South-Carolina
South Carolina live updates: Helene recovery will cost billions, restaurants step up
(This article will be updated. Read our earlier coverage here.)
Relief efforts continue in the Upstate region after Tropical Storm Helene left communities devastated, roads impassable and thousands without power.
Check back for live updates as they roll in throughout the day on Thursday.
McMaster: Helene will cost South Carolina billions
On Wednesday, Gov. Henry McMaster said Tropical Storm Helene has caused the most deaths from a tropical storm in the state and will cost billions of dollars in damage repair.
Helene’s damage has caused the deaths of 39 people, making it one of the deadliest storms to hit the state.
McMaster and several other officials also met with President Joe Biden, who was in the area to assess damage, earlier Wednesday.
“The president promised whatever we needed, he would provide,” McMaster said.
Additionally, McMaster said he’s concerned about the International Longshoremen’s Association strike, which began Tuesday and will impact 36 ports across the country, including Charleston. Biden could seek a court order to pause the strike for 80 days, thanks to the Taft-Hartley Act of 1947.
Read the story here
This article originally appeared on Greenville News: Upstate SC live updates: Helene recovery will cost state billions
COLUMBIA, S.C. (WACH) — Advocates, caregivers, patients, and community leaders gathered at the South Carolina State House on Friday for the inaugural South Carolina Sickle Cell Day.
Organizers said the event focused on raising awareness of sickle cell disease.
The South Carolina CBO Collective Caucus hosted the event at 10 a.m., coinciding with World Sickle Cell Day and Juneteenth.
Organizers said the gathering brought together healthcare professionals, legislators, advocates, and supporters from across the state to discuss education, support, and action related to sickle cell disease.
The program is designed to amplify the voices of individuals and families impacted by the disease and encourage conversations about healthcare access, advocacy, research, and community support, organizers said.
Attendees heard personal stories and learned about challenges faced by those living with sickle cell disease.
“World Sickle Cell Day is a powerful call to action for all of us,” said founder and CEO of The B Strong Group Brenda Green. She said the collaboration expands support, strengthens community response, and stands with affected families.
The B Strong Group, founded in 2017 and based in Columbia, is a nonprofit organization focused on sickle cell awareness, advocacy, and caregiver support.
The group organizes blood drives, caregiver workshops, and awareness campaigns under the motto “Educate, Advocate, Empower.”
An 87-year-old businessman in Columbia, South Carolina says he has no plans to retire.
Leonard Fabrizio works as a retailer at Brittons of Columbia, a locally-owned men’s clothing store.
“I’m not the type of person who can sit around by myself,” said Fabrizio. “I just enjoy the interaction and that’s the big thing, is the interaction with people. It’s always been the drive in this business for me, said Fabrizio.
Fabrizio’s retail career began as a college student when he worked at J.C. Penney. He has watched Columbia grow and has owned a store and managed several others.
His advice is to “Be patient. It takes time to build a business. It doesn’t happen overnight, but it’s rewarding. It’s fun. But you have to have compassion for the business.”
Fabrizio recently celebrated another birthday alongside those who have supported his career.
(WPDE) — June 9 marked International Batten Disease Awareness Day, shining a light on a rare, inherited neurodegenerative disorder.
It primarily affects children and causes harmful waste material to build up inside the cells of the brain and nervous system.
One South Carolina family used the day to raise awareness as their 2-year-old son, Sam Stockton, lives with CLN2 Batten disease.
Sam was diagnosed at 16 weeks old, and his family says they travel every other week for enzyme-replacement therapy while also searching for clinical research opportunities.
Through Hope for Sam, the family is working to spread information about Batten disease and support other families facing rare diseases.
“Just the more you know about rare diseases, I never knew that over 300 million people worldwide live with rare diseases. And that means there’s less access to care because people aren’t researching it and not as many people have it. So the more information that’s out there, we feel is the better,” Jordan Stockton said.
There are 13 known types of Batten disease, and there is no cure. Researchers estimate the disease affects about two to four out of every 100,000 births in the United States.
The Stockton family says they have found support through the Batten Disease Support, Research and Advocacy Foundation, a nonprofit dedicated to helping families navigate the disease while providing resources.
More information and donation details are available at this link.
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