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Major Vermont brands create custom teddy bear to raise money for 4-year-old with rare disease

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Major Vermont brands create custom teddy bear to raise money for 4-year-old with rare disease


SOUTH HERO, VT – Several well-known Vermont brands are rallying around a four-year-old boy with a rare and devastating neurological disease.

Companies such as Orvis, Johnson Woolen Mill, Commando, and Simon Pearce have dressed and accessorized a four-foot teddy bear named “Henry Bear” in order to raise funds for the treatment of Henry Saladino.

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The Saladino family is hoping the bear can help raise money for Henry’s treatment.

Seeking treatment for rare neurological disease

WBZ-TV met Saladino in Boston in 2022 when his family first started seeking a treatment for his rare neurological disease called Alternating Hemiplegia of Childhood (AHC). Henry’s AHC causes weekly seizures and paralysis, which threaten to permanently damage his brain or take his life.

“One full day, every other week, life just stops, and we’re grounded with oxygen. And then, once a month, he also has a very big, very long seizure,” Henry’s mom, Mary Saladino, said.

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Since then, Henry’s family has embarked on the uphill climb to treat Henry’s illness with a therapy called an antisense oligonucleotide or ASO.

Scientists at the Yu Laboratory at Boston Children’s Hospital are producing ASO candidates, microscopic synthetic strands of DNA and/or RNA that bind to the genetic mutation that is producing the protein causing Henry’s disease.

“We are still optimizing the best ASO candidates and, at the same time, doing a screen in mice for toxicity,” Mary said.

The process is risky and costly. In all, the Saladinos must raise $3 million dollars to pay for drug development. They are just over halfway to their goal.

Brands create fundraiser for young boy

That is why Mary, a Vermont native, called Ashley Farland, a former celebrity chef turned Vermont home-furnishings designer and the founder of DandyLion. Mary asked Ashley to create a custom Henry pillow. Ashley decided to take things a step further.

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“I was like, yeah, I like this woman. We could definitely do better than a pillow,” Farland said.

Farland reached out to Vermont Teddy Bear, and the idea behind “Henry Bear” was born. More and more brands started accessorizing the bear, which has custom Commando jeans complete with “H’s” sewn into the pockets.

“I think Henry’s story resonates, and I think people are good,” Mary said.

On August 10, more than a dozen Vermont brands will join as part of Henry’s Village, a dinner and concert fundraiser to raise money for Henry’s treatment. The event will be held at Snow Farm Vineyard and Winery in South Hero, Vermont.

Henry will return the love the way he knows how.

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“He loves the Eric Carle book brown bear, so we said you’re going to have your own brown bear, and all these helpers are showing up for you, and his response was to look at the bear and give him a hand kiss,” Mary said.

For more information on Henry’s story, click here.

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Vermont Air National Guard joins Iran campaign – The Boston Globe

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Vermont Air National Guard joins Iran campaign – The Boston Globe


On a typical day, some of the 20 stealth fighter jets based in South Burlington, Vt., take off from tiny Burlington International Airport for training runs near the northern border. In recent months, they’ve flown much farther afield.

The Vermont Air National Guard’s 158th Fighter Wing was deployed in December to the Caribbean, where it took part in the US campaign to capture Venezuelan President Nicolás Maduro. Shortly thereafter, the squadron joined a military buildup in and around the Middle East to prepare for US and Israeli airstrikes against Iran.

Though both deployments had been widely reported, the military remained mum about the whereabouts of Vermont’s F-35A Lightning II jets. Even Governor Phil Scott, technically the commander of the Vermont Guard, said he only knew what he’d read in the news, given that US military leaders were directing the missions.

On Monday, General Dan Caine, chairman of the Joint Chiefs of Staff, confirmed the deployments at a Pentagon press conference about the war on Iran. Caine praised National Guard members from Vermont, Wisconsin, and elsewhere.

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“In the case of the Vermont Air National Guard and the 158th Fighter Wing, they were mobilized for Operation Absolute Resolve,” Caine said, referring to the Venezuela campaign. “And then were tasked to take their F-35As across the Atlantic instead of going home, to be prepared to support this operation” in the Middle East.

Much remains unknown about the Vermont Guard’s recent missions, including the precise role they played in Venezuela and Iran, where the jets are currently based, and how long they’ll remain.

The Guard did not immediately respond to requests for comment., Its recently elected leader, General Henry “Hank” Harder, said in a statement that the force was “proud of the dedicated and professional service of our Airmen” and pledged to support their families in the meantime.

“We will continue to carry out our commitment to these Vermont Service Members until, and long after, they return from this mission,” Harder said.

