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Black women in Massachusetts invited to take part in groundbreaking cancer study

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Black women in Massachusetts invited to take part in groundbreaking cancer study


Black women are disproportionately impacted by cancer — especially breast and cervical cancer. Now, Black women in Massachusetts can take part in a multi-state study, which is planning to cover at least the next 30 years of their lives.

The “VOICES of Black Women” is a study led by the American Cancer Society to investigate exactly why Black women die of certain cancers more than any other racial and ethnic group, and what factors in their lives could be the cause of the mortality.

“There’s so many women who could talk about experiences through, their doctors, through their lifestyles, that could help the future women,” said Nekia Clark, director of patient services and outreach at the Ellie Fund, a Needham-based nonprofit that works to support people diagnosed with breast cancer.

To register, Black women must be between the ages of 25 to 55 and never had cancer. They will be followed by researchers to see how Black women’s medical history, lifestyle, and encounters with racism impact their risks of the disease.

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The goal is to enroll at least 100,000 women across 20 states and Washington, D.C. Once qualifications are met, women can participate by completing an online health and life history survey and updating health information twice a year for at least 30 years.

The states where Black women can enroll in the new study.


Image courtesy of American Cancer Society

Breast cancer kills Black women at a 40% higher rate than white women, according to the National Cancer Institute. For cervical cancer, that number is 60% more likely, according to a report in the American Journal of Preventative Medicine.

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“VOICES of Black Women represents a crucial step toward achieving health equity in a population that is long overdue,” said Dr. Alpa Patel, co-principal investigator of the study and senior vice president of population science at the American Cancer Society. “By centering Black women’s voices and experiences, we can dig deeper in uncovering the unique challenges and barriers contributing to cancer disparities and develop tailored interventions to mitigate them.”

Clark is also a breast cancer survivor and had her disease caught early. But she lost her mother to a resurgence of cancer in 2020. Clark said she tells countless Black women that it’s important to advocate for themselves.

“If you’re educated on your health, you’re able to advocate for yourself to your doctor and know if that doctor is not listening to you, you can go to another doctor who will listen.”

Clark said she often hears that “it’s a wait and watch” approach for Black female patients. They go into some doctor’s office’s with symptoms of breast cancer, and they’re told to “just keep watching it.” The gaslighting can have catastrophic impacts, she said.

“It results in an early-stage cancer becoming a late-stage cancer where it’s metastatic. And they have to continue treatment for the rest of their life and eventually they will die from the disease.”

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Jani Raynor, 46, is a year into remission from breast cancer. She has several female and male friends in other states who felt like their doctors didn’t listen to their concerns about symptoms. While she didn’t have diagnoses issues, Raynor said she suffered from a lack of support to get preventive care in Massachusetts.

“I never felt like I was encouraged to make sure that I was getting my mammogram or that I was doing self-examinations,’’ she said. “I definitely do those because I have breast cancer history in my family.”

Local providers say the study is important, especially given the lack of focus on Black women historically in clinical trials.

“We know that a lot of the reasons why these rates for Black women are related to systemic racism,” said Rachel Preiss, a women’s health nurse practitioner at The Dimock Center in Roxbury. “We know that it occurs on multiple levels, and we know that that leads to multiple avenues of missing breast cancer in patients.”

The Dimock Center, she said, is less involved with treatment, and more involved in preventive care. That means making sure women have mammograms, and ordering exams that could diagnose cancer early. Sometimes, that means being a patient’s second opinion.

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“For cancer and everything else, I can’t tell you the number of times that I’ve sat with a patient, and they told me that another provider just didn’t listen to them,” Preiss said.





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New Bedford MS-13 Member, Illegal Alien Pleads Guilty to Role in Brutal Murders In Massachusetts, Virginia

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New Bedford MS-13 Member, Illegal Alien Pleads Guilty to Role in Brutal Murders In Massachusetts, Virginia


A 28-year-old Salvadoran national and admitted member of the MS-13 gang, who was living unlawfully in New Bedford, Massachusetts, pleaded guilty in federal court in Boston to his role in three brutal murders committed to advance the gang’s violent agenda across Massachusetts and Virginia.

