Health
Utah mom fights for her daughter’s access to discontinued diabetes medication: ‘Life-saving'
A Utah mother is fighting for her teenage daughter’s access to diabetes medicine.
Ruby Smart, 15, has been taking Levemir (detemir) insulin since she was diagnosed with type 1 diabetes more than two years ago.
“Levemir is uniquely suited to her situation,” Alison Smart, the girl’s mother, told Fox News Digital in an interview.
The family was stunned when Novo Nordisk, the Denmark-based manufacturer of Levemir, announced in November 2023 that the drug was being discontinued.
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Smart has now made it her mission to convince Novo Nordisk to continue making Levemir — or to find a pharmaceutical company to create a biosimilar (generic) alternative.
Levemir is a long-acting basal insulin that’s injected once or twice a day to control high blood sugar in adults and children with diabetes, according to Novo Nordisk’s website.
Utah mother Alison Smart (in green sweater, pictured with Ruby Smart, age 15) is fighting for her teenage daughter’s access to diabetes medicine. (Alison Smart/iStock)
For Smart’s daughter, an active athlete who plays on the tennis team at Woods Cross High School, Levemir has enabled her to continue with her regular activities while controlling her diabetes.
While there are a couple of other types of basal insulin on the market, Smart said Levemir is best suited to her daughter’s needs.
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“Levemir is unique in that it is a relatively shorter-acting basal insulin, making it ideal for those with fluctuating basal insulin needs, including teenagers, menstruating women, pregnant women and athletes,” she said.
“The two remaining insulins also have side effects we don’t worry about when using Levemir.”
“She’s super active and plays tennis almost every day,” Smart said of her daughter, pictured here. “The pump was fine for daily activity, but for tennis tournament days, it didn’t work.” (Alison Smart)
They did try an insulin pump for a few weeks, which is a wearable device that provides a steady flow of insulin to the body. But Smart said it was not compatible with her daughter’s high activity levels.
“She’s super active, and plays tennis almost every day,” Smart said. “The pump was fine for daily activity, but for tennis tournament days, it didn’t work.”
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Smart is advocating for people to be able to choose.
“The bottom line is that Levemir works for us,” she said. “Our lives are much easier and less complex on a regimen of multiple daily injections using Levemir insulin.”
Reasons for discontinuation
Novo Nordisk provided three main reasons for why it’s discontinuing Levenir.
“After careful consideration, we made this decision because of global manufacturing issues, decreasing patient coverage, and because we are confident that patients in the U.S. will be able to find alternative treatments,” the company said in a press release.
Novo Nordisk announced in Nov. 2023 that Levemir would be discontinued. “During this time, we strongly encourage that health care professionals and patients discuss transitioning to alternative treatment options prior to the discontinuation date,” the company said in a statement. (LISELOTTE SABROE/Scanpix Denmark/AFP)
When contacted by Fox News Digital, Novo Nordisk provided the following recommendation to doctors and patients.
“During this time, we strongly encourage that health care professionals and patients discuss transitioning to alternative treatment options prior to the discontinuation date. Novo Nordisk, along with other companies, provides a number of alternative treatment options for people living with diabetes who require basal insulin.”
The company suggested that patients switch to other basal insulin options, including but not limited to Basaglar, Insulin Degludec, Insulin Glargine U-300, Lantus, Rezvoglar, Semglee, Toujeo and Tresiba.
“The other options for basal insulin are not equal and are not sufficient — they have different side effects and different qualities.”
Many parents, however, say these alternatives are not the same.
“The other options for basal insulin are not equal and are not sufficient — they have different side effects and different qualities,” Smart told Fox News Digital.
“They’re not as flexible, and not as easy to use with someone who has varying basal insulin needs, like a teenager.”
Alison Smart, far right, is pictured with two other parents of teens with type 1 diabetes in Washington, D.C. (Alison Smart)
Other parents are also concerned about being forced to switch medications.
Jaime Losinski, a mother in Tampa, Florida, has a 14-year-old son with type 1 diabetes. He’s been taking Levemir for years.
“Levemir is a valuable insulin for children and teens, who have ever-changing insulin needs as they grow,” she told Fox News Digital.
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“Levemir’s action profile makes it perfect for patients who need to make rapid and continual changes,” she went on.
“An insulin such as Lantus or Tresiba, which the industry tells us to ‘just switch to,’ lasts far too long in the system for someone like him and would be dangerous overnight,” she said. “They also come with side effects, all of which he experienced when we tried them both shortly after his diagnosis seven years ago.”
