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KD Sunday Spotlight: Pennsylvania Tourette Syndrome Alliance benefits families, schools, and individuals

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KD Sunday Spotlight: Pennsylvania Tourette Syndrome Alliance benefits families, schools, and individuals


PITTSBURGH (KDKA) – It’s Tourette Syndrome Awareness Month and in this week’s KD Sunday Spotlight, we’re highlighting a nonprofit organization that’s spreading awareness about the neurological disorder. 

The Pennsylvania Tourette Syndrome Alliance provides education and assists families, schools, and communities while at the same time advocating for people diagnosed with Tourette Syndrome. 

Volunteers shared their courageous stories. 

“It was kind of confusing why I was doing the things that I did and I had co-morbid anxiety, I dealt with a lot of that and back then it would have been nice to know why I was doing that,” said Stephanie Dissen, a board member. 

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Dissen was diagnosed with Tourette Syndrome when she was eight years old. 

She didn’t know much about the disorder, which involves both physical and verbal tics. 

Tics are uncontrolled, repetitive movements or sounds. 

Her son was diagnosed around the same age that she was. 

“When my son started to tic and I wanted to find out why he was doing that, but I knew we wanted more answers, and more was to help him,” Dissen said. 

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That’s when she found the Pennsylvania Tourette Syndrome Alliance, which educates, advocates, and supports individual families. 

They have support groups and events like a yearly family camp. 

“Then we had something to say this is why you’re doing this, and this is how we can help you from doing it, not necessarily from but feel better about it and be more comfortable with it and accept it,” she said. 

There are many misconceptions about the neurological disorder. Stephanie’s mom, Patty John, looked back on her daughter’s diagnosis. 

“I told no one when she was diagnosed because it was something embarrassing, people made fun of it, and I had no resources,” said John, who is also the treasurer of the PATSA. 

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The alliance can also provide education for the community and schools to increase the understanding of the complex disorder. 

“One of the first things PATSA did for us was help with an IEP and go into my grandson’s school and do a presentation for the teachers and the staff about Tourette Syndrome and teach them, that was life-changing and they also did a presentation to the entire student body,” John said. 

“We know that they need help in school, just having others that can relate to them, and they need the information on how they can find help, doctors, therapists, things like that,” added Brandi Cooper, a consultant with PATSA. 

Brandi Cooper’s husband and two children have Tourette Syndrome, as PATSA’s western Pennsylvania consultant, she’s passionate about educating people and advocating for those diagnosed. 

“My hope and wish is that everybody can know about PATSA and get that help so they can say ‘Hey, I think I’m having some tics and go to see a neurologist and get that diagnosis,’ all the way to reaching out and getting the help that I can attend meetings and do trainings for their school,” Cooper said. 

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A few weeks ago, PATSA’s first “Can’t Sit Still 5-K Run-Walk” in Carnegie was successful. 

Brian Crawford, who was diagnosed in his late teens, just set up something illuminating in honor of Tourette Syndrome Awareness Month, which goes from May 15 until June 15. 

The Gulf Tower and Koppers Building in downtown Pittsburgh lit up teal on May 16. 

“I think it’s great to spread awareness because so many people don’t know what Tourette Syndrome is, they think that it’s just swearing and I hear that too. I tell people that I have it and they’ll make jokes,” Crawford said. 

Committed to radiating awareness and acceptance of Tourette Syndrome, they’re here to help children and adults succeed. 

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“Letting people know there is a place where they can get information and especially for kids who have ticks that make it harder for them in school,” Crawford said. “It’s a great thing for those people to be able to find a safe space where they’re not going to get mocked or made fun of for that.”

PATSA’s family camp is next weekend at the Black Rock Retreat in Lancaster County and while registration in closed, they have other annual events, including a virtual family retreat and their new 5K. 

The organization receives some state funding but it doesn’t cover all costs, so donations are always welcome. 

You can do so and learn more on their website at this link! 