Vermont’s three-member congressional delegation, meanwhile, has praised Vermont Guard members for their service in Venezuela but has criticized President Trump’s campaigns there and in Iran, particularly absent congressional authorization.

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“The people of our country, no matter what their political persuasion, do not want endless war,” said Senator Bernie Sanders, an independent, echoing similar remarks from Senator Peter Welch and Representative Becca Balint, both Democrats. “We must not allow Trump to force us into another senseless war. No war with Iran.”


Paul Heintz can be reached at paul.heintz@globe.com. Follow him on X @paulheintz.





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In Vermont, small town meetings grapple with debate on big issues

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In Vermont, small town meetings grapple with debate on big issues


Tuesday is town meeting day in Vermont. Municipalities in New England and elsewhere are increasingly grappling with major national and international issues at the local level.

JOSEPH PREZIOSO/Getty Images


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If you haven’t lived in certain New England towns, it can be hard to fathom their centuries-old direct democracy-style Town Meetings, where everyday residents vote on mundane town business such as funding for schools, snow plows and road repairs.

These days, voters are also being asked to weigh in on national and international issues, for example, demanding the de-funding of ICE, and condemning “the unprovoked attack and start of an illegal and immoral war against Iran.” It’s all fueling a separate – and fierce– debate on what towns ought to be debating.

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“When you have people sleepwalking into an authoritarian regime, it’s up to us to sound the alarm,” insists Dan Dewalt, an activist in Newfane, Vermont, one of several communities where residents scrambled to draft a resolution against the Iran war in time for their annual Town Meeting on Tuesday.

Local resolutions are a uniquely effective tactic, activists and experts say, and they’re being used increasingly around New England and beyond, especially as national politics have become so polarized.

“People feel isolated, helpless and hopeless. And when you hear about other people who are just like you taking a stand and representing something that you believe, that gives you not only hope, but it gives you power,” said Dewalt.

Several other Vermont towns will be considering resolutions Tuesday calling for the removal of the president and vice president “for crimes against the U.S. Constitution,” while many others will vote on a pledge to ” to end all support of Israel’s apartheid policies, settler colonialism, and military occupation and aggression.”

A similar divestment resolution passed 46 -15 in Newfane last year, following hours of heated argument over the plight of Palestinians, the security of Israelis, the “inflammatory” language of the resolution – and whether such problems half-a-world away even belong on the agenda of the tiny town of just about 1,650.

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“It’s a Town Meeting for town issues,” Newfane resident Walter Hagadorn declared at a recent Select Board meeting, where residents pressed board members to block any future resolutions not directly related to town business.

“You shouldn’t be subject to hours and hours of people virtue signaling” and trying to “hijack Town Meeting,” Hagadorn said.

Others agreed, suggesting activists host a debate on their issues at another time and place, or stage a rally or protest instead.

But Select Board member Katy Johnson-Aplin pushed back, saying that would not have the same impact.

“It doesn’t work the same way,” Johnson-Aplin said. It’s only when the issue is formally taken up at a Town Meeting that “it goes in the newspaper and it’s recorded that the town of Newfane has agreed to have this conversation.”

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University of Pennsylvania political science professor Daniel Hopkins has been watching the growing movement of local communities taking a stand on issues far beyond town lines.

“This is a trend we’re seeing increasingly across the 50 states and in a variety of ways but I think it has taken on a new and potentially more concerning edge,” Hopkins said. “I worry that we are in an attention-grabbing, sensation-rewarding media environment in which the kinds of issues that engage us at a national level may further polarize states and localities and make it harder for them to build meaningful coalitions on other issues.”

Indeed, in Newfane, the resolution regarding Israel became so divisive that some residents decided not to even come to last year’s Town Meeting, according to Select Board vice-chair Marion Dowling.

In Burlington, where a similar resolution was proposed, City Council President Ben Traverse says things got so heated, he and his family were getting harassing phone calls and even death threats. Burlington city councilors voted in January to block the question from going to a popular vote.Vermont has a history of “big issue” resolutions, from the push for a Nuclear Arms Freeze in the 1980’s, to calls to ban genetically modified foods in 2003. Dewalt, the Newfane activist, was behind several of them, including calls to impeach then-president George W. Bush in 2006, which got him invited to talk about it on network TV shows, and quoted in The New York Times.

“I can guarantee you if I stood up on my soap box and made a declaration of the exact same wording, I wouldn’t have had anybody asking me questions about it, he said. “We’re not pie-in-the-sky here about the power of our Newfane Town Meetings, but our actions have consistently had an impact.”

