Science
Raft by Raft, a Rainforest Loses Its Trees

Forests just like the one within the Congo Basin pull enormous quantities of carbon dioxide out of the air, making them important to gradual world warming. The expanded scale of unlawful logging imperils their function in defending humanity’s future.
The forest of the huge Congo Basin, second in dimension solely to the Amazon, is turning into more and more important as a protection towards local weather change because the Amazon is felled. Nonetheless, the Democratic Republic of Congo for a number of years in a row has been shedding extra old-growth rainforest, analysis reveals, than any nation apart from Brazil.
On this lawless commerce, the river is the artery to the world. In some locations, the place once-towering timber are ready for the journey, the water itself is stained caramel from the bleeding sap of felled timber.
Day by day alongside the forested Congo River banks, rafts held along with little greater than roping and optimism set out on the arduous voyage.
Our journey started not removed from the group of Loaka.
College kids gathered to sing the nationwide anthem close to their riverside faculty in Loaka.
Loaka is nestled alongside a tributary flowing into the Congo River. Dozens of wood homes are perched on stilts. Canoes dug from tree trunks line the shore. Branches used for cooking fires smolder in piles close by.
And on the water not too long ago, a flotilla was taking form.
Males have been peeling switches of vines to tie collectively a raft of dozens of logs reduce from the forest of their yard. Their vacation spot: the sprawling riverside lumber ports of the capital metropolis, Kinshasa, tons of of miles downriver.
It’s a venture involving nearly everybody in Loaka, a rising group that merely can’t make sufficient cash from fishing to broaden its cramped faculty, not to mention purchase backpacks and different provides.
Not one of the males have been longing for the journey, although. The final time they tried it, the journey was a disaster.
“We had so many issues,” stated Bosenga Kongamondo, the city’s high official.
Bosenga Kongamondo
Again then, they’d set out with 120 logs, however catastrophe struck nearly instantly.
The raft hit a sandbar, ripping free dozens of logs, which floated away. Then, the lads received stranded on one other sandbar for days. Whereas they have been caught, a violent rainstorm swept away much more logs.
Weeks later, after they lastly reached Kinshasa, the lads had solely 37 left to promote. But the village right now feels it has no alternative however to strive as soon as extra, even with out correct slicing permits.
Alphonse Molosa wandered into the thicket not too long ago and clambered atop a conquest: an enormous African coralwood tree mendacity on the forest flooring, its brilliant orange insides bared.
Felling such a tree doesn’t give Mr. Molosa any sense of accomplishment, he stated. The truth is, he counts himself a lover of timber. He appears ahead to the blooming of afromosia timber, also called African teak, a uncommon species with reds so vibrant he can spot them from his boat in the course of the river.
“Ah, it’s lovely,” Mr. Molosa stated. “I heard on the radio that timber assist to offer us oxygen that we breathe and for us to outlive. However right here there isn’t a different option to survive with out slicing timber.”
In a couple of weeks, after they’ve collected sufficient logs, he and his neighbors deliberate to push them into the river and as soon as once more hop aboard.
Just a few miles downriver, we stopped at a logging seashore the place a floating market catered to employees on an enormous industrial raft that dwarfed those assembled by Mr. Molosa and his neighbors.
An industrial logging seashore.
Right here, some 250 large logs with ragged, floppy bark have been being strung with metal cables and readied for the river at a small seashore utilized by a global logging firm.
Industrial logging in Congo is laden with corruption, in response to a current authorities audit. Profitable licenses have been handed out as political favors. The truth is, the previous six ministers of surroundings, the very individuals accountable for defending the forest, are accused of illegally promoting off enormous swaths of it, in response to the audit, which reviewed Congo’s industrial logging as of 2020.
Practically all of the logging, Congolese officers say, right now is in some trend unlawful.
“Fraud upon fraud,” stated Ève Bazaiba Masudi, Congo’s surroundings minister, who was appointed in April 2021. Just a few months into the job, Ms. Bazaiba opened an investigation after saying her personal signature had been cast on logging licenses.