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Pennsylvania

Brace for pea-sized hail with thunderstorms in part of Pennsylvania Sunday

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Brace for pea-sized hail with thunderstorms in part of Pennsylvania Sunday


A report was issued from the National Weather Service on Sunday at 11:52 a.m. for strong thunderstorms until 12:15 p.m. for Northern Lycoming and Southern Lycoming as well as Sullivan and Columbia counties.

Prepare for pea-sized hail (0.25 inches) and wind gusts of up to 40 mph.

“At 11:51 a.m., Doppler radar tracked a strong thunderstorm near Montoursville, moving east at 45 mph. Other storms were forming just west of this storm,” states the weather service. “Gusty winds could knock down tree limbs and blow around unsecured objects. Minor hail damage to vegetation is possible.”

Locations impacted by the alert include Williamsport, Montoursville, Hughesville, Duboistown, Jamison City, Kettle Creek Gorge, Ricketts Glen State Park, Central, Biggertown, Muncy Valley, Barbours, Loyalsockville, South Williamsport, Picture Rocks, Laporte, Eagles Mere, Williamsport Airport and Little League World Series Complex.

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The weather service adds, “If outdoors, consider seeking shelter inside a building. Very heavy rainfall is also occurring with this storm and may lead to localized flooding. Do not drive your vehicle through flooded roadways. This storm may intensify, so be certain to monitor local radio stations and available television stations for additional information and possible warnings from the National Weather Service. A Severe Thunderstorm Watch remains in effect until 7 p.m. for central and north central Pennsylvania.”

Shielding yourself from approaching lightning: Expert safety guidelines

Each year, lightning strikes the United States approximately 25 million times, with the majority of these electrifying events occurring during the summer months. Unfortunately, lightning is responsible for claiming the lives of approximately 20 people annually, as reported by the weather service. The threat of lightning becomes more pronounced as thunderstorms draw nearer, peaking when the storm is directly overhead and gradually waning as it moves away.

To ensure your safety during a thunderstorm, keep these recommendations in mind:

Lightning safety plan:

  • When venturing outdoors, it’s vital to establish a clear plan for seeking shelter in case of lightning.
  • Monitor the sky for threatening signs and listen for the sound of thunder. If thunder is audible, it’s an indication that lightning is nearby.
  • Seek a safe place to shelter, preferably indoors.

Indoors safety measures:

  • Once you’ve found shelter indoors, abstain from using corded phones, electrical appliances, or plumbing fixtures, and refrain from approaching windows and doors.
  • These precautions help reduce the risk of electrical surges, as lightning can follow conductive pathways.

Wait for the all-clear:

  • After the last lightning strike or thunderclap, wait at least 30 minutes before resuming outdoor activities.
  • Lightning can strike even when a storm has seemingly passed, so exercise caution.

When indoor shelter isn’t available:

If you find yourself outdoors without access to indoor shelter during a thunderstorm, take these steps to maximize your safety:

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  • Avoid open fields, hilltops, or ridge crests, as they expose you to greater lightning risk.
  • Steer clear of tall, isolated trees and other prominent objects. In wooded areas, stay close to lower stands of trees.
  • If you’re with a group, ensure individuals are spread out to prevent lightning current from transferring between people.
  • Camping in an open setting during a thunderstorm is strongly discouraged. If you have no alternative, set up camp in a valley, ravine, or other low-lying areas. It’s crucial to note that a tent provides no protection against lightning.
  • Do not approach water bodies, wet objects, or metal items. Although water and metal do not attract lightning, they conduct electricity effectively and can pose significant risks.

In summary, when facing the threat of lightning, vigilance and preparedness are your best allies. By following these guidelines, you can significantly reduce the chances of lightning-related accidents and prioritize your safety.

Rainy roadways ahead: Essential safety tips for heavy rain

When heavy rain strikes, safety is paramount. Equip yourself with these guidelines from the weather service to navigate wet roads and avoid hazards:

Beware of rapid water flow:

During heavy rain, avoid parking or walking near culverts or drainage ditches, where swift-moving water can pose a serious risk.

Maintain safe driving distances:

The two-second rule for following distance is your ally in heavy rain. Extend it to four seconds to ensure safe spacing in adverse conditions.

