Sickle Cell Day gathers advocates at South Carolina State House

COLUMBIA, S.C. (WACH) — Advocates, caregivers, patients, and community leaders gathered at the South Carolina State House on Friday for the inaugural South Carolina Sickle Cell Day.

Organizers said the event focused on raising awareness of sickle cell disease.

The South Carolina CBO Collective Caucus hosted the event at 10 a.m., coinciding with World Sickle Cell Day and Juneteenth.

Organizers said the gathering brought together healthcare professionals, legislators, advocates, and supporters from across the state to discuss education, support, and action related to sickle cell disease.

The program is designed to amplify the voices of individuals and families impacted by the disease and encourage conversations about healthcare access, advocacy, research, and community support, organizers said.

Attendees heard personal stories and learned about challenges faced by those living with sickle cell disease.

“World Sickle Cell Day is a powerful call to action for all of us,” said founder and CEO of The B Strong Group Brenda Green. She said the collaboration expands support, strengthens community response, and stands with affected families.

The B Strong Group, founded in 2017 and based in Columbia, is a nonprofit organization focused on sickle cell awareness, advocacy, and caregiver support.

The group organizes blood drives, caregiver workshops, and awareness campaigns under the motto “Educate, Advocate, Empower.”