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An L.A. AIDS trailblazer has advice on how to stay hopeful in dark times for public health

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An L.A. AIDS trailblazer has advice on how to stay hopeful in dark times for public health

The year was 1987. Phill Wilson was 31, a recent transplant to L.A. from his hometown of Chicago. A mysterious infection that weakened its hosts’ immune systems was killing people at a terrifying rate, while the Reagan administration downplayed and openly joked about the disease. Some major news outlets initially wrote off the emerging epidemic as a “gay plague,” insinuating that other Americans didn’t need to worry about it.

Wilson’s doctor told him that he was HIV-positive, had six months to live and that he should get his affairs in order.

Instead, Wilson decided to “focus on the living.”

“Let’s use the time I have to do something,” he recalls thinking.

“My life,” Wilson says now, at age 69, “is that something.”

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Wilson went on to found L.A.’s Black AIDS Institute, using the nonprofit think tank to draw attention to the lack of outreach, prevention and treatment programs tailored to Black Americans — despite the disproportionate toll that AIDS had taken on them.

Wilson not only defied his doctor’s orders. He also defied the odds, surviving one of the world’s deadliest epidemics, along the way preaching the message of prevention and care, from demonstrations in the nation’s capital to the sanctified realm of the Black church.

A participant holds a sign referring to Rock Hudson during a three-hour walkathon through Hollywood on July 28, 1985, in a fundraiser sponsored by AIDS Project Los Angeles.

(Jim Ruymen / Associated Press)

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It’s been 40 years since Angelenos took to the streets for the first time to raise money for research in the wake of screen legend Rock Hudson’s stunning announcement that he had AIDS in 1985. That’s why it’s so hard for Wilson to accept that today, as L.A. is set to hold its annual AIDS Walk on Oct. 12 in West Hollywood, a new era of death and grief could be on the horizon.

Just as success appears within reach to end fatalities from HIV/AIDS worldwide, the U.S. — the global leader in that battle — seems to be in retreat.

In recent months, Republicans in Congress have followed up on moves by the Trump administration by calling for deep cuts to federal funding for HIV/AIDS prevention and home treatment, leaving public health officials and LGBTQ+ nonprofits in L.A. and elsewhere with few options besides cutting staff and suspending programs. AIDS organizations worldwide are also alarmed over the administration’s gutting of foreign aid initiatives for nations in Africa and elsewhere that cannot afford to fight infectious diseases on their own.

Wilson worries that 40 years of work that he and other activists, public health experts and providers, and members of the LGBTQ+ community have done to mobilize will be reversed in the space of a presidential term.

A man with glasses, in a print shirt, walks down a staircase near a wall with photographs

Phill Wilson reflects on the friends who lost their lives to AIDS while standing next to what he calls “My Wall of Dead People.”

(Genaro Molina / Los Angeles Times)

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“I never imagined that I would be 69; I never imagined that I would still be alive and healthy,” Wilson said. “And I also never imagined that the trajectory of the AIDS pandemic would take us from malicious neglect, during the Reagan years, to a powerful movement that changed the trajectory of treatment and care and prevention not just for HIV and AIDS but for chronic diseases and infectious diseases in general, to … a day when in fact our government was actively engaged in dismantling institutions and systems that … were actually saving lives.”

Wilson, who also sits on the board of trustees at amfAr, one of the top AIDS research foundations, has been lauded by Republican and Democratic presidents. He has also attended the funerals of too many friends killed by the disease to count — giving him both a global and a painfully personal perspective on a disease that has infected more than 88 million people and claimed more than 42 million lives worldwide, according to the 2024 L.A. Annual AIDS Surveillance Report.

AIDS-related illnesses have killed at least 30,000 people in Los Angeles County alone, according to a report from the county’s Commission on HIV.

There is still no cure for AIDS. But since the introduction of powerful antiretroviral drugs in the 1990s that allow those infected to continue living healthy lives — and more recent preventative treatments such as PrEP — fatalities have plunged. In 2020, the U.S. government set a goal of reducing AIDS fatalities by 90% over the following decade.

