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Colorado moves to cap price of arthritis drug Enbrel in first-in-the-nation action by state affordability board

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Colorado moves to cap price of arthritis drug Enbrel in first-in-the-nation action by state affordability board


A Colorado board voted to move forward with setting a price ceiling on the arthritis drug Enbrel on Friday, a first-in-the-nation step that raises questions about whether a single state can reduce drug costs without unintended consequences.

Colorado would be the first to set a price ceiling on any drug, meaning the state can’t look to others for clues to how drugmakers and other players will respond. Opponents of the process say patients could lose access to drugs under a price ceiling, while supporters say drugmakers can’t easily cut states out of their distribution chains and still make money.

The vote by the Prescription Drug Affordability Board kicks off a six-month process to determine what price would be appropriate for Enbrel. The board also has the option to ultimately vote against a price ceiling at the end of the process.

The move by the state board is different than the Colorado legislature’s limits on how much customers pay out-of-pocket for insulin or EpiPens, as an Enbrel price ceiling would also apply to how much pharmacies pay to stock the drug.

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The board previously had determined the drug cost about $46,000 for one patient to take it for one year in 2022, with patients responsible for an average of $2,295 in Colorado if they have commercial insurance or Medicare Advantage. Some patients pay less because they qualify for assistance programs to cover their out-of-pocket costs.

The vote came one day after a state Senate committee voted to advance a bill that would remove all medications that have an “orphan drug” designation from the board’s list to consider in future years. The orphan status means a drug is approved for a rare condition, meaning it may not be profitable for drugmakers to develop such treatments.

The Colorado Consumer Health Initiative estimated that about 400 of the 600 drugs that the board identified as possibilities for review have orphan drug status for at least one condition.

Enbrel, which is approved for six conditions, has an orphan drug designation for one of them, polyarticular juvenile idiopathic arthritis.

Friday’s meeting capped a months-long process of reviewing data about how much Enbrel costs, and how much patients typically pay.

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Drugmaker Amgen and some patient groups criticized the board’s reliance on a survey that garnered responses from only 38 patients in Colorado to determine that the drug isn’t broadly affordable. Eight of those respondents said they went into debt because of their drug costs, 20 said they had to cut back on other expenses and nine said they sometimes stretched their doses to save money.

The board previously voted that the cystic fibrosis drug Trikafta and the HIV antiviral Genvoya both are affordable to patients because of assistance programs from drug manufacturers or the federal government. Neither drug will be subject to a price ceiling.

Cosentyx and Stelara, which both treat conditions where the body attacks its own tissues, will undergo affordability reviews later this year. The board’s charge is to determine if drugs are affordable to patients, not to the system as a whole.

Earlier in the review process, some trade groups had raised concerns about implementing a maximum price.

The Colorado Hospital Association said it worried that its members could be reimbursed less than the cost of drugs they buy if the board set upper payment limits. In a comment sent last year, the association said some of its members are part of multi-state purchasing groups, so they wouldn’t necessarily be able to buy drugs below the price ceiling, but insurance would still reimburse them at the rate the state set.

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The Colorado Pharmacists Society also sent a comment with concerns that its members wouldn’t be able to recoup the costs of stocking drugs that require more complicated handling, while the Colorado Association of Health Plans said insurers might not be able to change their formularies to bring patients’ out-of-pocket costs down to whatever level the board sets.

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Colorado county and city team up to address local food accessibility

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Colorado county and city team up to address local food accessibility


To improve food access and build a healthier community, Boulder County, Colo. Public Health’s Healthy Eating, Active Living (HEAL) team collaborated with the city of Boulder on its comprehensive plan. The HEAL team analyzed best practices in nutritious food access and sustainable agriculture in comparable communities across the nation to help inform its recommendations for city planning, according to Amelia Hulbert, Boulder County Public Health’s Healthy Eating, Active Living (HEAL) lead.

“A comprehensive plan is visionary, it’s long range,” Hulbert said. “It should not just be a document that fits on the shelf and doesn’t get used, so when you have the opportunity to either create something new or update it, how do you make sure it [outlines] goals and policies that are going to support the work that you know needs to happen?

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Boulder County’s “Improving Food Access and Health for Boulder Residents Through Municipal Comprehensive Planning” initiative was the 2025 NACo Achievement Award “Best in Category” winner in Planning. 

“We wanted a place to specifically call out public health priorities, so when it came time to talk about allocating funding or anything like that, we can point to it and say, ‘As a county, we said that food access is important. We said that air quality monitoring is important.’”

When starting the process of creating the city’s comprehensive plan, City of Boulder staff reached out to the state health department looking for subject matter expertise on food access, which is how the HEAL team got involved, Hulbert said. 

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“I think there’s this through line of ‘planners are planners, and they’re usually not subject matter experts,’” Hulbert said. “And so, when they seek out subject matter expertise, how can we make sure those connections can easily be made to people in their own community who are going to not only know the content, but know the issues? I think it’s a cool process, and others could totally do the same thing.”

The HEAL team analyzed comprehensive plans from a dozen municipalities like Boulder, including Ann Arbor, Mich.; Asheville, N.C.; Burlington, Vt. and Provo, Utah. Factors considered when choosing the municipalities included population size, economic and demographic makeup and communities with a mix of urban, suburban and unincorporated rural land, according to Hulbert. 

Olivia Ott, a Centers for Disease Control and Prevention (CDC) Public Health Associate working with the HEAL team, identified 34 model policies from the plans and categorized them into five themes to compare against the City of Boulder’s existing plan: healthy food access, sustainability, built environment, equity/culture and local agriculture. 