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But opponents say activists overstate the impact of their resolutions, and their victory. They say it’s disingenuous, for example, to claim the town of Newfane supported the resolution against Israel, when the winning majority of 46 people was less than 3% of town residents.

“I feel like they’re using the town as a vehicle for their personal messages and that bothers me,” says Newfane resident Cris White. “It’s so junior high.”

Traverse, the Burlington City Council president, also takes issue with what he calls the “inflammatory” language of that resolution.

“The question, as presented, approaches this issue in a one-sided and leading way,” Traverse says.

In Vermont, any registered voter can get a resolution on the Town Meeting agenda by collecting signatures from 5% of their town’s voters. While elected city or town officials have the authority to allow or block the resolution, there is no process in place to vet or edit language.

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Traverse says it would behoove city leaders and voters to require an official review to ensure that language is fair and neutral, just as many states do with ballot questions. Traverse says he’s not opposed to contentious, big issue resolutions being put to local voters, but the language must be clear and even-handed.



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Vermont high school playoff scores, results, stats for Monday, March 2

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Vermont high school playoff scores, results, stats for Monday, March 2


The 2025-2026 Vermont high school winter season has begun. See below for scores, schedules and game details (statistical leaders, game notes) from basketball, hockey, gymnastics, wrestling, Nordic/Alpine skiing and other winter sports.

TO REPORT SCORES

Coaches or team representatives are asked to report results ASAP after games by emailing sports@burlingtonfreepress.com. Please submit with a name/contact number.

Contact Alex Abrami at aabrami@freepressmedia.com. Follow him on X, formerly known as Twitter: @aabrami5.

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Contact Judith Altneu at JAltneu@usatodayco.com. Follow her on X, formerly known as Twitter: @Judith_Altneu.

MONDAY’S H.S. PLAYOFF GAMES

ALPINE SKIING

State championships (giant slalom) at Burke Mountain

D-I GIRLS BASKETBALL SEMIFINALS

At Patrick Gym

No. 2 Rutland (19-2) vs. No. 3 St. Johnsbury (16-5), 6 p.m.

No. 1 Mount Mansfield (20-1) vs. No. 4 North Country (19-3), 7:30 p.m.

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D-IV GIRLS BASKETBALL SEMIFINALS

At Barre Auditorium

No. 1 Richford (19-2) vs. No. 4 Mid Vermont Christian (6-2), 5:30 p.m.

No. 3 West Rutland (14-8) vs. No. 7 Rivendell (12-10), 7:30 p.m.

D-I BOYS BASKETBALL PLAYDOWNS

Games at 7 p.m. unless noted

No. 13 North Country (3-17) at No. 4 Rutland (14-6)

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No. 12 Essex (4-16) at No. 5 Champlain Valley (12-8)

No. 10 St. Johnsbury (5-15) at No. 7 Burr and Burton (12-8)

No. 11 Colchester (5-15) at No. 6 BFA-St. Albans (12-8)

D-III BOYS BASKETBALL PLAYDOWNS

No. 11 BFA-Fairfax (10-10) at No. 6 Thetford (12-8), 7 p.m.

D-IV BOYS BASKETBALL PLAY-INS

No. 17 Sharon (3-17) at No. 16 Long Trail (4-16), 6 p.m.

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TUESDAY’S H.S. PLAYOFF GAMES

ALPINE SKIING

State championships (slalom) at Burke Mountain

D-II GIRLS HOCKEY PLAY-INS

No. 9 Brattleboro (0-17-1) at No. 8 Stowe (4-16), 5:15 p.m.

D-I BOYS HOCKEY PLAY-INS

No. 8 Burlington (8-12) at No. 9 St. Johnsbury (3-16-1), 5:30 p.m.

D-II BOYS BASKETBALL PLAYDOWNS

No. 13 Lake Region (4-16) at No. 4 Montpelier (11-9), 7 p.m.

D-IV BOYS BASKETBALL PLAYDOWNS

Games at 7 p.m. unless noted

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No. 9 Arlington (11-9) at No. 8 Richford (12-8), 6 p.m.

Winner Game 1 at No. 1 Twinfield/Cabot (19-1)

No. 13 Grace Christian (4-15) at No. 4 Mount St. Joseph (17-2)

No. 12 Poultney (6-14) at No. 5 Twin Valley (16-4)

No. 15 Blue Mountain (3-17) at No. 2 West Rutland (20-0)

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No. 10 Proctor (11-9) at No. 7 Danville (14-6)

No. 14 Northfield (3-17) at No. 3 Mid Vermont Christian (2-0)

No. 11 Rivendell (10-10) at No. 6 Williamstown (14-6)

(Subject to change)





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