Ève Bazaiba Masudi
Monitoring timber in Congo generally is a circuitous route, stuffed with shady characters and massive cash. The large timber lining the seashore downriver from Loaka belonged to a Chinese language firm, Castor, which employees and managers on the seashore stated was tied to “Tango Fort,” the nickname of a Congolese common, Gabriel Amisi Kumba.
Over time, Basic Amisi has been accused of involvement in unlawful mining and arms buying and selling and was sanctioned for human rights abuses by the American and European authorities. His logging concessions, which he bought to Chinese language buyers in 2018, have been issued illegally, the federal government audit stated. In a textual content message, Basic Amisi denied any connection to the corporate.
Neighboring international locations resembling Gabon have put tight controls on logging lately. Ms. Bazaiba, who can also be deputy prime minister, is below nice strain to do the identical and has begun an effort to rein in corruption that features suspending logging licenses that got out illegally. She and Congo’s president in 2021 secured pledges of $500 million from worldwide donors to battle deforestation.
Throughout a March go to to her workplace in Kinshasa, timber trade lobbyists hovered outdoors her door. Main them was Albert Yuma Mulimbi, the top of the nation’s enterprise foyer. Final yr he was ousted as chairman of the state mining enterprise, Gécamines, amid corruption allegations. Mr. Yuma didn’t return a request for remark.
“I’ve so many pressures,” Ms. Bazaiba stated.
However the logging commerce performs out in locations far faraway from world conferences and stuffy authorities places of work within the capital metropolis.
Out on the river, the place the silvery water is indiscernible from the sky, the perilous and haphazard nature of the commerce turns into clear.
A tugboat was bobbing within the shallow water off Castor’s seashore, getting ready to energy a flotilla of logs downriver.
The large rafts are too unwieldy for the tug’s engine to deal with, the crew stated, making the work harmful. They earn about $6 a day. If logs are misplaced, pay is docked, and “if we die, it’s not the duty of the corporate,” stated Mbranda Makombo, the tugboat’s mechanic, a veteran of 5 journeys guiding logs to Kinshasa.
Just some weeks earlier than, Mr. Makombo stated he did, actually, almost die. He and his spouse and baby have been sleeping beneath deck when a bigger boat rammed them. His household was saved solely by males from the opposite boat who reduce via the twisted metallic.
Mbranda Makombo, proper, in entrance of the tugboat.
As Mr. Makombo spoke, Jean-Louis Boonga Ifaso, an agricultural engineer for Castor, the logging firm, sidled up in a dugout canoe, listening in.
Castor does the correct issues, he stated. It operates a manufacturing facility in Kinshasa the place logs are remodeled into planks utilized in building, and it exports wooden worldwide. (A rustic supervisor for Castor didn’t return requests for remark.)
However Mr. Boonga, who additionally works as an activist, stated he knew effectively the issues of the commerce. He sat in his shallow canoe, gently rocking on the river, and vented: In regards to the energy of cash. About authorities inaction. About how Congo is a sufferer of air pollution created by the industrialized nations that now need Congo’s timber — the identical timber that may assist soak up carbon dioxide from the soiled world they made. In regards to the guidelines that govern the forest that nobody obeys.
Worldwide corporations observe most legal guidelines, he stated, however not all of them. “On the subject of human assets and their Congolese workers, they don’t have any respect,” he stated.
On the water, disrespect takes many kinds. Brutal rainstorms. Hidden sandbars. And calls for for bribes.
“Push! Push!”
Throughout the water we heard a captain calling out to a dozen males in waist-deep water, toes wrinkled from a full day spent attempting to interrupt free their 46-log vessel, which was caught on a sandbar.
On the opposite facet of the raft, Clémentine Ekoba, the cook dinner and cleaner for the crew, tended a small fireplace. “Each journey this occurs,” she sighed.
