Lifestyle
'I wanted to buy her time': A mother looks back on her daughter's terminal cancer
Sarah Wildman and Orli, photographed in early summer 2021. Orli was finishing a second round of chemotherapy after her liver cancer had metastasized when she was asked to participate in a project chronicling the beauty of baldness.
Abby Greenawalt/Sarah Wildman
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Abby Greenawalt/Sarah Wildman
In 2019, Sarah Wildman’s daughter, Orli, was just 10 when she was diagnosed with hepatoblastoma, a rare form a liver cancer. Over the next few years, Wildman chronicled Orli’s illness for The New York Times, where she is a staff writer and editor for the Opinion section.
Wildman’s articles detailed Orli’s bout with several rounds of chemo, a liver transplant, two brain surgeries and a tumor that pinched her spine, leaving her unable to walk. Orli died in March 2023, at the age of 14.
“I thought I understood pain, but she was facing a kind of pain I realized I really had never encountered,” Wildman says. “She would sometimes ask me, ‘What do you think I did to deserve this?’ And of course, that’s not an answerable question.”
Wildman also wrote about the expert medical care Orli received — and the unwillingness of some doctors and nurses to speak openly and realistically about what she was facing. Wildman believes the medical establishment tends to view the death of a child as a failure. As a result, she says, “there is a reluctance to face the idea that medicine has limits. … Children’s hospitals really are always advertising that they will cure children.”
Wildman says that Orli’s illness and death made her question her own Jewish faith: “I had to redefine what God meant to me. It couldn’t be waking up and saying a prayer in the morning or praying for something specific. … I had to really see it in the divinity of people who went out of their way to help us and that weren’t afraid of us.”
Orli would have turned 16 on Jan. 13. To mark the occasion, Wildman and her younger daughter, Hana, spent the weekend doing things that they thought Orli would have enjoyed doing.

“I think one of the really difficult things about facing a parent who has lost a child … is that you cannot make it better. There is no betterment of this,” she says. “What’s easier, though, is when people aren’t afraid of mentioning her name or reminding me of a story or telling me something I didn’t know that she’d told them or that she’d done for them.”
Interview highlights
On interviewing Orli on Instagram
I wanted people to see what it meant to be a kid in cancer care, a really articulate kid, a kid who was really grappling with it and thinking about it and considering it, especially at a time in the mid-pandemic where people were weary of lockdown, really feeling quite sorry for themselves. And what Orli does in that interview, in addition to sort of winning over everyone who watches it, is to sort of realign the way people are thinking about their own sadness, their own sense of isolation, and to show how she was so joyful even during extremely hard experiences.
On the questions Orli and her sister Hana asked that Wildman struggled to answer
At one point we had a very severe experience where Orli ended up in the ICU in Hawaii. We were on a Make-A-Wish trip. It was brutal and terrifying. And Hana said, “Do you think God doesn’t love us?” The kinds of questions that they asked during this really showed my hand, if you will. I was not able to really offer a concrete answer to any of these things. I would say I don’t think that there is a God that is that activist in this way — because there is so much pain around the world and we are experiencing this. But I don’t think it’s about God not loving us. You have to see divinity in the people who are helping us. I would try to turn it into thinking, “How can we see good in the situation?” But sometimes I was really stymied.
On parenting a child with a terminal illness
It really challenged parenting. … I didn’t know how to discipline in this space when all the rules seemed to have been thrown out the window. I didn’t know how to put limits on things. How do you put limits on phone use when you have so little outside interaction? How do you say you have to really focus on algebra when you don’t know actually if any of it will matter? It’s really difficult. And I once said to her, “Well, isn’t it good that we have so much time together, we really get to bond?” And she said, “This is the time I’m supposed to be breaking away from you.” She was hilarious and cynical and tenacious and would often really try to push the boundaries of permissibility when she could.
Orli (third from left) poses with her parents and sister Hana on her 13th birthday in 2022.
