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Sickle cell patient offers hope to Ugandan community where disease is prevalent

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Sickle cell patient offers hope to Ugandan community where disease is prevalent
  • Barbara Nabulo, a sickle cell disease patient, has emerged as a dedicated advocate for others facing the same condition in rural Uganda.
  • Despite her own challenges with the disease, Nabulo serves as a counselor to fellow patients, offering them encouragement and hope.
  • Nabulo regularly visits sickle cell patients in the hospital ward, providing them with guidance and reassurance.

Barbara Nabulo was one of three girls in her family. But when a sister died, her mother wailed at the funeral that she was left with just one and a half daughters.

The half was the ailing Nabulo, who at age 12 grasped her mother’s meaning.

“I hated myself so much,” Nabulo said recently, recalling the words that preceded a period of sickness that left her hospitalized and feeding through a tube.

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The scene underscores the lifelong challenges for some people with sickle cell disease in rural Uganda, where it remains poorly understood. Even Nabulo, despite her knowledge of how the disease weakens the body, spoke repeatedly of “the germ I was born with.”

Barbara Nabulo cleans clothes at her home in Busamaga-Mutukula village in Mbale, Uganda, on April 25, 2024. Nabulo, a sickle cell disease patient, has emerged as a dedicated advocate for others facing the same condition. (AP Photo/Hajarah Nalwadda)

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Sickle cell disease is a group of inherited disorders in which red blood cells — normally round — become hard, sticky and crescent shaped. The misshapen cells clog the flow of blood, which can lead to infections, excruciating pain, organ damage and other complications.

The disease, which can stunt physical growth, is more common in malaria-prone regions, notably Africa and India, because carrying the sickle cell trait helps protect against severe malaria. Global estimates of how many people have the disease vary, but some researchers put the number between 6 million and 8 million, with more than 5 million living in sub-Saharan Africa.

The only cure for the pain sickle cell disease can cause is a bone marrow transplant or gene therapies like the one commercially approved by the U.S. Food and Drug Administration in December. A 12-year-old boy last week became the first person to begin the therapy.

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Those options are beyond the reach of most patients in this East African nation where sickle cell disease is not a public health priority despite the burden it places on communities. There isn’t a national database of sickle cell patients. Funding for treatment often comes from donor organizations.

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In a hilly part of eastern Uganda that’s a sickle cell hot spot, the main referral hospital looks after hundreds of patients arriving from nearby villages to collect medication. Many receive doses of hydroxyurea, a drug that can reduce periods of severe pain and other complications, and researchers there are studying its effectiveness in Ugandan children.

Nabulo, now 37, is one of the hospital’s patients. But she approaches others like her as a caregiver, too.

After dropping out in primary school, she has emerged in recent years as a counselor to fellow patients, speaking to them about her survival. Encouraged by hospital authorities, she makes weekly visits to the ward that has many children watched over by exhausted-looking parents.

Nabulo tells them she was diagnosed with sickle cell disease at two weeks old, but now she is the mother of three children, including twins.

Such a message gives hope to those who feel discouraged or worry that sickle cell disease is a death sentence, said Dr. Julian Abeso, head of pediatrics at Mbale Regional Referral Hospital.

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Some men have been known to divorce their wives — or neglect them in search of new partners — when they learn that their children have sickle cell disease. Frequent community deaths from disease complications reinforce perceptions of it as a scourge.

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Nabulo and health workers urge openness and the testing of children for sickle cell as early as possible.

Abeso and Nabulo grew close after Nabulo lost her first baby hours after childbirth in 2015. She cried in the doctor’s office as she spoke of her wish “to have a relative I can call mine, a descendant who can help me,” Abeso recalled.

“At that time, people here were so negative about patients with sickle cell disease having children because the complications would be so many,” the doctor said.

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Nabulo’s second attempt to have a child was difficult, with some time in intensive care. But her baby is now a 7-year-old boy who sometimes accompanies her to the hospital. The twin girls came last year.

Speaking outside the one-room home she shares with her husband and children, Nabulo said many people appreciate her work despite the countless indignities she faces, including unwanted stares from people in the streets who point to the woman with “a big head,” one manifestation in her of the disease. Her brothers often behave as if they are ashamed of her, she said.

