SIU’s fitness program for cancer survivors and caregivers transforms lives, gives priceless experience in new facility

It occurred to the household of Phil Anton, affiliate professor and director of the train science program at Southern Illinois College Carbondale, when his cousin and childhood greatest good friend, Julie Honerkamp, was identified on the age of 13.

A 12 months older than his cousin, he watched as from ages 13-18 Julie struggled valiantly in opposition to osteogenic sarcoma which started in her thigh bone and later unfold to her lungs, kidneys and mind, leading to her demise in 1990. He was decided to honor her life and reminiscence in a particular manner. Sturdy Survivors, considered one of solely two packages of its form within the nation, launched in September 2005 as a joint effort involving Anton, SIU, Southern Illinois Healthcare and John A. Logan School. This system supplied train coaching area a pair days every week and included diet and health elements.

In the present day, practically 1,000 most cancers survivors and their households from throughout Southern Illinois, together with a whole lot of SIU college students, are the beneficiaries. And now, Sturdy Survivors is working in a brand new, devoted facility bearing Honerkamp’s title.

Anton stated he’s thrilled with Sturdy Survivors’ optimistic influence on the lives of most cancers survivors, caregivers and college students, however he was decided to take his imaginative and prescient one step additional. He wished a particular area only for this system.

Since 2009, this system had been in Davies Corridor, Room 132, an previous locker room that had been transformed into shared lab area. In 2018, Rooms 123/124 in Davies Corridor opened up, and plans had been made to create an train lab particularly devoted to this system, a really personal place for most cancers survivors and caregivers to train with SIU pupil employees members.

Anton additionally had one other imaginative and prescient, a dream of naming the ability in his cousin’s honor. However funds had been wanted to transform and equip the area and safe naming permission. Beneficiant donors, together with Julie’s household, program individuals, college students and their households, neighborhood members and others, contributed about $40,000 to make the Julie A. Honerkamp Sturdy Survivors Most cancers Rehabilitation Laboratory a actuality.

Within the early 2000s, Anton knew what he wished to do after studying about an acclaimed most cancers survivor program in northern Colorado. Anton had not too long ago joined the SIU college, and he and a graduate pupil started engaged on the same program in Carbondale whereas gathering information for his doctoral dissertation. Regularly, extra SIU college students, significantly from the train science program, had been educated and commenced aiding.

By 2009, survivors had been coming from everywhere in the area as Sturdy Survivors grew and flourished. The hours expanded, from 7 a.m. to 7 p.m., and so did the timeline. As a substitute of a 12-week most cancers rehabilitation program, individuals might keep in this system indefinitely.

“We work with individuals who had been identified final week or 30 years in the past,” Anton stated. “We are going to work with them at any time of their most cancers expertise.”

One other change that 12 months was welcoming caregivers – whether or not relations or pals – to this system.  

“Usually, the caregivers are in worse bodily situation than the survivors once they arrive as a result of they focus a lot on the survivor and a lot falls on them it interprets into psychological and bodily stress,” Anton stated. “They’re typically the forgotten troopers within the most cancers battle.”

One factor has by no means modified although, Anton stated. The companies are all supplied for free of charge to individuals.

The purpose helps neighborhood members and offering an excellent studying expertise for SIU college students.

Ann Marie Shepherd, of Makanda, was identified with breast most cancers in 2014, leading to a lumpectomy adopted by 36 radiation therapies and two years of hormone-blocking treatment earlier than being declared cancer-free in February 2020.

She battled weight acquire, equilibrium points and knee ache, inflicting her to worry falling. She started working with SIU pupil Madeline “Madie” Speeding every Wednesday final June and stated she has been “totally blessed to take part in Sturdy Survivors. My stability is improved, my endurance is larger and I can stroll longer distances.”

Along with in-person exercises, Speeding, a grasp’s pupil in train science from Carbondale, gives house exercises for Shepherd and sends textual content messages after every session to Shepherd to report on her progress, notice the excessive factors of her exercises and encourage her. Shepherd shares these texts along with her kids and relations who in flip present extra encouragement and assist. She stated working with the scholars “retains me inspired that I can overcome all the setbacks.”

Speeding started working in this system final summer time.

“It’s been nice,” Speeding stated.  “I sit up for assembly with Ann Marie each week.  It’s rewarding work. Her primary purpose once we began was to have the ability to stroll from her automobile to her seat at a Saluki recreation with out a cane, and she or he did it! She’s very hard-working and an actual character. I like assembly along with her and serving to her attain her objectives.”

Speeding stated the sensible expertise has already confirmed helpful career-wise. She is satisfied it helped her safe a place as an train specialist in cardiac pulmonary rehabilitation at St. Joseph’s Hospital in Murphysboro not too long ago.

Kathy Morgan, of rural Carbondale, first got here to Sturdy Survivors in the summertime of 2006. A breast most cancers survivor, as was her sister, she’s been a part of this system since 2009.

“I really feel higher, and I can inform I’m healthier,” Morgan stated. She was unhappy to overlook for a time because of the pandemic and famous {that a} knee drawback is already bettering since her return. She stated the diet instruction could be very worthwhile as properly.

“I’d advocate this program to anybody who has most cancers,” she stated, declaring that the scholars are very supportive and that individuals and college students type shut friendships.  