Miranda Chadwick/Sarah Wildman
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Miranda Chadwick/Sarah Wildman
On maintaining hope and optimism throughout Orli’s treatment
I think hope can be a form of denial. It can also be a motivating force. It can mean that you do seek out treatments that do give you days, months, maybe even years. I think that the hope is essential because cancer care is grueling. It can be demoralizing to face the consequences of cancer care. It can be the cancer care that itself comes with pain. It comes with nausea. It comes with hair loss. I can come with all sorts of indignities. …
It was brutal because she really tried to live each moment in such an enormous way. She really, really loved living and she would try to make life different in the hospital. I mean, she made every single nurse do TikTok dances with her. She would make the music therapists sing Lizzo and Olivia Rodrigo and Taylor Swift, and she would play Taylor Swift and Lizzo in every operating room. And she had many, many surgeries. She would force people again and again to see her not as a patient, but as a person.
I wanted to give her everything. I wanted to buy her time.
Monique Nazareth and Susan Nyakundi produced and edited this interview for broadcast. Bridget Bentz, Molly Seavy-Nesper and Beth Novey adapted it for the web.
Lifestyle
The Nerve Center of This Art Fair Isn’t Painting. It’s Couture.
The art industry is increasingly shaped by artists’ and art businesses’ shared realization that they are locked in a fierce struggle for sustained attention — against each other, and against the rest of the overstimulated, always-online world. A major New York art fair aims to win this competition next month by knocking down the increasingly shaky walls between contemporary art and fashion.
When visitors enter the Independent art fair on May 14, they will almost immediately encounter its open-plan centerpiece: an installation of recent couture looks from Comme des Garçons. It will be the first New York solo presentation of works by Rei Kawakubo, the brand’s founder and mastermind, since a lauded 2017 survey exhibition at the Metropolitan Museum of Art’s Costume Institute.
Art fairs have often been front and center in the industry’s 21st-century quest to capture mindshare. But too many displays have pierced the zeitgeist with six-figure spectacles, like Maurizio Cattelan’s duct-taped banana and Beeple’s robot dogs. Curating Independent around Comme des Garçons comes from the conviction that a different kind of iconoclasm can rise to the top of New York’s spring art scrum.
Elizabeth Dee, the founder and creative director of Independent, said that making Kawakubo’s work the “nerve center” of this year’s edition was a “statement of purpose” for the fair’s evolution. After several years at the compact Spring Studios in TriBeCa, Independent will more than double its square footage by moving to Pier 36 at South Street, on the East River. Dee has narrowed the fair’s exhibitor list, to 76, from 83 dealers in 2025, and reduced booth fees to encourage a focus on single artists making bold propositions.
“Rei’s work has been pivotal to thinking about how my work as a curator, gallerist and art fair can push boundaries, especially during this extraordinary move toward corporatization and monoculture in the art world in the last 20 years,” Dee said.
Kawakubo’s designs have been challenging norms since her brand’s first Paris runway show in 1981, but her work over the last 13 years on what she calls “objects for the body” has blurred borders between high fashion and wearable sculpture.
The Comme des Garçons presentation at Independent will feature 20 looks from autumn-winter 2020 to spring-summer 2025. Forgoing the runway, Kawakubo is installing her non-clothing inside structures made from rebar and colored plastic joinery.
Adrian Joffe, the president of both Comme des Garçons International and the curated retailer Dover Street Market International (and who is also Kawakubo’s husband), said in an interview that Kawakubo’s intention was to create a sculptural installation divorced from chronology and fashion — “a thing made new again.”
Every look at Independent was made in an edition of three or fewer, but only one of each will be for sale on-site. Prices will be about $9,000 to $30,000. Comme des Garçons will retain 100 percent of the sales.
Asked why she was interested in exhibiting at Independent, the famously elusive Kawakubo said via email, “The body of work has never been shown together, and this is the first presentation in New York in almost 10 years.” Joffe added a broader philosophical motivation. “We’ve never done it before; it was new,” he said. Also essential was the fair’s willingness to embrace Kawakubo’s vision for the installation rather than a standard fair booth.
Kawakubo began consistently engaging with fine art decades before such crossovers became commonplace. Since 1989, she has invited a steady stream of contemporary artists to create installations in Comme des Garçons’s Tokyo flagship store. The ’90s brought collaborations with the artist Cindy Sherman and performance pioneer Merce Cunningham, among others.