Smart teamed up with other parents to form the Alliance to Protect Insulin Choice. She has also visited Washington, D.C., twice to meet with senators and congressional representatives. (Alison Smart)
Although Levemir is expected to be available until Dec. 2024, Smart said providers have warned her to “expect supply disruption” in the meantime.
Some insurance companies have already stopped coverage of the drug due to the discontinuation.
Smart received a letter from her insurance company in November saying Levemir would not be on her plan any longer. They later agreed to add it back on — but only if she paid a premium.
‘Not as cut and dry as it might seem’
Erin Palinski-Wade, a certified diabetes educator in New Jersey, said the discontinuation of Levemir is “understandably surprising and frustrating” for patients who rely on this brand of insulin.
“Although there are other forms of long-acting insulin on the market, each has its own slight differences, such as peak times, which can have a significant impact on blood glucose management during the day,” she told Fox News Digital.
“For children and teens, there may be greater fluctuations in blood sugar.”
“Transitioning from one brand of insulin to another is not as cut and dry as it might seem, and can lead to periods of high blood sugar or hypoglycemia episodes (dangerously low blood sugars) as the adjustment occurs,” Palinski-Wade added.
For parents who rely on Levemir, the expert recommended working with a physician, endocrinologist and/or dietitian to create the “best transition plan possible” to minimize fluctuations in blood sugar while finding an alternative that works best.
“Levemir is a valuable insulin for children and teens, who have ever-changing insulin needs as they grow,” a mother said. (iStock)
When transitioning to a new insulin, increased testing of glucose levels is needed to prevent and correct highs and lows as they occur, Palinski-Wade noted.
“This is especially important for children and teens, as there may be greater fluctuations in blood sugar due to activity, growth and hormone fluctuations,” she said.
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Tanya Freirich, a certified diabetes educator in New York City working as The Lupus Dietitian, agreed that the closest replacement in terms of duration of action is Lantus (insulin glargine).
“One of the differences is the peak time,” she told Fox News Digital.
“Lantus peaks [or lowers the blood sugar the most] at six hours after administration, while Levemir peaks at eight to 10 hours after administration. This difference would affect the appropriate timing for the medication to prevent dangerous blood sugar lows.”
Dr. Marc Siegel, clinical professor of medicine at NYU Langone Medical Center and a Fox News medical contributor, said he is also disappointed by the news of the discontinuation. (Fox News)
Dr. Marc Siegel, clinical professor of medicine at NYU Langone Medical Center and a Fox News medical contributor, said he is also disappointed by the news of the discontinuation.
“It is based on supply chain and production issues rather than a problem with the product,” he told Fox News Digital.
“We definitely need biosimilar versions to replace it,” he said. “It can be life-saving.”
“It is based on supply chain and production issues rather than a problem with the product.”
“Some patients really need a version of insulin and Levemir may be their best option.”
Although Levemir is “very similar” to Lantus, Siegel said, it has two important differences: “It causes less weight gain and less hypoglycemia (low glucose).”
Advocating for access
After Novo Nordisk’s November announcement of the discontinuation, Smart sprung into action.
She set up an online petition and began contacting the Food and Drug Administration and the World Health Organization.
“This drug is on the World Health Organization’s list of essential medicines,” she said. “I just couldn’t wrap my head around the possibility of this happening and people not being as outraged as I was.”
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Smart also teamed up with other parents to form the Alliance to Protect Insulin Choice. She has visited Washington, D.C., twice to meet with senators and congressional representatives.
“Our goal is to have Novo Nordisk slow down the discontinuation, and produce Levemir insulin for a few years until a biosimilar is widely available,” she said.
“We would like to find a biosimilar manufacturer to make this insulin, so it stays available.”
An insulin pump, a wearable device that provides a steady flow of insulin to the body, was not compatible with her daughter’s high activity levels, said Smart of Utah. (iStock)
While Smart recognizes that the medication may not be available “forever,” she aims to slow down the discontinuation and keep Levemir available for a few more years — “because it will take that long to get a biosimilar up and running.”
Smart’s efforts have also caught the attention of billionaire Mark Cuban, who expressed his willingness to partner with Novo Nordisk to continue producing Levemir.
When contacted by Fox News Digital, Cuban said that his pharmaceutical company, CostPlus Drug Company, is “trying to figure out a way to source [Levemir].”