“The most important drawback is getting caught within the sand. The second greatest drawback is the navy.” Officers alongside the river, underpaid themselves, are infamous for demanding bribes.
Already on this journey, Ms. Ekoba stated, in simply two weeks’ time the crew had paid bribes of flour, beans and aspirin. “They arrive they usually take every thing — even this,” she stated, pointing to an oar.
Ms. Ekoba maintained a secret hiding place beneath the nylon bag stretched between sticks that serves as her tent the place she had squirreled away $50 value of Congolese francs. Thus far, officers hadn’t discovered it.
“However we nonetheless have a protracted journey,” she stated.
“We import toothpicks”
Not all logs journey by raft. Some worldwide corporations function immense metal barges heaped excessive with wooden destined for abroad.
A jumble of giant logs rested atop one of many barges at a riverside seashore operated by Sodefor, a subsidiary of a Liechtenstein-based firm.
Close by, a person squatted beside a freshly reduce bilinga tree. He pulled out a measuring tape and stretched it throughout the sawed trunk, as gold as ripened wheat. It was greater than six toes throughout.
Industrial barges like Sodefor’s aren’t proof against the lack of cargo from storms that blow throughout the river, although the massive corporations have refined methods to recapture the logs that get away. Sodefor has even deployed sonar and divers to retrieve logs that spilled into the river throughout a storm.
In an interview, Sodefor’s common supervisor, José Trindade, stated the corporate’s operations have been “utterly authorized.”
“The federal government has to distinguish between the businesses that respect the foundations and people who don’t,” he stated.
Sodefor additionally transforms its timber into plywood earlier than export, Mr. Trindade stated, a follow that Ms. Bazaiba, the surroundings minister, would really like all worldwide corporations to undertake. Lately, she banned exports of uncut timber within the hope that the businesses would rent extra Congolese to form the wooden, relatively than filling these jobs overseas.
“Are you able to think about, we’ve been exporting our timber, however we import toothpicks from China?” she stated. “It is mindless.”
We pulled onto the shore of Bolobo, a bustling hamlet at a bend within the river that was affected by tons of of planks scattered throughout the sand, remnants of a catastrophe nonetheless enjoying out.
Three months earlier, a crew of 20 males had set off with a raft of 6,000 good planks, precut in hopes of getting the next value downriver in Kinshasa. They’d pulled into Bolobo to restock on meals when a storm blew in. Very quickly, 1,000 planks had slipped into the river and have been swept away, together with a shelter they’d constructed atop their raft.
For 2 weeks, employees had been slowly reassembling the craft. Males stood in chest-high water, heaving towards a big department they hoped would pry free part of the raft, now half-buried in sand.
“The wind is just not your brother,” stated André Ezabela, one of many raft’s rowers.
André Ezabela aboard his broken raft.
Etienne Yaekela, the proprietor of the planks, had arrived from Kinshasa simply days earlier than to survey the harm. “Thank God nobody died,” he informed the lads as soon as he noticed the extent of the harm.
Over what was left of the raft, the wind whipped a pink and blue Congolese flag. Our motorboat broke down right here, too, and so we waited two days for our personal repairs, watching boys on the seashore utilizing a damaged plank as a teeter-totter.
As we pulled out of Bolobo, we noticed water lapping throughout one other damaged raft, this one deserted. Just a few items of wooden remained barely tethered, threatening to interrupt free right into a river prepared to say them. A monument to defeat for individuals who would go.
About 60 miles downstream from Bolobo, the river narrows considerably and deepens. Sandbars disappear. However there are different dangers.
Crocodiles roam the banks. Navy patrols enhance. Malaria is ever-present.
Nehemie Mokonjo and his raft of 137 logs had made it this far, shedding solely two.
However the mosquito netting that lashed them collectively was beginning to fray. If the wind picked up, Mr. Mokonjo’s cargo can be in peril. “There may be nothing else that scares us extra,” he stated.
But he had a extra pressing drawback: His little sister was sick.
