bad, added Christina Chartrand, the Florida-based vice president of Senior Helpers, a home care company that often helps dementia patients.

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2. ‘Let me do that for you’

One of the hardest parts of having dementia is the daily realization of things that can no longer be done independently, according to Adria Thompson, a licensed speech-language pathologist in Massachusetts with 10 years of experience in dementia care.

It is best to avoid arguing or reasoning with someone with dementia, as it will likely anger and agitate them, experts said.  (iStock)

“Often, well-meaning individuals might prematurely take over tasks without asking or assessing if they need to, which can diminish the person’s sense of autonomy,” she told Fox News Digital. 

“Instead of assuming they can’t do something, it’s more respectful to offer help and let them tell you if they need it — and allow them to still do the things they can for as long as possible.”

3. ‘You’re wrong’

It is best to avoid arguing or reasoning with someone with dementia, as it will likely anger and agitate them, experts agreed.

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“People with dementia do not need to be corrected when they believe it’s Tuesday the 13th and not Monday the 1st,” Elizabeth Landsverk, M.D., a California-based geriatrician and founder of Dr Liz Geriatrics, an online education and support resource, told Fox News Digital.

“Keep the peace,” she advised. “It’s better than being right.”

4. ‘Would you like to make plans for next week?’

“As dementia patients lose their sense of time, they lose a frame of reference that would make this question meaningful to them,” said Leonie Rosenstiel, president of Dayspring Resources, Inc., in Albuquerque, New Mexico, which helps families of elders plan and cope with the problems of aging

“Repeatedly pointing out that someone is repeating themselves can lead to feelings of frustration and self-consciousness” for that person, an expert said. (iStock)

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“If you expect to do something with them at a particular time in the future, they will not be able to keep track of this appointment.”

To prevent frustration, Rosenstiel recommended ensuring that someone else can remember or write down the plans, and that those plans don’t conflict with activities such as medical appointments.

5. ‘You seem fine’

“Society often has a preconceived notion of what dementia looks and acts like, and if someone doesn’t fit that stereotype, it might seem tempting to use this phrase as a compliment,” noted Thompson.

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“However, this phrase can belittle the individual’s daily struggle and experiences.”

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It’s important to be aware that symptoms and experiences can vary greatly among individuals with dementia, Thompson told Fox News Digital.

6. ‘I just told you that’ or ‘You already told me that’

Along the same lines of “Don’t you remember?” experts recommend not asking questions or making statements that are likely to upset the person. 

Continually “pointing out that someone is repeating themselves can lead to feelings of frustration and self-consciousness,” said Frie.

“It’s better to gently redirect the conversation or respond as if it’s new information.”

Experts recommend not asking questions or making statements that are likely to upset the person.  (iStock)

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This is especially true in the middle stages of their disease, when patients may have moments when they know their brain isn’t working right, according to Jennifer Fink, a caregiver expert in California who facilitates support groups for the Alzheimer’s Association.

7. ‘How have you been feeling this week?’

This might seem like a natural question to ask if it’s been a week since you’ve visited a loved one or friend, and you’re trying to catch up.

Yet it could do more harm than good, Rosenstiel said. 

“We ask each other questions like this all the time, but someone with dementia might not remember how they were feeling five minutes ago, let alone how they felt yesterday,” she warned. 

“They might make something up, in an effort to satisfy you, or they might get frustrated or angry.”

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“Instead of assuming they can’t do something, it’s more respectful to offer help and let them tell you if they need it — and allow people to still do the things they can for as long as possible,” an expert advised. (iStock)

8. ‘You’re not making any sense’

Criticizing dementia patients’ communication can damage their self-esteem and discourage them from expressing themselves, according to Michael Kramer, a long-term care educator and director of community relations for retirement residences that accommodate seniors with dementia.

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“Having patience and making an effort to understand their perspective helps to maintain their dignity and encourages open communication,” said Kramer, who is based in Ontario.

9. ‘Do you remember this?’

It’s best to avoid asking if the person recalls specific pieces of information, such a name or date or event, as it can put the person on the spot and feel like a test, experts said.

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“Instead, start by introducing yourself,” Eble suggested — “something like, ‘Hey, Grandma, it’s Dana, your granddaughter!’ It might feel strange at first, but it will put your loved one at ease by reminding them of your name and connection to them.”

It’s best to avoid asking if the person recalls specific pieces of information, as it can put them on the spot and feel like a test, experts say. (iStock)

The same goes for events or memories, she said.

Instead of asking if they remember, start with “I remember when…” and then continue with your story. 

“Those with dementia love reminiscing, but don’t frame it as a test of their memory,” Eble added.

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10. ‘You’re being difficult on purpose’

This phrase is “hurtful and dismissive,” Kramer warned. 

“It overlooks the fact that behavioral challenges are a result of the dementia itself, not intentional actions,” he said.

In some cases, phrasing activities as a question can cause confusion for a dementia patient, experts warned. (iStock)

“Using empathy and understanding instead of frustration is crucial in managing these situations.”

Labeling behavior as “difficult” can increase frustration and tension, Frie agreed.

