Entertainment
She got seizures at 10 months old. So her dad wrote a musical about epilepsy and empathy
In March 1998, Ben Decter drove from Los Angeles to Tijuana to get medicine for his 17-month-old daughter, Addie. She had “catastrophic childhood epilepsy,” the neurologist had told him, and a drug not yet available in the U.S. was their best bet to treat her nonstop seizures.
That terrifying moment is currently revisited five times per week as part of a new musical — one that’s deeply personal and more than 20 years in the making. Titled “It’s All Your Fault, Tyler Price!,” the family-friendly performance is entertaining, empathetic and educational about epilepsy, a condition that remains stigmatized despite its ubiquity. And its world-premiere production, running through Dec. 15 at the Hudson Backstage Theatre in Hollywood, is largely funded by a pharmaceutical company.
It’s an unconventional financing model for a piece of musical theater. But for a unique stage show with a singular origin story, it might just be the right prescription.
“The entertainment world has been changing, and that includes all of the ways that musicals, TV and movies typically get funding,” said the show’s director, Kristin Hanggi. “It’s really just the idea of partnering with people who are in alignment with the same mission as you are and want to serve the same community you do. And when you’re united on that level, it feels undeniable.”
Faith Graham, center, and the cast of “It’s All Your Fault, Tyler Price!”
(Jim Cox)
‘I couldn’t talk about it’
At first, Decter — an Emmy-winning composer who’s scored TV shows such as “Lucifer,” “Lethal Weapon” and “CSI: Cyber” — wouldn’t discuss his daughter’s seizures. Not even with his college sweetheart wife, Jackie Sloan, or his younger child, Leo Decter.
“I had a lot of anger, sadness and isolation, but I’d just internalize and go to the gym or go out running,” said Decter. “I couldn’t talk about it, but I found myself starting to write songs on the piano, and that felt really good.”
Decter played his compositions for Sloan, who’d then sing them with him. “It was his window to express how he felt, like he could say things in songs that he wouldn’t be okay saying out loud,” she recalled.
“Even though it was painful, I felt encouraged and hopeful for us that he was finding a way to stay present and figure out how he was feeling. [These diagnoses] are so hard on families, and most couples don’t make it through.”
In 2007, a neighbor overheard Decter singing these songs and introduced him to Hanggi, who had just debuted the stage shows “Bare: A Pop Opera” and “Rock of Ages.” She immediately took to the material, and continued to develop it with Decter.
“One of the things that struck me about the lyrics was that some of them were from the children’s point of view and expressing emotions I hadn’t heard before,” said Hanggi. “The topic was so heavy, but there was also so much humor and laughter and lightness. I was like, there’s something here, we just have to figure out how to dramatize this.”
Ben Recter and Kristin Hanggi created the new musical “It’s All Your Fault, Tyler Price!”
(Robert Gauthier/Los Angeles Times)
Mission accomplished. “It’s All Your Fault, Tyler Price!” introduces four characters who are thinly veiled versions of the Decters: an emotionally avoidant composer dad, a burned out corporate lawyer mom, a sweet older sister with epilepsy, and a charismatic younger brother tasked with taking care of her.
The inciting incident onstage — a school bully makes fun of the young girl’s condition, and her brother vengefully punches him in the face — is inspired by an actual anecdote. “A friend of mine was at our house and made an insensitive joke about epilepsy, and pretended to have a seizure,” Leo explained. “I was really offended by it, so I kicked him out.” (No fists were swung in real life, though.)
The show musicalizes some seizure statistics, like the fact that 1 in 26 people will get epilepsy in their lifetime, and that seizures can vary in appearance, with manifestations as muted as a sudden head drop. One musical number even outlines seizure first aid tips, and leads the audience in repeating back the safety steps via a call-and-response gospel song.
“This [show] really bloomed into advocating for this destigmatization of what epilepsy is,” said Addie, who inspired the show. “I hope that anyone who sees this, whether they do still have seizures, are seizure-free or know somebody who has seizures, feels seen and knows that they’re not alone.”
Charlie Stover, Jenna Pastuszek, CJ Eldred and Faith Graham play a version of the Decter family in “It’s All Your Fault, Tyler Price!”
