World
Sickle cell patient offers hope to Ugandan community where disease is prevalent
- Barbara Nabulo, a sickle cell disease patient, has emerged as a dedicated advocate for others facing the same condition in rural Uganda.
- Despite her own challenges with the disease, Nabulo serves as a counselor to fellow patients, offering them encouragement and hope.
- Nabulo regularly visits sickle cell patients in the hospital ward, providing them with guidance and reassurance.
Barbara Nabulo was one of three girls in her family. But when a sister died, her mother wailed at the funeral that she was left with just one and a half daughters.
The half was the ailing Nabulo, who at age 12 grasped her mother’s meaning.
“I hated myself so much,” Nabulo said recently, recalling the words that preceded a period of sickness that left her hospitalized and feeding through a tube.
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The scene underscores the lifelong challenges for some people with sickle cell disease in rural Uganda, where it remains poorly understood. Even Nabulo, despite her knowledge of how the disease weakens the body, spoke repeatedly of “the germ I was born with.”
Barbara Nabulo cleans clothes at her home in Busamaga-Mutukula village in Mbale, Uganda, on April 25, 2024. Nabulo, a sickle cell disease patient, has emerged as a dedicated advocate for others facing the same condition. (AP Photo/Hajarah Nalwadda)
Sickle cell disease is a group of inherited disorders in which red blood cells — normally round — become hard, sticky and crescent shaped. The misshapen cells clog the flow of blood, which can lead to infections, excruciating pain, organ damage and other complications.
The disease, which can stunt physical growth, is more common in malaria-prone regions, notably Africa and India, because carrying the sickle cell trait helps protect against severe malaria. Global estimates of how many people have the disease vary, but some researchers put the number between 6 million and 8 million, with more than 5 million living in sub-Saharan Africa.
The only cure for the pain sickle cell disease can cause is a bone marrow transplant or gene therapies like the one commercially approved by the U.S. Food and Drug Administration in December. A 12-year-old boy last week became the first person to begin the therapy.
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Those options are beyond the reach of most patients in this East African nation where sickle cell disease is not a public health priority despite the burden it places on communities. There isn’t a national database of sickle cell patients. Funding for treatment often comes from donor organizations.
In a hilly part of eastern Uganda that’s a sickle cell hot spot, the main referral hospital looks after hundreds of patients arriving from nearby villages to collect medication. Many receive doses of hydroxyurea, a drug that can reduce periods of severe pain and other complications, and researchers there are studying its effectiveness in Ugandan children.
Nabulo, now 37, is one of the hospital’s patients. But she approaches others like her as a caregiver, too.
After dropping out in primary school, she has emerged in recent years as a counselor to fellow patients, speaking to them about her survival. Encouraged by hospital authorities, she makes weekly visits to the ward that has many children watched over by exhausted-looking parents.
Nabulo tells them she was diagnosed with sickle cell disease at two weeks old, but now she is the mother of three children, including twins.
Such a message gives hope to those who feel discouraged or worry that sickle cell disease is a death sentence, said Dr. Julian Abeso, head of pediatrics at Mbale Regional Referral Hospital.
Some men have been known to divorce their wives — or neglect them in search of new partners — when they learn that their children have sickle cell disease. Frequent community deaths from disease complications reinforce perceptions of it as a scourge.
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Nabulo and health workers urge openness and the testing of children for sickle cell as early as possible.
Abeso and Nabulo grew close after Nabulo lost her first baby hours after childbirth in 2015. She cried in the doctor’s office as she spoke of her wish “to have a relative I can call mine, a descendant who can help me,” Abeso recalled.
“At that time, people here were so negative about patients with sickle cell disease having children because the complications would be so many,” the doctor said.
Nabulo’s second attempt to have a child was difficult, with some time in intensive care. But her baby is now a 7-year-old boy who sometimes accompanies her to the hospital. The twin girls came last year.
Speaking outside the one-room home she shares with her husband and children, Nabulo said many people appreciate her work despite the countless indignities she faces, including unwanted stares from people in the streets who point to the woman with “a big head,” one manifestation in her of the disease. Her brothers often behave as if they are ashamed of her, she said.
Once, she heard of a girl in her neighborhood whose grandmother was making frequent trips to the clinic over an undiagnosed illness in the child. The grandmother was hesitant to have the girl tested for sickle cell when Nabulo first asked her. But tests later revealed the disease, and now the girl receives treatment.
“I go to Nabulo for help because I can’t manage the illness affecting my grandchild,” Kelemesiya Musuya said. “She can feel pain, and she starts crying, saying, ‘It is here and it is rising and it is paining here and here.’”