“We aren’t there yet, but we are trying,” he said.
For more Health articles, visit www.foxnews.com/health.
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A rare and potentially fatal tick-borne illness currently spreading across the United States can be traced back to a 1958 case involving a young boy on a farm.
The disease, known as Powassan virus, was named for the Ontario town near where it was first discovered.
At the time of his death, Lincoln Byers, a 4-year-old living in Canada, had a condition that medical professionals could not explain, the Boston Globe reported.
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Years later, researchers discovered a tick harboring the same virus on a dead squirrel, finally providing an answer to the tragedy, but foreshadowing a growing public health challenge.
While once considered an obscure medical anomaly, Powassan virus cases have reached historic highs in the U.S., data show.
Powassan is most prevalent from late spring through mid-fall, when tick populations peak and outdoor activity increases. (iStock)
According to the Centers for Disease Control and Prevention, 76 Americans were diagnosed with the virus in 2025, the highest annual total on record. Previously, the U.S. averaged just seven to eight diagnoses each year.
The virus is primarily transmitted to humans through the bite of an infected woodchuck tick or deer tick. Like other tick-borne illnesses, Powassan is most prevalent from late spring through mid-fall, when tick populations peak and outdoor activity increases.
Public health experts warn that the virus’s transmission speed makes it uniquely dangerous.
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“One of the most dangerous aspects is its rapid transmission,” Dr. Jorge P. Parada, a medical advisor at the National Pest Management Association in Chicago, told Fox News Digital.
“Powassan can be transmitted in as little as 15 minutes after the infected tick bites, while Lyme disease usually requires a 36- to 48-hour attachment time for transmission.”
Powassan carries an incubation period of one to four weeks before symptoms manifest. (iStock)
Parada noted that while Powassan remains rare compared to Lyme disease, it poses clinical concern.
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Dr. Marc Siegel, senior medical analyst for Fox News, confirmed that the virus transmits significantly faster than Lyme disease. He noted that Powassan carries an incubation period of one to four weeks before symptoms manifest.
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Initial symptoms include fever, headache, vomiting and weakness, though some infected individuals remain asymptomatic, according to the CDC.
There are currently no specific medications or vaccines to treat or prevent Powassan virus. (iStock)
The virus can progress to severe neurological complications, including encephalitis (inflammation of the brain) and meningitis (inflammation of the spinal cord membranes).
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In severe cases, patients may experience confusion, loss of coordination, difficulty speaking and seizures, per the CDC.
“One of the most dangerous aspects of it is its rapid transmission.”
Approximately 10% of Powassan cases involving severe neurological disease are fatal, and many survivors experience long-term neurological issues.
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There are currently no specific medications or vaccines to treat or prevent Powassan virus; clinical care is limited to supportive therapy, such as intravenous fluids and respiratory support.
While anyone can develop severe illness, those at the highest risk include children, older adults and immunocompromised individuals, experts caution.
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Americans today live roughly twice as long, on average, as they did when the Declaration of Independence was signed.
When the nation was founded in 1776, life expectancy was around 35 to 40 years old, historians estimate. However, someone who survived childhood in colonial America often lived into their 60s or even 70s.
Today, the average lifespan is about 79 years old, according to data from the Centers for Disease Control and Prevention.
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The improvement in lifespan over the centuries has been largely attributed to reduced deaths in infancy and from infectious diseases, multiple researchers have stated. Advances in sanitation, clean water, nutrition, vaccination and medical care have also contributed to lower mortality rates.
“Much of this vast discrepancy is related to the extremely high rates of infant, childhood and maternal mortality,” Dr. Omer Awan, physician and professor at the University of Maryland School of Medicine, told Fox News Digital.
Americans today live roughly twice as long, on average, as they did when the Declaration of Independence was signed. (Milan Markovic/iStock)
“Childbirth was dangerous, and without antibiotics and vaccines, many infectious diseases, such as measles, smallpox and pneumonia, were deadly,” he went on. “Now we have cleaner water and sanitation, vaccines and antibiotics that have significantly prolonged life.”
Advances in treatments of chronic diseases such as high blood pressure, cancer and diabetes have also significantly prolonged life, the Harvard-trained doctor noted.
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According to the CDC, improved prevention and treatment of high blood pressure has helped reduce deaths from heart disease and stroke, two of the nation’s leading causes of death.