Jeanne Nzambe, 6, was aboard together with her mom, the raft’s cook dinner. Carrying a poofy pink satin gown with white polka dots and sparkly belt, she lay drooped throughout the logs below a shelter of mosquito netting. She had been feverish for 3 days.
Jeanne Nzambe on her raft.
The closest hospital was in Kinshasa, 15 hours away by raft. However our vessel, a motorboat, may get there in three.
As a lot because the river leaves individuals in want, it additionally creates kinship. Folks assist each other.
Mr. Mokonjo hopped aboard, cradling his sister, and the boat raced downriver to discover a clinic.
College desks, superyachts
A criminal within the river, and Kinshasa’s sprawling port of Kinkole comes into view. It’s the final cease for women and men who’ve spent weeks or months on the river. However not for the timber they’ve shepherded right here.
Rafts line up by the handfuls, tangled within the lily pads of a grimy marsh, ready within the shallows in what is basically a watery parking zone.
Alongside the shore, a cacophony of rumbling forklifts hauls tree trunks throughout knee-deep ruts in dried mud. Screaming chainsaws tear via wooden, spitting splinters into the air. Barefoot laborers muscle logs up the riverbank the place males form them into plywood and planks. Girls acquire scraps of bark to promote to be used in cooking fires.
All have discovered a option to revenue from Congo’s timber. For them, the forest is the one choice for survival.
Disappointment awaits among the rafts’ captains who arrive to seek out their logs are too skinny and immature for buy. All that approach for nothing.
Logs which might be bought right here will find yourself in Kinshasa’s lecture rooms, the place college students clamor for brand new desks. Others shall be taken overseas to be used as “unique wooden” prospers in billionaires’ yachts that line glittering ports. Many will find yourself in residing rooms everywhere in the world, shaped into trendy tables and cupboards that started as towering timber in Congo earlier than being crafted within the furnishings factories of China or Vietnam.
And the urge for food for these timber reveals no indicators of slowing.
Subsequent door to Kinshasa’s logging port, large new logging barges are being cast as quick as doable, employees say two or three a month, to ship again up the river to collect, all of the extra effectively, much more treasured logs.

Science
Senators Press Marty Makary on Abortion Pills and Vaccines

At a confirmation hearing for Dr. Marty Makary on Thursday, senators focused heavily on the safety of the abortion pill, with Republican lawmakers urging him to restrict access and Democratic lawmakers demanding that he maintain its current availability.
Dr. Makary, President Trump’s nominee to lead the Food and Drug Administration, signaled that he shared Republicans’ concerns about the current policy, issued during the Biden administration, which expanded access by allowing people to obtain the pills without an in-person medical appointment.
Several Democrats pointed to volumes of studies showing that the drugs are safe. Dr. Makary told members of the Senate health committee, which held the hearing, that he would review the pill’s safety and the policy at issue.
He said he would “take a solid, hard look at the data and to meet with the professional career scientists who have reviewed the data at the F.D.A. and to build an expert coalition to review the ongoing data, which is required to be collected.”
The hearing also touched on vaccines, with several lawmakers, including the committee chairman, Senator Bill Cassidy, Republican of Louisiana, questioning why an advisory committee meeting on next year’s flu vaccine had been canceled in recent weeks and asking whether it would be held later. He and others stressed that the flu panel met annually, and some reminded Dr. Makary that Robert F. Kennedy Jr., who oversees the F.D.A. as health secretary, had pledged transparency in agency decision-making.
Senator Patty Murray, Democrat of Washington, called the cancellation “unprecedented and dangerous” after decades of annual meetings.
Dr. Makary repeatedly reminded senators that he was not responsible for scrapping the meeting. He also suggested there was a need for a broader review of the role of vaccine committees that convene experts to advise the F.D.A. He shot back at criticism, saying there is a “huge difference” between “requiring every 12-year-old girl to get an eighth Covid booster” and “rubber stamping” the vaccine chosen by a global health panel that had targeted dominant influenza strains.