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“Understanding that challenging behaviors are often a symptom of the disease can help in responding with patience and empathy,” he said.

11. Using words like ‘bib’ or ‘diaper’

“As dementia progresses, caregivers may need to start using products to help with incontinence and/or to help make meal times easier,” Eble pointed out.

“Sometimes a limited choice is too much of an effort for a dementia patient.”

She recommended using positive language for these products, such as “protective underwear,” “cloth” or “apron.”

12. ‘Remember, she died last year, we went to the funeral…’

Reminding someone with dementia of the death of a loved one can be upsetting, as the person is likely not retaining this information, according to Kate Granigan, a geriatric social worker and president of the Aging Life Care Association Board in Boston.

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Reminding someone with dementia of the death of a loved one can be upsetting, as the person is likely not to have retained this information. (iStock)

“This can trigger a grief response over and over again, as if the information is newly learned,” she told Fox News Digital. 

Instead, she recommended saying something like, “It seems like you are really thinking about Uncle Harold today. Do you have a favorite memory from when you were kids?”

13. ‘That’s not how it happened’

“Dementia can cause confusion and altered perceptions of events,” said Kramer.

“Correcting someone sharply can increase their distress and confusion.”

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Instead, it’s better to validate their experiences and gently guide them rather than insisting on correctness, the expert recommended.

14. ‘Do you want to [insert activity]?’

In some cases, phrasing activities as a question can cause confusion for a dementia patient, according to Eble. 

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“If you’re the primary caregiver in charge of your loved one’s toileting, showering, feeding or sleeping schedule, instead of asking ‘Do you want to,’ lead with ‘Let’s go to the [bathroom, shower, kitchen],’” she recommended. 

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“Adding that bit of direction will help maintain their schedule.”

15. ‘What would you like to wear today?’

Open-ended choices may leave a dementia patient confused or frustrated, noted Rosenstiel. 

“They also might have no idea whether they’ll need a sweater or not, because they don’t remember what they heard on a weather report an hour ago,” she told Fox News Digital. 

Open-ended choices may leave a dementia patient confused or frustrated, an expert advised. (iStock)

A more productive question might be, “Here’s a red sweater and a blue one. Which one would you rather wear?” 

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“Even then, sometimes a limited choice is too much of an effort for a dementia patient,” the expert said.

16. ‘Get your coat and shoes, grab your bag and meet me by the door’

Long sentences with multiple parts or commands can be overwhelming and confusing for someone with dementia, according to Granigan. 

 

“It is more successful to provide one short direction or piece of information at a time,” she told Fox News Digital. 

“Pause between each and guide the person through the task if needed before starting the next.”

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Aging process could accelerate due to ‘forever chemicals’ exposure, study finds

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Aging process could accelerate due to ‘forever chemicals’ exposure, study finds

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A new study suggests that middle-aged men may be more vulnerable to faster biological aging, potentially linked to exposure to “forever chemicals.”

The research, published in the journal Frontiers in Aging, examined how perfluoroalkyl and polyfluoroalkyl substances, more commonly known as PFAS, could impact aging at the cellular level.

PFAS are synthetic chemicals commonly used in nonstick cookware, food packaging, water-resistant fabrics and other consumer products, the study noted. 

Their chemical structure makes them highly resistant to breaking down, allowing them to accumulate in water, soil and the human body.

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Chinese researchers analyzed blood samples from 326 adults enrolled in the U.S. National Health and Nutrition Examination Survey between 1999 and 2000.

A new study suggests that middle-aged men could face accelerated biological aging at the cellular level due to exposure to PFAS. (iStock)

The researchers measured levels of 11 PFAS compounds in participants’ blood and used DNA-based “epigenetic clocks” — tools that analyze chemical changes to DNA to estimate biological age — to determine how quickly their bodies were aging at the cellular level, the study stated.

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Two compounds, perfluorononanoic acid (PFNA) and perfluorooctanesulfonamide (PFOSA), were detected in 95% of participants.

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Higher concentrations of those chemicals were associated with faster biological aging in men of certain age groups, but not in women.

“People should not panic.”

The compounds most strongly linked to accelerated aging were not the PFAS chemicals that typically receive the most public attention, the researchers noted.

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“The associations were strongest in adults aged 50 to 64, particularly in men,” Dr. Xiangwei Li, professor at Shanghai Jiao Tong University School of Medicine and the study’s corresponding author, told Fox News Digital. 

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“While this does not establish that PFAS cause aging, it suggests that these widely present ‘forever chemicals’ may be linked to molecular changes related to long-term health and aging.”

The study found that two of the compounds were detected in 95% of participants, and higher levels were linked to faster biological aging in men ages 50–64. (iStock)

Midlife may represent a more sensitive biological period, when the body becomes more vulnerable to age-related stressors, according to the researchers.

Lifestyle factors, such as smoking, may influence biological aging markers, potentially increasing vulnerability to environmental pollutants.

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While Li said “people should not panic,” she does recommend looking for reasonable ways to reduce exposure. 