“We’re usually looking to a couple key cities across the nation that we would consider cutting edge and innovative,” Hulbert said. “So, we just applied that methodology to something very specific, of digging into, ‘How are their plans structured? What are they saying?’ And then thinking about, ‘Does it make sense for our community?’ And then [assessing] ‘What are other things that are really specific to our community?’”

Factoring in the identified best practices, Ott scored the city’s plan into three categories: “Present” in Boulder’s current plan, “Somewhat Present” and “Absent.” 

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“That kind of grading system actually worked really well, and it really resonated with the planning team,” Hulbert said. “You could tell that they were like, ‘Oh my gosh, we’re doing really well here.’ And then, it was really specific, of ‘Hey, other people are talking about this one thing, and you all aren’t.’ I think it was just put in a way that they could really absorb.”

The HEAL team’s research and recommendations were presented to the Boulder and Broomfield County’s Food Security Network (BBFSN), a community group made up of people with lived experience of food insecurity and organizations that serve food insecure individuals, that were providing input on the city’s comprehensive plan. The HEAL team’s findings helped inform the BBFSN’s recommendations to the planning department. 

While the HEAL team had the expertise and staffing to do the research, it was “critically important” to then integrate community engagement with the BBFSN into the work, Hulbert noted. Final recommendations for the city plan from the BBFSN address food access through six different categories: transportation, land use, housing, climate, economic development and food systems. 

“We did what was within our wheelhouse, and then we knew that there was another group who has a totally different wheelhouse, so it was how could we then pass off what we’ve done and have them take it a step further?” Hulbert said. “Because I think what they brought is more of that lived experience community storytelling. Olivia can say, ‘It’s important to emphasize culturally relevant foods.’ And then there’s likely a community member that can actually give real voice to that and why that matters.”



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Families, care providers navigate cuts to Colorado’s Community Connector program | Rocky Mountain PBS

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Families, care providers navigate cuts to Colorado’s Community Connector program | Rocky Mountain PBS


“Typically, between me and my husband, there are no breaks. We have to constantly ask each other to change him and feed him and shower him. I always worry about the future if Elli has to leave and not get help anymore,” said Dina Katan, Batikha’s mother. “The free time is good for my mental health. For me, when Elli comes here and helps, I have time to do things that usually I am not able to do.”

Other parents are concerned that the reduction in hours will make it harder to find care providers. Becky Houle of Greeley is the mother of Hadley, a 13-year-old diagnosed with Angelman syndrome, a rare neurogenetic disorder that causes significant developmental delays and little to no speech.

Hadley used to qualify for 10 Community Connector hours a week and is now down to five, Houle said. With those hours, she previously played unified basketball, went to the park and interacted with others and participated in running errands with her caretaker.

“I worry that the person that provides some of that caregiving role for her won’t be able to commit with such few hours,” Houle said. “I like Hadley to have interactions without us being there, so she can feel like a teenager.”

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Tom Dermody, chief budget and policy analyst for Colorado’s JBC, said spending on Community Connector services has risen substantially over the past six fiscal years.

Dermody said that as the program, which started in 2014, has become more popular, costs have ballooned. He said participation in the Community Connector service has increased by 510% since fiscal year 2018-2019, and that annual spending has risen from about $5 million in fiscal year 2018–2019 to more than $66 million in fiscal year 2025–2026.

To cut costs, the JBC not only capped annual hours for the service, but also revised the rules to narrow what qualifies as Community Connector hours. Jane said this makes it harder to consistently reach the five-hour weekly allotment.

“When these changes were made, I did our usual Community Connect on Sunday. After I worked my shift, I noticed that I couldn’t clock in or out because my shift was removed from the app,” Jane said. 

After sending an email to her employer, her agency told her that what she did — taking her Batikha to a gas station and showing him how to ask an associate how to find a product — does not qualify under the new Community Connector rules.

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Under the updated rules, Community Connector hours must be tied to activities in the community that align with a person’s care plan and build skills or participation, such as volunteering, attending enrichment classes or going to the library alongside peers without disabilities.

The state has excluded simple supervision, passive outings and activities typically considered a parent’s responsibility from qualifying for Community Connector hours. Providers must now clearly document how each hour supports a specific goal.

“It’s unfair that they cut those hours for these kids and they are very strict about how we use those hours,” Katan said. “The new requirements are very specific and not inclusive of high needs kids like Taym.”

Batikha requires full support whenever he goes out, Jane said, and the stricter requirements make it harder to plan weekly community trips. 

“He needs hygiene changes. He needs to be fed every two hours. And he can’t be fed anywhere. I want to give him privacy for his feeding,” Jane said. 

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She now plans to split her five Community Connector hours over the course of a week instead of providing them all on Sundays, as she previously did.

“I care about him and I love my clients so much, so I’m definitely going to stay,” Jane said. “His parents need the time to be able to watch a movie and not worry about if their son is okay.”



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Final minute, full 2OT from Northwestern-Colorado lacrosse quarterfinal marathon

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Final minute, full 2OT from Northwestern-Colorado lacrosse quarterfinal marathon


Women’s Lacrosse

May 14, 2026

Final minute, full 2OT from Northwestern-Colorado lacrosse quarterfinal marathon

May 14, 2026

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Watch the full regulation finish and both OT periods from Northwestern and Colorado’s battle in the quarterfinals of the 2026 NCAA women’s lacrosse tournament.



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