He offered no details about any school or entity that requires children to have annual Covid boosters.
He also was questioned about the measles vaccine in light of the current outbreak in Texas, where one child has died and 22 people were hospitalized.
“Vaccines save lives,” Dr. Makary said. “I do believe that any child who dies of a vaccine-preventable illness is a tragedy in the modern era.”
But he did not take the bait lobbed by Senator John Hickenlooper, Democrat of Colorado, who criticized Mr. Kennedy’s endorsement of vitamin A and cod liver oil as remedies for measles. Dr. Makary responded by saying that supplements can improve conditions like malnutrition, which is associated with poor outcomes in measles outbreaks.
Lawmakers also warned about staff cuts and hiring freezes the Trump administration has ordered and how they could affect workers who inspect the safety of the food supply, and urged Dr. Makary to review the layoffs among those staff members whose salaries are backed by industry fees.
They also touched on work related to chemicals like dyes in the food supply, an area Dr. Makary agreed to study, invoking European products with fewer additives as an area for review.
Among other issues raised during the hearing, the vexing problem of illegal vape products from China with unknown ingredients was stressed by Senator Ashley Moody, Republican of Florida.
The vapes tend to have high levels of nicotine, advertise thousands of puffs and come in flavors like strawberry lemonade that are appealing to adolescents.
Ms. Moody said it was concerning that the products were banned within China.
“Whoever comes in as the head of F.D.A., this is one of your problems you have to address immediately,” said Ms. Moody, who was previously Florida’s attorney general.
Blocking the flow of the unauthorized vapes has been a priority for major tobacco companies that have followed F.D.A. rules and marketed vapes in tobacco or menthol flavors in the United States. It’s a priority public health groups also share. Dr. Makary said he would address the problem with the F.D.A.’s law enforcement division and the Justice Department.
Throughout the hearing, several senators returned to the abortion pill and the F.D.A.’s oversight of policy changes during the lengthy history of medication abortion over more than two decades.
Mifepristone — part of the standard two-drug medication regimen now used in nearly two-thirds of abortions — has become a focal point of anti-abortion efforts since the Supreme Court overturned the national right to abortion in 2022.
In a lawsuit filed against the F.D.A. and other efforts, abortion opponents have demanded that the agency either withdraw approval for mifepristone or roll back regulations to prevent abortion pills from being prescribed by telemedicine and mailed to patients.
The Biden administration waived the in-person dispensing requirement in 2021. Senator Maggie Hassan, Democrat of New Hampshire, said that she was concerned that Dr. Makary would “unilaterally overrule the data that currently exists for political purposes and for political reasons.”
Dr. Makary repeated that he had no preconceived notions and would examine the data. “I wish you were hedging a little bit less today,” Ms. Hassan shot back.
Mifepristone, which blocks progesterone, a hormone necessary for pregnancy to develop, has long been regulated by the F.D.A. under an especially strict program that applies to only a small number of drugs.
For years after its approval in 2000, mifepristone could be prescribed only by a doctor and patients were required to attend three in-person doctor visits to obtain and take the medication. In 2016 and 2021, based on updated scientific evidence, the agency made several changes, including that nurse practitioners and some other health care providers could prescribe mifepristone and that patients did not have to pick up the medication in person.
Senator Josh Hawley, Republican of Missouri, argued that the policy change to drop the requirement for in-person appointments was made in anticipation of the Supreme Court decision that overturned Roe v. Wade.
Reproductive health experts and organizations, however, had long argued that the requirement was unnecessary for safety and noted that the F.D.A. had already allowed women to take the medication at home without being supervised by a doctor. The Covid pandemic increased the importance of allowing people to obtain the pill by mail because many patients were not able to visit clinics or abortion providers.
Pressed further by Mr. Hawley, Dr. Makary signaled that he shared the concerns of some abortion opponents and said that he knew doctors who preferred to give the drug in their office: “I think their concern there is that if this drug is in the wrong hands, it could be used for coercion,” he said.
