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Arizona family pushes ‘Right to Try 2.0’ after being forced to travel to Italy for medical treatment

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Arizona family pushes ‘Right to Try 2.0’ after being forced to travel to Italy for medical treatment

NEWNow you can hearken to Fox Information articles!

An Arizona household is pushing for a proposed “Proper to Strive 2.0” legislation from the Goldwater Institute after they have been compelled to boost 1000’s of {dollars} and briefly transfer to Italy to obtain medical remedy for his or her 2-year-old daughter who has a uncommon genetic illness.

Life for the Riley household modified in March 2020 when Olivia, their 1-year-old daughter, was identified with Metachromatic Leukodystrophy (MLD), a extremely progressive and uncommon genetic mind illness that impacts an people’ means to stroll or discuss. Three months later, Keira, Olivia’s youthful sister, acquired the identical prognosis as a new child.

Keira and Olivia Riley have been each identified with Metachromatic Leukodystrophy (MLD), a extremely progressive and uncommon genetic mind illness.
(Goldwater Institute)

“After we first obtained Olivia and Keira’s prognosis, actually, we did not know there was an choice,” Kendra Riley, Olivia and Keira’s mom, informed Fox Information Digital.

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Help was out there for Keira, however that remedy was greater than 6,000 miles away in Italy, requiring the household to boost cash in an effort to make the journey to obtain the life-saving gene remedy remedy — a remedy that lacked approval from the U.S. Meals and Drug Administration.

“We needed to elevate a whole bunch of 1000’s of {dollars} in a month’s time, plus get the lady’s passports and visa’s throughout a pandemic, no much less, which is a complete different story,” Riley stated. “We seemed into Proper to Strive after we first have been exploring choices, however sadly it did not cowl what our scenario wanted, particularly as a result of we had so little time on our palms. It was a literal race towards time to get Keira this remedy she wanted earlier than signs began occurring.”

Kendra Riley, Olivia and Keira's mother, said Olivia's disease progressed rapidly and within 90 days of symptom onset, she lost the ability to walk or talk.

Kendra Riley, Olivia and Keira’s mom, stated Olivia’s illness progressed quickly and inside 90 days of symptom onset, she misplaced the flexibility to stroll or discuss.
(Goldwater Institute)

Kendra stated Olivia’s illness progressed quickly, and inside 90 days of symptom onset, she misplaced the flexibility to stroll or discuss. As a result of she was already experiencing signs, Olivia was not eligible for a similar remedy as Keira.

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Because of the remedy, Keira’s mom stated she is “doing issues that we by no means obtained to see Livvy do.”

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Kendra and Keira Riley.

Kendra and Keira Riley.
(Goldwater Institute)

“She’s operating. She’s climbing. She’s having full conversations with us,” Riley stated. “She’s enrolled in preschool for the autumn. These are actually nice, on a regular basis issues for regular mother and father, however for us, they’re big, big milestones that we didn’t get to see with Livvy. So it’s actually, actually heartwarming to see that occur for Keira. And it’s all due to this remedy.”

“It is odd to say we’re fortunate that every part got here collectively because it did, and we made it to Italy, however I imply, in fact, I really feel like as an American citizen, or actually any human, ought to have the choice of having access to the one remedy on the planet that would save their life,” Riley added.

Kendra and Olivia Riley.

Kendra and Olivia Riley.
(Goldwater Institute)

“What we have been by means of to save lots of our daughter’s life isn’t one thing I would like one other household to need to undergo,” Riley stated. “To consider a baby at 8 months outdated might probably die by 6, however there’s an choice, one choice in your entire globe that would save their life,” she stated. “I would like different households to have that means to have that one choice and never have to boost a whole bunch of 1000’s of {dollars} and transfer throughout the globe to get it.”

Following the Riley household’s journey, they’re now urging lawmakers in Arizona to cross the Goldwater Institute’s Proper to Strive for Individualized Therapies reform. The initiative builds off the unique Proper to Strive legislation, which was signed into legislation in Could 2018 by former President Trump and, in line with the FDA, is a “manner for sufferers who’ve been identified with life-threatening ailments or situations who’ve tried all accredited remedy choices and who’re unable to take part in a medical trial to entry sure unapproved therapies.”