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Police shoot and kill man armed with knife in Lexington, DA says

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Police shoot and kill man armed with knife in Lexington, DA says


Police shot and killed a man who officials say rushed officers with a knife during a call in Lexington, Massachusetts, on Saturday.

Middlesex County District Attorney Marian Ryan said the situation started around 1:40 p.m. when Lexington police received a 911 call from a resident of Mason Street reporting that his son had injured himself with a knife.

Officers from the Lexington Police Department and officers from the Northeastern Massachusetts Law Enforcement Council (NEMLEC), who were already in town for Patriots’ Day events, responded to the call.

Police were able to escort two other residents out of the home, initially leaving a 26-year-old man inside. According to Ryan, while officers were setting up outside, the man ran out of the home and approached officers with a large kitchen knife.  

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She added that police tried twice to use non-lethal force, but it was not effective in stopping him. The man was shot by a Wilmington police officer who is a member of NEMLEC. The man was pronounced dead on scene and the officer who fired that shot was taken to a local hospital as a precaution.

The man’s name has not been released.

Ryan said typically in a call like this where someone was described as harming themselves, officers would first try to separate anyone else to keep them out of danger, which was done, and then standard practice would be to try to wait outside.

“It would be their practice to just wait for the person to come out. In the terrible circumstances of today, he suddenly rushed the officers, still clutching the knife,” Ryan said.

The investigation is still in the preliminary stages and more information is expected in time. Ryan said her office will request a formal inquest from the court to review whether any criminal conduct has occurred, which is the standard process.

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This happened around the same time as the annual Patriots’ Day Parade, and just hours after a reenactment of the Battle of Lexington, which drew large crowds to town.

This is a developing story. Check back for updates.



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‘An impossible choice’: With little federal help to combat rising costs, Head Start looks to Massachusetts for more help – The Boston Globe

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‘An impossible choice’: With little federal help to combat rising costs, Head Start looks to Massachusetts for more help – The Boston Globe


In Massachusetts, roughly 1,300 slots for children across Head Start’s 28 agencies have been eliminated in the last three years because federal funding has plateaued over that time, while the cost of running the program continues to rise, according to the Massachusetts Head Start Association. Nationally, Head Start enrollment dropped from 1.1 million kids in 2013 to around 785,000 in 2022, according to research by the Annie E. Casey Foundation.

“If they didn’t get into a Head Start program, they would be sitting at home,” said Brittany Acosta, a Head Start parent in Dorchester.

It’s teachers are drastically underpaid, and there’s a serious need for a rainy day-type fund should the federal government shut down again, the association says. As they’ve done in years past, state lawmakers have offered to provide financial relief, but the Massachusetts Head Start Association’s request for 3 percent above the amount it received last year, an additional $4.6 million to help its staff keep up with the state’s rising cost of living, so far has not been allocated.

Violeta, Tyler, and Dimitrius (all 4 years old) play together at the ABCD Dorchester Head Start.Andrew Burke-Stevenson/for The Boston Globe
While looking in a mirror, Kadijah, 3, puts on a toy mail carrier hat.Andrew Burke-Stevenson/for The Boston Globe

Last year, President Trump’s leaked budget proposal revealed he considered eliminating Head Start entirely. Then, in the summer, he cut off Head Start enrollment for immigrants without legal status. And during the fall’s government shutdown, four Head Start centers in Massachusetts closed because they couldn’t access their funding.

Trump’s latest budget proposal shows a fourth year without increasing funding for the program, which was established in the mid-1960s.

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Michelle Haimowitz, executive director of the Massachusetts Head Start Association, said the program doesn’t want to eliminate more child slots than it already has, but paying teachers a competitive salary is equally important in order to keep them from leaving for higher paying jobs. Head Start teachers make under $50,000 annually compared to over $85,000 for the average Massachusetts kindergarten teacher.

“It’s an impossible choice,” Haimowitz said. “When we reduce the size of our programs, we’re not reducing the size of the need.”