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Reduce speed and drive cautiously:

On wet roads, slowing down is paramount. Gradually ease off the accelerator and avoid abrupt braking to prevent skidding.

Choose your lane wisely:

Stick to the middle lanes to minimize the risk of hydroplaning. Outer lanes are more prone to accumulating water.

Visibility matters:

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Enhance your visibility in heavy rain by turning on your headlights. Watch out for vehicles in blind spots, as rain-smeared windows can obscure them.

Watch out for slippery roads:

The initial half-hour of rain is when roads are slickest due to a mixture of rain, grime, and oil. Exercise heightened caution during this period.

Keep a safe distance from large vehicles:

Don’t follow large trucks or buses too closely. The spray created by their large tires reduces your vision. Take care when passing them as well; if you must pass, do so quickly and safely.

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Mind your windshield wipers:

Overloaded wiper blades can hinder visibility. If rain severely impairs your vision, pull over and wait for conditions to improve. Seek refuge at rest areas or sheltered spots.

When stopping by the roadside is your only option, position your vehicle as far off the road as possible, ideally beyond guardrails. Keep your headlights on and activate emergency flashers to alert other drivers of your position.

In the face of heavy rain, these precautions can make a significant difference in ensuring your safety on the road. Remember to stay informed about weather conditions and heed guidance from local authorities for a secure journey.

Advance Local Weather Alerts is a service provided by United Robots, which uses machine learning to compile the latest data from the National Weather Service.

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Nippon Steel fight points to industry's uncertain future in Pennsylvania

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Nippon Steel fight points to industry's uncertain future in Pennsylvania


The Edgar Thomson steel plant in Braddock, Pennsylvania, which has been producing since 1875, would go to Nippon Steel under a proposed buyout of United States Steel.
Photo: Rebecca DROKE / AFP
Source: AFP

Nippon Steel’s proposed acquisition of United States Steel has been a source of unease in Pittsburgh, where the metal once dominated the economy and still looms large in the collective psyche.

Critics such as the United Steelworkers (USW) see the transaction as the latest threat to come along in a years-long struggle to keep the industry alive after plant closures in 1970s and 1980s battered the American rustbelt.

“There’s just so much history here and a lot of pride that comes with that,” said the USW’s Bernie Hall, a 4th generation metals worker. “It wouldn’t be western Pennsylvania without steel.”

In December, US Steel sealed a $14.9 billion deal to sell itself to Japan’s Nippon Steel, which has promised investments to keep Pennsylvania factories competitive with foreign producers and newer “mini mills” in the American South that are less taxing on the environment.

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Bernie Hall, the District 10 Director for the United Steelworkers, outside the US Steel Mon Valley Works Edgar Thomson Plant in Braddock, Pennsylvania
Bernie Hall, the District 10 Director for the United Steelworkers, outside the US Steel Mon Valley Works Edgar Thomson Plant in Braddock, Pennsylvania.
Photo: Rebecca DROKE / AFP
Source: AFP

But Hall, head of the Pennsylvania chapter for the USW, said the Japanese company had been evasive about specific plans for Pittsburgh-region plants in an area called the Mon Valley, the earliest of which dates to 1875.

Both President Joe Biden and challenger Donald Trump have vowed to annul the deal as the two compete for blue-collar votes, putting the transaction into limbo, probably until after the November election at least.

At stake are the Pittsburgh region’s last remaining steel factories, located just outside the city.

City transformed

For most Americans, Pittsburgh remains virtually synonymous with steel, partly owing to the prominence of the Pittsburgh Steelers American football team.

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The US Steel Mon Valley Works Clairton Plant is situated along the Monongahela River in Clairton, Pennsylvania
The US Steel Mon Valley Works Clairton Plant is situated along the Monongahela River in Clairton, Pennsylvania.
Photo: Rebecca DROKE / AFP
Source: AFP

But the complexion of a metropolis once known as the Smoky City changed fundamentally after the last plants shuttered in the 1980s.

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Steel “is still part of our identity, but we’re disconnected from that identity,” said former steelworker Edward Stankowski Jr., whose memoir “Memory of Steel” details his exit from the industry with thousands of others in the early 1980s.