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Goldwater Govt Vice President Christina Sandefur stated, it “is unconscionable that an American affected person has to journey to a different nation, to Europe, so as to have the ability to get entry to a remedy that would save their lives.”

Goldwater Executive Vice President Christina Sandefur

Goldwater Govt Vice President Christina Sandefur
(Goldwater Institute)

With bipartisan assist, the reform effort has handed the Arizona Senate and the Home Well being and Human Providers Committee. It can quickly make its approach to the Home flooring for a vote.

“Now it’s time for Proper to Strive 2.0, which is able to give hope to a brand new era of households — households for whom the unique, conventional therapies simply gained’t work, households who’re out of choices and want the very best, most cutting-edge medicines on the market,” Sandefur stated. “That’s why we want Proper to Strive 2.0.”

There are Proper to Strive legal guidelines in place already in additional than 40 states in America, in line with RightToTry.org.

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Column: Melania Trump supports abortion rights. Her husband doesn't. Will he get her vote?

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Column: Melania Trump supports abortion rights. Her husband doesn't. Will he get her vote?

It pays to listen to women.

Republicans have repeatedly ignored that adage, as evident in their demolition of Roe vs. Wade, opposition to IVF and contraception, and derogatory comments about “childless cat ladies” and “women past 50.”

Thursday morning delivered the biggest indicator yet that the MAGA party is losing female voters by the minute when former First Lady Melania Trump delivered a vehemently pro-choice message on her X account.

“Individual freedom is a fundamental principle that I safeguard,” she said in the video meant to publicize her new memoir, scheduled for release on Tuesday. “Without a doubt, there is no room for compromise when it comes to this essential right that all women possess from birth, individual freedom. What does my body, my choice really mean?” At the end of the 28-second ad, viewers see an image of the book’s cover and the option to “order now” from her website.

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So she won’t be voting for her husband?

It would appear so, given that her comments, delivered just one month before the election, run in direct opposition to former President Trump’s crowning achievement: ending the constitutional right to abortion. Twenty states ban abortion or restrict the procedure earlier in pregnancy since the Supreme Court (tipped to the far right by Trump’s appointment of three justices) overturned Roe vs. Wade in 2022.

Despite recent backpedaling, Trump has taken credit for toppling Roe vs. Wade, and a cornerstone of his 2024 platform is restricting women’s reproductive rights. As for what comes next in the lives of women forced to give birth, Trump has no discernible plan — not even a concept of a plan — for child care.

Melania’s rogue stance on a woman’s right to choose may prove to be the biggest blow yet to the MAGA party that’s struggled to win back female voters. Poll after poll shows a loss in support from women, as well as moderate and independent voters.

A recent NBC News national poll found a majority of voters (54%) said the Democratic presidential nominee, Vice President Kamala Harris, would better deal with the issue of abortion, while 33% said the same of Trump. Overall, Harris has an “off-the-charts,” 21-point lead with female voters. And according to a New York Times poll, abortion has overtaken the economy as the single most important issue for women younger than 45.

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No wonder Republicans, Trump and his running mate, JD Vance, are scrambling to soften their post-Roe messaging.

During Tuesday’s vice presidential debate between Vance and Democratic candidate Tim Walz, Vance lied and said he’d never been in favor of a national abortion ban. In an effort to promote a kinder, gentler version of the Republican Party, he said, “My party, we’ve got to do so much better of a job at earning the American people’s trust back on this issue where they, frankly, just don’t trust us. That’s one of the things that Donald Trump and I are endeavoring to do.”

Ms. Trump apparently didn’t get the memo. Or didn’t watch that debate.

On Wednesday evening, the British news site the Guardian published excerpts from her new memoir, “Melania,” with this bombshell: “Why should anyone other than the woman herself have the power to determine what she does with her own body? A woman’s fundamental right of individual liberty, to her own life, grants her the authority to terminate her pregnancy if she wishes.”

Trump recently cast himself as a “protector” of women, saying at a rally in the battleground state of Pennsylvania that he will save them from even having to think about having an abortion. “You will no longer be abandoned, lonely or scared. You will no longer be in danger. … You will no longer have anxiety from all of the problems our country has today,” Trump said. “You will be protected, and I will be your protector.”

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Seems Melania can protect, and advocate for, herself, thanks.