Sturdy Survivors was one of many issues that drew Cailey Clark, a senior train science main from Pittsburg, Illinois, to SIU.  Her childhood greatest good friend’s older brother, who was additionally her brother’s greatest good friend, had leukemia and seeing him struggle and the way others helped, drew Clark to a profession in a health-related area the place she might make a distinction.

“I heard about Sturdy Survivors once I was taking a campus tour, and it made me need to come to SIU,” she stated. “Then I met Dr. Anton and among the different college and it solidified my choice.” 

She plans to turn into a scientific train physiologist, working in a cardiopulmonary lab. She stated working in Sturdy Survivors since fall 2020 has given her completely invaluable expertise, satisfied her of her profession plans and enabled her to type nice skilled connections by Anton, who has been an exquisite mentor.

She stated she has loved one other, considerably surprising profit as properly. She’s come to think about Kathy Morgan as one other member of her household.

“She’s gotten to know me so properly that when she’s out purchasing at yard gross sales, she’ll textual content me and say she’s discovered a guide that she thinks I’ll like and she or he’ll decide it up for me,” Clark stated with a smile.

Some Sturdy Survivors have fought most cancers a number of instances. Fran Benson, of Carbondale, first heard that dreaded phrase in 1979 then had a worse recurrence in 2002. 4 years later, she found Sturdy Survivors and immediately says, “I give this system all of the credit score for the way good I appear and feel.” She had one other relapse in 2011, and Anton was the primary individual she referred to as. She stated at one level in her journey, she was so weak, she couldn’t even stroll into the constructing as a consequence of her therapies. Her husband would assist her come into the constructing and get her to her periods.

“I felt like I couldn’t do something, however I might. It’s like an train snack.  My vitality degree began at zero however improved drastically and I’ve been doing it ever since,” she stated proudly.

Benson notes that she and her coach, Kiley Carter, a senior train science main from Benton, don’t have an agenda as they undergo the exercise collectively, however they take pleasure in chatting and have turn into fairly shut.

“We simply discuss.” Benson chuckled. “She in all probability doesn’t have too many 85-year-old pals.”

Carter aspires to be an occupational therapist, enjoys serving to individuals and appreciates the precious expertise she’s getting, however furthermore, she values the distinctive friendship with somebody greater than 60 years her senior.

“I find it irresistible,” Carter stated. “I get to be taught rather a lot about what she and the opposite individuals have been by. It helps me a lot to know different individuals.”

Since its inception, Sturdy Survivors has supplied companies to almost 1,000 survivors and caregivers, Anton stated. About 220 college students have volunteered their time and vitality to function trainers for this system. Every is specifically educated to take action.

Kathy Renfro, a most cancers survivor from Carbondale, has been a part of this system since 2019 and stated it has been a “game-changer for me. It has given me confidence in my physique and a greater understanding of the connection between my physique and my mind.” 

Whereas at all times energetic and concerned in actions like pickleball, she stated Sturdy Survivors has been transformative for her. She’s been working with Sidney Sikes, a senior train science main and Saluki softball participant from Dallas, Texas. Sikes plans to go on to acquire her doctorate in bodily remedy and stated her work with this system has positioned her properly for graduate faculty and past.

Brandon Caldwell, a senior train science main from Murphysboro, stated he appears ahead to his time within the lab every week, noting that it offers him an incredible alternative to use classes he’s discovered within the classroom.

“I’m amazed on the individuals too, how mentally and bodily robust they’re, particularly in spite of everything they’ve been by,” Caldwell stated as he assisted Joan Temple of Carbondale along with her train routine.

Temple had most cancers a number of years in the past, and she or he and her caregiver husband, Jim, each take part. She stated it’s enjoyable and she or he thinks she’s in higher form due to her exercises. She additionally enjoys staying in contact with the scholar employees members.

Jim stated he appreciates that it “makes her really feel higher about herself and that it reduces stress ranges. The higher you’re feeling about your self, the extra it reduces ache and encourages basic emotions of wellness. It additionally offers you one thing to sit up for, and for most of the individuals I’ve talked to right here, that’s necessary.”

As a caregiver, he stated “one of many worse emotions I’ve ever had in my life isn’t with the ability to do one thing for somebody I like. I used to be a policeman for over 30 years. I’m used to with the ability to make things better. I couldn’t repair her most cancers however to have the ability to come right here along with her is one thing I can do to take an energetic position in her restoration. It’s one thing we will share. It’s good for me too. I’m pretty energetic, gardening, reducing wooden, however this helps me.”

The ability can also be necessary for analysis, Anton stated. Knowledge collected there each day is analyzed by college students and college. Bodily, psychological and qualitative assessments are made, and papers have been printed in all kinds of journals, together with the Journal of the American Geriatric Society and Supportive Care in Most cancers.

Anton stated the analysis consists of:

• Quantitative research specializing in the efficiency of day by day residing duties and the enhancements in lift-and-carry duties amongst most cancers survivors taking part in prescribed train.
• Qualitative research that concentrate on the individuals’ perceptions of this system advantages, their particular person high quality of life, and elements akin to fatigue, social assist and pleasure of train
• Perceptions most cancers caregivers have of an train and diet program.