Once, she heard of a girl in her neighborhood whose grandmother was making frequent trips to the clinic over an undiagnosed illness in the child. The grandmother was hesitant to have the girl tested for sickle cell when Nabulo first asked her. But tests later revealed the disease, and now the girl receives treatment.

“I go to Nabulo for help because I can’t manage the illness affecting my grandchild,” Kelemesiya Musuya said. “She can feel pain, and she starts crying, saying, ‘It is here and it is rising and it is paining here and here.’”

Musuya sometimes seeks reassurance. “She would be asking me, ‘Even you, when you are sick, does it hurt in the legs, in the chest, in the head?’ I tell her that, yes, it’s painful like that,” Nabulo said.

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Nabulo said she was glad that the girl, who is 11, still goes to school.

The lack of formal education is hurtful for Nabulo, who struggles to write her name, and a source of shame for her parents, who repeatedly apologize for letting her drop out while her siblings studied. One brother is now a medical worker who operates a clinic in a town not far away from Nabulo’s home

“I am very happy to see her,” said her mother, Agatha Nambuya.

She recalled Nabulo’s swelling head and limbs as a baby, and how “these children used to die so soon.”

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But now she knows of others with sickle cell disease who grew to become doctors or whatever they wanted to be. She expressed pride in Nabulo’s work as a counselor and said her grandchildren make her feel happy.

“At that time,” she said, recalling Nabulo as a child, “we didn’t know.”

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‘God of War’ Creator Says TV First Look Is ‘So Dumb’ and ‘Terrible’: Looks Like He’s ‘S—ing in the Woods’

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‘God of War’ Creator Says TV First Look Is ‘So Dumb’ and ‘Terrible’: Looks Like He’s ‘S—ing in the Woods’

David Jaffe, the creator of the “God of War” video games, took to his YouTube channel on Saturday to slam the first look image from Amazon Prime‘s upcoming “God of War” TV show. He said the frame, which features franchise hero Kratos in the woods with his son, was “so bad in so many ways.”

“I’m sure everybody’s trying real hard, [but] it’s so dumb,” Jaffe said. “But let’s be incredibly clear, okay? Two things can be true. This can be a terrible image, and it is. It’s so bad in so many ways, which we’ll talk about in a moment. And Ron Moore is awesome, who is the showrunner… This guy is a juggernaut of a talented fellow. I have absolutely no doubt it is going to be a good show.”

Jaffe added that he doesn’t mind that star Ryan Hurst isn’t a dead ringer for Kratos, but instead takes issue with his expression and pose in what he described as a “dumb fucking image.”

“Kratos in this pose with this expression, not the guy’s face, but this expression, he just looks stupid,” Jaffe explained. “If you’re going to reveal, to most people, a brand new character that you hope is going to carry your series, for the first time, and they’ve never really seen this before, and this is the way you introduce them?”

He continued, “Maybe that’s conscious. Maybe they’re like, ‘Well, what we really want to focus on is the father-son story. And if we focus on him being like, Spartan rage, and all that, maybe people are like, “I don’t want to watch that show.”’ Ok maybe. But then, at that point, could you find a picture that doesn’t look like he’s shitting in the woods? Cause that’s what the picture looks like.”

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Amazon Prime unveiled the first look photo on Feb. 27. Along with Hurst as Kratos and Callum Vinson as his son, other cast members include Max Parker as Heimdall, Ólafur Darri Ólafsson as Thor, Mandy Patinkin as Odin, Alastair Duncan as Mimir, Danny Woodburn and Jeff Gulka as brothers Brok and Sindri and Ed Skrein as Baldur.

Watch Jaffe’s entire reaction below.

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Iran nuclear talks ‘didn’t pass the smell test’ before Trump launched strikes, says Vance

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Iran nuclear talks ‘didn’t pass the smell test’ before Trump launched strikes, says Vance

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Vice President JD Vance confirmed Monday that negotiations with Iran over its nuclear program collapsed after U.S. officials concluded Tehran’s claims “did not pass the smell test,” prompting President Donald Trump to authorize Operation Epic Fury.

Speaking on “Jesse Watters Primetime,” Vance said U.S. envoys — including Steve Witkoff, Secretary of State Marco Rubio and Jared Kushner — had conducted rounds of “deliberate” talks in Geneva with the Iranian delegation.

The discussions were aimed at curbing Tehran’s nuclear program in exchange for sanctions relief and averting a broader conflict, he said, but ultimately broke down.