Mr. Cassidy closed the hearing with a direct request: to change the policy back to what it was in the first Trump administration and require an in-person visit.
The F.D.A. has a staff of about 18,000 and a budget of about $7.2 billion. The agency has vast regulatory authority over products that include prescription and over-the-counter drugs, medical devices, tobacco and about 80 percent of the food supply. It also regulates artificial intelligence software used to scan medical images, an area where the agency has been dismissed as too permissive in its approvals.
If confirmed, Dr. Makary would first encounter tensions among staff members, who have been whipsawed by the Trump administration’s aggressive measures to reshape the federal bureaucracy in recent weeks.
The staff endured an initial round of about 700 layoffs, decimating some product-review teams that ensure the safety of medical devices such as surgical robots and systems that deliver insulin to people with diabetes. Those firings were followed by some job reinstatements, though many of those in the tobacco division who review the safety of new products and lost their positions, were not called back.
Asked about the layoffs, Dr. Makary said he supported efforts to increase efficiency and that he would review recent personnel decisions.
Pam Belluck contributed reporting.
Science
Contributor: How federally funded research saved my son's sight — and his life — from a rare cancer

If you want to make this country great, imagine the strength of a nation whose children have been fought for and know they have been fought for.
Last month, my son reached two years in remission from a rare, malignant cancer that almost took his eye and his life. He is alive, well and enjoying 20/20 vision because of a groundbreaking treatment that was pioneered by National Institutes of Health researchers, among others, and funded by the government grants the Trump administration is blocking and threatening to cut. If the president continues on this course, children diagnosed during and after this administration will needlessly fare worse than those who came before.
My son Jack was diagnosed in 2022 with retinoblastoma, a malignant childhood cancer of the central nervous system that originates and grows in the eye. If left untreated, it typically migrates through the optic nerve to the brain, eventually metastasizing and taking the life of the child.
Because the cancer usually attacks children under the age of 3, its victims are often unable to report the symptoms of a mass blocking their vision until it’s too late to treat with procedures that can salvage the eye. That’s when enucleation — removal of the eye — is required.
This is why pediatricians developed standard screening for retinoblastoma starting at birth. This now-routine preventative care has enabled medical professionals to find and treat most cases without a loss of vision or life. Because of these developments and others, retinoblastoma has a very high survival rate in 21st century America.
Jack’s was one of very few documented diagnoses with retinoblastoma after the age of 8. His oncologist suggested his tumor had been hiding in a dark corner of his retina for years, out of his vision and that of physicians; other doctors thought it had “self-arrested” or presented late and grew rapidly. We discovered it only because it burst from the impact of a belly flop at the neighborhood pool, spewing cancer cells in a constellation of poison floating inside his still-intact eyeball, visible to Jack as spots that didn’t go away.
It took weeks for doctors to nail down the diagnosis. When we walked out of that appointment on a day that was so windy I had to hold onto my dress, I put Jack in the car, turned the radio on for him, closed the passenger door and walked about 30 feet away to scream in the parking lot. “My baby!” I wailed through the phone to my mother.
It was an advanced-stage tumor, complicated by the release of cancer cells inside his eye. They could now attach and grow anywhere within — including the optic nerve, with its direct connection to his brain — if we didn’t act quickly. We might have just days before it was too late.
“We could remove his eye,” our oncologist offered at first, “and even that might not be enough.”
Medical researchers from universities and the National Institutes of Health rally near the Health and Human Services Department’s headquarters in Washington.
(John McDonnell / Associated Press)
Then he explained that we could try to save his eye with a highly advanced procedure called intra-arterial chemotherapy, or IAC. It involves threading a catheter through the thigh’s femoral artery, behind the heart through the carotid artery and into the skull. An interventional radiologist, guided by MRI, releases the chemotherapy agent directly into the artery feeding the retina. This allows doctors to deliver more aggressive and targeted medicine to the diseased cells and limit damage to the healthy ones.