Musuya sometimes seeks reassurance. “She would be asking me, ‘Even you, when you are sick, does it hurt in the legs, in the chest, in the head?’ I tell her that, yes, it’s painful like that,” Nabulo said.
Nabulo said she was glad that the girl, who is 11, still goes to school.
The lack of formal education is hurtful for Nabulo, who struggles to write her name, and a source of shame for her parents, who repeatedly apologize for letting her drop out while her siblings studied. One brother is now a medical worker who operates a clinic in a town not far away from Nabulo’s home
“I am very happy to see her,” said her mother, Agatha Nambuya.
She recalled Nabulo’s swelling head and limbs as a baby, and how “these children used to die so soon.”
But now she knows of others with sickle cell disease who grew to become doctors or whatever they wanted to be. She expressed pride in Nabulo’s work as a counselor and said her grandchildren make her feel happy.
“At that time,” she said, recalling Nabulo as a child, “we didn’t know.”
WASHINGTON (AP) — Mark Schiefelbein has been based in Washington, D.C., with AP for about three years, and before that spent a decade in Beijing at AP’s China bureau.
Here’s what he had to say about this extraordinary photo.
Why this photo?
This was an event that had never happened before in the 250-year history of the United States and may never happen again: a night of mixed martial-arts cage match brawls on the South Lawn of the White House, with bloodied competitors battling it out in front of the president, vice president, and other leaders of the country. AP had other photographers ringside at the event focusing more on the fights themselves. So I felt my role was to capture the context of the evening — the location, the people in attendance, the environment.
How I made this photo
A small group of other photographers and I, the White House press pool, had been allowed to photograph part of the evening from a position in the stands directly opposite the White House. I was carrying four cameras with a variety of lenses from 12 mm to 300 mm. This let me capture everything from ultra-wide views of the “claw” structure built for the fights, to close-ups of leaders and celebrities in attendance. I had been following Diego Lopes with my longest lens as he moved around the ring celebrating his win over Steve Garcia. When I saw him start to climb onto the cage, I immediately realized there might be a possibility of a picture like this and zoomed out to capture more of the scene.
An octagon on the White House lawn for Trump’s 80th birthday and the nation’s 250th, in photos
Why this photo works
The White House is surely one of the most recognizable buildings in the world. The columns of the South Portico, the fighter standing with arms and legs spread wide in celebration, and the octagon padding of the UFC ring tell an entire story as your eyes move from top to bottom of the frame. With Lopes standing with his back to the camera, facing the White House, it becomes less a photo of him and more about the evening, the event, and the spectacle. It was fortunate that it was after nightfall, so things that might have been distracting, like the Marine Band and spectators seated behind the ring, are mostly in the dark. Only the key elements – the White House, Lopes, and the ring are lit up.
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For more extraordinary AP photography, click here.
World
British Prime Minister Keir Starmer faces potential leadership challenge from newly-elected Andy Burnham
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Andy Burnham has officially won his special election and regained a seat in Parliament, setting him up to challenge the deeply unpopular Keir Starmer as the leader of the Labour party and as prime minister.
Burnham, currently the mayor of Greater Manchester in northwest England, won a seat in Makerfield and came away with 55% of the vote in a field of more than a dozen candidates, according to The Associated Press. The runner-up was Rob Kenyon of Reform UK, a right-wing populist party, who received more than 9,000 fewer votes than Burnham.
Burnham last served as a member of Parliament in 2017 but strongly implied in his victory speech that he is returning with the intention to lead the United Kingdom.
“Everyone knows that politics isn’t working. Everyone can feel that the country isn’t where it should be. Tonight could, just could, be the turning point,” he said, according to the AP. “This result will bring about a country that works fairly for everywhere and for everybody.”
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Britain’s Labour party candidate Andy Burnham speaks to supporters after the Makerfield by-election in Ashton in Makerfield, England, on Friday, June 19, 2026. (Jon Super/AP)
This special election, called by-elections in Britain, was unusually significant because the area’s Labour MP, Josh Simons, intentionally resigned to allow Burnham to win the seat and pursue leadership.
The potentially outsized impact of this election was juxtaposed with the strange scene that unfolded when all the candidates gathered on Friday morning to hear the results. Burnham stood in between an independent candidate dressed in a fox costume and another candidate known as “Count Binface”.
As his name suggests, “Count Binface,” whose real name is Jonathan David Harvey, was wearing a trash can on his head and regularly runs in U.K. elections to advocate for increased voter turnout.
Starmer congratulated Burnham in a social media post on X, saying voters “chose Labour’s campaign of hope and optimism over division and hate.”
When asked about Burnham’s intentions to oust him as leader, Starmer said he will fight to remain prime minister, a position he has held for nearly two years.
“I’ve said repeatedly I’m not going to walk away from that,” Starmer told reporters.
