Georgia

Georgia girl, 12, has already survived two major health challenges

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On a shelf in her Commerce, Georgia, bed room, Briley Lamon shops her Beads of Braveness.

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“I’ve, like, two bottles stuffed with beads,” Lamon says

She has been accumulating them, every bead tied to a medical process or step in her story, for 12 years.

Born on Okinawa, in 2010, Briley was simply hours maintain, when Brigitte Lamon says her husband seen one thing was not proper with their child.

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“It seemed like she had run a race,” Lamon remembers. “It seemed like she had been working. She was panting. So, he referred to as within the nurse.”

Briley was recognized with Tetralogy of Fallot, a mix of 4 congenital coronary heart defects that have an effect on the guts’s capability to pump blood out of the guts and into the remainder of her physique.

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Briley Lamon, 12, is photographed on the hospital subsequent to a picture of her enlarged coronary heart. (Lamon Household photograph)

At 4 months, she underwent an open-heart surgical procedure to take away her defective pulmonary valve.

The Lamons knew she would want one other surgical procedure down the highway to switch the valve.

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However Youngsters’s Healthcare of Atlanta’s Dr. Fawwaz Shaw, a congenital cardiac surgeon and surgical director of the pediatric coronary heart transplant program says Briley, like many youngsters with this coronary heart subject, was in a position to have a typical, energetic childhood.

“They’re in a position to go to highschool,” Dr. Shaw says. “They’re in a position to sustain with their friends and take part in all actions. However, as they get older, the proper aspect of the guts will begin to dilate and begin to get larger in measurement.”

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By the age of three, Briley’s coronary heart was getting bigger. 

By 7, they had been contemplating that follow-up surgical procedure, however Riley grew pale, and torpid, and began spiking unusual fevers. 

Again at Youngsters’s Healthcare for a coronary heart checkup, her dad and mom discovered the issue was not Briley’s coronary heart in any respect.

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SShe had Acute Lymphoblastic Leukemia (or ALL), a blood most cancers.

Briley spent practically a month at Youngsters’s Healthcare, present process aggressive chemotherapy.

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“It is traumatic,” Brigitte Lamon says. “I imply, to see your youngster decline from what they’re once they stroll in at prognosis to what they’re once they depart post-diagnosis, it seems to be like a very completely different youngster.”

Finally, Briley transitioned to weekly then month-to-month chemo infusions. 

“It was extraordinarily robust,” her mom says. “It was arduous. The journey was arduous. Going weekly was arduous.

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Briley spent 2 and half years in remedy, placing the energetic life she cherished on maintain.

“I used to be very weak, and I could not actually do a variety of stuff,” she says. 

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In December 2022, completed together with her most cancers remedy, Riley lastly had her second open-heart surgical procedure, a valve alternative. 

Dr. Shaw says Briley will probably not want surgical procedure for no less than a decade.

If she does want a brand new valve, he says, the one he put it would permit the workforce to put a brand new valve with out requiring open-heart surgical procedure.

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Lamon’s classmates do not know a lot about what she’s been by means of.

“I attempt to clarify to them like what it is like, however they simply do not perceive as a result of they’ve by no means achieved it.”

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So Briley Lamon will her Beads of Braveness inform her story.



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