(Jim Cox)
“Tyler Price!” also portrays how a child’s diagnosis can affect everyone in a family unit: the parents argue about their daughter’s request for a bat mitzvah amid their struggles to pay her medical bills, and her brother craves the same parental attention his sister always seems to receive. Most movingly, it affirms that open communication and safe self-expression are a vital part of everyone’s treatment.
“It’s so powerful in the show when the dad just tells his son that, yes, he does get afraid,” said Hanggi. “We as parents think we’re not supposed to share our fears with our kids, but actually, it’s more helpful to talk about hard things and be intimate about your feelings as a family, instead of covering things up or trying to pretend they’re not there. That challenge is universal, whether or not you have firsthand experience with epilepsy.”
After over a decade of workshops produced by Dodgers Theatricals, Pasadena Playhouse, IAMA Theatre Company and Lythgoe Family Productions, Decter and Hanggi self-produced a reading of “Tyler Price!” last year at the Garry Marshall Theatre in Burbank.
“A piece will tell you when it’s ready to be on stage because that’s when people start giving you money,” said Hanggi of that reading’s very warm reception. “People start writing checks and saying, ‘What can we do to help?’ All this support erupted, and we could feel that energy of, it’s time.”
Addie Decter and her brother, Leo, at the Children’s Ranch. The two siblings inspired the musical “It’s All Your Fault, Tyler Price!”
(Robert Gauthier/Los Angeles Times)
News of the stage show reached UCB, a Belgium-based pharmaceutical company that produces various medications that treat epilepsy. UCB had recently contributed funding to “Under the Lights,” Miles Levin’s award-winning short film that’s since been developed into a feature with Lake Bell, Randall Park and Nick Offerman.
“We’re always looking for new ways to help address and support the community of those living with and caring for folks with a debilitating and complex form of epilepsy, and there’s often no greater medium than storytelling,” said Brad Chapman, head of U.S. epilepsy and rare syndromes at UCB, which provided the majority of the capital for the debut “Tyler Price!” production.
“For us, it’s a natural opportunity to reach more people potentially than ever before, in what might be described through these platforms as one of the greatest awareness campaigns for epilepsy.”
CJ Eldred and Charlie Stover play father and son in “It’s All Your Fault, Tyler Price!”
(Jim Cox)
‘Everything is still all right’
The entire run of “It’s All Your Fault, Tyler Price!” is visually designed to be “seizure safe,” since intense light sequences and patterns can sometimes trigger reactions. Already, the production has welcomed attendees of all ages for their first-ever live show experience. (A fully relaxed performance is scheduled for the Dec. 14 matinee.)
Ben Decter watched this week’s preview performances from various seats throughout the theater and chatted with families afterward; he is admittedly “a lot better” at expressing himself and communicating his feelings to others. His son Leo, now 25, plays guitar in the show’s band.
“Watching a kid play a younger version of you is an absolute trip, but I love getting to help my dad in this meaningful way on this project,” said Leo. Performing his dad’s songs five times a week, “I now have so much more empathy for my parents because I felt how hard it must have been for them.”
Meanwhile, Jackie Sloan pivoted from corporate reorganization and bankruptcy law to founding and running the Children’s Ranch, an Atwater Village organization that offers therapeutic animal caretaking programs for youth of all abilities and circumstances. She was inspired to do so upon seeing how well their daughter, Addie, who was diagnosed at 4 with Lennox–Gastaut syndrome, responded to caring for animals as a child.
Now 28 years old, Addie is an instructor at the ranch, helping to lead lessons for approximately 100 families a month on caring for rabbits, chickens, horses and guinea pigs. “She is a force, and I learn from her every day,” said Jackie of working alongside her daughter, who hasn’t had a seizure in years. “Addie has this way of seeing things through the eyes of the student and helping us understand how we can better help them.
Sloan described the Children’s Ranch not as a place trying to change anyone, but more so where kids and teens can get to know themselves better and show up more confidently as who they are. So in a way, the ranch is actually a lot like the musical itself.
