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Man with Celine Dion’s rare disease warns her comeback could be dangerous

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Man with Celine Dion’s rare disease warns her comeback could be dangerous

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A former marathon runner who was diagnosed with the same condition as Celine Dion worries that crowds could be a “trigger” during the singer’s recently announced comeback.

Jon Kelf, 56, was a five-time marathon runner before he was diagnosed with stiff-person syndrome (SPS) in 2019, SWNS reported. Dion revealed her own diagnosis in late 2022.

SPS causes progressive muscle stiffness and severe muscle spasms that can lead to chronic pain, falls and loss of mobility over time, according to UT Southwestern Medical Center.

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“In some cases, spasms are so severe that they can cause falls, broken bones and dislocated joints,” the center notes on its website.

While this rare condition is not fatal, its symptoms can dramatically affect a person’s quality of life.

Singer Celine Dion performs onstage during the 2017 Billboard Music Awards at T-Mobile Arena on May 21, 2017, in Las Vegas, Nevada. (Ethan Miller/Getty Images)

The disease is often triggered by emotional stress or noise, elements Kelf calls “particularly debilitating.” He shared with SWNS that he never expected Dion to perform again.

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 “I was a bit surprised. Especially when she talked about the dancing. I couldn’t dance before the diagnosis, let alone afterwards,” said Kelf, who has no medical involvement or knowledge of Dion’s case personally.

“Obviously, she has the resources to get the best treatment available, but even still, it’s quite remarkable.”

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In 2019, the former engineer started feeling his legs tighten up and stiffen anytime he was nervous or tense, but dismissed the odd sensations until one day, he stood and couldn’t move.

Kelf can now barely walk and has been forced to quit his job.

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A former marathon runner with stiff-person syndrome said crowds could be a trigger for Dion’s comeback. (Jon Kelf )

Dion has announced 10 shows in September and October at the 40,000-capacity Paris la Défense Arena, planned at three- to four-day intervals. 

The intervals will be crucial for Dion to pace herself, rest and medicate between shows, according to Kelf.

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“Everyone’s different, but I’m still surprised,” said Kelf, who added that the disease could “limit” the singer.

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“It’s challenging to live with, to say the least. You have to rearrange your entire life. There are good and bad days.”

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While Kelf is hopeful that Dion will be able to make the show work, he warned against underestimating the seriousness of the disorder.

Stiff-person syndrome causes stiffness of the limbs and muscles. Kelf can now barely walk and has been forced to quit his job. (Jon Kelf / SWNS)

“I think it could undermine how seriously people take us, other sufferers,” he told SWNS.

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While he views the tour as positive and inspiring, Kelf said he hopes it will lead to more support for others who are suffering.

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“Otherwise, people may look at her and think, ‘Why aren’t I doing more?’ which could ultimately have a negative impact.”

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“If I’m out in public, people don’t see the worst of it,” he added. “It’s the same with her, they only see the good side.”

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Fox News Digital reached out to Dion’s representatives for comment.

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New York anchor Bill Ritter announces Alzheimer’s diagnosis during his final Eyewitness News broadcast

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New York anchor Bill Ritter announces Alzheimer’s diagnosis during his final Eyewitness News broadcast

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Veteran New York news anchor Bill Ritter revealed Friday that he has been diagnosed with early-stage Alzheimer’s disease, bringing an end to his more than two-decade run behind the WABC-TV anchor desk.

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Ritter, 76, who has anchored the station’s 6 p.m. newscast in New York City since 2001, revealed during Friday’s Eyewitness News broadcast that it would be his final night anchoring the program.

“After a series of tests, my doctors have told me I have Alzheimer’s,” Ritter said during the broadcast.

“It’s early-stage Alzheimer’s, and they say the treatments I’m getting are keeping it at bay, for now,” he continued. “But there is no guarantee, because there’s no cure yet for Alzheimer’s.”