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But a team of researchers from UCLA and other institutions recently concluded that the Trump administration’s plan to shutter the U.S. Agency for International Development, a foreign aid program, and rescind already-appropriated funding to it could lead to millions of people dying of HIV/AIDS over the next five years who could have been protected through HIV outreach, testing and lifesaving drugs.

“With the current policies in place, there is a very good chance that we’re going to see a huge spike in new infections and we’re going to return to the days of people dying of HIV and AIDS when that’s preventable,” Wilson said.

Closer to home in L.A., the successes have been uneven.

The racial disparities that sparked Wilson’s activism at the dawn of the pandemic have narrowed but still exist.

Black Angelenos make up just 8% of the county’s population but represented roughly 18% of HIV cases recorded between January 2023 and December 2024, the most recent period for which sufficient data were available on the county’s public health dashboard. Latinos made up about 60% of cases, though this group constitutes 49% of the county’s population.

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Wilson doesn’t need these grim statistics to remind him of the stakes involved if HIV/AIDS funding gets cut.

His partner, Chris Brownlie, was diagnosed with AIDS in1985, and after four years of suffering, died of the illness. That wrenching experience prompted Wilson to become an activist full time.

Wilson survived his own near-death illness stemming from AIDS in 1995, thanks to a new treatment that kept the virus from replicating. By then he had grown used to attending AIDS vigils and delivering eulogies for others who died too soon. Eventually he became AIDS coordinator for the city of Los Angeles and director of policy and planning at AIDS Project Los Angeles, now called APLA Health.

Two men, in suits and ties, shaking hands as a woman looks on

Phill Wilson, founder and former head of the Black AIDS Institute, meets President Obama.

(Courtesy of Phill Wilson)

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Today, Wilson’s home radiates with colorful artworks from his private collection and vibrant African wood carvings climbing toward the loft ceiling. There are pictures of him shaking hands with Presidents George W. Bush, Clinton and Obama.

Facing Wilson as he speaks is a Kwaku Alston portrait of late South African President Nelson Mandela, commissioned when Wilson persuaded that nation’s first Black president to sit for a portrait session to celebrate him being honored by the Black AIDS Institute.

Situated among these bursts of color and patterns and Afrocentric pride, though, are photos of unspeakable losses.

It’s chilling to see the many images of fallen Black gay men — among them the poet and activist Essex Hemphill; Marlon Riggs, maker of a seminal 1989 film on the Black queer experience “Tongues Untied,” and the South African anti-apartheid and AIDS activist Simon Nkoli, who helped organize Africa’s first Pride march in 1990 — and realize how many of Wilson’s brothers in spirit and in struggle were cut down by the disease in their prime.

“My nephews call this wall my ‘Wall of Dead People,’” Wilson said, “because so many of the photographs are of people who are no longer with us, or photographs where I’m the only one alive.

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“My motivation is to keep the memories of all of my friends who we lost during the AIDS pandemic alive,” he said, “to remind people that they were here, and they meant something and did work and they had lives and they had loves.”

A man in glasses and a print shirt points up as he looks up. Behind him is a statue of a man wearing a robe of strings

Standing in front of a piece by artist Woodrow Nash, Phill Wilson describes the art that fills his home in Los Feliz.

(Genaro Molina / Los Angeles Times)

Wilson remembers how hard it was at first to promote HIV/AIDS awareness in L.A.’s Black community.

He had grown frustrated with the limited breadth of AIDS outreach in the 1980s and ‘90s. The whole model seemed too “white centric,” conspicuously lacking in outreach that took into account the obstacles that queer people of color faced. It was daunting enough to come out as gay in some Black and brown households, let alone speak openly about a deadly epidemic whose uncertain origins had fueled wild, often-racist conspiracy theories suggesting that Black people were chiefly responsible for its spread.

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The idea of inviting LGBTQ+ advocates into your home to talk about prevention may have worked in settings where gay men were affluent (and mostly white), but many lower-income queer Angelenos (many of whom where nonwhite) still lived with their families.