Mia Kazanjian, MD, a Stanford-trained body and breast radiologist with an interest in longevity who is based in Greenwich, Connecticut, attributes the shorter life expectancy in the 1700s to suboptimal sanitation, poor hygiene and limited medical treatments.
Today, the average lifespan is about 79 years old, according to data from the Centers for Disease Control and Prevention. (iStock)
“Many babies and children died from infections like dysentery, diphtheria, scarlet fever and pneumonia,” she told Fox News Digital. Children who survived into adulthood often succumbed to infections like tuberculosis, cholera and typhoid fever.
Maternal mortality has also fallen dramatically over the past century due to advances in antibiotics, blood transfusions and safer obstetric care, according to the CDC.
Milestones in public health
Kazanjian pointed to several key advancements over the centuries that contributed to longevity improvements, including the development of early municipal water systems that provided cleaner drinking sources.
“Sewer system networks were built, the first in Brooklyn in 1857,” she said. “These allowed people to drink clean water and dispose of waste. Indoor plumbing with toilets and bathrooms became more widespread.”
“Without antibiotics and vaccines, many infectious diseases, such as measles, smallpox and pneumonia, were deadly.”
At this time, people’s understanding of disease started to improve, and public health measures were developed to minimize risk.
During the late 1800s, germ theory became widely accepted in medicine and public health, helping shape the Sanitary Era, the expert said.
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“The Federal Quarantine Act of 1878 allowed the government to prevent spread of infection from out of the country, from epidemics like yellow fever,” she said. “Food safety regulations went into effect in 1906, when the Pure Food and Drug Act and Federal Meat Inspection Act were passed.”
By 1900, the average life expectancy was about 49 years old, according to the National Vitals Statistics Report.
Another major landmark in increasing lifespan came with the development of vaccines and antibiotics to prevent and treat disease, Kazanjian noted.
One major landmark in increasing lifespan came with the development of vaccines and antibiotics to prevent and treat disease, experts say. (iStock)
“Jenner developed the smallpox vaccine in 1796, Pasteur created vaccines for rabies and anthrax in the 1880s, and several scientists created vaccines for polio, measles, influenza, mumps and rubella in the mid 1900s,” she said.
“Antibiotics proliferated in the 1940s, specifically penicillin and tetracycline. By 1950, the US life expectancy was about 68 years old.”
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From the mid-20th century to 2014, life expectancy continued to rise, Kazanjian said, largely due to “major gains” in medical knowledge of ways to prevent heart disease and stroke.
Public health campaigns promoting smoking cessation also played a role, as declining smoking rates helped reduce deaths from lung cancer, heart disease and stroke, according to the CDC.
“Motor vehicles became safer and carseats became staples,” Kazanjian noted.
Modern longevity is more focused on preventing chronic disease and less about surviving childhood infections. (iStock)
According to the National Institutes of Health, advances in emergency medical services and trauma care have substantially reduced deaths after serious injuries.
Development of pharmaceuticals for cardiovascular disease and cancer also contributed to longer lives, according to Kazanjian.
Today’s longevity challenges
Modern longevity is more focused on preventing chronic disease and less about surviving childhood infections, noted Nneoma Oparaji, MD, a triple board-certified media physician specializing in obesity, lifestyle and internal medicine.
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“The next frontier will be less about living longer, but more about living healthier longer,” Houston-based Oparaji told Fox News Digital.
Kazanjian pointed out that between 2014 and 2026, there has been a fall and a rise in lifespan.
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“The fall was due to young adult deaths from drug overdoses, particularly the opioid epidemic, suicides and alcohol-related deaths,” she told Fox News Digital.
The COVID-19 pandemic reduced U.S. life expectancy by more than two years between 2019 and 2021 before it began recovering, CDC data shows.
Advances in sanitation, clean water, nutrition, vaccination and medical care have contributed to lower mortality rates. (iStock)
Although U.S. life expectancy has rebounded since the pandemic, it remains below that of other high-income countries, largely because of higher death rates from chronic diseases, substance use and other preventable causes, according to KFF.
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Obesity rates also continue to climb, contributing to higher numbers of cardiovascular disease, diabetes and cancer, Kazanjian said.
“Most concerning is the rise in obesity in children,” she added.
“The next frontier will be less about living longer, but more about living healthier longer.”
Changing cancer trends are also affecting lifespan among younger adults, data shows.
“My generation, the millennials, has seen an unprecedented rise in young adult cancers, particularly colon and breast,” Kazanjian said, citing factors that include sedentary lifestyles, poor diet, alcohol, obesity and smoking, among others.
