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Adults with autism face ‘invisible crisis’ due to shortage of services in Utah

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Adults with autism face ‘invisible crisis’ due to shortage of services in Utah


SALT LAKE CITY — Public schools provide a variety of necessary services to children and teens with autism, but there is a lack of adequate support for adults who have aged out of the system, according to a new report.

The Utah Department of Health and Human Services, Utah Parent Center and the Utah State University Institute for Disability, Research, Policy and Practice recently partnered with the Madison House Autism Foundation and the Columbus Community Center on a pilot program to highlight the gaps in services for autistic adults and promote solutions.

Sumiko Martinez, state director of autism and one of the authors of the Autism After 21 Utah Project, said the report focuses on the everyday obstacles adults with autism can face in the state.

“As you think through a regular day in your life, you get up, do your morning routine, maybe you drive to work, maybe you have a doctor appointment. But all of those different things can be places where neurodivergent individuals and people with autism can face additional barriers,” she said.

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“What we’re trying to do is collect data from autistic individuals, from their family members and from community leaders, to be able to spot where the gaps are … and then to be able to collaborate with local leaders, all the way up to state leadership, to help fill those gaps and make it so that people can participate in their communities as much as they want to,” Martinez continued.

Rural-urban divide

Martinez said there are services for adults with autism in Utah, but most are clustered along the Wasatch Front, putting them out of reach for many people who live in the rural parts of the state.

A couple families interviewed for the report said they had to “split their household” — with one parent and a child living along the Wasatch Front for part of the week to access services.

“That’s a crummy feeling, especially when you love where you live and don’t necessarily want to move,” Martinez said. “Just the sheer financial burden of that and the emotional toll of not being able to be with your family because there are, literally, not the support services. This has been a problem for a long time.”

In some areas where there are mental health or other services, Martinez described a “constant churn” of providers, making it difficult for patients to develop long-lasting relationships.

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One of the key recommendations she gave cities and towns is to work with professional associations and incentivize providers staying in rural areas.

Community and housing

The most common needs that survey respondents expressed were for housing, belonging and friendship. There’s often a stigma that autistic people are less social, said Anna Smyth, a consultant who co-authored the report.

“This study showed us that that’s just not true,” she said. “It showed that people with autism — kids and adults — have social needs, they want to have friendships, they want to feel a sense of belonging, just like any other human does. We as a broader community need to think about how to meet that need in different ways.”

When it comes to housing, Martinez said the state needs more neuroinclusive living space, which is built with sensory needs in mind. Some inclusive housing units have easily accessible tablets in common spaces, where residents can ask for help accessing different services and amenities.

Inclusive living can also mean locating sensory friendly amenities near one another, including fitness classes, health care facilities and other day-to-day needs. Reducing noise pollution or fluorescent lighting in areas can also be more accommodating, Smyth said.

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There are an estimated 32,000 individuals with intellectual and developmental disabilities who live with caregivers who are over the age of 60, Martinez said, which puts them at risk if their caregiver becomes unable to take care of them.

“There aren’t as many services as there need to be, so this crisis is really something that is building and building, but it’s happening outside of the public view for the most part. It’s really an invisible crisis in a lot of ways,” she said.

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In addition to the availability of services and inclusive spaces, advocates say general awareness and understanding can go a long way.

“A lot of people think autism is visible normally in children,” said Whitney Lee, who organized the Neurodiverse Utah community on Facebook. “This leaves adults who don’t fit what people have as a stereotype without access to services from anywhere from education to employment to health care.”

Lee said government agencies — and police departments, in particular — should hire people who are trained to help people with autism.

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But not all solutions are as cut and dry, so Smyth said the best thing policymakers and business leaders can do is be open to input from constituents and employees who have autism.

“They say, ‘Well, tell us what to do,’ and (they) want a very simple, clean answers to that question, where they can turn it into a to-do list and then check those things off the box,” she said. “The reality of the autistic community is that it is varied. … So, I think the real answer to that question, if there is one, is to start asking questions and listening deeply.”