“But the Iranians would come back to us and they’d say, ‘Well, you know, having enrichment for civilian purposes, for energy purposes, is a matter of national pride,’” Vance said.

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Omani Foreign Minister Badr al-Busaidi, President Donald Trump’s Special Representative for the Middle East, Steve Witkoff and U.S. negotiator Jared Kushner meet ahead of the U.S.-Iran talks, in Muscat, the capital of Oman, on Feb. 06, 2026.  (Oman Foreign Ministry/Anadolu via Getty Images)

“And so we would say, ‘OK, that’s interesting, but why are you building your enrichment facilities 70 feet underground? And why are you enriching to a level that’s way beyond civilian enrichment and is only useful if your goal is to build a nuclear bomb?’” he said.

“Nobody objects to the Iranians being able to build medical isotopes; the objection is these enrichment facilities that are only useful for building a nuclear weapon,” Vance clarified.

“It just doesn’t pass the smell test for you to say that you want enrichment for medical isotopes, while at the same time trying to build a facility 70 to 80 feet underground,” he explained.

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This image from video provided by U.S. Central Command shows a missile being launched from a U.S. Navy ship in support of Operation Epic Fury on Saturday, Feb. 28, 2026. (U.S. Central Command via AP)

Vance spoke as Operation Epic Fury ended its third day. Launched on Feb. 28, U.S. and Israeli forces carried out coordinated precision strikes deep inside Iran aimed at crippling Tehran’s missile arsenal and nuclear infrastructure.

A key issue had been Iran enriching uranium to high levels, including material around 60% purity — a fraction of weapons-grade but far above limits set under the 2015 nuclear deal — keeping international alarm high over proliferation risks.

“We destroyed Iran’s ability to build a nuclear weapon during President Trump’s term,” Vance told Watters. “We set them back substantially. But I think the President was looking for the long haul,” he said.

“Trump was looking for Iran to make a significant long-term commitment that they would never build a nuclear weapon, that they would not pursue the ability to be on the brink of a nuclear weapon.”

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Vice President JD Vance speaks with Breitbart News Washington bureau chief Matthew Boyle at Andrew W. Mellon Auditorium, Nov. 20, 2025, in Washington.  (Julia Demaree Nikhinson/AP Photo)

“He wanted to make sure that Iran could never have a nuclear weapon, and that would require fundamentally a change in mindset from the Iranian regime.”

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“The President is not going to rest until he accomplishes that all-important objective of ensuring that Iran can’t have a nuclear weapon, not just for the next few years, not just because we obliterated for dough or some other.”

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“There’s just no way that Donald Trump is going to allow this country to get into a multiyear conflict with no clear end in sight and no clear objective,” Vance added while describing that the administration would prefer to see “a friendly regime in Iran, a stable country, a country that’s willing to work with the United States.”

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Unexpected birth brings hope to near-extinct Amazon tribe

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Unexpected birth brings hope to near-extinct Amazon tribe

Pugapia and her daughters Aiga and Babawru lived for years as the only surviving members of the Akuntsu, an Indigenous people decimated by a government-backed push to develop parts of the Amazon rainforest. As they advanced in age without a child to carry on the line, many expected the Akuntsu to vanish when the women died.

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That changed in December, when Babawru – the youngest of the three, in her 40s – gave birth to a boy. Akyp’s arrival brought hope not just for the Akuntsu line but also for efforts to protect the equally fragile rainforest.

“This child is not only a symbol of the resistance of the Akuntsu people, but also a source of hope for Indigenous peoples,” says Joenia Wapichana, president of Brazil’s Indigenous protection agency, known as Funai. “He represents how recognition, protection and the management of this land are extremely necessary.”

Protecting Indigenous territories is widely seen as one of the most effective ways to curb deforestation in the Amazon, the world’s largest rainforest and a key regulator of global climate.

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Researchers warn that continued forest loss could accelerate global warming. A 2022 analysis by MapBiomas, a network of nongovernmental groups tracking land use, found Indigenous territories in Brazil had lost just 1 per cent of native vegetation over three decades, compared with 20 per cent on private land nationwide.

In Rondonia state, where the Akuntsu dwell, about 40 per cent of native forest has been cleared, and what remains untouched is largely within conservation and Indigenous areas. The Akuntsu’s land stands out in satellite images as an island of forest surrounded by cattle pasture as well as soy and corn fields.

