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Illinois children with complex medical needs receive fraction of care they qualify for, records show

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Illinois children with complex medical needs receive fraction of care they qualify for, records show


CHICAGO (CBS) – More than 1,000 Illinois children need some extra help eating or even breathing, or what the state considers “medically complex” and “technology dependent.”

Illinois is federally required to provide these kids and their families with resources, but a CBS 2 investigation found the state is routinely falling short.

Sarah loves to play. Her bedroom was filled with small things that bring her joy and big pieces of equipment that keep her stable.

“She can’t walk. She can’t talk. She can’t sit independently,” said Amy Weston, Sarah’s mother.

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The 7-year-old girl also needs help breathing. She has cords to monitor her heart rate and uses a feeding pump.

More than 1,000 Illinois children need some extra help eating or even breathing, or what the state considers “medically complex” and “technology dependent.” Illinois is federally required to provide these kids and their families with resources, but a CBS 2 investigation found the state is routinely falling short.

Sarah Weston


It’s just some of Sarah’s medical supplies. They’re all necessary after she had a traumatic brain injury as a baby before the Westons adopted her.

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“She needs 24/7 supervision,” Weston said. “I always say it’s like having a newborn but with super high stakes.”

The rest of the family does their best to help care for Sarah, but Amy is left with most daily tasks, and she’s burned out.

“It’s a privilege and an honor to take care of Sarah, and I wouldn’t trade it for the whole world, but even the state says it’s not a one-man job,” Weston said.

She referenced the Illinois Department of Healthcare and Family Services, which said Sarah is qualified for in-home shift nursing. She was approved to receive 112 hours per week but only has 44 hours covered, less than 40%.

It’s a gap the Johnsburg mother is forced to fill.

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“It’s not sustainable,” she said. “I mean, definitely, your own self-care suffers. Your mental health suffers. Your sleep suffers. Your whole family suffers.”

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More than 1,000 Illinois children need some extra help eating or even breathing, or what the state considers “medically complex” and “technology dependent.” Illinois is federally required to provide these kids and their families with resources, but a CBS 2 investigation found the state is routinely falling short.

Sarah Weston


Someone else who knows the feeling is an Elk Grove Village father who spends every night on a twin bed to monitor his daughter’s breathing. The state routinely hasn’t been able to fulfill more than 20% of the hours allotted to the family, so dad is the de facto night nurse.

The Rizos from west suburban Montgomery were also exhausted.

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“Without somebody monitoring him 24/7, it could be drastic,” said Carly Rizo about her son.

Despite being cleared by doctors, 1-year-old Nicholas Rizo was forced to stay in the hospital because the state couldn’t find him enough home care nurses. CBS 2 first told their story last June.

“Two months almost that he’s been able to go home,” said Eric, Nicholas’ dad.

Four months after CBS 2 spoke to the Rizos, Nicholas was happy at home with his family. His parents, on the other hand, said it’s been a little rough because Nicholas was getting nowhere near the state’s allowance of 126 hours of home care a week. Without a night nurse, one of his parents is forced to stay awake until 2:30 a.m., and then an alarm goes off for them to swap.

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The Rizo family was sad to be celebrating their son’s birthday, in the hospital, when he doesn’t need to be there. CBS 2’s Lauren Victory explained the difficulties of finding a nurse for Nicholas.

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CBS


Records obtained by CBS 2 revealed the state approved about $306 million from September 2022 to September 2023 of home care coverage. But only $115 million, less than 40%, was used for a variety of reasons.

The Westons and other families said they’ve grown accustomed to their needs not being met.

Reporter: “How often are you asking for additional nursing help?”

Weston: “At the beginning, a lot. You kind of get to the point where, like, I’m just not going to get any help, so this is just my life.”

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A lack of home care nursing is not a new problem. In fact, a group of parents raising “medically complex” children sued the state over the issue in 2015.

On Friday night at 10 p.m., CBS 2 will look into a new state solution and ask if it’s really going to help exhausted families like the Westons.

CBS 2 never heard back on a request for a sit-down interview with the new director of the Illinois Department of Healthcare and Family Services, Elizabeth Whitehorn.

In a statement, a department spokesperson said, “The Department is deeply committed to serving the Medicaid population. And while labor market challenges during the pandemic have created strain across the health care system, the Department is continuing to identify solutions to address ongoing capacity issues, including implementing recent rate increases, among other improvements.”

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Darren Bailey proposes ‘Illinois DOGE’ as Republican governor’s race focuses on spending

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Darren Bailey proposes ‘Illinois DOGE’ as Republican governor’s race focuses on spending


SPRINGFIELD, Ill. — President Donald Trump’s and Elon Musk’s Department of Government Efficiency disbanded less than a year into Trump’s second term and appeared to have caused more chaos than actual savings to the federal government.

But Illinois Republican candidate for governor Darren Bailey says a DOGE-like system can achieve savings and efficiencies in Illinois’ budget.

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“It needs to be broken down,” Bailey told reporters at a news conference at the Statehouse Thursday in Springfield. “It needs to be audited. It needs to be opened up so that people know where the money’s coming from. I am very confident there are going to be a lot of waste discovery in that.”