He knew he needed an “unapologetically Black” game plan, which included co-founding the National Gay and Lesbian Leadership Forum, an organization whose meetings allowed Black AIDS activists in L.A. and other cities to network and exchange best practices with peers who looked like them and could relate to their life experiences.

Wilson, who grew up in the projects of Chicago’s South Side and attended a Black church, also tried to enlist L.A.’s Black pastors to help spread the word about AIDS in their neighborhoods. It was slow going at first.

He recalls breaking with protocol at one Black house of worship by taking to the raised lectern — traditionally the exclusive domain of the preacher — to warn worshipers about the risks of ignoring the deadly disease killing their sons, brothers, nephews and nieces.

His stern address was mainly met with silence. But as Wilson walked toward the exit, minister after minister held out a hand to take one of the educational fliers he’d brought to hand out.

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“They already knew that AIDS had visited their churches,” Wilson said.

In July, Wilson was struck again by memories of days gone by when Jewel Thais-Williams, the founder of the legendary Black queer club Jewel’s Catch One on Pico Boulevard, died at age 86.

Wilson remembers when the club, now a mixed venue, was known as a sanctuary for the city’s Black and brown queer community. Williams presided as a surrogate mother and life coach for Black gays and lesbians, transgender Angelenos of color, people living with HIV who felt stigmatized because of their status, and those who didn’t necessarily feel at home in mostly white venues. Williams had also established the first housing complex in the U.S. for Black women living with HIV and their children and started a holistic wellness clinic for members of the city’s Black and brown communities.

Wilson attended Williams’ public memorial at “The Catch” in August, alongside hundreds of friends, loved ones, politicians, former drag performers and club staffers. Some older club patrons strode in with the aid of walking sticks, less agile than they used to be but determined to pay their respects to “Mama Jewel.”

Everyone dressed as if for Sunday morning service — but the event morphed midway into a Sunday afternoon tea dance, with the crowd grooving under the disco balls to gospel-inflected house music, evoking the roof-raising atmosphere that made the club famous back in the day.

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Wilson took to the stage to pose with L.A. Mayor Karen Bass as she presented a proclamation declaring the club a historical landmark.

In some ways, that moment of light seems like a long time ago. The current situation for public health in L.A. and across the country feels much darker.

That said, Wilson has learned to find solace in times of sadness and dread by taking the long view.

Having weathered the Reagan administration’s negligence, twice outlived his own death sentence in the AIDS crisis and recovered from a stroke two years ago, he has no patience for those who wallow in hopelessness about the federal cuts.

What people must do now, Wilson says, is the same thing that catalyzed him and local leaders such as Williams in the initial war against AIDS: Find ways to help, refuse to be silent and heed a piece of advice that may not sound satisfying in the moment but has sustained him through bouts of indignation and grief: “This too shall pass.”

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Wilson realizes that, much like in the ‘80s, not everyone in the queer community or society at large feels personally invested in the fight against HIV/AIDS. For them, he has another bit of wisdom: Just because a government engaged in upending practices and slashing programs has yet to attack you or those you love doesn’t mean you should be a bystander to the damage done to others.

Wilson recites a James Baldwin line from his “Open Letter to My Sister, Miss Angela Davis”: “For if they come for you in the morning, they will be coming for us at night.”

“We may not know it,” Wilson says, “but we all have skin in the game.”

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Commentary: Is RFK Jr. better on women’s health than Newsom? We’re about to find out

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Commentary: Is RFK Jr. better on women’s health than Newsom? We’re about to find out

It’s a bad look when Robert F. Kennedy Jr. is ahead of you on scientifically sound health policy — women’s health, to make matters worse — but that’s exactly what happened to Gov. Gavin Newsom last week.

Ouch.

In a Cabinet meeting, Kennedy went on a six-minute-plus grovel to Trump. That’s pretty standard for these increasingly weird meetings, but the secretary of Health and Human Services specifically praised the president for ending a “20-year war on women by removing the black box warnings from hormone replacement therapy.”

