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Dementia warning: Don't ever say these 16 things to loved ones with the disease, experts advise

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Dementia warning: Don't ever say these 16 things to loved ones with the disease, experts advise

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Dementia may be a disease of the mind, but its effects can be highly emotional.

Those suffering from cognitive decline can experience frequent changes in emotions and have less control over their feelings, according to the Alzheimer’s Society — which can make communication difficult.

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“Most people do not have regular interactions with those living with dementia, so it can be hard to know the do’s and don’ts of what to say and how to behave,” Dana Eble, outreach manager for the Alzheimer’s Caregivers Network in Detroit, Michigan, told Fox News Digital.

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“Unfortunately, even the most well-meaning of interactions can lead to stress or confusion for someone experiencing cognitive decline.”

When communicating with a dementia patient, experts say it’s important to choose your language carefully and avoid certain phrases or questions, including the items on the list that follows.

Those suffering from cognitive decline can experience frequent changes in emotions and have less control over their feelings. (iStock)

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1. ‘Don’t you remember?’

This topped the list as the worst question to ask someone with dementia, according to experts.

“This question can be frustrating or embarrassing for someone with dementia, as memory loss is a central symptom of their condition,” Timothy Frie, a nutritional neuroscientist in Atlanta, Georgia, who studies how traumatic stress causes neuroinflammation, told Fox News Digital.

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“It can make them feel inadequate or upset about their cognitive decline.”

Forcing the person to acknowledge that they don’t remember a memory or conversation can make them feel bad, added Christina Chartrand, the Florida-based vice president of Senior Helpers, a home care company that often helps dementia patients.

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2. ‘Let me do that for you’

One of the hardest parts of having dementia is the daily realization of things that can no longer be done independently, according to Adria Thompson, a licensed speech-language pathologist in Massachusetts with 10 years of experience in dementia care.

Smiling senior

It is best to avoid arguing or reasoning with someone with dementia, as it will likely anger and agitate them, experts said.  (iStock)

“Often, well-meaning individuals might prematurely take over tasks without asking or assessing if they need to, which can diminish the person’s sense of autonomy,” she told Fox News Digital. 

“Instead of assuming they can’t do something, it’s more respectful to offer help and let them tell you if they need it — and allow them to still do the things they can for as long as possible.”

3. ‘You’re wrong’

It is best to avoid arguing or reasoning with someone with dementia, as it will likely anger and agitate them, experts agreed.

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“People with dementia do not need to be corrected when they believe it’s Tuesday the 13th and not Monday the 1st,” Elizabeth Landsverk, M.D., a California-based geriatrician and founder of Dr Liz Geriatrics, an online education and support resource, told Fox News Digital.

“Keep the peace,” she advised. “It’s better than being right.”

4. ‘Would you like to make plans for next week?’

“As dementia patients lose their sense of time, they lose a frame of reference that would make this question meaningful to them,” said Leonie Rosenstiel, president of Dayspring Resources, Inc., in Albuquerque, New Mexico, which helps families of elders plan and cope with the problems of aging

senior couple comfort eachother

“Repeatedly pointing out that someone is repeating themselves can lead to feelings of frustration and self-consciousness” for that person, an expert said. (iStock)

“If you expect to do something with them at a particular time in the future, they will not be able to keep track of this appointment.”

To prevent frustration, Rosenstiel recommended ensuring that someone else can remember or write down the plans, and that those plans don’t conflict with activities such as medical appointments.

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5. ‘You seem fine’

“Society often has a preconceived notion of what dementia looks and acts like, and if someone doesn’t fit that stereotype, it might seem tempting to use this phrase as a compliment,” noted Thompson.

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“However, this phrase can belittle the individual’s daily struggle and experiences.”

It’s important to be aware that symptoms and experiences can vary greatly among individuals with dementia, Thompson told Fox News Digital.

6. ‘I just told you that’ or ‘You already told me that’

Along the same lines of “Don’t you remember?” experts recommend not asking questions or making statements that are likely to upset the person. 

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Continually “pointing out that someone is repeating themselves can lead to feelings of frustration and self-consciousness,” said Frie.