Bailey also announced a plan to address cost-of-living issues and other areas that relies on DOGE-style governing to achieve results. The commission under a Bailey governorship would be led by his running mate, Aaron Del Mar.

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Bailey and Del Mar did not specify any cuts they’ve already identified but stressed it would not be a tool to lay off large numbers of state employees or make cuts based on partisan politics – a difference from Trump’s and Musk’s approach.

“We’re not going in here with a chainsaw,” Del Mar said. “We’re going in here with an X-Acto knife. We are doing this as a purely public policy effort. This is not politically driven.”

Musk waived a chainsaw on stage at a conservative event last year, symbolizing his wide-ranging approach to government cuts. He later had a falling out with Trump and left government service.

Bailey and Del Mar suggested numerous state boards and commissions deserve more scrutiny, and any jobs or services that are duplicative could be consolidated.

A spokesperson for Gov. JB Pritzker said he doesn’t trust the Bailey campaign’s approach.

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“He echoes Trump’s lies, copies Trump’s dangerous ideas, and wants to bring Trump’s chaos to Illinois,” Alex Gough said in an email. “Make no mistake: Bailey is running with Trump, embracing the same dysfunction and broken promises that have repeatedly failed working families.”

Bailey said he is not concerned about naming something “DOGE” after the scrutiny the program received in the Trump administration.

“People understand what it means,” Bailey said. “They’re going to have to get over the federal situation and we’re going to understand we have our own problems in Illinois. I am my own person, and I have proven that, regardless of who I like, who I support.”

Bailey received Trump’s endorsement during his unsuccessful 2022 campaign and said on Thursday he is willing to accept it again.

Bailey’s priorities

Beyond the DOGE plan, the former state legislator from Clay County is proposing a series of initiatives he hopes will address affordability.

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Topping that list is utility prices, which have increased substantially throughout the state. Bailey said he would repeal the 2021 Climate and Equitable Jobs Act that many Republicans blame for rising prices and dwindling supply. He also wants to require independent audits of major utility contracts.

Bailey said he would cap annual property tax rates to not exceed a person’s mortgage rate. In response, he said the state would do more to fund education but did not elaborate on how much he would increase spending for public schools to help them rely less on property taxes.

“Classrooms should focus on education, not political agendas,” Del Mar said. “The blueprint prioritizes strong instruction in reading, writing, math, science and civics. It supports parental involvement.”

Child care spending

The Trump administration has already tried slashing some spending in Illinois. Most recently on Tuesday, the federal government cut off what Pritzker’s office estimates is $1 billion in federal aid for child care and other family assistance programs to Illinois. The Trump administration claimed without evidence that the freeze was in response to “widespread fraud and misuse of taxpayer dollars” in Illinois and four other Democrat-led states.

“I think it’s fair for any administration to demand accountability,” Bailey said when asked whether he agrees with the administration’s decision.

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One of Bailey’s opponents, conservative researcher Ted Dabrowski, is also trying to score political points on the Trump administration’s claims and a fraud scandal in Minnesota’s human services programs.

Dabrowski held a news conference in Chicago on Tuesday warning massive spending on child care programs in Illinois could be a sign of fraud like Minnesota. But he acknowledged he had no evidence there had been any wrongdoing in Illinois. He suggested there should be audits to see why child care spending has grown in Illinois in recent years.

Funding child care and preschool programs throughout Illinois has been one of Pritzker’s top priorities during his second term and he has included several spending increases for the programs in recent budgets. He took office in the wake of a historic two-year budget impasse between Republican Gov. Bruce Rauner and Democrats in the General Assembly that was accompanied by massive spending cuts to social services.

First poll of the race

The first poll of the Republican primary for governor by Emerson College was released Thursday by WGN and showed Bailey has a strong lead in the primary.

Bailey received support from 34.4% of voters in the poll of 432 likely GOP primary voters conducted Jan. 3-5. No other candidate cracked 10%, with Dabrowski coming in second at 8.2%.

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DuPage County Sheriff James Mendrick was at 5.4% and businessman Rick Heidner was at 1.1%. While Bailey holds a strong lead less than a month before early voting begins on Feb. 5 for the March 17 primary, 46.4% of voters were still undecided.

The GOP field was whittled down to four candidates on Thursday after the State Board of Elections ruled Gregg Moore and Joseph Severino did not submit enough valid signatures to remain on the ballot.

The economy was the top issue in the larger poll of 1,000 likely primary voters for 40.4% of respondents followed by health care and threats to democracy, each around 12%.

Pritzker’s approval rate is 50.6%, according to the poll.

Capitol News Illinois is a nonprofit, nonpartisan news service that distributes state government coverage to hundreds of news outlets statewide. It is funded primarily by the Illinois Press Foundation and the Robert R. McCormick Foundation.

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Johnson scores 14, UIC takes down Southern Illinois 70-57

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Johnson scores 14, UIC takes down Southern Illinois 70-57


Thursday, January 8, 2026 4:14AM

CHICAGO — – Andy Johnson’s 14 points helped UIC defeat Southern Illinois 70-57 on Wednesday night.

