Alice Wong, a visionary disability justice advocate whose writing helped people understand what it was like to live with a disability, died of an infection Friday at a San Francisco hospital. She was 51.
San Francisco, CA
Alice Wong, San Francisco disability justice activist and writer, dies at 51
Alice Wong drinks out of a paper cup at a cafe in San Francisco in 2019. Wong opposed the elimination of single use cups, noting that ceramic mugs were heavy and could be difficult for some people to hold.
“I did not ever imagine I would live to this age and end up a writer, editor, activist and more,” Wong wrote in a posthumous message on social media. “We need more stories about us and our culture. You all, we all, deserve the everything and more in such a hostile, ableist environment.”
Wong was born with muscular dystrophy. She used a powered wheelchair and a breathing device and said doctors had not expected her to live past 18.
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Her early experiences navigating medical and social barriers shaped her life’s work — turning personal struggle into a public campaign for equity, visibility and change.
Rooted in San Francisco’s vibrant disability justice movement, Wong pushed to reshape how the Bay Area — and the nation — understood equity, spotlighting barriers to access in the city’s universities and restaurants.
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When Bay Area coffee shops moved to ban paper cups, Wong told the Chronicle how the decision would burden those in the disabled community with limited mobility or decreased sensation in their hands. For them, glass and ceramic mugs were often too heavy and slippery.
Alice Wong drinks out of a paper cup at a cafe in San Francisco in November 2019. Wong wrote of the hardships faced by people with disabilities as they navigated everyday life — and campaigned for change.
Wong also worked to establish accessible resources for disabled students at UCSF, where she earned a master’s degree in medical sociology in 2004 and later worked as a staff researcher for more than a decade.
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She had moved to San Francisco in 1997 to attend the university, which at the time, she said, didn’t have any accessible places for her to live. The university built her a one-room unit in the garage of a professor’s house, Wong said in her memoir, “Year of the Tiger: An Activist’s Life.” She worked with UCSF’s Office of Student Life to change access for disabled students.
Wong said she struggled at university and pushed off work for her classes. Around 2001, she stopped being a student before returning to finish her degree. Years later, Wong said one of her professors apologized, saying he was sorry the department hadn’t done more to support her.
“Disabled people have resisted for millennia efforts to eliminate us and erase our culture,” Wong said in 2024 during an alternative communication research summit. “Doctors told my parents I wouldn’t live past 18, so I grew up never imagining what grownup old ass Alice would look like, and this is why visibility, being able to tell our stories and controlling our own narratives, is why I do what I do.”
Disability rights activist Alice Wong, shown at Rutherford Hill Winery in Napa County, has died at age 51.
The founder of the Disability Visibility Project, which collects oral histories of Americans with disabilities in conjunction with StoryCorps, Wong has been at the forefront of chronicling how COVID and its unparalleled disruption of lives and institutions have underscored challenges that disabled people have always had to live with.
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Though Wong often jokingly described herself as an “angry disabled Asian girl,” she brought sharp humor and insight to her activism. In “Disability Visibility: First-Person Stories from the Twenty-First Century,” she edited authors exploring inequities within the disabled community and how society values certain bodies over others.
“There is a cyborg hierarchy,” disability activist Jillian Weise wrote. “They like us best with bionic arms and legs. They like us Deaf with hearing aids, though they prefer cochlear implants. It would be an affront to ask the Hearing to learn sign language. Instead they wish for us to lose our language, abandon our culture, and consider ourselves cured.”
Wong wrote about her own experience transforming into what she calls a cyborg in an article for Literary Hub.
“Doctors advised me to get spinal fusion surgery when I was around twelve, but I was too freaked out by the thought of it because it was a serious-ass procedure,” Wong wrote. “By eighth grade my parents told me I was near the final window for this surgery, which could improve my breathing and alleviate the deep fatigue I experienced every day. I relented — with no idea how it would turn me into a cyborg inside out.”
Wong’s achievements brought national recognition. In 2013, then-President Barack Obama selected her for a two-year seat on the National Council on Disability, which advised Congress and the president. In 2024, she received the prestigious MacArthur Foundation genius grant.
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It was also the year, after decades of sharing a home with her parents, she moved into her own apartment in San Francisco with her cats, Bert and Ernie, according to the New York Times.
Wong is survived by her father, Henry, and her mother, Bobby, both immigrants from Hong Kong, as well as her sisters, Emily and Grace Wong.
San Francisco, CA
Retired San Francisco firefighter dies from lung cancer after Blue Shield denies treatment claims
SAN FRANCISCO (KGO) — The retired San Francisco firefighter at the center of a bitter insurance fight has lost his battle against cancer.
Ken Jones passed away Saturday, 14 months after being diagnosed with stage four lung cancer.
PREVIOUS REPORT: City asked to intervene after SF firefighter’s stage 4 lung cancer treatment denied by Blue Shield
We first told you about Jones in January — when the 17-year veteran and supporters asked the City Commission for help.
The Fire Department’s insurance carrier, Blue Shield, denied coverage for some of his recommended treatments.
Ken Jones was 70 years old.
SF firefighters rally for retiree denied cancer treatment by Blue Shield as more come forward
“After we got some publicity, thank you, a Blue Shield physician reached out to Ken’s physician, and they worked out a different plan that Blue Shield would cover. It’s still an incomplete plan,” said Helen Horvath, Jones’ wife when ABC7 Eyewitness News spoke to her in January, 2026.