But are her sentiments genuine? Many a conspiracy theorist may wonder if this is a part of a calculated scheme, cooked up years in advance in the Mar-a-Lago Situation Room (aka the document-storage bathroom), to make MAGA appear more in touch with the feminine view. It’s possible, but unlikely. Planning, after all, requires stability.

Let’s suppose Melania is a warrior for women’s rights and she’s not trying to cash in controversy for book sales. Imagine the tension around the family dinner table, assuming they’ve dined together, let alone spent time in the same room, over the last eight years. It would explain the tension captured in photos from their rare and uncomfortable outings together in public. Melania looks like she’d rather be stuck in Ross Dress for Less than standing next to him.

In his presidential debate against Harris last month, Trump would not say whether he supported a national ban on abortion. But on Wednesday, he doubled down on the backpedal, posting an ALL-CAPS declaration across social media platforms: “Everyone knows I would not support a federal abortion ban, under any circumstances, and would, in fact, veto it, because it is up to the states to decide based on the will of their voters (the will of the people!).”

Melania isn’t willing to stand idly by as her husband flip-flops for votes. As the long-suffering spouse of The Donald, she has taken a stand.

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Is it weird? Absolutely. Chalk it up to one more bizarre twist in an election season full of hairpin turns. Or call it what it is: an internal breach in MAGA’s war against women.

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'Willful coverup': Democrat in key House race hit with ethics complaint that could derail campaign

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'Willful coverup': Democrat in key House race hit with ethics complaint that could derail campaign

FIRST ON FOX: A Democratic House candidate in one of the most closely watched races in the country was the subject of an ethics complaint alleging that she had failed to act on allegations of sexual harassment and assault against a man working with her campaign.

Fox News Digital obtained a complaint filed with the state’s Legislative Equality Office against Janelle Bynum, running for Congress in Oregon’s 5th Congressional District, alleging that Bynum had failed to be a mandatory reporter of allegations against a man working for the PAC that staffed her State Representative campaign in 2022. 

The complaint also alleged that when confronted about the alleged actions, Bynum was dismissive and even threatened the individual who had reached out to her.

“During the 2024 primary election, I was contacted by an informant with information about Rep. Bynum and her willful coverup of a sexual assault of a minor volunteer who worked for her during the 2022 cycle,” the complaint reads. 

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Janelle Bynum is running for Congress in Oregon’s 5th Congressional District. (Fox News)

The complainant claims to have “personally spoken” with two former staff members who alleged that they had reported inappropriate sexual behavior by a field organizer “directly” to Bynum, along with two others associated with the campaign, “only for nothing to be done.”

“For me, the primary issue here is that all Legislators are mandatory reporters,” the complaint says. “Bynum received credible information regarding one of her campaign staff sexually harassing and assaulting young volunteers, and not only did she not report it, but she also threatened to report the person who blew the whistle. . . .”

In a statement to Fox News Digital, a Bynum campaign spokesperson said, “This attempt to smear Rep. Bynum is not based in reality. As a mom of two young women and a legislator who has spent her career advocating for others, Rep. Bynum takes this subject personally — which is why she flagged these accusations directly to the accuser’s employer, Future PAC, as soon as she was made aware of them after the 2022 election.”

“It’s also why she’s openly aided the Legislative Equity Office’s investigation into the matter. Rep. Bynum expected Future PAC to deal with these accusations fairly and swiftly and to ensure their employees’ well-being and safety. If Future PAC did anything less, that is unacceptable.” 

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The Bynum campaign shared an email exchange between Bynum and the Legislative Equity Office on September 20 in which the office told her she is “not being investigated” by the office.

However, two sources familiar with the situation told Fox News Digital that state police have conducted interviews regarding the complaint which was recently forwarded to them in the last couple of weeks. The nature and scope of that investigation is not known at this time.

Fox News Digital obtained text messages between a former Bynum campaign manager and Bynum in which Bynum appeared to show little interest in bringing attention to the alleged impropriety against her former staffer.

“I asked you not to send me anything and I meant that,” Bynum says in a November 17th text in response to a warning from a former campaign manager about the staffer harassing women associated with the campaign. “I really can’t take anything else on my plate.”

The former campaign manager continued pressing the issue a few days later.

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MCDONALD’S FRANCHISE OWNER BACKED BY TOP DEMS WINS KEY PRIMARY THAT COULD SWING CONTROL OF CONGRESS

The U.S. Capitol dome, Washington, D.C.

