South-Carolina
SC lawmaker wants to ensure paid parental leave covers stillbirths
COLUMBIA, S.C. (WIS) – A South Carolina lawmaker is asking the state’s attorney general to weigh in after grieving families claimed their requests for paid leave from work were denied following stillbirths.
Three years ago, the governor signed a bill into law that provides up to six weeks of paid family leave to state employees who welcome a new child via birth, adoption, or fostering.
The next year, it was expanded to also cover South Carolina’s public school teachers, through a bipartisan bill filed by Rep. Neal Collins, R – Pickens.
But recently, Collins found out at least three school districts in the state, which he declined to identify, had denied paid leave requests to employees who experienced stillbirths.
“It’s just a weird interpretation of the law to me,” he said. “The qualifying event is a birth, and to say a stillbirth is not a birth under this scenario, it goes against the intent of what I was trying to do.”
One of the groups that alerted Collins was the Palmetto State Teachers Association, which said these are limited instances but nonetheless concerning.
“Completely out of line with the spirit of the law,” said Patrick Kelly, PSTA’s director of government affairs. “The law was designed to support the experience of a new parent, both physically, mentally, emotionally. Second, it’s just inhumane.”
Kelly, who also teaches high school in Richland County, said decisions like these can hurt staff morale beyond the one employee.
“I don’t want to work in a district that doesn’t value their employees enough to come alongside them in what is one of the most tragic and heartbreaking things that a new mother can experience. Just put people first,” he said.
Collins said at least two of the districts have since changed their policies to say stillbirths are covered and granted the time off they initially declined.
“But even in that scenario, the mother came back before she otherwise would have,” he added.
Collins has asked for an opinion from South Carolina’s attorney general on whether parents who experience stillbirths are eligible for paid time off under the existing law.
He also plans to file legislation that would clarify it in state code, so no other grieving parents go through this confusion.
“I’m never too optimistic of what we’re going to do in Columbia, but I’m hopeful on this one,” Collins said.
Once that bill is filed, lawmakers can take it up for consideration when they return to the State House next January to begin a new legislative session.
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South-Carolina
Sickle Cell Day gathers advocates at South Carolina State House
COLUMBIA, S.C. (WACH) — Advocates, caregivers, patients, and community leaders gathered at the South Carolina State House on Friday for the inaugural South Carolina Sickle Cell Day.
Organizers said the event focused on raising awareness of sickle cell disease.
The South Carolina CBO Collective Caucus hosted the event at 10 a.m., coinciding with World Sickle Cell Day and Juneteenth.
Organizers said the gathering brought together healthcare professionals, legislators, advocates, and supporters from across the state to discuss education, support, and action related to sickle cell disease.
The program is designed to amplify the voices of individuals and families impacted by the disease and encourage conversations about healthcare access, advocacy, research, and community support, organizers said.
Attendees heard personal stories and learned about challenges faced by those living with sickle cell disease.
“World Sickle Cell Day is a powerful call to action for all of us,” said founder and CEO of The B Strong Group Brenda Green. She said the collaboration expands support, strengthens community response, and stands with affected families.
The B Strong Group, founded in 2017 and based in Columbia, is a nonprofit organization focused on sickle cell awareness, advocacy, and caregiver support.
The group organizes blood drives, caregiver workshops, and awareness campaigns under the motto “Educate, Advocate, Empower.”
South-Carolina
87-year-old South Carolina businessman says he has no plans to retire
An 87-year-old businessman in Columbia, South Carolina says he has no plans to retire.
Leonard Fabrizio works as a retailer at Brittons of Columbia, a locally-owned men’s clothing store.
“I’m not the type of person who can sit around by myself,” said Fabrizio. “I just enjoy the interaction and that’s the big thing, is the interaction with people. It’s always been the drive in this business for me, said Fabrizio.
Fabrizio’s retail career began as a college student when he worked at J.C. Penney. He has watched Columbia grow and has owned a store and managed several others.
His advice is to “Be patient. It takes time to build a business. It doesn’t happen overnight, but it’s rewarding. It’s fun. But you have to have compassion for the business.”
Fabrizio recently celebrated another birthday alongside those who have supported his career.
South-Carolina
South Carolina family raises awareness of rare Batten disease
(WPDE) — June 9 marked International Batten Disease Awareness Day, shining a light on a rare, inherited neurodegenerative disorder.
It primarily affects children and causes harmful waste material to build up inside the cells of the brain and nervous system.
One South Carolina family used the day to raise awareness as their 2-year-old son, Sam Stockton, lives with CLN2 Batten disease.
Sam was diagnosed at 16 weeks old, and his family says they travel every other week for enzyme-replacement therapy while also searching for clinical research opportunities.
Through Hope for Sam, the family is working to spread information about Batten disease and support other families facing rare diseases.
“Just the more you know about rare diseases, I never knew that over 300 million people worldwide live with rare diseases. And that means there’s less access to care because people aren’t researching it and not as many people have it. So the more information that’s out there, we feel is the better,” Jordan Stockton said.
There are 13 known types of Batten disease, and there is no cure. Researchers estimate the disease affects about two to four out of every 100,000 births in the United States.
The Stockton family says they have found support through the Batten Disease Support, Research and Advocacy Foundation, a nonprofit dedicated to helping families navigate the disease while providing resources.
More information and donation details are available at this link.
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