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Utah

Meet Derek Brown, Utah's newly elected attorney general

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Meet Derek Brown, Utah's newly elected attorney general


SALT LAKE CITY — After taking the official oath of office on Wednesday, Derek Brown has become Utah’s newest attorney general.

Now that he’s in office, what’s next? He joined Inside Sources to talk more about his priorities for office.

Below is a partial transcript of this interview as well as the full podcast.


KSL NewsRadio modified this interview for brevity and clarity.

HOST TAYLOR MORGAN: What are your priorities as you take office?

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GUEST DEREK BROWN: I think the key to that is transparency. When I served in the House of Representatives, I learned that people appreciate when you are open and you make it clear to them what you’re doing. And as people understand what we’re doing in the Attorney General’s Office, we’ll see successes, there will be an increase in trust … That’s just the natural outgrowth of transparency, and I’m going to be doing a number of things proactively so that we build that feeling of not just transparency but [also] trust.

MORGAN: My understanding is that you and your family have put your assets into a blind trust … and you have officially stepped down from any non-profit boards. Is that correct?

BROWN: That’s correct… I just feel like it makes sense, in light of this position, to just eliminate any potential conflicts of interest in advance. I’m a little sad to do it because these are great people. I love being there, making a difference. But at the same time, I feel like we’ve got those organizations onto a good footing.

People make Utah great, not government, says Gov. Cox at inauguration

MORGAN: [How] would you explain your role to listeners? What does the Utah attorney general do primarily?

BROWN: We have 280 attorneys, and they provide legal counsel for all the boards, commissions, and agencies of the state. Everything from the University of Utah to UDOT to DMV… So there’s literally 280 attorneys that do every conceivable area of the law… It is the largest law firm in the state of Utah, so my job is to make sure it’s also the best, most efficient, most well-funded, and well-respected law firm in the state of Utah.

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Listen to the podcast below for the entire interview.

 

We want to hear from you.

Have a story idea or tip? Send it to the KSL NewsRadio team here.



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RECAP: Panthers 4, Utah Hockey Club 1 | Florida Panthers

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RECAP: Panthers 4, Utah Hockey Club 1 | Florida Panthers


“Sometimes they go in, and sometimes not,” Boqvist said. “I feel like our line played pretty well. We’re working hard and winning a lot of pucks down low, trying to play with speed. When we have time and space to do stuff, we will.”

From there, penalties proved costly for the Panthers.

After coming up short on their first two trips to the power play in the period, the third time was the charm for Utah as Logan Cooley lit the lamp to cut Florida’s lead to 2-1 at 13:41.

Stomping out any would-be comeback for Utah, Boqvist regained the two-goal cushion for the Panthers when he cashed in on the empty net from deep in his own zone to make it 3-1 at 17:59.

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At 19:38, Eetu Luostarinen tacked on another empty-netter to make it 4-1.

Finishing strong, the Panthers led 12-3 in scoring chances at 5-on-5 in the third period.

“I liked the bench,” Maurice said. “I liked the mood of it. They’re pulling for each other, supporting each other, battling and grinding. Understanding we come into this building, these teams come wired for us and are ready. Get out of the first period even. We’re good on the road like that. Then I thought we built. Halfway through the first period we got our game going.”

THEY SAID IT

“He’s earned it. We’ve used him at left and right wing, and he’s played center for us. He’s played with different people. He’s a really competitive guy.” – Paul Maurice on Jesper Boqvist

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“Speed, skill, hard work. He works really hard, but he also has that ability to take over games with his speed and skill. He has a great shot. We’ve seen that all year in practices and games. He’s fun to watch. He’s one of those players where it’s just a matter of time until he breaks out, and he’s breaking out right now. It’s been fun to watch.” – Aleksander Barkov on Jesper Boqvist

“He’s so good, right? It’s so fun to watch. Playing against him for a couple years, it’s not easy.” – Jesper Boqvist on Sergei Bobrovsky

CATS STATS

– Carter Verhaeghe extended his point streak to three games.