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Veteran New York news anchor Bill Ritter announced that he has been diagnosed with early-stage Alzheimer’s disease and is stepping away from the WABC-TV anchor desk. (Linda Rosier/NY Daily News Archive via Getty Images)

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“So, unless someone finds an amazing cure, and soon, tonight will be the last newscast I anchor,” he added.

According to ABC7, Ritter joined WABC-TV in 1998 after an extensive journalism career that included work at the Los Angeles Times, local television stations in California and positions with ABC News.

He began anchoring the station’s 11 p.m. Eyewitness News broadcast in 1999 and was added to the flagship 6 p.m. newscast in 2001. He also anchored the station’s 5 p.m. broadcast for several years.

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Bill Ritter has anchored WABC-TV’s 6 p.m. newscast in New York City since 2001. (Heidi Gutman/Disney via Getty Images)

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ABC7 reported that Ritter will remain with the station in a new role focused in part on reporting about Alzheimer’s disease and other neurological conditions, as well as their impact on patients and families.

“For decades, Bill Ritter has covered and led New Yorkers through the stories that matter most,” WABC-TV General Manager Marilu Galvez said in a statement.

“A defining presence at ABC7, he has done so with exceptional insight, integrity and, most of all, heart, earning the love and respect of viewers and colleagues alike,” she continued.

“While he is stepping away from daily anchoring, he will continue to be an integral part of our ABC7 family, including sharing personal updates and providing resources to help others impacted by Alzheimer’s better understand the disease and the resources available to them.”

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Bill Ritter, Eyewitness News Anchor, WABC-TV, speaks onstage at the ROAR Forward Summit at Hearst Tower on November 19, 2024 in New York City. (Craig Barritt/Getty Images for Hearst)

“Bill is strong, brilliant, and resourceful, and we look forward to his continued reporting on Eyewitness News,” Galvez added.

New York City Mayor Zohran Mamdani responded to Ritter’s announcement by wishing the veteran broadcaster and his family “strength in the days ahead.”

“For decades, Bill Ritter has been a trusted presence in New Yorkers’ homes, helping us make sense of the news that shape our city,” Mamdani wrote on X. “

“His courage in sharing his Alzheimer’s diagnosis will help countless families facing the same challenge feel less alone,” he continued. “Wishing Bill, his loved ones, and everyone affected by Alzheimer’s strength in the days ahead.”

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Ritter’s colleagues also reacted to his announcement.

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WABC-TV reporter Lucy Yang paid tribute to Ritter’s professionalism and dedication during his decades-long career at the station.

“For decades, I’ve reported for his show and even filled in, anchored w him,” she posted on X. “He never gave less than 110% I salute you. I thank you. And I will pray for you.”

Lee Goldberg, the station’s chief meteorologist, said Ritter’s influence would continue long after he stepped away from the anchor desk.

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“He preaches be kind, take care of each other, & we’re all in this together,” Goldberg said on X. “Now, in addition to doing these things for himself & his loving family, he’ll build on his legendary legacy by helping millions who share his battle.” 

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“You’re a saint, and my hero @billritter7,” he added. “Love you.”

Ritter also noted during the broadcast that his father died from Alzheimer’s disease in 1998 after battling the illness for years.

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Thought Yo-Yo Dieting Ruined Your Metabolism? New Research Says Otherwise

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Thought Yo-Yo Dieting Ruined Your Metabolism? New Research Says Otherwise


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Stuck Yo-Yo Dieting? You’re Healthier Than You Think




















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Woman’s unexpected turnaround in Alzheimer’s symptoms follows psychedelic use

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Woman’s unexpected turnaround in Alzheimer’s symptoms follows psychedelic use

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Top stories

→ Woman with advanced Alzheimer’s regained speech and memories after taking magic mushrooms

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A woman with advanced Alzheimer’s reportedly showed significant brain function improvements after taking psilocybin mushrooms, per a case report. (iStock)

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Dirty sodas combine soft drinks with syrups, creamers and fruit juices, delivering up to 400 calories and 70 grams of sugar per drink, doctors warn. (iStock)

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