Labour party candidate Andy Burnham, center, stands with other candidates on the podium at the Edge Wigan, awaiting the Makerfield by-election result announcement in Wigan, England, on Friday, June 19, 2026. (Jon Super/AP)
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Starmer led the Labour party to a landslide victory in July 2024 and ever since, his popularity has been eroding thanks to a persistently high cost of living, an anemic economy and a scandal over his willingness to accept gifts from wealthy donors.
Last September, Starmer was slammed for appointing Peter Mandelson as the British ambassador to the United States, when it was known as early as 2019 that Mandelson had a friendship with convicted child sex offender Jeffrey Epstein. Following an enormous public backlash, Mandelson was quickly dismissed from his post.
With Starmer as leader, Labour is increasingly losing liberal-minded voters to the Green Party, while also facing stronger challenges by Reform UK, a Nigel Farage-led party that advocates against mass migration and in favor of tighter border controls. Farage, an ally of U.S. President Donald Trump, said he was disappointed by Burnham’s victory.
Burnham is expected to head to London to be sworn in as soon as Monday. Under the British parliamentary system, the governing party can hold leadership elections in the middle of the term. The winner of such a contest can become prime minister without there having to be a national election.
British Prime Minister Keir Starmer awaits Switzerland’s Federal President Guy Parmelin on the sidelines of the G7 summit, in Evian-les-Bains, France, on Tuesday, June 16, 2026 (Isabel Infantes/Pool Reuters via AP)
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Under Labour rules, a lawmaker can challenge the leader if they win the backing of a fifth of their party’s members in the House of Commons. Burnham has enough lawmakers on board to trigger a leadership contest, according to a report from The New Statesman.
According to the AP, Culture Secretary Lisa Nandy said Burnham and Starmer will “have a conversation about what comes next” in the next few days.
The Associated Press contributed to this report.
French President Emmanuel Macron and Spanish Prime Minister Pedro Sánchez have issued a blistering rebuke against deportation camps outside the European Union, setting their countries on a collision course with a growing political majority.
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During a summit on Friday, 19 leaders across the bloc signed a joint declaration calling to make “full use” of a new European law that enables the construction of so-called return hubs to host migrants whose asylum applications have been denied.
The coalition, led by Denmark and Italy, two fierce advocates of outsourcing, wants to “move forward with solutions based in third countries as soon as possible”.
But for Macron and Sánchez, this path runs counter to European values and risks squandering financial resources and undercutting relations with neighbouring Africa.
“I am not sure that this is our Europe. I don’t know if these are the fundamental principles on which our Europe was built,” Macron said at the end of the summit on Friday.
“And I don’t think it’s effective, either. The proof is that I have not seen anyone make it work so far,” he went on, underscoring his strong dissatisfaction. (Italy has set up migration centres on Albanian soil but has fallen short of expected targets.)
“I have a lot of respect for anyone who wants to do it. I disagree, both pragmatically and in principle. I think it has nothing to do with European politics.”
Macron said his country was in favour of tougher laws to curb irregular arrivals but drew a red line on the physical transfer of migrants to faraway countries where they have never set foot. That possibility, long considered taboo, is allowed under a revamped Return Regulation described as the “strictest-ever” migration law.
“There is a question, in fact, around these famous return hubs in third countries. France does not support this policy. We are in favour of a more effective return policy. But first of all, I have never seen a return hub in a third country operate,” Macron went on.
“I invite you to consider what it is (in practice): this means that people who do not want to return to their country of origin or who cannot get back to their country of origin will be pushed into a third country, which will accept them in return for money.”
Macron mocked the jargonistic term “innovative solutions” that proponents of migration offshoring often use in their public communication and challenged the notion that host countries would respect human rights in exchange for financial incentives.
“I am a big supporter of innovation in my country,” he said, saying he would later attend the Vivatech festival in Paris. “But I am always very careful when talking about innovation in values and human rights. Allow me to have that reservation.”
Meanwhile, Sánchez, a vocal critic of the measures, said the deportation camps would be an “absolutely inefficient” and “worthless” response to irregular migration.
“It’s a mirage, if you will, that it will simply waste economic resources, and Europe doesn’t have many,” the Spaniard said after the summit in Brussels.
“Secondly, it sends a wrong message to those countries of origin and transit with which we should be collaborating, cooperating and showing empathy towards.”
Macron echoed Sánchez’s reputational concerns and insisted he would not allow EU funds to be used in any capacity to build the deportation camps, which are “neither effective nor do they correspond with our principles”.
“Sometimes, we hear one or the other (country) advocate policies with the African continent, so good luck defending our credibility on these continents by explaining that we will use the money for investments to build return hubs on their continents,” he said.
“What world do we live in?”
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