More cross-disciplinary projects followed, including limited-release direct mailers for Comme des Garçons. Kawakubo designs each from documentation of works provided by an artist or art collective.
The display at Independent reopens the debate about Kawakubo’s proper place on the continuum between artist and designer. But the issue is already settled for celebrated artists who have collaborated with her.
“I totally think of Rei as an artist in the truest sense,” Sherman said by email. “Her work questions what everyone else takes for granted as being flattering to a body, questions what female bodies are expected to look like and who they’re catering to.”
Ai Weiwei, the subject of a 2010 Comme des Garçons direct mailer, agreed that Kawakubo “is, in essence, an artist.” Unlike designers who “pursue a sense of form,” he added, “her design and creation are oriented toward attitude” — specifically, an attitude of “rebellion.”
Also taking this position is “Costume Art,” the spring exhibition at the Costume Institute. Opening May 10, the show pairs individual works from multiple designers — including Comme des Garçons — with artworks from the Met’s holdings to advance the argument made by the dress code for this year’s Met gala: “Fashion is art.”
True to form, Kawakubo sometimes opts for a third way.
“Rei has often said she’s not a designer, she’s not an artist,” Joffe said. “She is a storyteller.”
Now to find out whether an art fair sparks the drama, dialogue and attention its authors want.
Lifestyle
They set out to elevate karaoke in L.A. — and opened a glamorous lounge that pulls out all the stops
Brothers Leo and Oliver Kremer visited karaoke spots around the globe and almost always had the same impression.
“The drinks weren’t always great, the aesthetics weren’t always so glamorous, the sound wasn’t always awesome and the lights were often generic,” says Leo, a former bassist of the band Third Eye Blind.
As devout karaoke fans, they wanted to level up the experience. So they dreamed up Mic Drop, an upscale karaoke lounge in West Hollywood that opens Thursday. It’s located inside the original Larrabee Studios, a historic 1920s building formerly owned by Carole King and her ex-husband, Gerry Goffin — and the spot where King recorded some of her biggest hits. Third Eye Blind band members Stephan Jenkins and Brad Hargreaves are investors of the new venue.
Inside the two-story, 6,300-square-foot venue with 13 private karaoke rooms and an electrifying main stage, you can feel like a rock star in front of a cheering audience. Want to check it out? Here are six things to know.
The Kremer brothers hired sculptor Shawn HibmaCronan to create an 8-foot-tall disco-themed microphone for their karaoke lounge.
1. Take your pick between a private karaoke experience or the main stage
A unique element of Mic Drop is that it offers both private karaoke rooms and a main stage experience for those who wish to sing in front of a crowd. The 13 private rooms range from six- to 45-person capacity. Each of the karaoke rooms are named after a famous recording studio such as Electric Lady, Abbey Road, Shangri La and of course, Larrabee Studios. There is a two-hour minimum on all rentals and hourly rates depend on the room size and day of the week.
But if you’re ready to take the center stage, it’s free to sing — at least technically. All you have to do is pay a $10 fee at the door, which is essentially a token that goes toward your first drink. Then you can put your name on the list with the KJ (karaoke jockey) who keeps the crowd energized throughout the night and even hits the stage at times.
Harrison Baum, left, of Santa Monica, and Amanda Stagner, 27, of Los Angeles, sing in one of the 13 private karaoke rooms.
2. Thumping, high sound quality was a top priority
As someone who toured the world playing bass for Third Eye Blind, top-tier sound was a nonnegotiable for Leo. “Typically with karaoke, the sound is kind of teeny, there’s not a lot of bass and the vocal is super hot and sitting on top too much,” he says. To combat this, he and his brother teamed up with Pineapple Audio, an audio visual company based in Chicago, to design their crisp sound system. They also installed concert-grade speakers and custom subwoofers from a European audio equipment manufacturer called Celto, and bought gold-plated Sennheiser wireless microphones, which they loved so much that they had an 8-foot-tall replica made for their main room. Designed by artist Shawn HibmaCronan, the “macrophone,” as they call it, has roughly 30,000 mirror tiles. “It spins and throws incredible disco light everywhere,” says Leo.
Karaoke jockeys Sophie St. John, 27, second from left, and Cameron Armstrong, 30, right, get the crowd involved with their song picks at Mic Drop.