“The show isn’t saying that everything is gonna turn out perfectly,” she said. “It’s really saying, even if things are hard, everything is still alright, and we’re going to make a great life together.”
Clockwise, from top left: Ben Decter, Jackie Sloan, Leo Decter, Kristin Hanggi and Addie Decter.
(Robert Gauthier/Los Angeles Times)
‘It’s All Your Fault, Tyler Price!’
Where: Hudson Backstage Theatre, 6539 Santa Monica Blvd., Hollywood
When: 7:30 p.m. Thursday and Friday, 2:30 and 7:30 p.m. Saturday, 2:30 p.m. Sunday; ends Dec. 15.
Tickets: $25 and up
Info: tylerpricemusical.com
Running time: 2 hours, 5 minutes (one intermission)
Movie Reviews
Movie review: ‘Gail Daughtry and the Celebrity Sex Pass’ not quite ‘Wet Hot’ fun
Comedy is a matter of taste and preference — it’s a deeply personal thing. Which makes it hard for a critic to give a blanket assessment of a specific kind of comedy, especially if it didn’t work for them, but clearly worked for others (the laughter or lack thereof is the indication). “It’s not funny,” the critic says, “well I had fun,” someone else can reply, and then we’re at an impasse.
Which is the dilemma one finds oneself in with “Gail Daughtry and the Celebrity Sex Pass,” a very strange and shaggy Hollywood satire of sorts from David Wain and The State crew, still riding the goodwill of “Wet Hot American Summer” after all these years. If only this were as funny.
“Gail Daughtry” lives in the same world as that iconic summer camp spoof, as well as Wain’s 2014 rom-com parody, “They Came Together,” in that he’s playing with genre convention and expectation, taking well-known norms to the goofiest extremes. But those films hewed more closely to their respective genres, while “Gail Daughtry” is totally scattered, combining crime and spy movie tropes with a fish-out-of-water comedy and a Hollywood send-up. It has far too many ideas for its own good, and yet no ideas that are good enough to sustain this bizarre curio of a comedy.
What’s ironic is that one of the problems driving this wacky plot forward is the characters have to come up with a movie idea to pitch to star Jon Hamm (playing himself of course), leading them to do some pretty inane and shockingly violent things. It’s almost as if Wain and co-writer and co-star Ken Marino had no idea for a movie, then baked their search for an idea into their script, and then turned it into a madcap adventure about a woman on a quest to have sex with Jon Hamm. What an ouroboros!
OK, about the sex quest. Gail Daughtry (Zoey Deutch) is a chipper hairdresser from Kansas born without the part of the brain that recognizes sarcasm or irony. She’s a cheerful, Pollyanna-ish naïf whose literal-mindedness is almost as extreme as Amelia Bedelia. Her childhood sweetheart and fiancé Tom (Michael Cassidy) is the same. She tells him about the concept of the “celebrity sex pass” as a joke, and he promptly boinks Jennifer Aniston at local book reading.
(Nitpicky aside: why didn’t they use the common nomenclature “hall pass”? Is it copyrighted? “Celebrity sex pass” is clunky and sounds like an off-brand version of the well-known slang.)
That infidelity crisis is how Gail ends up in Los Angeles determined to bang Hamm, collecting a motley crew of similarly clueless helpers along the way. There’s her best friend Otto (Miles Guttierez-Riley), her salon bestie; Caleb (Ben Wang), an overly ambitious intern at Creative Artists Agency; Vince (Marino), a screenwriter turned paparazzo with a heart of gold; and John Slattery, as John Slattery, down on his luck. An accidental briefcase swap has a pair of thugs on their tail, in a forgettable and underdeveloped B-plot.
With a parade of celebrity cameos and collaborators in bit parts, “Gail Daughtry” at times feels like an excuse for Wain and co. to make something at home with all of their friends. Fair enough, it’s great to see all these people employed, but what about what we’re watching? Behold, the Los Angeles of the middle-aged working comedian: the CAA lobby, the Chateau Marmont, Griffith Park, etc. And the plot is as half-baked as the pitch they present to Hamm.