The U.S. Capitol dome, Washington, D.C. (AP)

“While as unfortunate as this may be for you or [redacted] I am NOT siting (sic) by while someone like this gets off scott free treating young women abusively like that,” the former campaign manager texted Bynum on November 21, 2022. “If he gets a job down there this won’t be the last you hear of it I promise.”

Bynum responds by asking, “Are you threatening me?”

“Woah, easy there,” the former campaign manager responds. “I am promising you and anyone else that I am not OK with someone treating young women like that.”

“I’ll consider reporting your actions,” Bynum responded. “Thank you for letting me know.”

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In another text thread on November 14, 2022, a FuturePAC staffer says, “It’s best we handle telling Janelle” and says we will “certainly flag” the concerns.

It is unclear the exact date that Bynum flagged the concerns through the appropriate channels, but two sources familiar with the situation told Fox News Digital that the accused staffer has continued to be associated with FuturePAC in the last couple of years and held a position with the Oregon State Legislature after the 2022 campaign. FuturePAC did not respond to an inquiry related to this allegation shared with Fox News Digital.

OREGON DEPARTMENT OF JUSTICE PRIORITIZES LOOPHOLES OVER COMPENSATION, ADVOCATES ARGUE

The July 2024 complaint accuses Janelle Bynum of a "willful coverup of a sexual assault of a minor volunteer who worked for her during the 2022 cycle."

The July 2024 complaint accuses Janelle Bynum of a “willful coverup of a sexual assault of a minor volunteer who worked for her during the 2022 cycle.” (Oregon Legislative Equity Office)

The July 2024 complaint accuses Janelle Bynum of a "willful coverup of a sexual assault of a minor volunteer who worked for her during the 2022 cycle."

The July 2024 complaint accuses Janelle Bynum of a “willful coverup of a sexual assault of a minor volunteer who worked for her during the 2022 cycle.” (Oregon Legislative Equity Office)

Fox News Digital reviewed text messages between Bynum and a FuturePAC staffer between November 22, four days after the text exchange with the former campaign manager, and November 30 where she attempted to get him on the phone about an unspecified matter. 

Two sources familiar with the situation told Fox News Digital that multiple staffers at FuturePAC, a campaign arm of Oregon House Democrats that staffs local campaigns, were aware of concerns and allegations against the individual during the campaign but told staffers it would be addressed after the campaign concluded. A spokesperson for FuturePAC denied these allegations.

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“To our knowledge, during the 2022 cycle no official complaints that would have triggered [an] investigation under the contract were made regarding the staff assigned to Rep. Bynum’s campaign,” a FuturePAC spokesperson told Fox News Digital. “FuturePAC hires and manages the campaign staff working on campaigns that we are supporting — as such, campaign staffers are FuturePAC employees, not employees of individual candidates. We take all allegations regarding staff conduct during campaign work seriously.”

“Our union contract agreement with the Campaign Workers Guild requires official complaints and investigations to be handled through FuturePAC — campaigns and candidates are not allowed to be responsible for investigations of any workplace conduct. To our knowledge, during the 2022 cycle no official complaints were made that would have triggered investigation under the contract.”

Portland Oregon

Portland, Oregon (iStock)

Rule 27 of the Oregon State Legislature says, “Members of the Legislative Assembly … are expected to conduct themselves in a manner that is free of harassment and to discourage all harassment in the workplace and at professional meetings, seminars, or at any event at which the Legislative business is conducted.”

Multiple state laws on the books in Oregon deal with state legislators being required to report allegations of sexual assault, specifically related to children and minors, and legislators are commonly understood to be mandatory reporters of such allegations.

Bynum drew criticism in 2019 from sexual assault survivors for voting against a bill that would have given more time for victims to sue by expanding the statute of limitations for rape.

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“It’s not popular to protect the accused, but it is our job,” Bynum said at the time.

A spokesperson for the Oregon State Police confirmed they have “received an initial complaint” regarding the July complaint against Bynum but would not comment “in regards to the status or scope of an investigation” or on where the complaint they received originated.