“It’s better to gently redirect the conversation or respond as if it’s new information.”

Dementia communication: couples interacting

Experts recommend not asking questions or making statements that are likely to upset the person.  (iStock)

This is especially true in the middle stages of their disease, when patients may have moments when they know their brain isn’t working right, according to Jennifer Fink, a caregiver expert in California who facilitates support groups for the Alzheimer’s Association.

7. ‘How have you been feeling this week?’

This might seem like a natural question to ask if it’s been a week since you’ve visited a loved one or friend, and you’re trying to catch up.

Yet it could do more harm than good, Rosenstiel said. 

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“We ask each other questions like this all the time, but someone with dementia might not remember how they were feeling five minutes ago, let alone how they felt yesterday,” she warned. 

“They might make something up, in an effort to satisfy you, or they might get frustrated or angry.”

Woman taking test

“Instead of assuming they can’t do something, it’s more respectful to offer help and let them tell you if they need it — and allow people to still do the things they can for as long as possible,” an expert advised. (iStock)

8. ‘You’re not making any sense’

Criticizing dementia patients’ communication can damage their self-esteem and discourage them from expressing themselves, according to Michael Kramer, a long-term care educator and director of community relations for retirement residences that accommodate seniors with dementia.

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“Having patience and making an effort to understand their perspective helps to maintain their dignity and encourages open communication,” said Kramer, who is based in Ontario.

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9. ‘Do you remember this?’

It’s best to avoid asking if the person recalls specific pieces of information, such a name or date or event, as it can put the person on the spot and feel like a test, experts said.

“Instead, start by introducing yourself,” Eble suggested — “something like, ‘Hey, Grandma, it’s Dana, your granddaughter!’ It might feel strange at first, but it will put your loved one at ease by reminding them of your name and connection to them.”

Woman with caregiver

It’s best to avoid asking if the person recalls specific pieces of information, as it can put them on the spot and feel like a test, experts say. (iStock)

The same goes for events or memories, she said.

Instead of asking if they remember, start with “I remember when…” and then continue with your story. 

“Those with dementia love reminiscing, but don’t frame it as a test of their memory,” Eble added.

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10. ‘You’re being difficult on purpose’

This phrase is “hurtful and dismissive,” Kramer warned. 

“It overlooks the fact that behavioral challenges are a result of the dementia itself, not intentional actions,” he said.

Senior man with nurse

In some cases, phrasing activities as a question can cause confusion for a dementia patient, experts warned. (iStock)

“Using empathy and understanding instead of frustration is crucial in managing these situations.”

Labeling behavior as “difficult” can increase frustration and tension, Frie agreed.

“Understanding that challenging behaviors are often a symptom of the disease can help in responding with patience and empathy,” he said.

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11. Using words like ‘bib’ or ‘diaper’

“As dementia progresses, caregivers may need to start using products to help with incontinence and/or to help make meal times easier,” Eble pointed out.

“Sometimes a limited choice is too much of an effort for a dementia patient.”

She recommended using positive language for these products, such as “protective underwear,” “cloth” or “apron.”

12. ‘Remember, she died last year, we went to the funeral…’

Reminding someone with dementia of the death of a loved one can be upsetting, as the person is likely not retaining this information, according to Kate Granigan, a geriatric social worker and president of the Aging Life Care Association Board in Boston.

Woman caregiver

Reminding someone with dementia of the death of a loved one can be upsetting, as the person is likely not to have retained this information. (iStock)

“This can trigger a grief response over and over again, as if the information is newly learned,” she told Fox News Digital. 

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Instead, she recommended saying something like, “It seems like you are really thinking about Uncle Harold today. Do you have a favorite memory from when you were kids?”

13. ‘That’s not how it happened’

“Dementia can cause confusion and altered perceptions of events,” said Kramer.

“Correcting someone sharply can increase their distress and confusion.”

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Instead, it’s better to validate their experiences and gently guide them rather than insisting on correctness, the expert recommended.

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14. ‘Do you want to [insert activity]?’