Stankowski, whose childhood Pittsburgh home looked out onto steel plants, started in the industry out of high school in the 1970s when many young men viewed the job as a ticket to the middle class, trading hard labor in a hazardous setting for good wages and a solid retirement.

The land where Stankowski’s factory once stood in Pittsburgh’s South Side has been repurposed and now includes apartments named “Hot Metal Flats” and a Cheesecake Factory restaurant.

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“I do not miss it,” said Stankowski, who went to university after leaving steel and is now a professor at La Roche University. “I like having clean air. I like having clean water.”

Steel was well suited to western Pennsylvania, a region with waterways and an abundant supply of coal, but “there’s been a fundamental, almost tectonic shift in the geography of steel,” said regional economist Chris Briem of the University of Pittsburgh.

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The Mon Valley plants “have been around a long time,” Briem said. “If they don’t get a lot of new reinvestment, they probably won’t be competitive much longer.”

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Locals see symbolism in the renaming of US Steel tower downtown as the UPMC building after the region’s biggest employer, the University of Pittsburgh Medical Center.

Long-term commitment?

Once owned by Andrew Carnegie, the Edgar Thomson plant in Braddock is one of three western Pennsylvania factories that US Steel manages together with a fourth plant in eastern Pennsylvania in an operation known as “Mon Valley Works.”

Nippon has promised to keep the plants open and invest $1.4 billion in USW-represented facilities through 2026 when the current labor contract expires. The company has also vowed to keep US Steel’s 1,000-worker office in downtown Pittsburgh.

“You cannot tell the story of US Steel without Pennsylvania playing a leading role, and Nippon Steel will keep it that way,” Nippon vice chairman Takahiro Mori wrote in a June 9 op ed in the Pittsburgh Post Gazette.

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Nippon has hinted that odds for US approval could improve after November. Backers of the transaction argue that US Steel could be broken up if the deal dies, adding more uncertainty to US Steel’s 3,000 hourly workers in Pennsylvania.

But the USW says Nippon’s plans are vague and give the company an out in a downturn.

“They’re saying they’re going to invest in the plants,” Hall said. “What does that mean?”

Edward Stankowski, Jr., a former steelworker, stands on the Hot Metal Bridge  above the Monongahela River, a waterway once teeming with iron ore and coal barges for Pittsburgh steel mills
Edward Stankowski, Jr., a former steelworker, stands on the Hot Metal Bridge above the Monongahela River, a waterway once teeming with iron ore and coal barges for Pittsburgh steel mills.
Photo: Rebecca DROKE / AFP
Source: AFP

Workers want a sign that whoever runs Mon Valley “is interested in running these mills for the long-term and really investing in this community,” Hall said. “That’s exactly what they’re not hearing from either Nippon or US Steel.”

Some Mon Valley workers interviewed by AFP slammed the deal as a money grab by US Steel management, expressing fear about their jobs. But others are open to it.

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Alex Barna, a machinist at the West Mifflin plan, described himself as “on the fence” as he weighs his hopes and worries, saying of Nippon, “they might be in it for the long haul.”

Source: AFP





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TORNADO WARNING: Take Cover Now In Parts Of Central Pennsylvania, NWS Says

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TORNADO WARNING: Take Cover Now In Parts Of Central Pennsylvania, NWS Says


The NWS at State College issued the warning to last until 7 p.m. 

“A severe thunderstorm capable of producing a tornado was located over Walnut Bottom, moving east at 25 mph,” the NWS stated in a release. 

The impact possible is flying debris, mobile homes could be damaged or destroyed, and there could be damage to roofs, windows, and vehicles.

The radar shows the storm to be in the following areas:

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  • Pine Grove Furnace around 630 PM EDT.
  • Mount Holly Springs around 640 PM EDT.
  • This includes Interstate 81 from mile markers 31 to 43.

The NWS stated to take the following precautionary measures or preparedness actions:

TAKE COVER NOW! Move to a basement or an interior room on the lowestfloor of a sturdy building. Avoid windows. If you are outdoors, in amobile home, or in a vehicle, move to the closest substantial shelterand protect yourself from flying debris.

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