As much as it shocks me to say it, RFK Jr. has a reasonable point.

A couple of days later, appearing onstage at the New York Times’ DealBook Summit, Oscar-winning actor Halle Berry took an unexpected and harsh shot at Newsom for vetoing a bill on menopause treatment.

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“But that’s OK,” she said of Newsom killing the Menopause Care Equity Act (AB 432), which she had lobbied to pass and which had strong bipartisan support in the Legislature.

“Because he’s not going to be governor forever, and with the way he has overlooked women, half the population, by devaluing us in midlife, he probably should not be our next president either,” Berry said. “Just saying.”

The two events show just how complicated and controversial menopause care has become in the past few years, as women not only talk about it more openly, but demand care that for, well, basically always, has been denied or denigrated as unnecessary.

Looking a bit deeper, this seemingly out-of-the-blue menopause moment gets to the heart of an insurance problem that, male or female, most Americans have an opinion on: How much power should insurance companies have to deny care that a doctor deems reasonable?

To keep it simple, menopause is a phase that all women go through when their fertility ends, meaning 50% of the population deals with it. It has specific and life-altering symptoms — most of which can be treated, but often aren’t because many doctors aren’t trained in menopause care (or perimenopause, which comes first), and the science is too-often overlooked or misunderstood.

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The result is that way too many women stumble through menopause not understanding what is happening to them, or that there are excellent, scientifically backed treatments to help.

A prime example of that is the “black box” warning that has been on many hormone replacement drugs since the turn of the millennium, when one large but flawed study found that such drugs might increase the risk of cancer or other diseases.

A black box warning is the most serious caution the Food and Drug Administration can put on a medication, and its inclusion on hormone replacement theory, or HRT, put a severe chill on its use.

Twenty years of subsequent research not only revealed the flaws in that first analysis, but also showed significant benefits from HRT. It can protect against cognitive decline, decrease heart disease and alleviate symptoms such as hot flashes, among many other benefits.

In early November, the FDA removed those warnings from many HRT drugs. The result will likely be greater access for more women as doctors lose a hesitancy to prescribe them, and women lose fear of using them.

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“The misconceptions around the risks have been overblown for decades, fringing on dogma over real science and have led to population-level missed opportunities for life improvements for our aging women of the developed world,” wrote Michael Rodgers, chairman of the Santa Clara County Health Advisory Commission, on a public comment about the change.

While Rodgers is right, insurance coverage and doctor know-how remain problems for women seeking care — ones that the Menopause Care Equity Act hoped to address.

The bill would have required private insurance companies to cover FDA-approved menopause treatments and rewarded doctors who took voluntarily continuous education classes on menopause topics. That final version had already been watered down from earlier proposals that would have mandated coverage of even more treatment options (such as non-FDA approved compounded hormones) and made menopause training required for doctors.

But Newsom seemed to take issue with a part of the bill that banned insurance companies from applying “utilization management” to menopause treatments — and here’s where we get back to agreeing with RFK Jr.

Utilization management, or UM, is basically when insurance companies get to decide what a patient needs and what they don’t — the pre-approvals, the reviews and the denials, which all too often seem to be far more about cost than care.

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Now artificial intelligence is getting in on the utilization management business, potentially meaning it’s not even a human deciding our treatments. UM is a multibillion-dollar industry that, under the premise of keeping healthcare affordable, too often does so by denying care.

Which is why Assemblymember Rebecca Bauer-Kahan (D-Orinda), the author of the California bill, put in a prohibition against UM.

“The standard is ‘medically necessary‘” when it comes to insurance coverage, Bauer-Kahan points out.

“When you talk about menopause, that’s a really fuzzy term, right? I mean, I will survive in the short term without any treatment,” she said. “So what is ‘medically necessary’ is this very vague thing when it comes to menopausal care.”

In his veto message, Newsom said the UM prohibition “would limit the ability of health plans to engage in practices that have been shown to ensure appropriate care while limiting unnecessary costs.”

