Nevada
Southern Nevada family fights rare ‘childhood Alzheimer’s’ disease while pushing for a cure
LAS VEGAS (KTNV) — A 4-year-old Las Vegas boy is battling Niemann-Pick Type C, a fatal disease affecting just 4 children in Nevada. His family is fighting insurance barriers, traveling cross-country for care.
Jordan and Jennifer Mitchell’s home is filled with love. Their son Liam, just 4 and a half years old, is doing what kids his age do — giggling and playing. But inside his body, a race against time is underway.
VIDEO: Abel Garcia talks to the Mitchell Family about their fight for their son and rare disease
Southern Nevada family fights rare ‘childhood Alzheimer’s’ disease while pushing for a cure
Liam is one of just four children in Nevada diagnosed with Niemann-Pick Type C, a rare neurodegenerative condition often called “childhood Alzheimer’s.” The disease slowly takes away a child’s ability to walk, talk and even swallow, and it is always fatal. Without treatment, children with Liam’s form of NPC may not live past age 5.
“When he was born, he had a lot of complications right from birth… and that helped us get to a diagnosis — as terrible as it is, we found out early,” Jordan Mitchell said.
The family says they have seen progress through a careful regimen of medications and spinal injections. But keeping Liam stable comes at an extraordinary cost — between $1.3 million and $3.1 million a year — and the Mitchells say they have already faced pushback from their insurance provider.
“Knowing that these medications do work… but if the insurance says they’re too expensive, that’s it — that’s not easy to live with,” Jennifer Mitchell said.
When I asked the Mitchells about access to healthcare in Southern Nevada, Jordan was direct.
“The healthcare in the valley is not good for preventative or trying to treat these long-term problems,” Jordan Mitchell said. “They ultimately said we couldn’t figure it out… and ultimately we had to go out of state to get him treated.”
Because Liam cannot fly due to his compromised immune system, the family makes cross-country drives to access treatment and research.
“We don’t fly… we’ve done eight or ten drives to the Mayo Clinic in Minnesota, and now to the test sites in Chicago once a year,” Jennifer Mitchell said.
Now, the family says hope is coming from a groundbreaking gene therapy study led by University of Iowa researcher Dr. Mark Schultz, which is showing promising results.
“We were able to prove that a gene therapy can cure Niemann-Pick Type C… we’ve funded a mouse liver study and we’re in the process of publishing that work,” Jordan Mitchell said.
To help fund that research, the Mitchells created a nonprofit — the Life for Liam and Friends Foundation — and host annual fundraisers in Southern Nevada.
“Don’t give up hope. If you aren’t trying, there’s no chance you’re going to get help… I am hopeful Nevada can improve healthcare so anyone can find the treatment they need,” Mitchell said.
The Mitchells say they will keep pushing, keep driving and keep loving their son for as long as they can.
Because families like the Mitchells have struggled to find specialized care here, I reached out to find out what else is being done. A spokesperson with Intermountain Health told me their first stand-alone children’s hospital planned for Southern Nevada will include neurology, with specialists on staff, when the hospital opens in 2030.
Meanwhile, 66 members of the Class of 2028 at the Kirk Kerkorian School of Medicine at UNLV received their white coats, marking their official transition from classroom studies to direct, hands-on patient care — a milestone that represents continued investment in building the next generation of doctors here in Southern Nevada.
If there’s something you’d like me to look into, email me at abel.garcia@ktnv.com.
This story was reported on-air by a journalist and has been converted to this platform with the assistance of AI. Our editorial team verifies all reporting on all platforms for fairness and accuracy.
Nevada
The Best Summer County Fairs In Nevada
Towns like Elko, Ely, and Panaca host some of Nevada’s most distinctive summer county fairs. Some of them are also among the state’s oldest such gatherings, with Winnemucca’s Tri-County Fair a staple since 1885, the Elko County Fair running since 1920, and Ely’s White Pine County races organized in 1934 to lift Depression-era spirits. For sheer natural beauty, Panaca takes top spot for its proximity to Cathedral Gorge State Park, while Eureka stages its fair just off US-50, the highway tagged the Loneliest Road in America. Discover what each has to offer.