Since then, Jones’ story has led to an investigation into other cases, with the city’s mayor vowing to support firefighters.
According to San Francisco’s Health Service Board, about 5,000 city employees and retirees are insured by Blue Shield. Now, city leaders are asking anyone who has been denied cancer treatment to speak up.
Tony Stefani with the Cancer Prevention Foundation said firefighters with a cancer diagnosis have a 14% higher chance of dying than other cancer patients in the general population.
“Current statistics tell us that 65% of the men and women in our profession are going to contract some form of cancer in their lifetime. Some of them will be fatal,” Stefani said.
In a Statement Blue Shield said, in part: “For Medicare members, health plans must follow medical policy established by the Centers for Medicare and Medicaid Services (CMS).”
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Few things are more valuable in the Bay Area than real estate. In San Francisco, the median house price is now over $2 million. Last month, at least seven houses in the city sold for $1 million over the asking price, and buyers regularly offer to pay in cash or waive contingencies to stay competitive. Yet there is one thing that remains even more valuable than a house, and possibly more valuable than money itself: stock in Anthropic or OpenAI.
Last week, 160 Noe Street, an Edwardian home in San Francisco’s desirable Duboce Triangle neighborhood, was listed for sale at $2.9 million—or the equivalent amount in Anthropic or OpenAI shares, as based on those companies’ current valuations. Rachel Swann, the listing agent, says she was inspired to set these unusual terms after meeting several Anthropic employees at an open house for a different property. “These people have a lot of paper wealth, but they don’t always have the liquidity to do things they want,” Swann says. Some of these employees were expecting to come into as much as $50 million from their Anthropic shares, and wondered if they could use that as leverage to buy a house, according to Swann. “This kept coming up over and over again.”
Swann’s listing is unconventional, but not singular. In April, an investment banker named Storm Duncan offered to exchange his Mill Valley home and an adjacent parcel of land for Anthropic shares. And in May, Vijay Chattha, who owns an agency that does PR for tech companies, listed his Healdsburg home for $2.5 million, or $2 million in Anthropic stock. “I want to sell my house, and I want to invest in Anthropic,” Chattha says. “Why not combine the two?
Chattha’s house—a three bed, three bath with a pool and a bocce court in a part of Sonoma County that abuts some of the region’s most famous wineries—also comes with coveted short-term rental status, allowing the owner to list it on platforms like Airbnb. Only a handful of properties in Healdsburg come with that status, and only about a dozen come up for sale in a given year.
Chattha is offering a $500,000 discount to Anthropic employees because he believes the value of Anthropic shares will grow faster than any other investment, and his vacation home in wine country is the best bargaining chip he has to try to access them. “If you look at Anthropic’s growth last year, it’s insane,” he says, noting the $380 billion valuation the company claimed in February. “Now they’re raising at $965 billion. That’s three X in like three months.” He added that he was open to exchanging the house for shares in Anthropic, but not OpenAI, because he prefers using Anthropic’s products.
The real estate listings come at a time when investors are salivating at the record-high valuations of Anthropic and OpenAI, and even those considered wealthy by Bay Area standards are feeling FOMO about the affluence that could come from these companies’ debuts on the stock market. (On Monday, Anthropic submitted paperwork for its initial public offering; OpenAI is also reportedly preparing to file in the coming months.) Despite the unprecedented valuations of these companies, many people believe their stock prices will only go up, and that anyone who gets a piece now could win the jackpot.
People are clamoring to buy equity in OpenAI and Anthropic on the secondary market, leading to a frenzy of transactions that may or may not be legitimate. As a result, Anthropic updated its policy around “unauthorized Anthropic stock sales” this spring, which notes that “if someone purports to sell Anthropic shares without proper board approval, that transaction is invalid.” A spokesperson for Anthropic pointed back to this policy when asked about the possibility of exchanging company shares for real estate.
Welcome to our running tally of Election Night results. Or, as this is California, well beyond tonight, as results continue to trickle in.
The first batch of results should arrive at 8:45 p.m., with three more to follow tonight. The Department of Elections has the breakdown.
San Francisco is voting in three special elections, for District 2 and District 4 supervisors and for a Board of Education member. Both supervisor races are referendums on housing, especially District 2, while the main backdrop of the D4 race is all the hot feelings around the fate of the Sunset Dunes Park (nee Great Highway).
The winners of all three special races will have to compete again in November for their seats.
Keeping it local, SF is also voting on four ballot measures. Prop A is for a bond to pay for an emergency water-system. B is for term limits. C and D are dueling measures related to the “overpaid CEO” tax. (Links go to our reporting on each race or issue; or click here for our Election 2026 page.)
Vote local, think national: Which two candidates will advance to the November election to replace Nancy Pelosi?
Statewide races include the primaries for governor, education superintendent, lieutenant governor, and much more.
Polls close soon. If you haven’t voted yet, find your polling station here.
Tuesday, June 2, 5:40 p.m.
Two and a half hours until our polls close. Before we go down the local rabbit hole, a reminder that other states have primary action today: New Jersey, Iowa, New Mexico, South Dakota, and Montana.
Why does it take so long to get results in California? CalMatters has you covered on that story. We shouldn’t expect a call tonight on the governor’s race.
The last big election was November 5, 2024. (Remember?) Ten days later, there were still races to call in San Francisco.
So if you’re waiting for the pundits (and maybe even us) to tell you What It All Means, you might have to wait a while.
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