What’s actually interesting about this comedy is the distinct streak of despair and even resentment that reveals itself at the climax, a feeling of helplessness and uselessness. Everyone’s been striving to make it in this crazy town: the intern, the actor, the paparazzo. But not even Jon Hamm can help them get a movie made; even he feels inherently powerless. There’s an unexplored anxiety vibrating there that feels the most thematically fruitful, about what it means, some 25 years after bursting onto the scene with a generation-defining comedy, about maintaining the work, the drive, a sense of purpose, after years of strikes, and in the face of a constricting industry. Do they still have it? Is the dream still alive?
Maybe that’s why Wain and Marino need to invent a dreamer stand-in with Gail, a guileless eternal optimist who knows nothing of the craven Los Angeles and accepts everything at face value (though she is filled with a scary bit of rage too). She might behave like she has a head injury, but she’s going to achieve her goal, dammit. “Gail Daughtry and the Celebrity Sex Pass” might not be as funny as “Wet Hot American Summer” (for this critic), but reframed, it serves as a fascinating status update on life in La La Land for this troupe.
‘Gail Daughtry and the Celebrity Sex Pass’
2 stars (out of 4)
MPA rating: R (for sexual content, violence/bloody images and language)
Running time: 1:33
How to watch: In theaters July 10
Entertainment
Emily Ratajkowski’s viral essay on sex life as a single mom scores her a seven-figure book deal
Emily Ratajkowski’s viral essay detailing her sex life as a single mom just landed her a seven-figure book deal.
According to Page Six, the model’s essay in the Cut had publishers champing at the bit in a 12-way bidding war that culminated in the hefty pay day. Editor Helen Rouner at Penguin Press — who also edited Lauren Christensen’s memoir “Firstborn” and Michael W. Clune’s novel “Pan” — reportedly landed the deal.
Penguin Press did not immediately respond to The Times’ request for comment Friday.
Publishers Marketplace announced the forthcoming memoir, describing it as “an examination of modern female identity through the story of the author’s own efforts as a newly single mother in New York City to discover what really constitutes a good life for a woman.”
The essay, which dropped a month ago and quickly broke the internet, drops the veil on EmRata’s sexual adventures (or maybe misadventures) since she and her former husband, Sebastian Bear-McClard, split in 2022.
“It was a violent transition into a new reality of screaming baby on my aching tit and ring on my swollen finger,” Ratajkowski writes of new motherhood. “And then, in a time period that felt both instant and excruciatingly slow, my marriage collapsed. Six months after my son was born, my husband and I stopped having sex. Less than a year later, we separated.”
In the missive, the model interrogates her sexuality — is she a Madonna or a whore? — while untangling bigger questions around gender, power and self-actualization. If Carrie Bradshaw wrote about “Sex and the City,” then Ratajkowski is writing about sex, the city and single motherhood. And naturally, her fleeting paramours have vague monikers: “Vegan Graffiti Artist,” “Spanish Gen-Zer” and “Son of a Billionaire.”
“And then there was the Elder Millennial: obsessed with dental hygiene, psychedelics, and dirty talk,” she writes. “He had approached the subject coyly at first, like it was something he was kind of embarrassed about — the way a kid will test you to see if you’ll talk to them about their dorky obsession of the moment. Do you like Godzilla? What about Star Wars?”
Would-be sleuths with Ratajkowski’s essay and a gossip rag handy will have their work cut out for them.
This will be Ratajkowski’s second book. The first, “My Body,” dropped in 2021 and was a bestselling collection of essays exploring gender, power dynamics, sexuality and the commodification of female beauty in the modeling and entertainment industries.
Ratajkowski’s foray into the spotlight came more than a decade ago when Robin Thicke’s controversial “Blurred Lines” music video made the model an overnight star. She was cast in David Fincher’s adaptation of “Gone Girl,” which hit theaters the following year, and catapulted to top fashion runways — Marc Jacobs, Versace, Victoria’s Secret and Dolce & Gabbana, to name a few. She she’s been romantically linked to Harry Styles, Eric Andre, Shaboozey, Brad Pitt and Pete Davidson, among others.
