Daughter of Grand Island natives has rare genetic disorder

Brynn has a type of hypomyelating leukodystrophy, which leaves her bodily disabled. She doesn’t sit, stand, speak or stroll. She eats by a feeding tube.

Her case is one among solely about 20 at present found on the earth.

“Leukodystrophies are a gaggle of uncommon, genetic issues that have an effect on the white matter of the mind. If left untreated, it can progress, inflicting extra destruction to the white matter and worsening signs,” says a fundraising card.

Brynn’s mother and father each graduated from Northwest Excessive College in 2012. Dalton, 29, is within the Navy. Cassidy, 28, has a images enterprise.

Dalton’s stepmother is Angela Dowd of Boelus, who owns Dreisbach’s Steakhouse Meals. Grand Island’s well-known Dreisbach’s Steakhouse closed in 2002.

However Dowd nonetheless produces eight forms of salad dressings and au gratin potatoes beneath the Dreisbach’s identify.

A sticker with a QR code has been connected to these merchandise. Individuals who scan the code will be taught extra about Brynn, have a chance to donate to the household and purchase a T-shirt. You might also go to www.blueforbrynn.com or www.dreisbachsfood.com.

A portion of Dreisbach’s gross sales in September will go to the Division of Genetics and Dysmorphology at Rady Kids’s Hospital in San Diego.

In line with a narrative written by her mom, Brynn has had a number of hip surgical procedures, together with a serious surgical procedure in July 2021.

Brynn “has been by a lot in her 5 years,” her mom wrote. “She’s been hospitalized many instances and handles it like a real champ. She is a cheerful, social lady who loves princesses and sparkles like different kids her age. She loves faculty and her buddies. Brynn exhibits everybody how good she is by studying new issues each day and has her personal means of speaking together with her household and buddies. Brynn wants lots of medical consideration, tools and therapies to assist her dwell her happiest and finest life.”

In an interview, Cassidy stated her daughter likes being round individuals, youngsters and animals. She additionally likes being outside. She simply began dance class final week.

The household wish to convey consciousness to leukodystrophy, and hopefully assist discover a treatment. September is Leukodystrophy Consciousness Month.

Cassidy is the daughter of Corey and Joey Keezer. Joey, a pediatric nurse, works in California and lives with the Croots to assist handle Brynn. Cassidy’s stepmother is Wendy Keezer.

Angela Dowd produces eight forms of salad dressing — blue cheese being the most well-liked — and the au gratin potatoes in Grand Island. She leases area on the Chocolate Bar.

The merchandise are offered at many grocery shops, together with Tremendous Saver and Hy-Vee in Grand Island. Dowd additionally provides the Chocolate Bar with recent au gratin potatoes.

Dreisbach’s was began in 1932 by Ferd Dreisbach. Angela’s grandfather, Frank Dowd, purchased the place in 1944. The restaurant was later owned by Angela’s father, Pat, and aunt, Mary Jo Dowd. Angela’s mom, Suzanne, lives in Boelus.