“Janelle is the only person in this race who has been a consistent champion for the underserved and underrepresented, and she’ll do what’s best for Oregonians in the halls of Congress,” DCCC spokesperson Dan Gottlieb told Fox News Digital. “Lori Chavez-DeRemer has no business lecturing anyone about standing up for victims and survivors.”

Congressional Black Caucus PAC Senior Advisor Chris Taylor told Fox News Digital that Bynum is not to blame for the complaint.

Janelle Bynum (Left) and her failed Democratic primary opponent Jamie McLeod-Skinner (Right)

Janelle Bynum (Left) and her failed Democratic primary opponent Jamie McLeod-Skinner (Right) (Janelle Bynum for Congress/Jamie McLeod-Skinner for Congress)

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“Future PAC and Oregon Speaker of the House Julie Fahey ought to take responsibility for the alleged HR failures in their organization – We won’t tolerate politically convenient blame shifting on the only Black woman in the State House,” Taylor said. “As a mother, small business owner and dedicated public servant, Janelle has a track record of delivering for Oregon and we know she’ll do even more good for Oregonians when she gets to Congress.” 

A spokesperson for EMILY’s List told Fox News Digital that Bynum “is a mother and a state representative who has been a steadfast advocate for Oregonians throughout her entire career.”

“Throughout this election, Republicans have shamefully tried to smear Bynum’s record and this is just their latest attempt to distract from the extremist agenda Lori Chavez-DeRemer and her MAGA allies are pushing. We are proud to stand by Bynum and we are confident she will continue to stand up for Oregonians against Republican extremism.”

A source familiar with the situation told Fox News Digital that Bynum “would have received annual training on her duties as a mandatory reporter” making her certain of her “obligation to report this to law enforcement” and not to FuturePac.” 

“Her dereliction of duty is not on Fahey or anyone else.”

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Bynum is running against Republican Congresswoman Lori Chavez-DeRemer in a race that some experts believe could tip the balance of power in the House.  

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Why the U.S. probably can't stop Israel from widening the war in Lebanon

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Why the U.S. probably can't stop Israel from widening the war in Lebanon

The relationship between Israel and its closest and most reliable ally, the United States, has started to feel like a case of unrequited love.

Despite being sidelined repeatedly by Israel over the last year, the Biden administration keeps up its nearly unquestioning support — even as Israel all but ignores American efforts to contain the violence and rein in its behavior.

This week, the U.S. government is publicly backing Israel’s march into southern Lebanon, the first such incursion in nearly two decades. The U.S. also supports Israel’s anticipated retaliation against Iran after Tehran’s bombardment of its archrival this week. Both actions could easily push the region into all-out war, a conflict Washington says it doesn’t want.

U.S. officials insist they are working to avert a wider war. But they have little to show for the effort so far. It wasn’t always so hard.

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The United States gives Israel around $3 billion a year in aid and much of it in weapons: 2,000-pound bombs, sophisticated air-defense systems, even ammunition. The two countries have long shared intelligence, political goals and foreign policy agendas, and successive U.S. administrations have had considerable sway over Israel and its decisions that had global effects.

An Israeli Apache helicopter releases flares near the border with Lebanon, as seen from northern Israel on Oct. 2, 2024.

(Baz Ratner / Associated Press)

That ability appears to have waned in the last year, for a variety of reasons, some less obvious than others.

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The unprecedented scale — and horror — of the Oct. 7 attack is one.

A year ago, Hamas-led militants based in the Gaza Strip swept into southern Israel, killing around 1,200 people, maiming many more and kidnapping around 250.

Before that, the Biden administration had kept its distance from the government of Israeli Prime Minister Benjamin Netanyahu because of its radically racist anti-Arab, anti-democratic members. Netanyahu had also been exploiting U.S. partisan politics in recent years, openly courting GOP favor and eschewing the usual Israeli policy of staying neutral in American politics.

After Oct. 7, there was a outpouring of support from the United States. President Biden hopped on Air Force One to pledge American backing. U.S. Secretary of State Antony J. Blinken, evoking his own Jewish faith, traveled to Israel 10 times in as many months, trying to address concerns and contain the potential violence.

A man in a dark coat waves while descending the steps as he disembarks from an aircraft

U.S. Secretary of State Antony J. Blinken arrives in Amman, Jordan, in January, one of his many visits to the Middle East during the Israel-Hamas war.