– The Panthers are 7-for-8 on the penalty kill over their last two games.

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– The Panthers have four players with at least 30 points this season.

– Sergei Bobrovsky is the third goaltender to earn a win against 33 NHL franchises.

– Sam Bennett won a team-high nine faceoffs.

– Matthew Tkachuk and Jesper Boqvist each recorded five hits.

– The Panthers held Utah to just eight shot attempts at 5-on-5 in the third period.

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WHAT’S NEXT?

Grab your popcorn.

Meeting for the third time this season, the Panthers will try to improve to 3-0-0 against the Boston Bruins when the two rivals clash at Amerant Bank Arena on Saturday at 1 p.m. ET.

For tickets, click HERE.

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Utah Gov. Cox headed to Mar-a-Lago to visit President-elect Trump. Here’s what he says they’ll talk about.

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Utah Gov. Cox headed to Mar-a-Lago to visit President-elect Trump. Here’s what he says they’ll talk about.


Gov. Spencer Cox plans to discuss unlocking energy potential on public lands among other issues as he heads to Mar-a-Lago on Thursday along with Republican governors from across the country to pitch their priorities to President-elect Donald Trump.

“I plan to talk to him, if I get the opportunity, about energy and about public lands and how we can unleash the energy potential, especially in the West,” Cox told reporters Wednesday after his ceremonial inauguration. “We need significant reform in the energy space, especially when it comes to nuclear, being able to permit nuclear.”

One of Cox’s main goals for his second term is doubling energy production within the next decade, and his vision for achieving that includes bringing nuclear power to the Beehive State for the first time.

Utah’s history with all things nuclear has been fraught, since an untold number of residents were sickened by exposure to fallout from atomic bomb tests in neighboring Nevada. Utah was later targeted as a site for a high-level nuclear waste repository — a plan that ultimately was abandoned.

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Cox said he expects discussions to arise on housing affordability, border security and inflation — topics that are concerns for all of the GOP governors.

Utah’s chief executive said he also anticipates raising the status of Bears Ears and Grand Staircase-Escalante National monuments — which were created by Presidents Barack Obama and Bill Clinton, respectively, slashed to a fraction of their size during the first Trump presidency, and then restored under President Joe Biden.

Utah has sued the federal government over those monuments, and Cox said he would like to see the lawsuit progress.

“I don’t love the pingpong game that’s going back and forth,” he said. “That’s not good for anybody and it’s not helpful. And so, ultimately, we need the Supreme Court to decide some of those major issues.”

Cox has had an evolving relationship with the incoming president. He did not vote for Trump in 2016 or 2020, but, after an assassination attempt on candidate Trump in July 2024, the Utah governor wrote the former president a letter saying he believed he could unite the country.

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He later appeared alongside Trump at Arlington National Cemetery, spurring controversy because political campaigning is not allowed in the hallowed space, and Cox’s campaign sent out a fundraising email featuring an image from the meeting.

(@GovCox via X) Utah Gov. Spencer Cox, far right, poses for a photograph with the family of Marine Corps Staff Sgt. Darin Taylor Hoover and Republican candidate for president Donald Trump at Arlington National Cemetery in Arlington, Va., Monday, Aug. 26, 2024. Trump and Cox joined the Hoover family to commemorate the passing of Hoover, who was killed three years ago during the U.S. withdrawal from Afghanistan.

Cox later apologized, calling it a mistake.

Since Trump won the election in November, the governor has expressed an eagerness to work with the incoming administration, particularly when it comes to deporting criminal migrants.

He said he has been “working very closely” with Utah legislators who presented a suite of bills aimed at “making sure that we’re getting rid of the offenders who are here and trying to fix legal immigration,” a move that Cox said would require a federal solution.

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