Vermont
Vermont organization spotlights Rare Disease Day
BURLINGTON, Vt. (WCAX) – Friday is Rare Disease Day, which raises awareness for rare diseases and aims to improve access to treatment and medical representation for individuals with rare diseases and their families.
Much of the federally-funded research for these diseases may be on hold given the Trump administration’s recent executive orders.
Claire Jones spoke with Ann Graham, the founder of Vermont-based Make it Better for Childhood Cancer, better known as MIB Agents, about what’s at stake.
Copyright 2025 WCAX. All rights reserved.