In some cases, phrasing activities as a question can cause confusion for a dementia patient, according to Eble. 

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“If you’re the primary caregiver in charge of your loved one’s toileting, showering, feeding or sleeping schedule, instead of asking ‘Do you want to,’ lead with ‘Let’s go to the [bathroom, shower, kitchen],’” she recommended. 

“Adding that bit of direction will help maintain their schedule.”

15. ‘What would you like to wear today?’

Open-ended choices may leave a dementia patient confused or frustrated, noted Rosenstiel. 

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“They also might have no idea whether they’ll need a sweater or not, because they don’t remember what they heard on a weather report an hour ago,” she told Fox News Digital. 

Senior couple walking

Open-ended choices may leave a dementia patient confused or frustrated, an expert advised. (iStock)

A more productive question might be, “Here’s a red sweater and a blue one. Which one would you rather wear?” 

“Even then, sometimes a limited choice is too much of an effort for a dementia patient,” the expert said.

16. ‘Get your coat and shoes, grab your bag and meet me by the door’

Long sentences with multiple parts or commands can be overwhelming and confusing for someone with dementia, according to Granigan. 

 

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“It is more successful to provide one short direction or piece of information at a time,” she told Fox News Digital. 

“Pause between each and guide the person through the task if needed before starting the next.”

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Words and game of Scrabble keep married couple in wedded bliss for decades

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Words and game of Scrabble keep married couple in wedded bliss for decades

A married couple who have long enjoyed the game of Scrabble both together and separately before they even met are never at a loss for words — and attribute their wedded bliss in part to their love of the nostalgic game.

They’re still playing in tournaments built around the game decades after they began doing so.

Graham Harding and his wife Helen Harding, both in their 60s, have been married for over 20 years.

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They met in the 1990s at Scrabble tournaments, as news agency SWNS reported.

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But it was a “special match” in 2000 that brought the couple together — and has kept them together now.

Graham and Helen Harding on their wedding day. They’ve been playing in Scrabble tournaments for some 30 years.  (Courtesy Graham and Helen Harding via SWNS)

Graham Harding is from the East Berkshire Scrabble Club, while his wife Helen is from the Leicester Scrabble Club in the U.K.

They have been taking part in the UK Open Scrabble Championship in Reading this week.

“The more words you know, the more ammunition you’ve got.”

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“Scrabble is all about having a good vocabulary,” said Graham Harding, SWNS noted.

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“But it is a Scrabble vocabulary — not necessarily everyday English.”

Added Helen Harding, “The more words you know, the more ammunition you’ve got.”

Graham and Helen Harding at their wedding.

Graham and Helen Harding’s wedding cake. They bonded over their love of Scrabble – and are still playing in tournaments together.  (Courtesy Graham and Helen Harding via SWNS)

The couple said they were “vague acquaintances” for about five years after they first met.

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Then they got together after a special match in Swindon.

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They maintained a long-distance relationship before they got married in 2004.

The couple even brought their Scrabble board to their wedding. 

Graham and Helen Harding at their wedding.

The couple likely have played thousands of games between them.  (Courtesy Graham and Helen Harding via SWNS)

It featured a message with Scrabble pieces that said, “Congratulations on your wedding day” — while their wedding cake said, in Scrabble letters, “Helen and Graham.”

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They each took up the hobby early in life well before they met each other. 

The tournament that’s been taking place this week is the first since the COVID pandemic after a five-year break — and the couple has played some two dozen games in it as of Friday, SWNS reported. 

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Deep sleep can keep two big health problems at bay, new studies suggest

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Deep sleep can keep two big health problems at bay, new studies suggest

It might be worth working a little bit harder to get that much-desired, but often elusive, good night’s sleep.

Deep sleep clears the mind of waste just as a “dishwasher” cleans dirty plates and glasses, just-published research suggests — and there’s more.

The findings also offer insights into how sleeping pills may disrupt the “brainwashing” system — potentially affecting cognitive function for people over the long run.

