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Major Vermont brands create custom teddy bear to raise money for 4-year-old with rare disease

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Major Vermont brands create custom teddy bear to raise money for 4-year-old with rare disease


SOUTH HERO, VT – Several well-known Vermont brands are rallying around a four-year-old boy with a rare and devastating neurological disease.

Companies such as Orvis, Johnson Woolen Mill, Commando, and Simon Pearce have dressed and accessorized a four-foot teddy bear named “Henry Bear” in order to raise funds for the treatment of Henry Saladino.

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The Saladino family is hoping the bear can help raise money for Henry’s treatment.

Seeking treatment for rare neurological disease

WBZ-TV met Saladino in Boston in 2022 when his family first started seeking a treatment for his rare neurological disease called Alternating Hemiplegia of Childhood (AHC). Henry’s AHC causes weekly seizures and paralysis, which threaten to permanently damage his brain or take his life.

“One full day, every other week, life just stops, and we’re grounded with oxygen. And then, once a month, he also has a very big, very long seizure,” Henry’s mom, Mary Saladino, said.

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Since then, Henry’s family has embarked on the uphill climb to treat Henry’s illness with a therapy called an antisense oligonucleotide or ASO.

Scientists at the Yu Laboratory at Boston Children’s Hospital are producing ASO candidates, microscopic synthetic strands of DNA and/or RNA that bind to the genetic mutation that is producing the protein causing Henry’s disease.

“We are still optimizing the best ASO candidates and, at the same time, doing a screen in mice for toxicity,” Mary said.

The process is risky and costly. In all, the Saladinos must raise $3 million dollars to pay for drug development. They are just over halfway to their goal.

Brands create fundraiser for young boy

That is why Mary, a Vermont native, called Ashley Farland, a former celebrity chef turned Vermont home-furnishings designer and the founder of DandyLion. Mary asked Ashley to create a custom Henry pillow. Ashley decided to take things a step further.

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“I was like, yeah, I like this woman. We could definitely do better than a pillow,” Farland said.

Farland reached out to Vermont Teddy Bear, and the idea behind “Henry Bear” was born. More and more brands started accessorizing the bear, which has custom Commando jeans complete with “H’s” sewn into the pockets.

“I think Henry’s story resonates, and I think people are good,” Mary said.

On August 10, more than a dozen Vermont brands will join as part of Henry’s Village, a dinner and concert fundraiser to raise money for Henry’s treatment. The event will be held at Snow Farm Vineyard and Winery in South Hero, Vermont.

Henry will return the love the way he knows how.

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“He loves the Eric Carle book brown bear, so we said you’re going to have your own brown bear, and all these helpers are showing up for you, and his response was to look at the bear and give him a hand kiss,” Mary said.

For more information on Henry’s story, click here.

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Vermont high school sports scores, results, stats for Saturday, Jan. 10

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Vermont high school sports scores, results, stats for Saturday, Jan. 10


The 2025-2026 Vermont high school winter season has begun. See below for scores, schedules and game details (statistical leaders, game notes) from basketball, hockey, gymnastics, wrestling, Nordic/Alpine skiing and other winter sports.

TO REPORT SCORES

Coaches or team representatives are asked to report results ASAP after games by emailing sports@burlingtonfreepress.com. Please submit with a name/contact number.

Contact Alex Abrami at aabrami@freepressmedia.com. Follow him on X, formerly known as Twitter: @aabrami5.

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Contact Judith Altneu at JAltneu@usatodayco.com. Follow her on X, formerly known as Twitter: @Judith_Altneu.

SATURDAY’S H.S. GAMES

Girls basketball 

Games at 12:30 p.m. unless noted

Missisquoi 50, Winooski 49

M: Kelsey Paradee 14 points. Aurora King 13 points.

W: Taraji Bradley 18 points. Moo July Htoo 14 points.

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Note: King hit the game winner at the buzzer to give the Thunderbirds the win.

Enosburg at Colchester

Mount Abraham at Middlebury

Danville at Williamstown, 4 p.m. 

Boys basketball

Games at 2:30 p.m. unless noted

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Hazen 65, Vergennes 60

H: Jameson Lamarre 22 points, 7 rebounds, 5 assists. Sullivan Laflam 17 points. Ethan Gann 10 points, 6 rebounds.

V: Theo Elzinga 15 points, 12 rebounds. Cohen Howell 15 points. Ryan Wright 11 points.

Lake Region at Missisquoi, 1:00 p.m.

BFA-Fairfax at Danville

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Stowe at Richford

Oxbow at Blue Mountain

Northfield at Williamstown, 7 p.m.

Watch Vermont high school games on NFHS Network

Girls hockey

Burlington/Colchester at Chittenden Charge, 2:20 p.m.

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Brattleboro at U-32, 2:30 p.m. 

BFA-St. Albans at Essex, 3 p.m. 

Burr and Burton at Stowe, 4:15 p.m. 

Hartford at Rutland, 4:30 p.m. 

Kingdom Blades at Rice, 4:35 p.m. 

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Harwood at Woodstock, 5:15 p.m. 

Spaulding at Missisquoi, 5:30 p.m. 

Boys hockey

BFA-St. Albans at Essex, 5 p.m.

Rice at Champlain Valley, 6:50 p.m.

Mount Mansfield at Burr and Burton, 5 p.m.

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U-32 at Colchester, 4:50 p.m.

Stowe at Brattleboro, 4:45 p.m.

Middlebury at Saranac, NY

Milton at Missisquoi, 8 p.m.

Burlington at Hartford, 2 p.m.