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But the truth, and problem, with menopause care is that it is specific to the individual woman. Like birth control pills, a treatment that works for one woman might cause side effects for another. There is often a lot of trial and error to find the right path through menopause, and women need to be able to have the freedom and flexibility to work one-on-one with their doctor. Without interference.

In June, Kennedy called out prior authorization across the healthcare industry as a problem, and announced shortly after that he had received a pledge from many large insurance companies to reform that process by 2026, removing the need for prior authorization from many treatments and procedures and streamlining the process overall.

If that reform comes to pass, it will indeed be terrific — I am hopeful — but also, let’s wait and see. Those changes are supposed to begin in January.

Back in California, Newsom has also pledged to do something about menopause coverage in January, when he announces his budget proposal. In his veto message, Newsom said he would go this route — adding it into his budget package — rather than work on a new bill in the regular legislative session. This remains the plan, though no details are yet available.

Apparently, someone forget to mention it to Berry.

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The budget has increasingly become a catch-all for legislation the governor wants to get done with less fuss because the budget and its trailer bills always pass at some point, and it can be an easier route for him to control.

Newsom has made it a core part of his policies, and his presidential campaign, to be a backer of women’s rights, especially around reproductive care — and equity for women is a cause championed by his wife, First Partner Jennifer Siebel Newsom.

But the governor also has long been hesitant to pass legislation that has costs attached (the menopause bill could raise individual premiums by less than 50 cents a month for most private-pay consumers). With federal cuts, increasing premiums and the generalized hot mess of healthcare, his caution is not unwarranted.

But also, in this case, maybe it is misguided. The only real opposition to the California bill came from insurance companies. Go figure.

Bauer-Kahan said she has been in touch with the governor’s office, but remains committed to pursuing a law that limits utilization management.

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“I am happy to hear that we are going to hopefully achieve this, but it needs to be achieved in a way that actually meaningfully makes a difference for getting the menopausal care women need,” she said.

Newsom’s October veto made barely a ripple. Thanks to Berry’s punch, his January proposal will be not just noticed, but scrutinized.

If he does eliminate the restrictions on UM, he’ll need to answer the broader question that action would raise — how much power should insurance companies have to override the decisions of doctors and patients?

It would be strange days if January saw Kennedy and his chaotic and questionable Department of Health and Human Services offering better healthcare options for women than the state of California.

And stranger still if Newsom puts a price tag on the well-being of women.

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RFK Jr.’s handpicked committee changed its recommendations for key childhood shots

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RFK Jr.’s handpicked committee changed its recommendations for key childhood shots

A key committee of the U.S. Centers for Disease Control and Prevention voted Thursday to alter its recommendation on an early childhood vaccine, after a discussion that at times pitted vaccine skeptics against the CDC’s own data.

After an 8-3 vote with one abstention, the CDC’s Advisory Committee on Immunization Practices will no longer recommend that children under the age of 4 receive a single-shot vaccine for mumps, measles, rubella and varicella (better known as chicken pox).

Instead, the CDC will recommend that children ages 12 to 15 months receive two separate shots at the same time: one for mumps, measles and rubella, or MMR, and one for varicella.

On Friday morning, the group decided unanimously to table an anticipated vote on changes to the hepatitis B vaccination schedule, after vaccine skeptics installed on the committee raised concerns that a proposal to delay the first dose by a month didn’t go far enough.

ACIP member Vicky Pebsworth, a nurse who serves as research director for the National Vaccine Information Center, an organization long criticized for promoting inaccurate vaccine information, challenged the previous day’s presentation by CDC staff on the vaccine’s safety.

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She criticized the CDC for glossing over side effects such as fever, sleepiness and fussiness.

“These are not trivial reactions,” Pebsworth said. “I personally think we should be erring on the side of caution and adopt a more prudent vaccination policy.”

The group is slated to vote later Friday on changes to the COVID-19 vaccine.

The MMRV vote represents a relatively small change to current immunization practices. But doctors said the lack of expertise and vaccine skepticism on display during much of the discussion would only further dilute public trust in science and public health guidance.