In 2023, she moonlighted as the host of the “High Low With EmRata” podcast, where she interviewed sex workers, investigated ethical nonmonogamy and pondered the etymology of the word “toxic.” The same year, she told The Times that she was coming into herself post-divorce, “Being able to assert what I want — that feels like it just started: My life as a creator and not as a muse.”
Movie Reviews
‘Gail Daughtry and the Celebrity Sex Pass’ Review: We’re Off to Hump the Wizard
Wainheads will be delighted to see his alums in cameos: Kerri Kenney-Silver, Michael Ian Black, Thomas Lennon, and supporting roles for Zickel and Truglio. A large portion of the cast are his homies. But with Deutch, Gutierrez-Riley, Wang, Slattery, Impacciatore, and yes, Hamm, it’s as if they’re being inducted into a new mad family. Wain and Marino are basically catching Pokémon and hoping they can hold onto the roster (by that logic, yes, Paul Rudd is a legendary Pokémon). The film is anchored by Zoey — everything everywhere all this summer with Voicemails From Isabelle to Minions & Monsters — Deutch in the Dorothy Gale role, exuding a high level of perkiness consistent with the character’s can-do, wide-eyed, midwestern charm and heart.
A major standout, Ben Wang finally gets to show off his comedic abilities, portraying a self-assured, quick-witted agent who makes me laugh every time he reveals his sheltered upbringing in snappy whines at every inconvenience. Sabrina Impacciatore, who has proven to be a comedic juggernaut in The Paper, is having so much fun hamming it up as the mob boss-esque wicked witch counterpart, torturing her henchmen and deliciously chewing up the scenery whenever onscreen. I don’t think they use her to the height of her comedic prowess, but she’s a delight nonetheless. John Slattery is the film’s comedic MVP. The way the writers use his over-the-top character for comedy is downright hilarious every time. They use him as either a punchline or a force of nature, and he’s great. This movie is like Mad Men propaganda, and by God, it works. As someone who’s never seen it, Gail allowed me a better appreciation for Slattery and Hamm.
Man, we don’t deserve Jon Hamm. This is the second time I’ve seen him play a silly, fictionalized version of himself this year (the other being the SXSW crowd-pleasing rom-com Wishful Thinking, which Gail distributor Sony Pictures Classics acquired), and he also voice-acted in his comedic Mayor Jerry role in Hoppers. Maybe working with Wain in 2007’s The Ten was the canon event, but I consider his weird little sex scene with Kristen Wiig in Bridesmaids his awakening. Since then, I’ve only seen him as unserious, and it’s delightful. Oz-like in appearance, he’s funny and befitting the film’s overall light, joyful nature.
LAST STATEMENT
Ultimately, Gail Daughtry and the Celebrity Sex Pass is a campy, delightful romp that succeeds as both a distinctive Hollywood‑centric riff and a Wizard of Oz reimagining, retaining a loving, twisted, demented charm. It’s a weird description, but it’s so high‑spirited and light‑hearted despite being strangely ultraviolent. It might as well be a live‑action episode of Smiling Friends (RIP), yet it’s everything the theatrical market needs today. Ten years ago, this would’ve been a studio production rather than an indie Sundance acquisition, but thank God it exists for the big screen. More absurdist Gail Daughtrys for cinemas (not streaming), please, because this is the most fun to be had in a theater all summer, if not the year thus far.
-
Nevada2 minutes agoNevada climber dies after fall while climbing in Oregon
-
New Hampshire5 minutes agoMan From Northwood Arrested On Driving Under The Influence Charge: Concord Police Log
-
New Jersey6 minutes agoNJ firefighter dies after crash responding to fire call
-
New Mexico17 minutes agoIsolated storm chances continue for parts of New Mexico this weekend
-
North Carolina20 minutes agoA 4-year-old boy’s simple habit of waving to his neighbors transformed his North Carolina community
-
North Dakota25 minutes agoWest Fargo attorney named to North Dakota Ethics Commission
-
Ohio32 minutes agoStruggling Ohio county seeks funds to care for 16 kids rescued from squalor and prosecute their family
-
Oklahoma35 minutes agoMartha Lillard, last US polio patient using iron lung, dies at 78 in Oklahoma