(Evelyn Hockstein / Associated Press)

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Netanyahu appears to have read that early administration response as a near-blanket endorsement for an open-ended invasion of Gaza. More than 41,000 Palestinians have been killed in that assault, Gaza officials estimate. The authorities do not differentiate between civilian and combatant deaths.

“The Israelis saw this as essentially a green light,” said Steven Cook, a senior fellow specializing in the Middle East at the Council on Foreign Relations.

At the same time, Israelis, and particularly Netanyahu, have increasingly resisted pressure and advice from the Biden administration when it comes to dealing with Palestinians and other perceived security threats, exerting greater independence.

“Over a period of time, the Israelis have come to believe that the administration has not given them good advice [and] they are determined … to change the rules of the game,” Cook said.

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Increasingly emboldened, Netanyahu repeatedly outplayed and misled U.S. officials, according to people with knowledge of talks aimed at halting hostilities and freeing Israeli hostages.

After having laid waste to much of northern and central Gaza, Israel promised U.S. officials it would not do the same in the southern city of Rafah, where a million Palestinians were sheltering.

Yet as each day passed in the spring, Israeli airstrikes gradually chopped away at Rafah. In recent months, U.S. officials say Netanyahu backed out of cease-fire agreements for Gaza even as some of his spokespeople, such as Ron Dermer, who has the ear of U.S. officials, said Israel was on board.

Just last week, Biden administration officials frantically sought a 21-day cease-fire in Lebanon, backed by France and others. They thought they had secured Israel’s agreement.

Then Netanyahu landed in New York for the annual United Nations General Assembly and made clear he would press ahead unfettered in his offensive against the Iran-backed Hezbollah organization in Lebanon.

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A man in dark suit and blue holds up two posters of maps, one says The Curse and the other titled The Blessing

Israeli Prime Minister Benjamin Netanyahu addresses the 79th session of the United Nations General Assembly on Sept. 27, 2024.

(Richard Drew / Associated Press)

In turning a deaf ear to U.S. entreaties, Netanyahu seems to be taking advantage of Biden’s emotional affinity for Israel and of the political timing that ties the lame-duck president’s hands.

Biden is among the last of the old-school U.S. congressional lawmakers who were reared in the post-Holocaust period where an emerging Israel struggled for its survival against greater Arab powers and won. It seemed a noble cause, and Biden frequently has expressed his undying love for the “Jewish state.”

Fast forward to this season just weeks away from a monumental U.S. presidential election, and Netanyahu probably calculates that Biden will not move forcefully to make demands on Israel when it could cost the Democratic ticket votes in a razor-edge close vote.

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“American leverage, and Biden’s leverage in particular, is very small at this point,” said Rosemary Kelanic, a political scientist specializing in the Middle East, now at Defense Priorities, an antiwar Washington advocacy group.

“Politically, it’s really difficult to do anything that seems like it’s changing American foreign policy right before an election,” she said.

Even the most minimal challenges to Israel — such as sanctions on Jewish settlers in the occupied West Bank who kill and harass Palestinians, or the brief suspension of 1-ton bombs being lobbed on Gazan population centers — have generated backlash from the Republican right wing.

“We call on the Biden-Harris administration to end its counterproductive calls for a cease-fire and its ongoing diplomatic pressure campaign against Israel,” House Speaker Mike Johnson said after Israel assassinated Hezbollah leader Hassan Nasrallah.

By moving aggressively in Lebanon now, Israel may be betting it can operate more freely in the political vacuum created by the U.S. election.

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Huge clouds of gray smoke rise over a landscape of buildings

A view from northern Israel of the aftermath of an Israeli bombardment in southern Lebanon on Oct. 3, 2024.

(Baz Ratner / Associated Press)

“I see the Israelis pushing to change the facts on the ground as much as they can” before the U.S. election, said Mike DiMino, a longtime CIA analyst based in the Middle East.

In addition to potentially occupying southern Lebanon while the U.S. is preoccupied with an election, Israel could also force the next U.S. president to confront a regional conflict that also involves Iran, experts say.

Netanyahu “has long wished for a big military escalation with Iran that would force the Americans to join, and perhaps to attack Iran directly,” Dahlia Scheindlin, a fellow at the Century Foundation, wrote in the liberal Israeli newspaper Haaretz. “The circumstances are ripening in a way they never have before.”

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