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How to Care for a Loved One With Dementia: 5 Expert Tips
The details of Gene Hackman’s final days may never be known. But officials in Santa Fe, N.M., said on Friday that it appeared that Mr. Hackman, who had advanced Alzheimer’s as well as heart disease, had spent about a week alone after his wife, who was his caregiver, died at home of a rare viral infection.
Mr. Hackman, 95, may have been among the most famous movie stars of the 20th century, but his circumstances point toward a common challenge, according to experts in dementia and family caregiving. Like Mr. Hackman, about seven million Americans have Alzheimer’s, a type of dementia, and their family members, like his wife, Betsy Arakawa, 65, often help care for them as the disease progresses.
Laura N. Gitlin, a behavioral scientist at Drexel University who researches ways to support caregivers, said that when a patient is diagnosed with dementia, their loved ones rarely receive all the information they need.
“No one really explains to the family what the course of the disease may look like, how to prepare,” she said. “No one checks in on the caregiver.”
Knowing how to prepare for this situation can help improve the quality of life for not only patients, as they adjust to life with the disease, but also those who become devoted to their needs. Here are five tips to consider if you become a caregiver for a loved one with dementia.
Stay social.
People with dementia may feel uncomfortable or anxious around faces they don’t recognize, and stigma can lead some families to retreat from social life. But becoming reclusive can worsen the disease, said Dr. Helen Kales, a geriatric psychiatrist at the University of California, Davis. Isolation can accelerate cognitive decline and even puts caregivers at a higher risk for developing dementia themselves.
Dr. Kales therefore recommends that patients and their loved ones keep attending social events and trying new things. A couple she worked with started square dancing when one partner was in the early stages of dementia.
“If there are sort of fresh eyes for a situation and respite, that benefits everybody,” she said.
Set up a caregiving team.
Many primary caregivers feel reluctant to impose, and other family and friends may not know how to help, Dr. Gitlin said. To address this, she suggests holding a meeting and assigning roles. For example, a sibling might plan to call every morning or evening to check in. If the family member with dementia doesn’t answer, they could request a wellness check.
Nancy Goode, executive director of the Margaret Jo Hogg Alzheimer’s Outreach Center in Albany, Ga., which provides adult day care services and support for caregivers, said she tells caregivers to have at least five people they can call for help in an emergency or to regularly help. This could be a friend who might agree to visit every Wednesday for a few hours so the caregiver can run errands.
Seek help from an expert.
When a family member receives a dementia diagnosis, it’s difficult to foresee how the patient’s needs will change as the disease progresses, Dr. Gitlin said. So she recommends caregivers meet with an expert, like a geriatric social worker or a geriatric nurse practitioner, who can evaluate the safety of the patient’s home and how much support will be needed.
That sort of advice doesn’t just come along with the diagnosis, she said, so families have to seek it out and pay for it.
“It seems simple,” she said, “but nobody is given the knowledge and skills that are needed.”
Consider technology that can help monitor your loved one.
In-home cameras and motion sensors can help relatives who live far away check on family members with dementia. For example, a device can be affixed to a refrigerator that sounds an alarm if the door isn’t opened for a long time; another can be worn by patients and send an alert if they fall. It’s important to discuss privacy concerns and data security when considering such tools, which are becoming more advanced and widely available, Dr. Gitlin said.
“We don’t want to make this all about bells and whistles,” Dr. Kales said, “but I do think that we want to use technology as an adjunct to help people as they go on this journey.”
Take care of yourself.
The demands of providing for someone with dementia can be so consuming that many caregivers neglect their own health, Ms. Goode said.
“They’re just worn out,” she said. “They’re just totally exhausted.”
Ms. Goode said caregivers often take on all the responsibilities of helping their patients, and encourages them to ask for help so they can make time for their own medical appointments, rest and wellness.
“If you’re not healthy,” Ms. Goode said, “you can’t take care of them.”
News
The New Harvard Trend? Getting Punched in the Face.
Her opponent at the Babson fight night was her Harvard teammate Muskaan Sandhu, 18, a freshman, who had sparred before. No one likes getting hit, Ms. Sandhu said, but she liked learning that she could take a punch.
It made her feel she could do anything. “After the fight, I never felt so capable in my life,” she said.
Modern life — lived on screens or amid the constant distraction of screens — can feel isolating. She sees boxing as a way to engage with people. “You feel really human,” she said. “You feel a connection with the person you’re fighting. Like we’re in this together.”
Mr. Lake said he intended for Harvard’s club to join the National Collegiate Boxing Association, a nonprofit that provides structure and safety rules. The N.C.B.A. represents about 840 athletes, an 18 percent increase from a year ago, said the group’s president, George Chamberlain, who coaches the University of Iowa’s boxing club.
The well-attended fight night at Babson, which also included boxers from Brandeis University, reflected the growing interest.
Before it began, a volunteer passed out waiver documents. Most of the boxers immediately flipped to the end and signed. Mr. Jiang, of Harvard, appeared to be the only one who read it.
He was a mixed martial arts fan who resolved to try a combat sport in college. “I like the technique side of it,” Mr. Jiang said of boxing, “the science behind the sport.”
His fight plan, he explained, was to control the action with his jab and occasionally throw the right hand, to maintain good defense and try to tire out his opponent.
It seemed a solid strategy — though, as the heavyweight Mike Tyson famously noted, everyone has a plan until they get punched in the face.
News
Frontier Airlines plane hits person on runway during takeoff at Denver airport
A Frontier Airlines plane hit a person on the runway of Denver’s international airport during takeoff, sparking an engine fire and forcing passengers to evacuate, authorities said.
The plane, headed to Los Angeles, “reported striking a pedestrian during takeoff” at about 11.19pm on Friday, the Denver airport’s official X account wrote.
Neither the airport nor the airline has disclosed the person’s condition.
“We’re stopping on the runway,” the pilot of the plane involved told the control tower at one point, according to the site ATC.com. “We just hit somebody. We have an engine fire.”
The pilot told the air traffic controller they have “231 souls” on board – and that an “individual was walking across the runway”.
The air traffic controller responded that they were “rolling the trucks now” before the pilot told the tower they “have smoke in the aircraft”.
“We are going to evacuate on the runway,” the pilot added.
Frontier Airlines said in a statement that flight 4345 was the one involved in the collision – and that “smoke was reported in the cabin and the pilots aborted takeoff”. It was not clear whether the smoke was linked to the crash with the person.
The plane, an Airbus A321, “was carrying 224 passengers and seven crew members”, the airline said. “We are investigating this incident and gathering more information in coordination with the airport and other safety authorities.”
Passengers were then evacuated using slides, and the emergency crew bused them to the terminal.
Denver’s airport said the National Transportation Safety Board (NTSB) had been notified and that runway 17L – where the incident took place – will remain closed while an investigation is conducted.
Friday’s episode at Denver’s airport came one day after a Delta Airline employee died on Thursday night at Orlando’s international airport when a vehicle struck a jet bridge next to an airplane with passengers onboard, as the local news outlet WESH reported.
Meanwhile, on 3 May, a United Airlines plane arriving in Newark, New Jersey, from Venice, Italy, clipped a delivery truck and a light pole, which in turn struck a Jeep. Only the delivery truck driver was injured, but the plane was damaged extensively and the NTSB classified the case as an accident while also opening an investigation.
News
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