Illinois
Illinois children with complex medical needs receive fraction of care they qualify for, records show
CHICAGO (CBS) – More than 1,000 Illinois children need some extra help eating or even breathing, or what the state considers “medically complex” and “technology dependent.”
Illinois is federally required to provide these kids and their families with resources, but a CBS 2 investigation found the state is routinely falling short.
Sarah loves to play. Her bedroom was filled with small things that bring her joy and big pieces of equipment that keep her stable.
“She can’t walk. She can’t talk. She can’t sit independently,” said Amy Weston, Sarah’s mother.
The 7-year-old girl also needs help breathing. She has cords to monitor her heart rate and uses a feeding pump.
It’s just some of Sarah’s medical supplies. They’re all necessary after she had a traumatic brain injury as a baby before the Westons adopted her.
“She needs 24/7 supervision,” Weston said. “I always say it’s like having a newborn but with super high stakes.”
The rest of the family does their best to help care for Sarah, but Amy is left with most daily tasks, and she’s burned out.
“It’s a privilege and an honor to take care of Sarah, and I wouldn’t trade it for the whole world, but even the state says it’s not a one-man job,” Weston said.
She referenced the Illinois Department of Healthcare and Family Services, which said Sarah is qualified for in-home shift nursing. She was approved to receive 112 hours per week but only has 44 hours covered, less than 40%.
It’s a gap the Johnsburg mother is forced to fill.
“It’s not sustainable,” she said. “I mean, definitely, your own self-care suffers. Your mental health suffers. Your sleep suffers. Your whole family suffers.”
Someone else who knows the feeling is an Elk Grove Village father who spends every night on a twin bed to monitor his daughter’s breathing. The state routinely hasn’t been able to fulfill more than 20% of the hours allotted to the family, so dad is the de facto night nurse.
The Rizos from west suburban Montgomery were also exhausted.
“Without somebody monitoring him 24/7, it could be drastic,” said Carly Rizo about her son.
Despite being cleared by doctors, 1-year-old Nicholas Rizo was forced to stay in the hospital because the state couldn’t find him enough home care nurses. CBS 2 first told their story last June.
“Two months almost that he’s been able to go home,” said Eric, Nicholas’ dad.
Four months after CBS 2 spoke to the Rizos, Nicholas was happy at home with his family. His parents, on the other hand, said it’s been a little rough because Nicholas was getting nowhere near the state’s allowance of 126 hours of home care a week. Without a night nurse, one of his parents is forced to stay awake until 2:30 a.m., and then an alarm goes off for them to swap.
Records obtained by CBS 2 revealed the state approved about $306 million from September 2022 to September 2023 of home care coverage. But only $115 million, less than 40%, was used for a variety of reasons.
The Westons and other families said they’ve grown accustomed to their needs not being met.
Reporter: “How often are you asking for additional nursing help?”
Weston: “At the beginning, a lot. You kind of get to the point where, like, I’m just not going to get any help, so this is just my life.”
A lack of home care nursing is not a new problem. In fact, a group of parents raising “medically complex” children sued the state over the issue in 2015.
On Friday night at 10 p.m., CBS 2 will look into a new state solution and ask if it’s really going to help exhausted families like the Westons.
CBS 2 never heard back on a request for a sit-down interview with the new director of the Illinois Department of Healthcare and Family Services, Elizabeth Whitehorn.
In a statement, a department spokesperson said, “The Department is deeply committed to serving the Medicaid population. And while labor market challenges during the pandemic have created strain across the health care system, the Department is continuing to identify solutions to address ongoing capacity issues, including implementing recent rate increases, among other improvements.”
Illinois
Advocates, opponents seek to sway Gov. JB Pritzker on medical aid in dying legislation passed by Illinois General Assembly
Illinois could soon join a growing list of states where terminally ill patients would be allowed to take life-ending medication prescribed by a doctor.
The Illinois Senate narrowly approved the “medical aid in dying” legislation in October, after the Illinois House passed it in May, and the legislation is now sitting on Gov. JB Pritzker’s desk.