“I think the primary goal of this meeting has already happened, and that was to sow distrust and instill fear among parents and families,” Dr. Sean O’Leary, chair of American Academy of Pediatrics’ Committee on Infectious Diseases, said Thursday during a news conference over Zoom.

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“What we saw today at the meeting was really not a good-faith effort to craft immunization policy in the best interest of Americans. It was, frankly, an alarming attempt to undermine one of the most successful public health systems in the world,” O’Leary said. “This idea that our current vaccine policies are broken or need a radical overhaul is simply false.”

Giving the MMR and chickenpox vaccines in the same shot has been associated with a higher relative risk of brief seizures from high fevers in the days after vaccination for children under 4 — 8 in 10,000 children typically have febrile seizures after receiving the combination shot, compared with 4 in 10,000 who receive separate MMR and chickenpox shots at the same time.

Distressing as they are for family members to witness, seizures are a relatively common side effect for high fevers in young children and have not been associated with any long-term consequences, said Dr. Cody Meissner, a former pediatric infectious diseases chief at Tufts-New England Medical Center who is serving on ACIP for the second time (he previously served under Presidents George W. Bush and Obama).

The problem with splitting vaccines into multiple shots is that it typically leads to lower vaccine compliance, Meissner said. And the risks of not vaccinating are real.

“We are looking at a risk-benefit of febrile seizures … as compared to falling below a 95% coverage rate for herd immunity, and the consequences of that are devastating, with pregnant women losing their babies, newborns dying and having congenital rubella syndromes,” said Dr. Joseph Hibbeln, a psychiatrist and neuroscientist and another current ACIP member.

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Meissner, Hibbeln and Hilary Blackburn were the only three members to vote against the change.

The first day of the meeting ended with a vote regarding continued coverage of the MMRV shot under the CDC’s Vaccines for Children Program, a publicly funded service that provides immunizations to nearly half of the nation’s children. The program currently only covers shots that ACIP recommends.

As chair Martin Kulldorff called the vote, several committee members complained that they did not understand the proposal as it was written. Three abstained from the vote.

As the meeting broke up, members could be heard trying to clarify with one another what they had just voted for. The group recast the vote Friday, and elected to align VFC coverage with their recommendation. The combined shot will no longer be covered by the public program.

The committee spent much of its first day debating whether to delay the first dose of the hepatitis B vaccine, a shot typically given at birth, until the child is 1 month old. They will vote on the proposal Friday.

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The medical reason for altering the hepatitis B schedule was less clear.

“What is the problem we’re addressing with the hepatitis B discussion? As far as I know, there hasn’t been a spate of adverse outcomes,” said pediatrician Dr. Amy Middleman, one of several people to raise the point during the discussion and public comment period.

Committee member Dr. Robert Malone replied that changing the recommendation for when children should get vaccinated for hepatitis B would improve Americans’ trust in public health messaging.

“A significant population of the United States has significant concerns about vaccine policy and about vaccine mandates, [particularly] the immediate provision of this vaccine at the time of birth,” Malone said. The issue, he said, “is not one of safety, but one of trust.”

Hepatitis B is often asymptomatic, and half of infected people don’t know they have it, according to the CDC. Up to 85% of babies born to infected mothers become infected themselves, and the risk of long-term hazards from the disease is higher the earlier the infection is acquired.

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Infants infected with the hepatitis B virus in the first year of life have a 90% chance of developing chronic disease, and 25% of those who do will die from it, according to the the American Academy of Pediatrics.

Since the vaccine was introduced in 1991, infant hepatitis B infections have dropped by 95% in the U.S. Nearly 14,000 children acquired hepatitis B infections from 1990 to 2002, according to the CDC; today, new annual infections in children are close to zero.

This week’s two-day meeting is the second time the committee has met since Kennedy fired all 17 previous ACIP members in June, in what he described as a “clean sweep [that] is necessary to reestablish public confidence in vaccine science.”