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Study senior author professor Maiken Nedergaard of the University of Rochester and the University of Copenhagen said norepinephrine (a neurotransmitter and hormone) triggers blood vessels to contract — generating slow pulsations that create a rhythmic flow in the surrounding fluid to carry away waste, news agency SWNS noted.

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Said Nedergaard, “It’s like turning on the dishwasher before you go to bed and waking up with a clean brain. . . . We’re essentially asking what drives this process and trying to define restorative sleep based on” this “glymphatic clearance.”

“It’s like turning on the dishwasher before you go to bed and waking up with a clean brain.” (iStock)

The brain has a built-in waste removal process – the glymphatic system – that circulates fluid in the brain and spinal cord to clear out waste, according to the scientists. 

The process helps remove toxic proteins that form sticky plaques linked to neurological disorders, such as Alzheimer’s disease.

But the scientists indicated that what drives the system was unclear until now, according to the study.

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Is all sleep created equal? The researchers wanted to find out.

To find clues, Nedergaard and her team looked into what happens in mice when their brains sleep, as SWNS reported of the study. The team focused on the relationship between norepinephrine and blood flow during deep sleep.

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They found that norepinephrine waves correlate to variations in brain blood volume — suggesting that norepinephrine triggers a rhythmic pulsation in the blood vessels. The researchers then compared the changes in blood volume to brain fluid flow.

The brain fluid flow fluctuates in correspondence to blood volume changes, suggesting the vessels act as pumps to propel the surrounding brain fluid to flush out waste.

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Senior couple sleeping

During deep sleep, toxic proteins that form sticky plaques linked to neurological disorders such as Alzheimer’s disease are removed, scientists say in a new study.  (iStock)

Natalie Hauglund of the University of Copenhagen and the University of Oxford, the study’s lead author, said, “You can view norepinephrine as [the] conductor of an orchestra.” 

She added, “There’s a harmony in the constriction and dilation of the arteries, which then drives the cerebrospinal fluid through the brain to remove the waste products.”  

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Hauglund said she wanted to understand whether all sleep is created equal. 

To find out, the research team administered zolpidem, a common drug to aid sleep, to mice.

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“If people aren’t getting the full benefits of sleep, they should be aware of that, so they can make informed decisions.” 

They found that the norepinephrine waves during deep sleep were 50% lower in zolpidem-treated mice than in naturally sleeping mice. 

Although the zolpidem-treated mice fell asleep more quickly — fluid transport into the brain dropped more than 30%, as SWNS reported.

man sleeps in bed

Two new studies indicate the importance of getting a good night’s sleep — with one study saying a lack of sleep may be sabotaging the brain’s ability to keep intrusive thoughts at bay. (iStock)

The researchers say their findings, published in the journal Cell, suggest that the sleeping aid may disrupt the norepinephrine-driven waste clearance during sleep.

Hauglund said, “More and more people are using sleep medication, and it’s really important to know if that’s healthy sleep. If people aren’t getting the full benefits of sleep, they should be aware of that, so they can make informed decisions.” 

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The research team said the findings likely apply to humans, who also have a glymphatic system, although it requires further testing.

Nedergaard added, “Now we know norepinephrine is driving the cleaning of the brain, we may figure out how to get people a long and restorative sleep.”

For more Health articles, visit www.foxnews.com/health

Meanwhile, a lack of sleep may be doing more damage than just making people groggy.

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It could be sabotaging the brain’s ability to keep intrusive thoughts at bay.

young woman asleep

Anyone who suffers from sleep deprivation may find that the brain’s defense against unwanted memories is weakened, say experts. (iStock)

Another new study, this one published in the Proceedings of the National Academy of Sciences, found that sleep deprivation weakens the brain’s defense against unwanted memories, allowing them to flood the mind, according to the New York Post. 

“We show that sleep deprivation disrupts prefrontal inhibition of memory retrieval, and that the overnight restoration of this inhibitory mechanism is associated with time spent in rapid eye movement (REM) sleep,” the scientists said.

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How Kathy Bates Lost 100 Lbs—Plus Her Tips for Sustainable Weight Loss

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How Kathy Bates Lost 100 Lbs—Plus Her Tips for Sustainable Weight Loss


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