Johnson had five rebounds for the Flames (6-10, 1-4 Missouri Valley Conference). Ahmad Henderson II added 13 points and Elijah Crawford scored 11.

Damien Mayo Jr. led the way for the Salukis (8-9, 2-4) with 17 points, five assists, two steals and two blocks. Jalen Haynes added seven points for Southern Illinois. Rolyns Aligbe had six points and two blocks.

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UIC took the lead with 14:56 left in the first half and did not trail again. Henderson scored nine points in the first half to help put the Flames up 31-21 at the break.

——

The Associated Press created this story using technology provided by Data Skrive and data from Sportradar.br/]

Copyright © 2026 ESPN Internet Ventures. All rights reserved.



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Illinois Democrats express outrage, seek full investigation into ICE fatal shooting of Minnesota woman

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Illinois Democrats express outrage, seek full investigation into ICE fatal shooting of Minnesota woman


Illinois Democrats are demanding a full investigation into the death of a woman at the hands of an Immigration and Customs Enforcement agent in Minneapolis, with some calling it a “murder” and an “execution.”

The woman was fatally shot Wednesday during a traffic stop in a residential neighborhood just south of downtown Minneapolis. Homeland Security Secretary Kristi Noem called it “an act of domestic terrorism” by a woman who “attempted to run them over and rammed them with her vehicle.”

Noem said an officer “acted quickly and defensively, shot, to protect himself and the people around him.”

Videos taken by witnesses show an officer approaching an SUV stopped across the middle of the road, demanding the driver open the door and grabbing the handle. The Honda Pilot begins to pull forward and a different ICE officer standing in front of the vehicle pulls his weapon and immediately fires at least two shots into the vehicle at close range, jumping back as the vehicle moves toward him, according to the Associated Press. It’s unclear whether the vehicle made contact with the officer.

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The woman, whose name wasn’t immediately released, is at least the fifth death linked to the Trump administration’s immigration enforcement operations. Silverio Villegas González died on Sept. 12 after being shot as he allegedly tried to flee from ICE agents in suburban Franklin Park. Body camera footage first obtained by the Chicago Sun-Times shows the federal agent telling local police he was “dragged a little bit.” Speaking over the radio, his partner relays the agent suffered “a left knee injury and some lacerations to his hands.”

Villegas González had no criminal history, but DHS has said he had “a history of reckless driving” and was in the country without legal status.

U.S. Rep. Jesus “Chuy” Garcia said he is “heartbroken and outraged” by what he called a “murder.” U.S. Rep. Jonathan Jackson called it “an execution in our streets.”

“This tragedy occurred less than a mile from the hallowed ground where George Floyd was murdered during Donald Trump’s first term,” Jackson said in a statement. “It is a chilling and devastating reminder that the cycle of state-sanctioned violence against our communities has not only continued but has been weaponized under this administration’s ‘Operation Metro Surge.’”

Sen. Tammy Duckworth is calling for an immediate investigation into the ICE officer who fired the shot. She wrote on X, “ICE is clearly not making us safer. This needs to stop.” And Sen. Dick Durbin called the death “tragic, heartbreaking and enraging” but urged protesters to “remain peaceful.”

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“A full investigation must be completed so the truth can be revealed,” Durbin said in a statement. “Video of the incident starkly contradicts DHS’s narrative, and the fact that DHS has jumped to characterize this shooting in ‘self-defense’ is rushed, at best, and a lie, at worst.”

Three top Democrats vying to replace Durbin in the March 17 primary all said they would push for answers about the death.

U.S. Rep. Raja Krishnamoorthi said he will be “demanding full answers and accountability from the Trump administration” over a “horrific loss of life.”

“This is Donald Trump’s America: a woman is dead because ICE is operating with impunity in our neighborhoods,” Krishnamoorthi said in a statement. “…When federal agents are unleashed without restraint or oversight, the consequences are deadly — and the responsibility for this killing is on their hands.”

U.S. Rep. Robin Kelly evoked Villegas’ death in commenting on the Minnesota shooting.

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“The city of Chicago knows all too well that DHS Secretary Kristi Noem only lies. After the deadly shooting of Silverio Villegas González during a traffic stop, Secretary Noem tried to hide the truth, but bodycam footage disproved injuries sustained by the ICE officer,” Kelly said. “The Minneapolis Mayor has already said that video disputes Secretary Noem’s claims. It’s clear that to achieve public safety, ICE must leave our cities immediately.”

Lt. Gov. Juliana Stratton called the shooting “horrific.”

“Rejecting authoritarianism should not be a death sentence in the United States of America,” Stratton said. “We need answers and we need ICE out of our communities.”

Rep. Brad Schneider called the fatal shooting “a stain on our entire nation.”

“Sending strength to the Minneapolis community. Chicagoland knows all too well the trauma and terror Trump’s chaotic immigration operations bring to otherwise peaceful communities,” Schneider said. “Our President should be making America and Americans safer. He is failing.”

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