Pritzker has not said if he’ll sign it, and the controversial legislation has people on both sides trying to bend the governor’s ear.
Medical aid in dying, also called assisted suicide or dying with dignity, is legal in 12 states, with eight others considering similar legislation.
If Pritzker allows the “End-of-Life Options for Terminally Ill Patients Act” passed by the Illinois General Assembly to become law, Illinois could be the first state in the Midwest to allow medical aid in dying.
Suzy Flack, whose son Andrew died of cancer, is among the advocates urging the governor to sign the bill.
Diagnosed with terminal cancer in 2017 in his home state of Illinois, three years later Andrew moved to California, where medical aid in dying is legal, and chose to end his life in 2022.
“He died on his own terms, peacefully. We were all there to see it and embrace him at that moment, and it was really a beautiful thing,” Suzy said. “His last words were, ‘I’m happy. Please sign this. Allow people in Illinois this option.’”
Illinois is on the brink of joining a growing number of states that allow doctors to prescribe a mixture of lethal medication for terminally ill patients.
Outside the governor’s Chicago office on Thursday, many disability advocates, religious leaders, lawmakers, and doctors have called on Pritzker to veto the bill that would legalize what they call state-sanctioned suicide
“The question becomes where do you draw the line in the medical ethics dilemmas?” one physician who identified himself as Dr. Pete said. “We don’t need to go to this crossing of a red line of actually providing a means to directly end life.”
Republican Illinois state Sen. Chris Balkema said he “would really appreciate it if the governor would veto this bill.”
“My plea is that we veto this; come back with language that is constructive on both sides,” he said.
Pritzker has he is reviewing the legislation and is listening to advocates on both sides before deciding whether to sign it.
“It’s a hard issue, and I don’t want anybody to think making up your mind about this is very easy. It’s not. There’s a lot to consider, but most of all it’s about compassion,” he said. “There’s evidence and information on both sides that leads me to think seriously about what direction to go.”
The Illinois legislation would require two doctors to determine that a patient has a terminal disease and will die within six months. The medication provided to terminally ill patients would need to be requested both orally and in written form, and would have to be self-administered.
The bill was sent to Pritzker on Nov. 25, and he has 60 days from then to either sign it, amend it and send it back to lawmakers, veto it, or allow it to become law without his signature.
Illinois
Two rounds of snow on the way to central Illinois – IPM Newsroom
Snow is making a comeback in Central Illinois.
IPM meteorologist Andrew Pritchard said A Winter Weather Advisory is in effect for Champaign County and surrounding portions of east-central Illinois beginning Thursday at 3:00 p.m. to Friday at 6:00 a.m.
Snow will spread into Champaign-Urbana between 3-6 PM late this afternoon into the evening with periods of moderate to heavy snowfall continuing overnight. Snow should taper off around sunrise on Friday morning, with around 2-4″ of new snow accumulation expected across Champaign County.
Winds will blow out of the east around 5-10 mph, with minimal impacts from blowing & drifting snow. Still, snow accumulation on roadways could lead to hazardous travel conditions overnight into the Friday morning commute.
On Saturday, the National Weather Service in Central Illinois forecasted for snow to return on Saturday afternoon. The chance of precipitation is 80%. New snow accumulation of 2 to 4 inches possible. Temperatures will drop below zero across much of central Illinois both Saturday night and Sunday night with resulting wind chill values as cold as 15 to 30 below zero.
Illinois
Woman facing charges 5 years after infant’s remains found in north suburbs, police say
RIVERWOODS, Ill. (WLS) — A woman is facing charges five years after the discovery of a dead newborn in the north suburbs.
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Riverwoods, Illinois police say Natalie Schram gave birth to the baby in May 2020 and then dumped the baby’s body in a wooded area in the 1800 block of Robinwood Lane.
Schram was arrested earlier this month in Washington State and has now bee charged in connection to the crime, police said.
SEE ALSO | 2 charged after infant’s remains found buried at Wilmington home, Will County sheriff says
The suspect is expected to appear in a Lake County, Illinois courtroom on Thursday.
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