NORTH LITTLE ROCK, Ark. (KATV) — Purple is the color of the month in Arkansas, and Lupus Awareness Month is bringing a busy stretch of events, including a mayoral proclamation and a smooth jazz concert featuring acclaimed saxophonist Merlon Devine.
A proclamation for Lupus Awareness Month is set for 6 p.m. in North Little Rock, with Mayor Hardwick expected to present it. Organizers encouraged lupus warriors and supporters to come out.
Anita Boone, President of the Lupus Foundation of Arkansas Inc. and a former lupus warrior, described the day-to-day reality of living with the disease: “One minute you’re feeling amazing, the next minute your body is saying we can’t do this.”
Lupus is an autoimmune disease, described during the interview as a condition where the immune system attacks the body “inside out.” It can affect organs throughout the body, including the brain, lungs, heart and kidneys. Boone also shared personal impacts, saying, “I am losing, actually, ear from hearing, just because of lupus.”
The Lupus Foundation of Arkansas is also inviting the community to a Lupus Smooth Jazz Concert this Sunday, May 17, at 3:30 at The Space with Grace event venue, 2005 Main St., North Little Rock.
Gale Davis, committee chair for the Lupus Smooth Jazz Concert shared details about the concert.
Davis said guests are encouraged to “dress to impress,” though formalwear isn’t required. The event will include a photo backdrop, light hors d’oeuvres and beverages, and sponsored tables aimed at networking. It’s also a chance for people to meet other lupus warriors, learn more about the foundation’s work, and watch a video presentation highlighting events from the past year.
The featured artist, Merlon Devine, was described as an acclaimed saxophonist known for a soulful, smooth jazz sound, with a career spanning more than two decades and performances across the country and around the world. He’s also an Arkansas native who attended Little Rock Central High School. He now lives in Southern Maryland, outside Washington, D.C.
Davis said Devine’s connection to lupus is personal. She said his father had lupus and has since died, though he didn’t die from lupus. They also said Divine had a sister who died from lupus in 1981 and that he currently has two sisters living with lupus.
She also shared that, according to his doctors, Devine was born with acute asthma and underdeveloped lungs. His latest single, released last year, is called “Mercy.”
Tickets must be purchased online and will not be sold at the door. They’re available online by clicking on the flyer. Prices are $40 for individual tickets, or $400 for a table of nine, with an option to sponsor a table.
Organizers also noted another proclamation is planned for the Little Rock side with Mayor Frank Scott tomorrow, and encouraged people to follow the Lupus Foundation of Arkansas on social media for updates.
The concert will take place this Sunday at the Space With Grace Venue in North Little Rock.