That might mean checking local drinking water reports, using certified water filters designed to reduce PFAS, and limiting the use of stain- or grease-resistant products when alternatives are available.

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Meaningful reductions in PFAS exposure will likely depend on broader regulatory action and environmental cleanup efforts, Li added.

The researchers noted that midlife could be a particularly sensitive stage, when the body is more susceptible to stressors associated with aging. (iStock)

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Study limitations

The researchers outlined several important limitations of the research, including that the findings show an association, but do not prove that PFAS directly causes accelerated aging.

“The study is cross-sectional, meaning exposure and aging markers were measured at the same time, so we cannot determine causality,” Li told Fox News Digital.

The study was also relatively small, limited to 326 adults age 50 or older, which means the findings may not apply to younger people or broader populations.

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Researchers measured PFAS levels using data collected between 1999 and 2000, and today’s exposure patterns may differ.

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Li added that while PFAS is known to persist in the environment and the body, these results should be validated through larger, more recent studies that follow participants over time.

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Alzheimer’s prevention breakthrough found in decades-old seizure drug

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Alzheimer’s prevention breakthrough found in decades-old seizure drug

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A drug that has long been used to treat seizures has shown promise as a potential means of Alzheimer’s prevention, a new study suggests.

The anti-seizure medication, levetiracetam, was first approved by the FDA in November 1999 under the brand name Keppra as a therapy for partial-onset seizures in adults. The approval has since expanded to include children and other types of seizures.

Northwestern University researchers recently found that levetiracetam prevented the formation of toxic amyloid beta peptides, which are small protein fragments in the brain that are commonly seen in Alzheimer’s patients.

The medication was found to prevent the formation of amyloid-beta 42 in both animal models and cultured human neurons, according to the study findings, which were published in Science Translational Medicine.

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The effect was also seen in post-mortem human brain tissue obtained from individuals with Down syndrome, who are at high risk for Alzheimer’s disease.

The medication was found to prevent the formation of amyloid-beta 42 in both animal models and cultured human neurons. (iStock)

“While many of the Alzheimer’s drugs currently on the market, such as lecanemab and donanemab, are approved to clear existing amyloid plaques, we’ve identified this mechanism that prevents the production of the amyloid‑beta 42 peptides and amyloid plaques,” said corresponding author Jeffrey Savas, associate professor of behavioral neurology at Northwestern University Feinberg School of Medicine, in a press release. 

“Our new results uncovered new biology while also opening doors for new drug targets.”

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The brain is better able to avoid the pathway that produces toxic amyloid‑beta 42 proteins in younger years, but the aging process gradually weakens that ability, Savas noted. 

“This is not a statement of disease; this is just a part of aging. But in brains developing Alzheimer’s, too many neurons go astray, and that’s when you get amyloid-beta 42 production,” he said. 

The effect was also seen in post-mortem human brain tissue obtained from individuals with Down syndrome, who are at high risk for Alzheimer’s disease. (iStock)

That then leads to tau (“tangles”) — abnormal clumps of protein inside brain neurons — which can kill brain cells, trigger neuroinflammation and lead to dementia.

In order for levetiracetam to function as an Alzheimer’s blocker, high-risk patients would have to start taking it “very, very early,” Savas said — up to 20 years before elevated amyloid-beta 42 levels would be detected.

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“You couldn’t take this when you already have dementia, because the brain has already undergone a number of irreversible changes and a lot of cell death,” the researcher noted.

The researchers also did a deep dive into previous human clinical data to determine whether Alzheimer’s patients who were taking the anti-seizure drug had slower cognitive decline. They reported that the patients in that category had a “significant delay” in the span from cognitive decline to death compared to those not taking the drug.

“This analysis supports the positive effect of levetiracetam to slow the progression of Alzheimer’s pathology,” the researcher said. (iStock)

“Although the magnitude of change was small (on the scale of a few years), this analysis supports the positive effect of levetiracetam to slow the progression of Alzheimer’s pathology,” Savas said.

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Looking ahead, the research team aims to find people who have genetic forms of Alzheimer’s to participate in testing, Savas said.

Limitations and caveats

The study had several limitations, including that it relied on animal models and cultured cells, with no human trials conducted.

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Because the study was observational in nature, it can’t prove that the medication caused the prevention of the toxic brain proteins, the researchers acknowledged.

Savas noted that levetiracetam “is not perfect,” cautioning that it breaks down in the body very quickly.

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The team is currently working to create a “better version” that would last longer in the body and “better target the mechanism that prevents the production of the plaques.”

“You couldn’t take this when you already have dementia, because the brain has already undergone a number of irreversible changes and a lot of cell death.”

The medication’s common documented side effects include drowsiness, weakness, dizziness, irritability, headache, loss of appetite and nasal congestion.

It has also been linked to potential mood and behavior changes, including anxiety, depression, agitation and aggression, according to the prescribing information. In rare cases, it could lead to severe allergic reactions, skin reactions, blood disorders and suicidal ideation.

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Funding for the study was provided by the National Institutes of Health and the Cure Alzheimer’s Fund.

Fox News Digital reached out to the drug manufacturer and the researchers for comment.

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