The next day, he named seven new members to the committee, and added the last five earlier this week. The new members include doctors with relevant experience in pediatrics, immunology and public health, as well as several people who have been outspoken vaccine skeptics or been criticized for spreading medical misinformation.

They include Pebsworth, whose organization has a long history of sharing inaccurate and misleading information about vaccines, and Malone, a vaccinologist who contributed to early mRNA research but has since made a number of false and discredited assertions about flu and COVID-19 shots.

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In some cases, the new ACIP members also lack medical or public health experience of any kind. Retsef Levi, for example, is a professor of operations management at MIT with no biomedical or clinical degree who has nonetheless been an outspoken critic of vaccines.

“Appointing members of anti-vaccine groups to policy-setting committees at the CDC and FDA elevates them from the fringe to the mainstream. They are not just at the table, which would be bad enough; they are in charge,” said Seth Kalichman, a University of Connecticut psychologist who has studied the vaccine information center’s role in spreading vaccine misinformation. “It’s a worst-case scenario.”

Though ACIP holds three public meetings per year, it typically works year-round, said Dr. Paul Offit, director of the Vaccine Education Center at Children’s Hospital of Philadelphia and a former ACIP member in the early 2000s.

New recommendations to the vaccine schedule are typically written before ACIP meetings in consultation with expert working groups that advise committee members year-round, Offit said. But in August, medical groups including the American Medical Assn., the American Academy of Pediatrics and the Infectious Diseases Society of America were told they were no longer invited to review scientific evidence and advise the committee in advance of the meeting.

That same month, Kennedy fired CDC Director Susan Monarez — who had been appointed to the position by President Trump and confirmed by the Senate. On Wednesday, Monarez told a Senate committee that Kennedy fired her in part because she refused to sign off on changes he planned to make to the vaccine schedule this month without seeing scientific evidence for them.

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She did not specify during the hearing what those changes would be.

The ACIP’s recommendations become official only after the CDC director approves them. With Monarez out, that responsibility now goes to Health and Human Services Deputy Secretary Jim O’Neill, who is serving as the CDC’s acting director.

Asked by reporters Wednesday whether the U.S. public should trust any changes the ACIP recommends to the childhood immunization schedule, Sen. Bill Cassidy (R–La.) was blunt: “No.”

Cassidy chairs the Senate committee that oversees the Department of Health and Human Services, and cast the deciding vote for Kennedy’s nomination. Before running for office, Cassidy, a doctor and liver specialist, created a public-private partnership providing no-cost hepatitis B vaccinations for 36,000 Louisiana children.

He cast his vote after Kennedy privately pledged to Cassidy that he would maintain the CDC immunization schedule.

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As public trust in the integrity of CDC guidelines wobbles, alternative sources for information have stepped up. Earlier this year, the American Academy of Pediatrics announced that it would publish its own evidence-based vaccination schedule that differs from the CDC’s on flu and COVID shots. And on Wednesday, Gov. Gavin Newsom signed a law giving California the power to establish its own immunization schedule, the same day the state partnered with Oregon and Washington to issue joint recommendations for COVID-19, flu and RSV vaccines.

On Tuesday, an association representing many U.S. health insurers announced that its members would continue to cover all vaccines recommended by the previous ACIP — regardless of what happened at Thursday’s meeting — through the end of 2026.

“While health plans continue to operate in an environment shaped by federal and state laws, as well as program and customer requirements, the evidence-based approach to coverage of immunizations will remain consistent,” America’s Health Insurance Plans said in a statement. The group includes major insurers Aetna, Humana, Kaiser Permanente, Cigna and several Blue Cross and Blue Shield groups. UnitedHealthcare, the nation’s largest insurer, is not a member.

It’s unclear what will be covered after 2026.

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After the trauma of the fires, survivors faced worry over contamination, struggled to find testing

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After the trauma of the fires, survivors faced worry over contamination, struggled to find testing

After the Eaton and Palisades fires ripped through Los Angeles County, the vast majority of residents in and around the burn scars were concerned about the hazardous compounds from the smoke and ash lingering in their homes, water and soil, according to a new survey published Tuesday. Yet many felt they lacked the support to move back safely.