Our oncologist explained that IAC is still a very new technology but one with extraordinary promise whose benefits far outweighed the risks for Jack.
My son underwent six rounds of intra-arterial chemotherapy and seven rounds of intravitreal chemotherapy, in which the medicine is injected directly into the eye. He went under anesthesia 13 times in six months, required monthly breathing treatments that made him spit gray foam, and lost most of the brow and all the lashes around the affected eye. His list of drugs included ketamine, propofol, hydromorphone, melphalan, fentanyl, topotecan, pentamidine, albuterol, prednisolone and aldosterone. At one point, he needed epinephrine because he nearly went into cardiac arrest. Toward the end of his treatment, he received cryotherapy to kill the base of the tumor and woke up from surgery in so much pain that he gritted his teeth to the point of cracking one.
At every turn, my family was reminded of our privilege — to live in a country that was scientifically advanced enough to have developed such miracle treatments, to live in a city (Denver) with such good hospitals, to have good health insurance through my husband’s employer. If we had lived without such access to care, in a country lacking our resources or just 15 years earlier, our story would have ended differently. Instead, nine months after his diagnosis, thanks to the advanced research our country has supported socially, academically and financially, my son’s cancer was in remission.
My family recently attended a gathering with other retinoblastoma survivors, from toddlers to adults who had conquered the disease decades earlier. As each survivor entered the conference, it became evident that this was once primarily a disease of blindness: The price of survival was generally a loss of sight and eyes. Some of the older survivors had facial abnormalities from radiation or enucleation. Some had canes or family members to guide them. When we told the group that Jack’s body, vision and dream of becoming a pilot were all still intact, many gasped in awe that the science had advanced so far.
But now the Trump administration’s lack of empathy threatens other children and families facing such horrific diagnoses. Continuing research on intra-arterial chemotherapy and other treatments at the University of Colorado’s Anschutz Medical Campus, where Jack was treated, is paid for by programs in the administration’s crosshairs. “These cuts to NIH funding jeopardize the foundation of our life-saving research,” a university spokeswoman told Chalkbeat Colorado. “Reduced research capacity means fewer scientific discoveries, job losses and delayed advancements on therapies and cures that could improve — and save — lives.”
I wonder whether our hospital will be able to continue offering groundbreaking treatments should Jack face a recurrence. And will the newly diagnosed have the same access to care that we did? What greatness can be celebrated when a mother fears she will lose her child’s access to lifesaving treatment?
My son’s recovery was a direct result of the greatness of our country and its past leaders, who had the foresight to pursue progress and excellence in science and refuse to accept losing children without a fight. Because of it, I believe my son will someday fly planes. And I can only hope the next child who faces a dire disease will get the same chance he did.
Dayna Copeland is a writer and teacher in Colorado.
Science
Florida Seeks Drug Prescription Data With Names of Patients and Doctors

Florida’s insurance regulator has demanded an unusually intrusive trove of data on millions of prescription drugs filled in the state last year, including the names of patients taking the medications, their dates of birth and doctors they’ve seen.
The Florida Office of Insurance Regulation in January sought this information from pharmacy benefit managers like UnitedHealth’s Optum Rx and CVS Health’s Caremark, companies that oversee prescription drugs for employers and government programs.
It remained unclear why the state was ordering the submission of so much data. In a letter to one benefit manager reviewed by The New York Times, the regulator said the state required the data to review whether the benefit managers, known as P.B.M.s, were compliant with a 2023 state law aimed at lowering drug prices and reining in the managers.
But the demand is sparking concerns about government overreach and patient privacy.
“You don’t need such granular patient information for purposes of oversight,” said Sharona Hoffman, a health law and privacy expert at Case Western Reserve University. She added: “You have to worry: Is the government actually trying to get information about reproductive care or transgender care or mental health care?”