3. A concert-level performance isn’t complete without good stage lighting and a haze machine
Each karaoke room features a disco ball and dynamic lighting that syncs up with whatever song you’re singing, which makes you feel like you are a professional performer. There’s also a haze machine hidden under the leather seats. Meanwhile, the main stage is concert-ready with additional dancing lasers and spotlights.
Brett Adams, left, of Sherman Oaks, and Patrick Riley of Studio City sing karaoke together inside a private lounge at Mic Drop.
4. The song selection is vast, offering classics and new hits
One of the worst things that can happen when you go to karaoke is not being able to find the song you want to sing. At Mic Drop, the odds of this happening are slim to none. The venue uses a popular karaoke service called KaraFun, which has a catalog of more than 600,000 songs (and adds 400 new tracks every month), according to its website. Take your pick from country, R&B, jazz, rap, pop, love duets and more. (Two newish selections I spotted were Raye’s “Where Is my Husband” and Olivia Dean’s “Man I Need,” which both released late last year.) In the private karaoke rooms, there’s also a fun feature on Karafun called “battle mode,” which allows you and your crew of up to 20 people to compete in real time. KaraFun also has an entertaining music trivia game, which I tested out with the founders and came in second place.
The design inspiration for Mic Drop was 1920s music lounges and 1970s disco culture, says designer Amy Morris.
5. The interiors are inspired by 1920s music lounges mixed with ‘70s disco vibes
A disco ball hangs from the ceiling.
If you took the sophisticated aesthetic of 1920s music lounges and mixed it with the vibrant and playful era of 1970s disco culture, you’d find Mic Drop.
When you walk into the lounge, the first thing you’ll see is a bright red check-in desk that resembles a performer’s dressing room with vanity lights, several mirrors and a range of wigs. “So much of karaoke is about getting into character and letting go of the day, so we had the idea to sell the wigs,” says Oliver. As you continue into the lounge, the focal point is the stage, which is adorned with zebra-printed carpet and dramatic, red velvet curtains. For seating, slide into the red velvet banquettes or plop onto a gold tiger velvet stool. Upstairs, you’ll find the intimate karaoke studios, which are decorated with red velvet walls and brass, curved doorways that echo the building’s deco arches, says Mic Drop’s interior designer, Amy Morris of the Morris Project.
Sarah Rothman, center, of Oakland, and friend Rachel Bernstein, left, of Los Angeles, wait at the bar.
6. You can order nontraditional karaoke bites as you wait for your turn to sing
While Mic Drop offers some of the food you’d typically find at a karaoke lounge such as tater tots, truffle popcorn and pizza, the venue has some surprising options as well. For example, a 57 gram caviar service (served with chips, crème fraîche and chives) and shrimp cocktail from Santa Monica Seafood. For their pizza program, the Kremer brothers teamed up with Avalou’s Italian Pizza Company, which is run by Louis Lombardi who starred in “The Sopranos.” He’s the brainchild behind my favorite dish, the Fuhgeddaboudit pizza, which is made with pastrami, pickles and mustard. It might sound repulsive, but trust me.
As for the cheeky cocktails, they are all named after famous musicians and songs such as the Pink Pony Club (a tart cherry pomegranate drink with vodka named after Chappell Roan), Green Eyes (a sake sour with kiwi and melon named after Green Day) and Megroni Thee Stallion (an elevated negroni named after Megan Thee Stallion).
Lifestyle
You’re Invited! (No, You’re Not.) It’s the Latest Phishing Scam.
When John Lantigua, a retired journalist in Miami Beach, checked his email one recent morning, he was glad to see an invitation.
“It was like, ‘Come and share an evening with me. Click here for details,’” Mr. Lantigua said.
It appeared to be a Paperless Post invitation from someone he once worked with at The Palm Beach Post, a man who had left Florida for Mississippi and liked to arrange dinners when he was back in town.
Mr. Lantigua, 78, clicked the link. It didn’t open.
He clicked a second time. Still nothing.
He didn’t realize what was going on until a mutual friend who had received the same email told him it wasn’t an invitation at all. It was a scam.