In the 1980s, an agriculture push sparked attacks in Rondonia

Rondonia’s deforestation traces back to a government-backed push to occupy the rainforest during Brazil’s military regime in the 1970s. Around the same time, an infrastructure program financed in part by the World Bank promoted domestic migration to the Amazon, including the paving of a highway across the state.

In the 1980s, Rondonia’s population more than doubled, according to census data. Settlers were promised land titles if they cleared the forest for agriculture and risked losing claims if Indigenous people were present, fuelling violent attacks by hired gunmen on Indigenous groups such as the Akuntsu.

Funai made first contact with the Akuntsu in 1995, finding seven survivors. Experts believe they had numbered about 20 a decade earlier, when they were attacked by ranchers seeking to occupy the area. Funai agents found evidence of the assault, and when they contacted the Akuntsu, the survivors recounted what happened. Some still bore gunshot wounds.

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The last Akuntsu man died in 2017. Since then, Babawru lived with her mother, Pugapia, and Aiga, her sister. The women, whose ages aren’t known for certain, have chosen to remain isolated from the non-Indigenous world, showing little interest in it.

In 2006, Funai granted territorial protection to the Akuntsu, establishing the Rio Omere Indigenous Land, which they have since shared with the Kanoe people. The two groups, once enemies, began maintaining contact, usually mediated by officials. The relationship is complex, with cooperation but also cultural differences and language barriers.

The Associated Press requested a facilitated interview with the women through Funai, but the agency didn’t respond.

Amanda Villa, an anthropologist with the Observatory of Isolated Peoples, says Akuntsu women depend on Kanoe men for tasks considered masculine, such as hunting and clearing fields. The two groups have also exchanged spiritual knowledge – the current Kanoe spiritual leader, for example, learned from the late Akuntsu patriarch.

But the most consequential development for the future of the Akuntsu may have occurred last year, when Babawru became pregnant by a Kanoe man.

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Linguist Carolina Aragon is the only outsider able to communicate with the three women after years studying and documenting their language. She works closely with Funai, translating conversations almost daily through video calls. Aragon also supported Babawru remotely during her labour and was with her during an ultrasound exam that confirmed the pregnancy.

Aragon said Babawru was stunned by the news. “She said, ‘How can I be pregnant?’” Aragon recalled. Babawru had always taken precautions to avoid becoming pregnant.

Social collapse shaped the Akuntsu’s choices

The surviving Akuntsu women had decided they would not become mothers. The decision was driven not only by the absence of other men in their community, but also by the belief that their world was disorganised – conditions they felt were not suitable for raising a child.

“You can trace this decision directly to the violent context they lived through,” says Villa, the anthropologist. “They have this somewhat catastrophic understanding.”

The Akuntsu believed they could not bring new life into a world without Akuntsu men who could not only perform but also teach tasks the group considers male responsibilities, such as hunting and shamanism.

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“A breakdown of social relations that followed the genocide shaped their lives and deepened over the years. That does lead people to think – and rethink – the future,” Aragon says. “But the future can surprise everyone. A baby boy was born.”

Aragon says the women were embarking on a “new chapter”, choosing to welcome the child and adapt their traditions with support from the Kanoe and Funai. Villa says the fact that the newborn is a boy creates the possibility of restoring male roles like hunter.

Researchers and officials who have long worked with the three women understood that protecting the territory depended on the Akuntsu’s survival as a people. They sought to avoid a repeat of what happened to Tanaru, an Indigenous man who was discovered after living alone and without contact for decades.

After the discovery, authorities struggled to protect Tanaru’s territory. After he died in 2022, non-Indigenous groups began disputing the land. Late last year, the federal government finally secured the area, turning it into a protected conservation unit.

Funai’s Wapichana says Babawru’s child “is a hope that this next generation will indeed include an Indigenous person, an Akuntsu, ensuring the continuity of this people.”

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Through years of careful work, Funai secured territorial protection for the Akuntsu and helped foster ties with the Kanoe. The agency also arranged spiritual support from an allied shaman, allowing the women to feel safe bringing new life into the world after decades of fear and loss.

The Akuntsu form emotional bonds with the forest and with the birds. Now, they are strengthening those bonds with a new human life in their world.

“What kind of relationship will this boy have with his own territory?” Aragon says. “I hope it will be the best possible, because he has everything he needs there.”

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