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St. Johnsbury at Woodstock, 7:15 p.m.

MONDAY’S H.S. GAMES

Girls basketball 

Games at 7 p.m. unless noted

Spaulding at Lyndon, 6:30 p.m. 

BFA-Fairfax at Twinfield/Cabot

Milton at Enosburg

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Winooski at Danville

Boys basketball

Games at 7 p.m. unless noted

BFA-St. Albans at Burlington

Thetford at Peoples

St. Johnsbury at Champlain Valley

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Montpelier at Harwood

Essex at South Burlington

Rice at Mount Mansfield

(Subject to change)





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How UVM hockey teams fared Jan. 9-10 — Schedule, scores, results

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How UVM hockey teams fared Jan. 9-10 — Schedule, scores, results


UVM welcomes Adrian Dubois as new men’s soccer coach

Adrian Dubois answers questions from the media following his introductory press conference on Monday, Dec. 22.

Conference play is in full swing to both Vermont basketball and hockey teams. Vermont basketball and women’s basketball both have a bye on Saturday, Jan. 10, meaning only the hockey teams are in action.

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How did those Catamounts men’s and women’s hockey teams fare this weekend? For schedule, scores and stats from all games, read on below:

FRIDAY, JAN. 9

Women’s hockey

Vermont 4, Merrimack 1

V: Oona Havana 2G. Kaylee Lewis 1G. Rose-Marie Brochu 1G. Julia Mesplede 2A. Stella Retrum 1A. Lauren O’Hara 1A. Brooke George 1A. Ashley Kokavec 1A. Zoe Cliche 19 saves.

M: Emma Pfeffer 1G. Stina Sandberg 1A. Avery Anderson 1A. Lauren Lyons 39 saves.

Note: The women’s hockey team has won three straight games securing its largest win streak of the season.

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Men’s hockey

Vermont 3, Northeastern 2

V: Sebastian Tornqvist 1G, 2A. Jens Richards 1G. Massimo Lombardi 1G. Colin Kessler 1A. Aiden Wright 1A. Jack Malinski 1A. Cedrick Guindon 1A. Aiden Wright 20 saves.

N: Joe Connor 1G. Amine Hajibi 1G. Jack Henry 1A. Tyler Fukakusa 1A. Dylan Hryckowian 1A. Dylan Finlay 1A. Lawton Zacher 21 saves.

Note: The men’s hockey team has won two straight games for the first time since winning its first two games of the season (Oct. 4-10).

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SATURDAY, JAN. 10

Women’s hockey

Vermont at Merrimack, 2 p.m.

Men’s hockey

Northeastern at Vermont, 7 p.m.

Contact Alex Abrami at aabrami@freepressmedia.com. Follow him on X, formerly known as Twitter: @aabrami5.

Contact Judith Altneu at JAltneu@usatodayco.com. Follow her on X, formerly known as Twitter: @Judith_Altneu.





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Brattleboro Memorial Hospital reaches settlement with US Justice Department over ADA compliance

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Brattleboro Memorial Hospital reaches settlement with US Justice Department over ADA compliance


Brattleboro Memorial Hospital has reached a settlement with the U.S. Department of Justice over allegations that the hospital violated the Americans with Disabilities Act during patient visits dating back to at least 2018.

The U.S. attorney for the District of Vermont received a complaint from a patient who said Brattleboro Memorial failed to provide qualified sign language interpreters and appropriate auxiliary aids and services during visits to the emergency department.

After an investigation, the U.S. attorney’s office said it discovered other patients, whose primary means of communication is American Sign Language, who did not receive adequate services from the hospital.

Under terms of the agreement, the hospital says it will provide qualified interpreters, create a new grievance procedure, provide training to its staff personnel on effective communication, and designate a program administrator who will coordinate 24/7 access to auxiliary aids and services.

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“BMH believes the agreement represents a positive step forward and aligns with the Hospital’s ongoing commitment to accessibility, inclusion, and high-quality care for all patients,” hospital spokesperson Gina Pattison wrote in a prepared statement. “The agreement reflects improvements BMH has implemented over the past several years to better serve patients who are deaf or hard of hearing.”

Pattison wrote that the hospital worked cooperatively with the Department of Justice throughout the investigation, and that over the past few years a series of new steps have been taken to better serve the deaf and hard of hearing community.

Since 2023, Brattleboro Memorial has been working with the group Deaf Vermonters Advocacy Services to update policies, procedures, staff education and clinical practices, according to Pattison.

Pattison said the hospital now has an on-call, in-person interpreter program along with access to video remote interpreting services.

The settlement agreement also requires the hospital to establish a fund to compensate people who have been affected by the failure to provide appropriate communication services from 2018 through 2025.

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“For the average person, going to the ER during a medical emergency is scary. Deaf individuals have the added stress and worry that they will not be able to communicate their symptoms, understand the doctor’s questions, or give consent because they do not have effective communication,” Deaf Vermonters Advocacy Services Director Rebecca Lalanne wrote in an email. “It is everyone’s hope that this agreement will change that experience and that BMH will assess and accommodate in accordance with the law.”

The U.S. attorney’s office will not pursue further legal action, according to the agreement.

Any person who visited the hospital and failed to receive appropriate services can contact the U.S. attorney’s office to fill out a civil rights complaint form.

“It is well settled under the ADA that patients have the right to effective communication in hospitals and doctors’ offices,” the Department of Justice press release said. “BMH has already taken steps to comply with its obligations under the ADA. And with the resolution agreement, BMH will timely provide qualified interpreters when necessary to ensure effective communication with patients and companions.”

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