Florida’s six-week abortion ban, enacted by Gov. Ron DeSantis, a Republican, and the state’s Republican-dominated legislature, requires that doctors who prescribe abortion pills dispense them in person, not through the mail. Another Florida law banned transgender transition care for minors and made it harder for adults to seek such care. Last year, a judge struck down key parts of that law, though it is still being enforced while the legal fight makes its way through the courts.
The data requested by the state could, in theory, be used to determine whether physicians are complying with those laws.
It was also unclear whether any of the benefit managers had complied and turned over the information to the state.
Some benefit managers and the employers that hire them to handle prescription drug benefits for their workers have also criticized the state’s demand.
A group of large employers, the American Benefits Council, is asking the Florida regulator to withdraw its order to turn over the information. In a letter to the state, the council’s lawyers wrote that the “demand impermissibly violates the health privacy and security of millions of Floridians,” and that the state had not clearly outlined its authority or reasons for the action.
“We have a duty to employees and their data,” Katy Johnson, the president of the council, said in an interview.
Shiloh Elliott, a spokeswoman for Florida’s insurance regulator, said that objections to the state’s data request “are clearly from those who do not want to be regulated or have any oversight in their industry.” She said the office “will continue to request data in the best interest to protect consumers.”
Rosa Novo, the administrative benefits director for Miami-Dade County Public Schools, which provides health coverage to about 45,000 people, said in an interview that while she appreciated the state’s efforts to address drug prices, it was unclear why it would need this level of detailed information about patients and their medications.
“My doctor is the only one who should know that,” Ms. Novo said.
Federal privacy law allows benefit managers to hand over limited data about individual patients in certain circumstances, such as when regulators are conducting an audit. But, according to experts, Florida’s data request could violate the law because it is so broad and may go beyond what the regulator needs to conduct its review.
Experts said that another concern with Florida’s request is that when sensitive patient data is in multiple hands, it raises the risk of a breach in which the information may be stolen.
Ms. Elliott, the spokeswoman for the regulator, said those concerns “should be addressed to the actual health care insurance companies that have had countless data breaches exposing millions of Americans’ sensitive information.”
Florida’s data order was first reported by Bloomberg.
Like other states, Florida already has access to some of the data it is seeking, such as detailed information about prescriptions that are paid through Medicaid. But that data is generally strictly walled off, accessible only to staff members whose jobs require it.
Benefit managers often field requests from government regulators asking for slices of data to conduct audits or investigations. Such requests typically ask benefit managers to strip out patient names, and other identifying details, or ask for a small sample of patient claims.
By comparison, Florida’s data request was “pretty expansive and unprecedented,” said Joseph Shields, the president of a group of smaller benefit managers, Transparency-Rx.
Florida sought data not only on Florida residents, but also on patients who may have filled a prescription while visiting the state. Its request included patients covered through the federal Medicare program and commercial plans through employers that are regulated under federal law rather than state law, according to the regulator’s letter to one benefit manager reviewed by The Times.
The Prescription Drug Reform Act, the Florida law the regulator used to justify the data request, imposed new reporting requirements on the benefit managers but said nothing about a mandate requiring them to turn over such detailed patient information. Benefit managers have fiercely fought efforts to scrutinize their business practices.
Patricia Mazzei contributed reporting from Florida.
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Sports1 week ago
NHL trade board 7.0: The 4 Nations break is over, and things are about to get real
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News1 week ago
Justice Dept. Takes Broad View of Trump’s Jan. 6 Pardons
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World1 week ago
Hamas says deal reached with Israel to release more than 600 Palestinians
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Science1 week ago
Killing 166 million birds hasn’t helped poultry farmers stop H5N1. Is there a better way?
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News1 week ago
Christianity’s Decline in U.S. Appears to Have Halted, Major Study Shows
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World1 week ago
Germany's Merz ‘resolute and determined,' former EU chief Barroso says
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Technology1 week ago
Microsoft makes Copilot Voice and Think Deeper free with unlimited use
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Politics1 week ago
Some Republicans Sharply Criticize Trump’s Embrace of Russia at the U.N.