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The doctor said she aims to raise public health awareness of ways to improve lifespan.
“We need to get off our screens, move around more, eat a whole food, plant-based diet, sleep seven hours a night, do our screening exams, and avoid toxins like alcohol and cigarettes.”
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Dr. Mike Varshavski joins ‘Fox & Friends’ for Wellness Week, examining trending self-care treatments. He evaluates IV vitamin therapy, highlighting its hospital-critical role versus unproven benefits for general wellness, citing potential risks like vitamin imbalance. Dr. Mike also differentiates creatine, a research-backed supplement, from unregulated peptides marketed with unverified anti-aging and muscle growth promises, urging caution for patients.
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We are officially living in the “maxxing” era.
From “looksmaxxing” to improve appearance to “sleepmaxxing” for better rest, these viral terms all point to the same goal: squeezing every ounce of potential out of a specific trait or habit.
With a growing focus on optimizing wellness and maximizing longevity, the trend has evolved into what’s known as “humanmaxxing,” sparking a bigger question: How far can people go to optimize the human body?
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While there is no single definition of humanmaxxing, the trend generally refers to efforts to optimize health, performance and longevity through a combination of lifestyle habits, health tracking, supplements and, in some cases, more experimental interventions.
While there is no single definition of humanmaxxing, the trend generally refers to efforts to optimize health, performance and longevity through a combination of lifestyle habits, health tracking, supplements and, in some cases, more experimental interventions. (iStock)
For some, the movement begins with biohacking. According to Dave Asprey, a Texas-based wellness expert who refers to himself as the “father of biohacking,” optimizing your body starts with changing your environment.
Asprey has defined biohacking as “the art and science of changing the environment around you or inside you so that you have full control of your own biology.”
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His public advice focuses on boosting cellular energy through everyday choices like intermittent fasting, high-fat diets, red-light therapy and supplement routines.
“My goal right now is 180 years, because I’m doing something about it now instead of waiting,” he once said.
Clinical experts warn that extreme self-experimentation skips the rigorous safety checks that typical medical science requires. (iStock)
Others have embraced a more data-driven approach. Tech entrepreneur Bryan Johnson, creator of the multimillion-dollar longevity project Blueprint in Los Angeles, argues that optimizing the body means removing human error from health decisions and instead relying on medical data.
“Methodically, we sought to build an algorithm with science and data that could better care for me than I can myself,” Johnson wrote on his website. “My mind did not have the authority to override the algorithm.”
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Johnson’s routine involves tracking hundreds of health metrics, eating a precisely measured diet, taking dozens of supplements, and undergoing advanced medical treatments in an effort to reduce his biological age.
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At the far end of the spectrum are those investing in technologies aimed at pushing the limits of human performance.
London-based tech investor Christian Angermayer recently described humanmaxxing as a strategy toward human maximization.
Tech entrepreneur Bryan Johnson, creator of the multimillion-dollar longevity project Blueprint, argues that optimizing the body means removing human error from health decisions and instead relying on medical data. (iStock)
“I don’t think we should become something different, because I think humans are awesome, but I think we can maximize the potential [that] is already in us,” he said in an interview with The New York Times.
Angermayer’s investment firm, Apeiron Investment Group, focuses on technologies intended to help people “live longer, healthier and more fulfilling lives.” He also founded atai Life Sciences, a biotechnology company that develops psychedelic treatments for mental health conditions that are currently being evaluated in clinical trials.
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As interest in humanmaxxing grows, mainstream health experts urge consumers to separate evidence-based wellness practices from experimental interventions.
Public guidance from the National Institute on Aging notes that while some anti-aging therapies have shown promise in laboratory research, there is not yet sufficient evidence that they can safely extend human life.
As interest in humanmaxxing grows, mainstream health experts urge consumers to separate evidence-based wellness practices from experimental interventions. (iStock)
Clinical experts also caution that extreme self-experimentation can bypass the rigorous safety standards applied to conventional medical treatments.
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According to the Endocrine Society, taking substances such as testosterone or growth hormone without a medical need can lead to serious health risks, including cardiovascular complications and long-term disruption of the body’s chemical balance.
While many humanmaxxing habits overlap with standard healthy lifestyle practices, experts say consumers should be cautious of expensive or experimental interventions that promise dramatic anti-aging or longevity benefits without strong scientific evidence.
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