While more than 8 in 10 residents hoped to test their properties for contamination, only half of them could. And as fire survivors searched for information to protect their health, many distrusted the often conflicting messages from media, public health officials, academics and politicians.

Researchers studying post-fire environmental health as part of the university consortium Community Action Project LA surveyed over 1,200 residents around the Eaton and Palisades burn scars from April through June, including those with destroyed homes, standing homes in the burn area and homes downwind of the fires.

Eaton and Palisades fire survivors said the lasting damage to their soil, air and water caused anxiety, stress, or depression. On average, survivors in the Eaton burn area — which has more significant environmental contamination — worried more than those in the Palisades.

An independent survey conducted for the L.A. fire recovery nonprofit Department of Angels in June found that the environment — including debris removal and contamination — was the most pressing issue for people who moved back home and those still displaced, more than construction costs, insurance reimbursements or a lack of strong government leadership.

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Soil was the biggest worry for Eaton-area respondents in the Community Action Project survey. The team had just started collecting responses in April when the Los Angeles County Department of Public Health announced the first comprehensive soil testing results for the burn scars.

About a third of samples taken within the fire perimeter and nearly half downwind had lead levels above the state’s stringent health standards, designed to protect the most vulnerable kids playing in the dirt. Scientists attribute this lead to the Eaton fire, and not other urban contamination because samples taken in a nearby area unaffected by the fire had far lower lead levels.

The county sampling came after The Times reported in February that the U.S. Army Corps of Engineers would break precedent and forgo soil testing and remediation in its cleanup efforts.

Three quarters of Eaton fire survivors and over two thirds of Palisades fire survivors expressed worry over the air in their homes. Through private testing, many in both burn areas have found contaminants on surfaces in their home, including lead — which can cause brain damage and lead to developmental and behavioral issues in kids — as well as arsenic and asbestos, known carcinogens.

Around the start of the survey period, two groups independently found widespread lead contamination on surfaces inside homes that were left standing — some exceeding 100 times the level the Environmental Protection Agency considers hazardous.

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The majority of survivors also felt distress over the safety of their drinking water, although to a lesser extent. Water utilities in both burn areas found small amounts of benzene — which can be a product of the incomplete combustion of vegetation and wood, and a carcinogen — in their drinking water systems.

But, thanks to a fire-tested playbook created by researchers like Whelton and adopted by the California State Water Resources Control Board, utilities were quick to begin the formidable undertaking of repressurizing their damaged systems, testing for contamination and flushing them out.

All of the affected utilities had quickly implemented “do not drink” and “do not boil” water orders following the fires. The benzene levels they ultimately found paled in comparison to blazes like the Tubbs fire in Santa Rose and the Camp fire in Paradise.

The last utility to restore safe drinking water did so in May. Around the same time, independent scientists verified the utilities’ conclusion that the drinking water was safe.

As researchers neared the end of collecting survey responses, L.A. County Department of Public Health launched a free soil testing program for residents in and downwind of the Eaton burn area. By the start of September, the County had shared results from over 1,500 properties.

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Yet, residents in the Palisades hoping to test their soil, and residents in both burn scars looking for reassurance the insides of their homes are safe, have generally had to find qualified testing services on their own and either pay for it themselves or battle with their insurance companies.

The survey also found that, amid conflicting recommendations and levels of alarm coming from the government, media and researchers, Palisades fire survivors trusted their local elected officials most. For many living in the foothills of the Santa Monica Mountains, L.A. City Councilmember Traci Park has become the face of recovery.

Survivors in the Altadena area — which has no city government because it is an unincorporated area — turned to academics and universities for guidance. They’ve had a lot of contact with researchers because the Community Action Project LA, which conducted the survey, routinely meets with residents in both fire areas to understand and address the health risks homeowners face. Other post-fire research efforts, including from USC and Harvard University, have done the same.

Social media and the national news media ranked lowest in trust.

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