Indiana
3 Indiana brothers diagnosed with rare crippling condition after suffering frequent headaches
Three young Indiana brothers have all been diagnosed with the same rare crippling condition after the trio experienced frequent headaches, according to the boys’ parents who recently opened up about the health battle.
Lincoln, Norrin and Remley Niece have matching scars on the back of their heads after undergoing surgeries for Chiari malformation, which affects slightly less than one in 1,000 people across the globe, according to experts.
The condition occurs when the brain at the back of the skull presses through a normal opening and extends to the spinal cord, according to John Hopkins Medicine.
The symptoms include neck pain, unsteady walking, poor hand-eye coordination and dizziness among other side effects, according to the Mayo Clinic.
The boys, who live in Greenfield, each suffered frequent headaches and vomiting before being diagnosed.
“It’s pretty scary,” the kids’ father, Ron Niece told WRTV on Friday. “There is no doubt about it.”
All three brothers underwent surgeries, leaving the family emotionally drained each time.
“You just kind of become numb and go into autopilot,” mother Whitney Niece explained to the station.
“But it doesn’t make it anymore emotionally easy. Sending your kid off into surgery.”
Remley was the first Niece boy diagnosed with the condition in June 2022, but at the time didn’t need surgery, according to the Greenfield Daily Reporter, which interviewed the family in March 2024 when Lincoln was 10, Norrin was 5 and Remley was 2.
Lincoln reportedly started having headaches at 5 but they were initially thought to be tied to a congenital heart defect. A CAT scan later revealed in Feb. 2023 that he also had Chiari malformation and underwent a procedure the following month.
Remley was still struggling, including randomly falling, and went under the knife in August 2023 – the same month Norrin began having headaches before he had surgery in January, the news outlet reported.
Dr. Laurie Ackerman, of the Riley Hospital for Children, performed each of the surgeries in what is called Chiari Malformation Decompression where a little piece of the back part of the skull and a three-by-three centimeter piece of bone were removed.
“The goal of all of these things is to sort of disimpact the area,” Ackerman told the Greenfield Daily Reporter. “To allow fluid to move around there normally.”
Norrin and Remley went through complications afterward, leading to a shunt being placed so extra brain fluid can be distributed to the belly.
She noted it’s unusual for all three kids from the same family to have the condition. Doctors and scientists have been conducting research to determine if Chiarai malformations are heredity.
The youngsters have vastly improved and can mostly be “typical kids,” but with some key exceptions, so they don’t bump their heads, Whitney said.
“Just like the other day when it was really nice outside, and everybody else could go outside and ride something, Norrin is standing in the garage in tears because he can’t,” she reportedly said.
Many people with the neurological issue never experience any symptoms and medical treatment is always not required, according to the Mayo Clinic.
The parents are speaking out to raise awareness and have worked to help other families in their shoes.
“So if we can help one other kid that maybe is struggling with headaches and they’ve been passed off several times, that’s a win in my book,” Whitney told the newspaper.
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Bears consider move to Indiana with effort to secure public funding for stadium in Illinois stalled
CHICAGO — The Chicago Bears say they’re mulling a move to Northwest Indiana with their efforts to secure public funding they say they need to build an enclosed stadium in Illinois stalled.
Team president Kevin Warren insisted Wednesday in an open letter to fans that the team still prefers to build a new home on a tract of land it owns in suburban Arlington Heights, Illinois. He also said the Bears are not using the threat to cross state lines as leverage.
“This is not about leverage,” Warren said. “We spent years trying to build a new home in Cook County. We invested significant time and resources evaluating multiple sites and rationally decided on Arlington Heights. Our fans deserve a world-class stadium. Our players and coaches deserve a venue that matches the championship standard they strive for every day.”
Warren did not say where in Northwest Indiana the Bears would look to move.
The letter comes just days before Chicago hosts rival Green Bay in a game with heavy playoff implications. The Bears (10-4) hold a slim lead over the Packers (9-4-1) in the NFC North. In their first season under coach Ben Johnson, they are trying to secure their first postseason appearance since 2020.
“The Bears have called Chicago home for more than a century,” Warren said. “One certainty is that our commitment to this city will not change. We will continue to provide unwavering support to the community. We need to secure a world-class venue for our passionate fanbase and honor the energy you bring every week.”
The Bears’ focus for a new home has fluctuated between a tract of land they own in Arlington Heights to the Chicago lakefront, and then back to the suburb. They have said they plan to pay for the stadium construction on the site of a former racetrack about 30 miles northwest of their longtime home at Soldier Field, though they would need assistance to complete the project.
According to a team consultant report released in September, they are seeking $855 million in public funding for infrastructure in order to build a stadium in Arlington Heights that could host Final Fours and Super Bowls. The Bears were also hoping the Illinois legislature would pass a bill in October that would freeze property taxes for large-scale construction projects such as the stadium, allowing them to begin construction this year. But that didn’t happen.
“For a project of this scale, uncertainty has significant consequences,” Warren said. “Stable timelines are critical, as are predictable processes and elected leaders, who share a sense of urgency and appreciation for public partnership that projects with this level of impact require. We have not received that sense of urgency or appreciation to date. We have been told directly by State leadership, our project will not be a priority in 2026, despite the benefits it will bring to Illinois.”
In September 2022, the Bears unveiled a nearly $5 billion plan for Arlington Heights that also called for restaurants, retail and more, when they were finalizing the purchase of that site 30 miles from Soldier Field. Their focus moved toward building a new stadium next to Soldier Field after Warren was hired as president two years ago to replace the retiring Ted Phillips. The plan to transform Chicago’s Museum Campus got an enthusiastic endorsement from Mayor Brandon Johnson but a tepid reception from Illinois Gov. JB Pritzker and state legislators when it was announced in April 2024.
Last spring, the team announced it was turning its attention back to Arlington Heights, citing “significant progress” with local leaders.
Since moving to Chicago in 1921, the Bears have never owned their stadium, whether playing at Wrigley Field from 1921 to 1970 or Soldier Field since then.
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