Michelle Haimowitz, MHSA, moderator of panel with Massachusetts State Representative Chris Worrell, 5th Suffolk District.David L. Ryan/Globe Staff

Massachusetts is one of few states that supplements federal funding for Head Start, and last year it increased the program’s state grant from $5 million to $20 million, adding to the $189 million in federal aid it receives in this state.

“We can’t run a program without giving staff a raise for three years,” Haimowitz said. “Our next fight now is not just for survival, but it’s for thriving and growth.”

The Massachusetts House Ways and Means Committee on Wednesday released its budget, which doesn’t grant Head Start’s request of a 3 percent boost. But state Representative Christopher Worrell filed an amendment for additional funding. Worrell, whose district covers parts of Dorchester and Roxbury, said he loves Head Start’s embrace of culture, recalling one visit to a center where he could smell staff cooking stew chicken, a traditional Caribbean dish.

“I’ve been to dozens of schools throughout the district, and you don’t get that home-cooked meal,” Worrell said. “[The state is] stepping up and doing the best we can with what we have.”

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Nylah, 3, holds a hula hoop as pre-school teacher Leolina Rasundar Chinnappa (right) and Hasiet, 4, play catch.Andrew Burke-Stevenson/for The Boston Globe
Assistant teacher Paola Polanco (center) helps Annecataleeya (left) pour milk into a glass while Violeta (right) scoops cereal during breakfast.Andrew Burke-Stevenson/for The Boston Globe

At the Action for Boston Community Development’s Head Start and Early Head Start center in Dorchester, the children of Classroom 7 arrived one Monday morning and dove into bins of magnetic tiles before their teachers, Paola Polanco and Leolina Rasundar Chinnappa, served breakfast. Acosta dropped off her 4-year-old daughter, Violeta, before reporting to her teaching position at the center, where several other Head Start parents also work.

“It’s important for all Head Start parents to have the opportunity to give their child an experience in a learning environment before they actually start kindergarten,” Acosta said.

Beyond providing early education and care to children of low-income families, from birth to age 5, the program helps them access other resources, including mental health services, SNAP benefits, homelessness assistance, and employment opportunities.

It also serves as daycare for parents who might not be able to afford it, while they’re at work.

Research has shown the importance of preschool in a child’s development with one 2023 study, focused on Boston public preschools, finding that it improves student behavior and increases the likelihood of high school graduation and college enrollment.

Massachusetts State Representative Chris Worrell (center), 5th Suffolk District, notes during a meeting on the panel at ABCD Dorchester Head Start and Early Head Start.David L. Ryan/Globe Staff

For Rickencia Clerveaux and Christopher Mclean, the Dorchester Head Start center is the only place they feel comfortable sending their 3-year-old son, Shontz, who is on the autism spectrum. Shontz’s stimming — repetitive movements that stimulate the senses — has reduced, and his speech has improved since he joined the center in 2024, Clerveaux said.

Rickencia Clerveaux, ABCD Head Start parent, talks about her children during the meeting held at ABCD’s Dorchester Head Start and Early Head Start in Boston.David L. Ryan/Globe Staff

His parents say he’s also come out of his shell. Mclean now drops his son off and gets a simple “bye” as Shontz joins his classmates, he said.

He and Clerveaux said they appreciate the specialized attention Shontz can receive from teachers, such as when staff identified that Shontz might have hearing issues. His parents were able to follow up with their doctor and get Shontz to have surgery to improve his hearing.

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“It’s a safe net for parents,” Clerveaux said. “There’s so many ways that him being here helps him grow better.”

Without Head Start, Clerveaux said a lot of pressure would be put on parents to find care for their children, “knowing that they’re already struggling or not getting the ends to meet.”

“That’s a burden for everybody in the community,” she said. “If there’s no funding, there’s no daycare and parents cannot work.”

Students sit together after breakfast at the ABCD Dorchester Head Start.Andrew Burke-Stevenson/for The Boston Globe

Lauren Albano can be reached at lauren.albano@globe.com. Follow her on X @LaurenAlbano_.





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