Elko
The largest county seat in northeastern Nevada, Elko hosts the state’s marquee summer fair. The Elko County Fair was first held in September 1920 and now runs over two weekends around Labor Day at the Elko County Fairgrounds. The main event for the 20,000 or so visitors who attend is the live parimutuel horse racing, a betting format with no fixed odds in which payouts are split among the holders of winning tickets.
Over several race days, Thoroughbreds and Quarter Horses compete in front of the fairground’s historic grandstand. Other equestrian draws include the Livestock Show and Sale, a rodeo, and night barrel racing, while non-horse events include a carnival, livestock barns, and art exhibits.
Ely
Over in the remote mining town of Ely on the eastern edge of the state, the White Pine County Fair and Horse Races dominate the summer social calendar. Held the third weekend of August, the first races were organized by local ranchers and business owners in 1934 to lift spirits during the Great Depression. They have run nearly every year since at the White Pine County Fairgrounds.
A field of about 150 Thoroughbreds and Quarter Horses competes over the three days of the event, with parimutuel betting with no fixed odds, making it fun for everyone. Things kick off on Friday with a ranch rodeo featuring bronc riding, team roping, and mutton busting, a children’s event in which kids ride sheep. Live music, a barbecue, youth events and exhibits, and a livestock auction round out the fairground fun.
Panaca
Tucked away in the high desert of southeastern Nevada, Panaca holds the Lincoln County Fair and Rodeo at the fairgrounds, Lincoln County Recreational Park, in early August. Now in its 58th year, the weekend centers around a rodeo and junior rodeo events for younger riders, as well as a gymkhana featuring horseback games like barrel racing and pole bending.
A celebratory pageant is also part of the fun and crowns local riders. The fair’s exhibit building fills with educational projects, baked goods, and produce grown in the surrounding Meadow Valley region. In the same week, the fairgrounds host Nevada’s Best Cow Dog Trial, a stock dog competition in which trained herding dogs move cattle through a timed course. An amateur ranch rodeo is also part of the fun and includes roping and bronc riding open to local competitors.
Gardnerville
Located at the foot of the Sierra Nevada in Carson Valley, Gardnerville hosts the Nevada Agricultural Fair over four days each July at the Douglas County Fairgrounds. One of the newest fairs in the state (it started in 2021 as the Silver and Sage Fair), this free event highlights the role of younger generations of farmers in agriculture.
Highlights include a livestock show and sale featuring cattle, goats, pigs, sheep, rabbits, and poultry raised by local youth farming groups. Stick around for the Nevada State Ewe Lamb Futurity, a unique competition spread out over three years that follows the progress of young breeding ewes. Indoor halls display canning, baked goods, garden produce, and art, and a youth livestock auction closes the fair on the final Sunday.
After dark, the fair hands its arena over to MAYHEMilition. This always-popular demolition derby sees drivers ram junk cars and pick-ups into one another until only one is left running. The lawnmower and figure-eight races are also fun.
Eureka
The small town of Eureka celebrates its county fair and rodeo in early August. The community’s most important summer gathering, the Eureka County Fair, keeps things traditional and old-fashioned, with an authentic working rodeo, livestock displays, and exhibits dedicated to young farmers.
It is a format that serves the locals well, with an unhurried pace that attracts ranching families from across the high desert region. The event has long served as a yearly reunion for the county’s scattered ranches and remains the busiest weekend on Eureka’s summer calendar. The fairgrounds lie just outside the downtown Eureka core, which looks much as it did in the 1880s.
Winnemucca
The seat of Humboldt County at the crossroads of Interstate 80 and US-95, Winnemucca celebrates its farming and ranching traditions with its Tri-County Fair and Stampede. Held over the Labor Day weekend, Humboldt County Agricultural District has staged the fair since 1885, making it one of the oldest continuous events of its kind in Nevada.
