Arizona
Arizona Becomes the 31st State With a Rare Disease Advisory Council
New State Council Will Help Shape Health Policies for Arizonans Living with Rare Diseases
PHOENIX, May 13, 2025 /PRNewswire/ — The National Organization for Rare Disorders (NORD®) celebrates a significant milestone for the rare disease community as Arizona Governor Katie Hobbs has signed House Bill 2380 into law, establishing the Arizona Rare Disease Advisory Council (RDAC).
This legislation, introduced by Representative Alma Hernandez, supported by the National Organization for Rare Disorders (NORD®) and patient organizations from Arizona and across the United States, brings new hope to rare disease patients across the state by ensuring a dedicated body to address their unique healthcare needs.
“The establishment of Arizona’s Rare Disease Advisory Council represents the power of grassroots advocacy and community collaboration,” said NORD Chief Executive Officer Pamela K. Gavin. “From passionate patients and dedicated clinicians to committed lawmakers, Arizonans came together with a unified voice to create meaningful change. NORD is immensely proud to have supported this community-driven initiative. This council will ensure that the unique challenges faced by rare disease patients and families in Arizona are not only heard but addressed through informed policy and dedicated action.”
“I am proud to have been able to work with the stakeholders and those living with rare diseases for the last two years to make this legislation possible,” said Representative Alma Hernandez. “It is time for Arizona to move the needle and find ways to support this community. This committee will allow for new recommendations for lawmakers to better support this community. I look forward to the first convening and the ability to learn from the experts in this field, improve the lives of others, and develop better policies to diagnose and treat Arizonans living with a rare disease.”
With the governor’s signature on May 12, Arizona becomes the 31st state with an RDAC. The council will include dedicated stakeholders from across the rare disease landscape, including physicians and other health care providers, patients, caregivers, researchers, and members of the pharmaceutical and insurance industries. The membership of the RDAC will reflect the unique geographical and population of Arizona.
“As both a rare disease patient and a provider for children with medically complex and rare conditions, I’m excited to see Arizonans gain a stronger voice in future policy,” said Melissa Meyer, DNP, a NORD volunteer. “My rare disease didn’t happen to me — it happened for me. It gave me the empathy to better support my patients and the inspiration to teach future nurse practitioners how to advocate. I’m deeply grateful for this journey and hopeful about the impact the RDAC will have.”
Arizona
Wired Up: 400 Marines in southern Arizona ‘reinforcing’ border wall
NOGALES, Ariz. (KGUN) — Approximately 400 Marines are working along the southern border in the Tucson sector, adding brackets and two types of wire to the border wall as part of an infrastructure improvement and barrier reinforcement mission.
Company Commander Kyle Harrison showed me the work underway in southern Arizona, where groups are operating in states bordering Mexico.
“Our purpose down here, ma’am, is primarily going to be infrastructure improvement and barrier reinforcement. So, general engineering is what we’re doing,” Harrison said.
The reinforcement work includes welding brackets onto the barrier and laying barbed wire along the wall.
“Marines, the furthest on the right, on that lift on the right, they’re actually welding the brackets onto the baller. It’s onto the barrier to the left. The next lift is going to be a group of Marines that are laying out the barbed wire,” Harrison said.
In two and a half months, the unit has put up wire across 25 miles of the wall in the Tucson sector, including in Douglas and Nogales.
“The purpose of laying the wire is just to reinforce the preexisting barrier, preexisting infrastructure,” Harrison said.
For most of the service members, this is their first time doing this kind of work. Harrison said the majority have been learning on the job.
“So vast majority of these marines have been receiving training on the job. Once they got here on site, they’ve been picking up the training and experience here,” Harrison said.
Part of that training includes obtaining the proper licenses to operate aerial lifts, which are civilian contracted equipment.
“So seeing as how it’s civilian contracted equipment, they did have to receive instruction and licensing and certification in order to run and operate them,” Harrison said.
With temperatures on the rise, units are also taking precautions to stay cool, including having medical personnel available on site.
“Hydration obviously on the front side, ma’am. Before anybody leaves the border patrol station on their way to the barrier, make sure that we have plenty of water, plenty of food, and then plenty of ice to keep everyone cool,” Harrison said.
Harrison said the unit will continue working along the border until every mile of the Tucson sector is complete.
This story was reported on-air by a journalist and has been converted to this platform with the assistance of AI. Our editorial team verifies all reporting on all platforms for fairness and accuracy.
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Alexis Ramanjulu is a reporter in Cochise County for KGUN 9. She began her journalism career reporting for the Herald/Review in Sierra Vista, which she also calls home. Share your story ideas with Alexis by emailing alexis.ramanjulu@kgun9.com or by connecting on Facebook.
Arizona
Where to watch Arizona Diamondbacks vs St. Louis Cardinals: TV channel, start time, streaming for June 25
What to know about MLB’s ABS robot umpire strike zone system
MLB launches ABS challenge system as players test robot umpire calls in a groundbreaking season.
The 2026 MLB season has surpassed the quarter mark, and after each team’s first 40 games, there’s plenty of reasons to tune in all summer long.
Chicago White Sox slugger Munetaka Murakami has already proven doubters wrong by launching 17 home runs, Pittsburgh’s Paul Skenes consistently looks like the best version of himself on the mound and Milwaukee ace Jacob Misiorowski is throwing harder than any starter in the majors.
The MLB action continues on Thursday as the Arizona Diamondbacks visit the St. Louis Cardinals.
Here’s everything you need to know to tune in for the first pitch.
See USA TODAY’s sortable MLB schedule to filter by team or division.
What time is Arizona Diamondbacks vs St. Louis Cardinals?
First pitch between the St. Louis Cardinals and Arizona Diamondbacks is scheduled for 7:45 p.m. (ET) on Thursday, June 25.
How to watch Arizona Diamondbacks vs St. Louis Cardinals on Thursday
All times Eastern and accurate as of Thursday, June 25, 2026, at 6:33 a.m.
- Matchup: ARI at STL
- Date: Thursday, June 25
- Time: 7:45 p.m. (ET)
- Venue: Busch Stadium
- Location: St. Louis, Missouri
- TV: Cardinals.TV and DBACKS.TV
- Streaming: MLB.TV on Fubo
Watch MLB all season long with Fubo
MLB regional blackout restrictions apply
MLB scores, results
MLB scores for June 25 games are available on usatoday.com . Here’s how to access today’s results:
See scores, results for all of today’s games.
Arizona
Arizona State parts ways with head track and field coach Dion Miller
Graham Rossini on Arizona State’s continued investment in track & field
Rossini said work is underway to rebuild the “track and field infrastructure” at ASU.
Arizona State is making a change at the head track and field coach position.
Dion Miller, the director of cross-country and track and field at ASU, has been let go, a school spokesperson confirmed to The Arizona Republic.
A national search is now underway to find the new coach to lead the program.
Miller was hired as director in July 2019, his second stint with the school. During his time with ASU, Miller — who primarily focused on the sprints — helped coach 36 All-Americans across the men’s and women’s programs.
ASU’s track and field team also just lost record-breaking junior sprinter Jayden Davis, a homegrown talent who recently entered the transfer portal.
Logan Stanley is a sports reporter with The Arizona Republic who primarily focuses on high school, college and Olympic sports. To suggest ideas for human-interest stories and other news, reach out to Stanley at logan.stanley@usatodayco.com or 707-293-7650. Follow him on X, formerly Twitter: @LSscribe.
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