Phishing scams have long tried to frighten people into clicking on links with emails claiming that their bank accounts have been hacked, or that they owe thousands of dollars in fines, or that their pornography viewing habits have been tracked.
The invitation scam is a little more subtle: It preys on the all-too-human desire to be included in social gatherings.
The phishy invitations mimic emails from Paperless Post, Evite and Punchbowl. What appears to be a friendly overture from someone you know is really a digital Trojan horse that gives scammers access to your personal information.
“I thought it was diabolical that they would choose somebody who has sent me a legitimate invitation before,” Mr. Lantigua said. “He’s a friend of mine. If he’s coming to town, I want to see him.”
Rachel Tobac, the chief executive of SocialProof Security, a cybersecurity firm, said she noticed the scam last holiday season.
“Phishing emails are not a new thing,” Ms. Tobac said, “but every six months, we get a new lure that hijacks our amygdala in new ways. There’s such a desire for folks to get together that this lure is interesting to people. They want to go to a party.”
Phishing scams involve “two distinct paths,” Ms. Tobac added. In one, the recipient is served a link that turns out to be dead, or so it seems. A click activates malware that runs silently as it gleans passwords and other bits of personal information. In all likelihood, this is what happened when Mr. Lantigua clicked on the ersatz invitation link.
Another scam offers a working link. Potential victims who click on it are asked to provide a password. Those who take that next step are a boon to hackers.
“They have complete control of your email and, in turn, your entire digital life,” Ms. Tobac said. “They can reset your password for your dog’s Instagram account. They can take over your bank account. Change your health insurance.”
Digital invitation platforms are trying to combat the scam by publishing guides on how to spot fake invitations. Paperless Post has also set up an email account — phishing@paperlesspost.com — for users to submit messages for verification. The company sends suspicious links to the Anti-Phishing Working Group, a nonprofit that maintains a database monitored by cybersecurity firms. Flagged links are rendered ineffective.
The scammers’ new strategy of exploiting the desire for connection is infuriating, said Alexa Hirschfeld, a founder of Paperless Post. “Life can be isolating,” Ms. Hirschfeld said. “When it looks like you’re getting an invitation from someone you know, your first instinct is excitement, not skepticism.”
Olivia Pollock, the vice president of brand for Evite, said that fake invitations tended to be generic, promising a birthday party or a celebration of life. Most invitations these days tend to have a specific focus — mahjong gatherings or book club talks, for instance. “The devil is in the details,” Ms. Pollock said.
Because scammers don’t know how close you are with the people in your contact list, fake invitations may also seem random. “They could be from your business school roommate you haven’t spoken to in 10 years,” Ms. Hirschfeld said.
Alyssa Williamson, who works in public relations in New York, was leaving a yoga class recently when she checked her phone and saw an invitation from a college classmate.
“I assumed it was an alumni event,” Ms. Williamson, 30, said. “I clicked on it, and it was like, ‘Enter your email.’ I didn’t even think about it.”
Later that day, she received texts from friends asking her about the party invitation she had just sent out. Her response: What party?
“The thing is, I host a lot of events,” she said. “Some knew it was fake. Others were like, ‘What’s this? I can’t open it.’”
Andrew Smith, a graduate student in finance who lives in Manhattan, received what looked like a Punchbowl invitation to “a memory making celebration.” It appeared to have come from a woman he had dated in college. He received it when he was having drinks at a bar on a Friday night — “a pretty insidious piece of timing,” he said.
“The choice of sender was super clever,” Mr. Smith, 29, noted. “This was somebody that would probably get a reaction from me.”
Mr. Smith seized on the phrase “memory making celebration” and filled in the blanks. He imagined that someone in his ex-girlfriend’s immediate family had died. Perhaps she wanted to restart contact at this difficult moment.
Something saved him when he clicked a link and tried to tap out his personal information — his inability to remember the password to his email account. The next day, he reached out to his ex, who confirmed that the invitation was fake.
“It didn’t trigger any alarm bells,” Mr. Smith said. “I went right for the click. I went completely animal brain.”
The new scam comes with an unfortunate side effect, a suspicion of invitations altogether. It’s enough to make a person antisocial.
“Don’t invite me to anything,” Mr. Lantigua, the retired journalist, said, only half-joking. “I’m not coming.”
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