The star attraction is the Labor Day rodeo. Held at the Winnemucca Events Complex, it is accompanied by a downtown parade and live music. Other weekend fun includes a carnival complete with rides, farming exhibits, antique tractor displays, and a quirky pig wrestling contest in which teams chase a greased hog through a muddy pen.
Logandale
Set in Moapa Valley, northeast of Las Vegas, Logandale hosts the Clark County Fair & Rodeo each April at the Clark County Fairgrounds. Since 1988, this small southern Nevada community has built the event into one of the region’s biggest spring traditions, pairing a full county fair with five nights of professional PRCA and WPRA rodeo action.
More than 600 professional competitors come to town for classic rodeo events backed by top western stock contractors, while the fairgrounds fill with a carnival midway, livestock shows, 4-H and FFA exhibits, food stands, live entertainment, and family attractions. Held at 1301 W. Whipple Avenue, the event draws visitors from across southern Nevada and gives Clark County its own high-energy version of a rural fair weekend.
A Fun Summer Tradition
There is no doubt that the best Nevada county fairs succeed because of the communities they serve. Horses, livestock, and music have held these rural communities together for well over a century, giving each an opportunity not only to showcase their skills and traditions but also to let their hair down and have some old-fashioned fun.
Nevada
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Nevada
Nevada Youth Sports estimates $250K in damage after Fourth of July firework fire
LAS VEGAS (KSNV) — Nevada Youth Sports is working to keep thousands of young athletes on the field after a fire believed to have been sparked by illegal fireworks caused nearly a quarter of a million dollars in damage to its facility.
The fire broke out late on the night of July 4. Jane Ramos, chief administrative officer for Nevada Youth Sports, said she received a call from the organization’s landlord telling her there had been a fire at the building.
“We got a call from our landlord saying I needed to come out here right away because there had been a fire,” Ramos said. “We didn’t really understand the scope of what had happened until we could hardly open the door because of the fumes, the smoke, and the smell.”
According to Ramos, firefighters responded shortly before midnight after flames were reported on the roof of the building. In the days since, the organization says it has learned the fire is believed to have started when embers from illegal fireworks landed on the roof.
“It’s something that was preventable if it truly was illegal fireworks,” Ramos said.
Early damage assessments estimate nearly $250,000 in structural, electrical and water damage. Ramos said the organization is still working to understand the full financial impact.
“We’re trying to assess where we are financially in all of this,” she said. “It’s really a question mark.”
The damage has forced Nevada Youth Sports to temporarily close its facility, affecting the thousands of athletes and families who rely on the organization for leagues, clinics and training programs.
Nevada Youth Sports serves more than 14,000 athletes and families across the Las Vegas Valley each year. Ramos said the organization’s immediate priority is finding alternate locations so programs can continue with as little disruption as possible.
“We’re definitely allocating our resources toward those efforts,” Ramos said. “Whatever the cost is to continue programming outside of this building, that’s where we’re focusing our efforts right now.”
While investigators continue looking into the cause of the fire, Ramos said the organization hopes whoever is responsible will be held accountable. She said neighboring businesses have provided surveillance video that could help determine exactly what happened.
“I’m hopeful that we can point some accountability somewhere,” Ramos said. “Our commercial neighbors have been very kind to offer their camera footage, so we’re still collecting all of that information before we pursue anything further.”
Despite the damage, Ramos said the organization’s commitment to local families remains unchanged.
“We’ll continue to be steadfast and patient,” she said. “Our mission is being a partner to our athletes and families. We’re here for a bigger purpose than just this building, and we’ll see it through.”
Nevada Youth Sports expects to have a better understanding of the repair timeline by the end of the week. In the meantime, leaders say they’re grateful for the community support they’ve already received as they work to restore operations.
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